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Old 03-08-2012, 09:27 PM   #91
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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I know Jonathan wasn't always "into it" but look at that smile on his face with BUZZ!!!! I am so happy you are finishing this and I know you feel you have forgotten some of it, but look at the memories you ARE preserving! I am hoping things are at a good place medical wise (I know, are they ever...it does seem some illnesses get to be pushed to the back and others are never ending...). Thank you for letting me know you posted a new update! Looking forward to a PTR for this latest trip!!!!
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Old 03-08-2012, 09:50 PM   #92
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Thanks for continuing to stop by. I feel terrible for just stopping my TR and feel like I abandoned those that were so generous during our MAW planning. I am so in awe of those women!!

I will make a post to fill in on 2011 and what kept me preoccupied. Although it will seem like nothing to some. It was quite overwhelming to me. Allison has been on home bound for school for the last few weeks from a flare up. She will go back monday. I am hopeful that it isn't too soon. We are actually trying to figure out if it's chrohns or a viral illness that has made her so sick. Unfortunatey, it looks like another failed treatment so we will be going to Boston Children's hospital soon.

Will keep reading your posts!! Thanks again for coming back! (I am reading your friend Lisa's 2011 birthday trip)
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Old 03-09-2012, 04:29 AM   #93
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Originally Posted by 4monkeys View Post
Thanks for continuing to stop by. I feel terrible for just stopping my TR and feel like I abandoned those that were so generous during our MAW planning. I am so in awe of those women!!

I will make a post to fill in on 2011 and what kept me preoccupied. Although it will seem like nothing to some. It was quite overwhelming to me. Allison has been on home bound for school for the last few weeks from a flare up. She will go back monday. I am hopeful that it isn't too soon. We are actually trying to figure out if it's chrohns or a viral illness that has made her so sick. Unfortunatey, it looks like another failed treatment so we will be going to Boston Children's hospital soon.

Will keep reading your posts!! Thanks again for coming back! (I am reading your friend Lisa's 2011 birthday trip)
Amy, let any guilt go! You know better than most just how hard it is to deal with medical "stuff", a family and life in general. I look forward to seeing how the family is doing and it is like I always say, NOBODY's LOAD is heavier than anyone else's it is just DIFFERENT! I can't believe ANYBODY could't see what you have to do each and every day...unless they have NEVER had to deal with chronic illness, then I could see a lack of knowledge..but that is OKAY! You don't owe anybody anything, except for your family! for Allison and an accurate diagnosis! In the meantime, keep writing, planning and dreaming! You deserve that!
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Old 03-09-2012, 09:09 AM   #94
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Thank you for sharing the rest of your trip... and I'm thankful for the Photopass considering your camera broke!... and don't worry about how long it has taken... we all understand! Take care!
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Old 03-09-2012, 09:56 AM   #95
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.Welcome back!! I still have 3 more days to go. But it feels great to get it all down. I just got out the wish trip bag. Love looking through it. Going to post a recent pic of my kids and go. The baby is trying to close my computer
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Thank you for sharing the rest of your trip... and I'm thankful for the Photopass considering your camera broke!... and don't worry about how long it has taken... we all understand! Take care!
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Old 03-09-2012, 09:57 AM   #96
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Hi ! Joining in.

My son, Jayden, also wished to go to Harry Potter world and we're going next month ! Too bad it was SO cold for your trip. But looks like you all had a great time regardless !
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Old 03-09-2012, 10:06 AM   #97
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Talking My kids December 2011

Just wanted to show off my cuties! This was taken right before Christmas. LOVE LOVE LOVE my kids!!

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Old 03-09-2012, 10:16 AM   #98
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Hi ! Joining in.

My son, Jayden, also wished to go to Harry Potter world and we're going next month ! Too bad it was SO cold for your trip. But looks like you all had a great time regardless !
We did have a blast. It was definetly challenging with the weather. But we made the best of it. Heading over your way...
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Old 03-09-2012, 10:30 AM   #99
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Hi Amy, your kid's are ADORABLE! I will be back to read a bit later, but wanted to let you know I'm here!!

hope you have a great day


ok all caught up on your trip posts!
love seeing the kids happy faces with the charactes, yes even grumpy faces too! love the one with Christopher and mickey!

bummer about your camera and not getting photos, at least you made some wonderful happy memories!!!

how cool to get a group photo with all the Marvel characters!

looking forward to reading more when you have time to update!

hoping Allison is feeling better!!!
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Old 03-09-2012, 10:10 PM   #100
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Post 2011 year in review

So some of you have followed since our PTR in 2010. We had a lot of support and great help from the generous DISers!! Love this site! We went on Allison's wish trip, had a blast, came home... got ready for Christmas, got sick... celebrated New Years. Allison got sick AGAIN. Planned for Surgery, got the TR started... Left off in March just before Allison's sinus surgery.. The ENT said her ct scans were the worst 12 year old sinuses he had seen and hadn't improved but got worst in the six months since the last one. She went on 2 months of antibiotics before the surgery.



She recovered nicley!! We prepped the house by pulling ALL the rugs out and get air filters for the main living areas and her room. Put all new bedding for allergies on her bed. She seemed set. Jonathon had been having problems with asthma so the rugs should take care of him too!

In April we went to visit family for Spring Break. It worked out great. Easter, Christophers first birthday, my birthday and my moms were all celebrated! We also through a trip to Hershey Park in from our GKTW passport!!







Allison got very sick mid way through our park visit. We ended up pushing her in the stroller to a video arcade where we waited for first aid with wheelchair and then headed to first aid. She was miserable. We knew when we were headed to MD she s was beginning to have a flare up, but when she had a 103 fever we were shocked!! After giving her tylenol and getting her situated they took us by ambulance to our van. Always an adventure!

My computer is being slow... so we will pick up with May!

Think I forgot to mention.. Christopher began having feeding issues again while on her wish trip, so when we got back he started feeding therapy again in January. He "graduated" in September when they switched him to speech therapy. He has come a long way with his speech and is closer to age appropriate!!

Jonathon had a lot of problems with stridor. They thought he had a problem with his larynx vs. asthma. Luckily it has gotten much better. We were tired of ER visits



Sometime in may a tree came down in our yard. Luckily the cars weren't damaged. Our pool was rusted through and had to be replaced...



Good news is the kids got a HUGE sandbox while we waited for the new pool!



Alli had her dance recital


School got out, the kids and I got busy with summer activities. Brian was cleared medically from all that had been going on in 2010. We saw Harry Potter



Went to Busch gardens using GKTW Passport


Allison went to Victory Junction in July, right after what would be her last IV infusion for IBD.



After camp she was not feeling well, had very little energy and pulled away from friends. We didn't do much except play in the pool and go to dr appointments. The end of August she got worst and ended up in the hospital the beginning of Sept. She was discharged after 2 nights and we drove Daddy straight to the airport to go out of the country. 2 days later she was readmitted for over a week. Luckily my mom was able to come stay with the 3 boys. We have now had 4 failed treatments and are trying to determine if this latest treatment plan is also a failure.



Jonathon broke his foot, and month later knocked two teeth into the wrong position in the front of his mouth. Always something!


I had a virus that caused an almost anaphylactic reaction and I had to go to the ER for Epinepherine. NOT FUN!! The holidays came and went, Allison flaring several times. We got a HUGE surprise for Christmas. A week in DH's parents Florida condo!! Woo HOO!! we get to go back to disney!! Come Check out my new PTR. GOING BACK TO DISNEY AND GKTW! I promise to finish this TR!!

We are currently waiting to see how Allison does weaning off Prednisone (4th attempt since Sept all failing and causing flares the we go back up on the meds.) if this doesn't work she will be referred to Boston Children's Hospital!!!


Last edited by 4monkeys; 03-10-2012 at 01:57 PM.
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Old 03-10-2012, 01:21 PM   #101
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Quote:
Originally Posted by mommy2mrb View Post
Hi Amy, your kid's are ADORABLE! I will be back to read a bit later, but wanted to let you know I'm here!!

hope you have a great day


ok all caught up on your trip posts!
love seeing the kids happy faces with the charactes, yes even grumpy faces too! love the one with Christopher and mickey!

bummer about your camera and not getting photos, at least you made some wonderful happy memories!!!

how cool to get a group photo with all the Marvel characters!

looking forward to reading more when you have time to update!

hoping Allison is feeling better!!!
Thanks for coming over. Jonathon did have his moments of pure joy, sometimes the weather overshadowed all of that!! one of his favorites was the marvel characters. They saw Allison's GKTW button and asked if we wanted a meet and greet and took us to a "secret" location. Ha Ha.. it was great!
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Old 03-10-2012, 03:22 PM   #102
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oh my what a year you have had .... hope everyone has been healthier this year

will go check out your new thread!

hope you are having a good weekend
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Old 03-14-2012, 02:13 PM   #103
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Day 5 December 16 Wish upon a Star

Day 5 December 16 Wish upon a star


Today turned out to be quite a busy and VERY exciting day for more reasons that one!! Early to rise, showers, dressed and off to get some ice cream for breakfast. Next stop the Castle of Miracles. Time for Allison to wish upon a star. Truly a magical moment at Give Kids The World!!

Allison decorating her star


Making her Wish


To this day I still get teary looking at the pictures. I still don't know what she wished for that day, but I certainly hope it came true for her!


Off to see the Disney Characters on the GKTW grounds







Now we are off to Disney Hollywood Studios. The best part, our dear dear friends that moved to Pensacola decided to visit while we are here. And they are meeting us there!!





My BFF Julie meeting Christopher for the first time!



The kids after not seeing each other for a year


The kids wanted to ride the Tower of Terror and Rock N' Roller Coaster first. Jonathon even rode the Tower of Terror. Mommy rode the Rock N' Roller coaster. First ride since on the Wish trip.

We waited in front of this Mickey while Daddy got lost.


At least we thought. Turns Out he was getting Alli a little gift.




SO SWEET. Made me cry!



Alli and Christopher meeting Mike


Alli Jonathon and Andrew meeting McQueen and Mater (notice Jonathon's Shirt?)



Alli and jake


It was getting late and we had big plans for the evening. Time to say Goodbye to Julie, Lance, Austin, Miranda, and Andrew until tomorrow!!


WHERE DID WE GO NEXT???? Wait for the next post!!
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Old 03-14-2012, 02:28 PM   #104
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how fun to meet up with friends

love the necklace Brian bought for his girl


and Amy on a personal note....thank you for signing up to make some blankets for our orphanage...so appreciate it!
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Old 03-14-2012, 02:41 PM   #105
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Talking Day 5 December 16 Wish upon a Star~ Part 2

Day 5 December 16 Wish Upon a Start Part 2

Forgot to post these in the last post...







So we left off as we were leaving DHS. Give Kids The World has many different adventures offered to the wish families staying at the village!! We decided to take advantage of one... INDOOR SKY DIVING!! Everyone except Christopher and I participated. But we did go up to the viewing room and watched everything they did. We got pictures and DVD as part of the package! They All had a BLAST!!









Sorry the pictures aren't better. What a great day! Such wonderful once in a lifetime memories were made! Back to our villa to order, yes you guessed it... Pizza!!!! Then off to bed. Another busy day tomorrow. Meeting back up with our friends to go to Universal!
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