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Old 02-03-2011, 02:03 PM   #1
Shellyplus4
Earning My Ears
 
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Mattie's MAW PTR

New here.. Hopefully I am getting this right.

My daughter Mattie was approved for MAW several months ago. I believe we started the process about 9 months ago. Honestly this last year has been so crazy that I have lost track. We got the call that her volunteers will be coming out on Saturday to get Mattie's wish and to have us fill out the remaining paperwork. Mattie has gone back and forth about what she is going to wish for, but seems to have finally settled on Disney. I am thrilled to be a part of this board. Both my husband and I have been to Disney in the past, but were both children at the time. I think I was 8... needless to say, it has been a while.

Mattie has multiple health issues that for the most part fall under the diagnosis of both klippel- feil syndrome, and mitochondrial myopathy. Feel free to click on her caring bridge link to read more about her.

This is me!

My hubby, Steve

Mattie (10), Alyssa (12), and James (9)

Rufus and Lambie - Lambie always goes with us for icky stuff. Rufus was on loan from James




Alyssa (12), Mattie (10), and James (9).

Shelly

Last edited by Shellyplus4; 02-03-2011 at 09:09 PM. Reason: adding photos
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Old 02-03-2011, 02:10 PM   #2
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Well darn... my picture showed up as a link... and my signature line didn't show at all. I will try to sit down tonight and figure this all out.
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Old 02-03-2011, 02:32 PM   #3
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Subscribing!!!
Your family is BEAUTIFUL!! Looking forward to reading all about your plans!


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Old 02-03-2011, 03:41 PM   #4
cogero
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your kids are gorgeous
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Etsy ID: ChiarasCouture2014 here we come... WDW, a cruise, F&G and more!!! Why don't we make this trip report about 2012 & 2013.
Christmas & My Happy Place Equals Perfection. - A Dec 2011 PTR
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Old 02-03-2011, 03:52 PM   #5
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Hi Shelly!! So glad you found this. I can't wait to keep up on all the plans for Mattie's wish!
Your fellow "Mito-Mommy" Suzanne
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http://www.disboards.com/showthread.php?t=2263732
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Old 02-03-2011, 09:32 PM   #6
Shellyplus4
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Quote:
Originally Posted by 2specialkids View Post
Hi Shelly!! So glad you found this. I can't wait to keep up on all the plans for Mattie's wish!
Your fellow "Mito-Mommy" Suzanne
Thanks! We are so excited!

Quote:
Originally Posted by cogero View Post
your kids are gorgeous
Thank you, they are keepers!

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Subscribing!!!
Your family is BEAUTIFUL!! Looking forward to reading all about your plans!
Thank you! Hopefully I will get the hang of the board!


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Mattie's Caring Bridge Site

Mattie's MAW PTR
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Old 02-03-2011, 09:52 PM   #7
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Quote:
Originally Posted by Shellyplus4 View Post
Thank you! Hopefully I will get the hang of the board!
You will! I am STILL learning all of the computer stuff, thanks to some GREAT Dis'ers! Ask any questions you have (especially on the Wish Trip thread, so they will be seen). Just this weekend I learned how to post links, thanks to two super people!
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Old 02-03-2011, 10:03 PM   #8
Shellyplus4
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Quote:
Originally Posted by blessedmom4 View Post
You will! I am STILL learning all of the computer stuff, thanks to some GREAT Dis'ers! Ask any questions you have (especially on the Wish Trip thread, so they will be seen). Just this weekend I learned how to post links, thanks to two super people!

Which thread is the wish trip thread? ... sorry.. I am still lost.
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Mattie's Caring Bridge Site

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Old 02-03-2011, 10:39 PM   #9
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Quote:
Originally Posted by Shellyplus4 View Post
Which thread is the wish trip thread? ... sorry.. I am still lost.
Where you posted yesterday about being new to the DIS boards (Your first "real" post after you posted your 10) .

Try this link: Wish Trippers Thread


Hope it helps!
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Old 02-03-2011, 11:07 PM   #10
Shellyplus4
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Quote:
Originally Posted by blessedmom4 View Post
Where you posted yesterday about being new to the DIS boards (Your first "real" post after you posted your 10) .

Try this link: Wish Trippers Thread


Hope it helps!
Thank you!
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Mattie's Caring Bridge Site

Mattie's MAW PTR
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Old 02-03-2011, 11:37 PM   #11
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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My pleasure. Have fun exploring!
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Old 02-04-2011, 04:52 AM   #12
PenelopeL
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I'm looking forward to reading all about Mattie's trip! MAW really knows how to make things special!
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Old 02-04-2011, 02:02 PM   #13
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So exciting, looking forward to following your journey!!
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Old 02-05-2011, 05:25 PM   #14
Shellyplus4
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MAW came for a visit

Mattie's MAW volunteers came out to the house today. They brought the remaining paperwork for us to fill out. They also went over Mattie's wish with her. They said most likely we will have the wish approved next week. She is so excited. They had the GKTW forms with them when they came out. We filled everything out.

Mattie was shy at first, but eventually came out of her shell. She played the piano for them and even talked to them about her Bieber Fever! Here are a couple of pictures from their visit.

Mattie with her MAW volunteers

maw volunteers by ShellyPlus4, on Flickr

Mattie filling out her wish form.

wish form by ShellyPlus4, on Flickr
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Mattie's Caring Bridge Site

Mattie's MAW PTR
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Old 02-05-2011, 05:28 PM   #15
Shellyplus4
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Quote:
Originally Posted by PenelopeL View Post
I'm looking forward to reading all about Mattie's trip! MAW really knows how to make things special!
Thanks for reading along! I am so excited about everything MAW told us today. It is more than I could have wished for.

Quote:
Originally Posted by Mom2Miracles View Post
So exciting, looking forward to following your journey!!
Thanks for reading along. Hopefully I get the hang of this enough to follow along with other people's journeys!
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Mom to Alyssa , Mattie (wish kid) , and James



Mattie's Caring Bridge Site

Mattie's MAW PTR
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