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Old 02-03-2011, 05:21 PM   #61
tinytreasures
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Quote:
Originally Posted by kayrosek View Post
Just found your PTR. So glad I found it.. Looks like you have an Amazing family and I'm so glad Avy will be getting a wish.
thanks for stopping by

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I hope you hear from MAW soon, I know you are eager!

Looks like we were thinking about each other at the same itme last night.
great minds like alike
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Old 02-05-2011, 05:12 AM   #62
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WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Stopped by to see if you heard anything yet...
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Old 02-05-2011, 10:45 AM   #63
Corrine 1973
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Just wanted to pop in and say hi. You are truely a remarkable mother to take so many children into your heart and home. I saw abby's story and it melted my heart. Part of the reason is because premiee children have a soft spot in my heart. I found out I was pregnant just after we got back from my son Liam's wish trip back in September 2009. Unfortunalty due to medical complications he was born at 26 weeks and 5 days. He was in the hospital for 14 weeks and came home with a feeding tube but luckily was off of it about a month later. He is now 11 mo old (today) and is doing very well. Of course he is far behind kids his age, clorer to that of a 7 mo old, but I am just happy he is doing as well as he is.

Can't wait to see more of your pre-trip. Lots of Love, Corrine
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Old 02-05-2011, 05:04 PM   #64
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Stopped by to see if you heard anything yet...
thanks I needed that
I am so sick today. I feel like a truck hit me then just stayed on top of me
Mommies are not suppose to be sick.

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Just wanted to pop in and say hi. You are truely a remarkable mother to take so many children into your heart and home. I saw abby's story and it melted my heart. Part of the reason is because premiee children have a soft spot in my heart. I found out I was pregnant just after we got back from my son Liam's wish trip back in September 2009. Unfortunalty due to medical complications he was born at 26 weeks and 5 days. He was in the hospital for 14 weeks and came home with a feeding tube but luckily was off of it about a month later. He is now 11 mo old (today) and is doing very well. Of course he is far behind kids his age, clorer to that of a 7 mo old, but I am just happy he is doing as well as he is.

Can't wait to see more of your pre-trip. Lots of Love, Corrine
Hi Corrine I read Liam's report but missed that you had a baby
Congrats on your new son (a little late)
Avy is our miracle baby, which I am sure you feel the same way about little miracle too
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Old 02-05-2011, 07:19 PM   #65
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OH WOW! WOW! PTL and WOW! you're story brought tears and smiles, thank you so much for sharing. I wonder if a cooling vest my be appropriate for your daughter. THere's multiple conditions that are exacerbated by heat...I know Ive heard of vests that help keep the body temperature regulated. If I remember anything else I'll send the info your way. maybe you can google it. What a fabulous family you have. wishing you all the very best of all GOd's blessings!
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Old 02-06-2011, 08:38 AM   #66
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OH WOW! WOW! PTL and WOW! you're story brought tears and smiles, thank you so much for sharing. I wonder if a cooling vest my be appropriate for your daughter. THere's multiple conditions that are exacerbated by heat...I know Ive heard of vests that help keep the body temperature regulated. If I remember anything else I'll send the info your way. maybe you can google it. What a fabulous family you have. wishing you all the very best of all GOd's blessings!
Thanks for stopping by.
I may do the neck things that you get wet then put around your neck. I have seen them at craft shows. I may just make them for all the kids
The dump water over her head trick works really well and we can hit some water ride too.
Loving your report so far I can't wait to read more
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Old 02-06-2011, 03:37 PM   #67
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I am so happy for you and I am sure she will have the trip of a life time
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We are back from GKTW - will start TR soon]And now working to plan another trip for October or next January
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Old 02-08-2011, 04:21 AM   #68
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WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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thanks I needed that
I am so sick today. I feel like a truck hit me then just stayed on top of me
Mommies are not suppose to be sick.
I hope you are feeling MUCH better by today!! I know you don't have time to be sick!
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Old 02-08-2011, 11:08 PM   #69
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I hope you are feeling better. You are one Amazing mommy.
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Old 02-09-2011, 06:28 AM   #70
blessedmom4
WE BELIEVE IN MIRACLES! ~~Nearly twice as many children die from Congenital Heart Defects in the U.S. each year as die from all forms of childhood cancers combined.
 
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Thinking of you!

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Old 02-09-2011, 12:57 PM   #71
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I hope you are feeling MUCH better by today!! I know you don't have time to be sick!
Thanks

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I hope you are feeling better. You are one Amazing mommy.
I am better now. I had a fever of 102.5 and wow I was wiped right now for about 3 days. I'm stuck dealing with a sick husband and 2 boys that are playing the "man sick game" those to boys are way worse then my husband ever has been. I feel bad for their wives one day. I am mean and didn't play into them but wow they put on a good show
Avy is the only one that has not been hit yet with the crud, but she is super tired so I hope she just fighting it that way.
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Old 02-10-2011, 03:58 PM   #72
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Hope you get the official word and dates soon!!!!
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Old 02-10-2011, 05:25 PM   #73
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Hope you get the official word and dates soon!!!!
Thanks
I hope your wish granter contact you soon to come see your little miracle
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Old 02-10-2011, 09:33 PM   #74
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Small update
I emailed Make a Wish today, to find out if they had a update for us. The cool thing is I found out we will get to have the same worker we had for Jason. We were told we had a different worker. She told me that they are waiting for the board to approve her wish, then she would get a hold of me right away to pick out dates. She also told me she pulled out all of Jason's paperwork and moved it over to Avy's file so we shouldn't need to fill out anything.
She said she was so excited to be working with us again, I told her not as happy we are. The other worker was so hard to get a hold of. I know I will get emails back within mins with this worker


Kid updates
Everyone of us had the crud here for the last week but I think we are turning the corner. Only grandma made it through without getting sick. Keep your fingers crossed she doesn't get it because she is having surgery on monday for her broken toe (that mean old bed just attacked her)

Last week the wheelchair vendors brought over tester wheelchairs for Avy and Hayden. We loved Avy's and hated Hayden's
So we are getting both of them quickie 2's if we can get insurance to pay for them. It will be a close one to get them in time for out trip. Wow 3 wheelchairs in the back of my mini van just doesn't work, so Jason's will have be be stuffed in under the kids feet. Hayden ordered a cool white one that glows in the dark. Avy ordered a hot pink one. I was shocked she went for pink but the purple was a awful color and the vendor talked her into pink instead. He said that the pink was way cooler so she went for it
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Old 02-11-2011, 04:38 PM   #75
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O.k. so I only read your first post because I have to go cook. *must get off Disboards....must get off Disboards....must get off Disboards*

But anyways, I want to keep up with Avy's MAW trip!!! How awesome you are to adopt special needs children!!
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