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Old 02-09-2011, 10:31 PM   #1
CeraMomof3
Earning My Ears
 
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Mila is going to meet MICKEY! MAW

My name is Sarah, and I am mom to 3 beautiful kids. Robby is 6.5, Mila is nearly 4, and Shayla turns 2 in May .

Mila was born " healthy " but was anything of the kind. Just before her first birthday, she was diagnosed with a rare and deadly heart defect, and spent 5 weeks in the hospital. A year later, she was diagnosed with a brain defect and had two surgeries ( eight months apart ). She was granted a wish in August and is just now healthy enough to take it! We're going to disney!

Our dates are March 3-11, and we are staying at Give Kids the World.

This is Mila :


I am very clueless about Disney in general! HELP ME! The only thing we have " scheduled " is BBB on March 4 at 10:30.
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Old 02-09-2011, 10:46 PM   #2
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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You started your PTR!!! I can't believe Lisa and Mila have something in common (esp. since it IS so rare), thanks for the PM. Praying tomorrow goes well!

Last edited by blessedmom4; 02-09-2011 at 11:01 PM. Reason: typo
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Old 02-10-2011, 12:53 AM   #3
visitingapril09
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So glad you started a trip report. I am subbing, which means that I will get emails when you update.
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Old 02-10-2011, 12:55 AM   #4
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Keeping Mila in my thoughts and prayers tomorrow. Boy...I can't believe how big she is getting.Wasn't she only like 1 when you joined P2P
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Kris.. Mommy to 5 kiddos...
Kerri-19,Korissa(wish Child) 17, Kyra 15, Steven 11, Kylee 8 (post wish child),
PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

http://www.facebook.com/HopeforKylee
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Old 02-10-2011, 01:10 AM   #5
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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PRINCESS

You are BEAUTIFUL!
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Old 02-10-2011, 05:03 AM   #6
kailatilear
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I made it over to your PTR!!!!!!!!! Mila is beautiful. I am praying for you all today and hoping that everything turns out with good news Lots of hugs for her and you today!!!!!!!!!!
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Read about Abby's PTR


http://www.disboards.com/showthread.php?t=2587282

Wish Trip Dates

Feb 24-March 2, 2011
So sad it is over, but wonderful memories were made and awesome smiles and lots of happy tears!!!

Mom Dad Kaila Tilear Abby
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Old 02-10-2011, 05:16 AM   #7
jwallaceent
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Welcome, I am new to this Disney thing too! But let me say everyone on here has soooo much information and alot of ideas and will help you plan the perfect trip! Your Mila is absolutely BEAUITFUL!! Her smile just lights up the room! Wishing you all the very best!
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Chelsie Lynn (Age 14)
William "Dustin" (Age 11)
Brooke Marie (Age 3)

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(under construction)

Brooke's PTR

Brooke's Trip Report

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Old 02-10-2011, 06:13 AM   #8
jj0plin
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Welcome! Mila is beautiful! Looking forward to reading your PTR!
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Old 02-10-2011, 07:26 AM   #9
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Hi! I just wanted to let you know that I'm subbing, and keeping your beautiful family in my prayers today.
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Miracle girl Gloria Joy (DD6)



WE'RE GOING TO DISNEY!!! 2/27/11 TO 3/5/11!!!
Glo's PTR:http://www.disboards.com/showthread....4#post37981164

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Old 02-10-2011, 08:05 AM   #10
CeraMomof3
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I'm feeling the love!!!

And yes... Mila wasn't even 1 when I joined p2p... I joined just after she was 6 months. I wasn't very active on the medical boards until she was diagnosed with ALCAPA... Doesn't she look healthy? That grin will be the death of me - If you are sick, LOOK sick!

Talk to me about strollers... buy one there? Bring one from home? Rent one? Mila will need one for sure ( she is not good with long distances ) and Shayla will need one because she'sn ot even 2 ). I am bringing a good babycarrier ( or three or four ... ) But we will need to do SOMETHING other than mom carries Shayla the almost 2 year old on her back the whole time!

IN an hour, Mila leaves my house with Daddy to see the surgeon. AGH. I don't think I can do this. I'm almost glad I can't go this time because even thinking about CALLING the neurosurgeon makes me nauseous!

Anyway, thanks everyone!
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Old 02-10-2011, 08:07 AM   #11
wishin' on a star
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Following along!
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Laura (me!) Dave (DH) Carmella 11 Catherine 10 (MAW princess in 2010!) John 8
Make-A-Wish PTR Catherine's MAW TR
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Old 02-10-2011, 08:31 AM   #12
jj0plin
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Quote:
Originally Posted by CeraMomof3 View Post
Talk to me about strollers... buy one there? Bring one from home? Rent one? Mila will need one for sure ( she is not good with long distances ) and Shayla will need one because she'sn ot even 2 ). I am bringing a good babycarrier ( or three or four ... ) But we will need to do SOMETHING other than mom carries Shayla the almost 2 year old on her back the whole time!
Our MAW coordinator asked if we'd need a double stroller and told me that GKTW would arrange for us to have one. You also have the option of getting ones from the park for free, but they may not be the most comfortable... especially for napping.
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Old 02-10-2011, 08:43 AM   #13
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Did I mention you are leaving on Lisa's Birthday? AND, it will be CHRISTMAS at GKTW that night, you will NOT want to miss it from what I have read...it will be AMAZING!!!

Praying for EXCELLENT news for Mila today, then you can REALLY start to feel excited! It is only three weeks away (we have a countdown to that date as well)
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Old 02-10-2011, 09:14 AM   #14
4monkeys
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Joining in as well. Praying for good news today. Mila is adorable.... her smile is contagious. If you have a stroller they prefer it may be worth taking. The ones at the park are hard. I agree that they might not be to comfortable for napping. I know gktw has some to use there (but not to take to parks)
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Old 02-10-2011, 09:16 AM   #15
CeraMomof3
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About Christmas....

We don't celebrate Christmas ( We are Jewish ). I worry that my kids will spoil it for someone else by telling them that Santa is not real. Should we plan on skipping it?
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