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Old 09-12-2010, 12:59 PM   #1
kissesbykim
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Tylers MAW trip Oct 6-12

This is our pre-wish report. There are no word to explain the extreme excitement going on in our house! Let me tell you a little about us!

Tyler oh Tyler....born on April 27, 2004 it seems like there has always been something with him. Nothing really life threatening until 8 months ago but a struggle none the less. Surgery at 6 weeks for an abscess, speech and language delays, not meeting his developmental milestones, ADHD and diagnosed with sensory processing disorder. When our life finally settled down and he was doing well in preschool, we decided to try for a second child. We had AJ on March 17 2009. Our house had calmed down a bit, Tyler was doing well in school and we had a new baby boy around. At 5 months, AJ had his first seizure. Really? I thought that was the worst day of my life. Then at 9 months, we unearthed a vicious egg allergy. Ugh, eggs..well, we've survived! Then, on February 6 2010, Tyler had been acting funny....legs and tummy hurt and he had no energy. After a trip to the ER, we learned he was diagnosed with Acute Lymphoblastic Leukemia.

Our road has been long but without too many bumps. Tyler is thriving on treatment. Although his journey will be long, we thank our stars that this is the kind of cancer he has. We consider ourselves blessed.

Disney has always been Tyler's favorite! Living in California, we've done Disneyland a lot. Just about every 6 months up until Feb. When we asked Ty what he wanted for his wish of course he said "Disneyland"...who knew something better was lurking just a plane ride away! So after showing him pictures of DW, he'd made his decision. Now, if I can just keep my self from stressing about plans and reservations and keep Tyler from exploding from excitement, we will be going on October 6 to October 12.

I'm a little long winded and I love to write so I hope people read! Happy Disney everyone!
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Old 09-12-2010, 01:18 PM   #2
Woth2982
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Hello! My cousin had the same cancer when she was 5. She is now 19 and the star of her college field hockey team! She turned down a FH scholarship to play D3 so she could have a life while in college. Glad to see your son is doing so well! Can't wait to read about your plans!
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Old 09-12-2010, 05:01 PM   #3
kissesbykim
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I wish to go to Disney World, I wish to be Jack Sparrow's skeleton!

So I talked to the MAW DW cordinator and she was giving me the rundown of our vacation. First off...I haven't flown in 12 years. That's right...12 years. The thought of it makes me all jittery . There is so much to do here in California, we always just drive. So I'm a little nervous about the long flight (red eye of course) to Florida. AJ is just 18 months old...I'm hoping that he doesn't scream the whole flight. I need them to sleep. Any suggestions?

The limo to go to the airport will arrive at 9pm on the 5th. We are about an hour away from the airport. We board our plane at 12:12, smack dab in the middle of the night. MAW is giving us a harness set to use on the plane for the baby. After a short layover in Houston, we are going to arrive in Orlando at 10:30.
GKTW sends us a greeter who will help us get our bags and rental car. I'm really glad we have such a late flight, this will give us plenty of time to rest up and enjoy GKTW.

Our first day will be spent at the Village . This will be my DH's second visit to GKTW. He stayed there when he was 15 during his sisters MAW trip (she had Lymphoma). Our wish coordinator said she's heard of people staying there twice but never as a child then as a parent. I think it's neat. There is going to be a lot going on in DW during our vacation and the MK closes early on both Thursday and Friday that week for MNSSHP. Epcot will be hosting the Food and Wine Festival. So we will be at Epcot day one (Thursday). I'm hoping that it isn't crazy crowded. Day 2 (Friday) will be spent at AK and HS. Day 3 we will be spent at DW....MAW has scheduled Tyler and I at the Pirates League, a wonderful activity that will dress us up and paint our faces as pirates . This is what Ty's wish is centered around.

We are really having a difficult time deciding what activities to do next. As most of you know, GKTW gives families tickets to US (2 day passes) and SW. There is also possibilities for Kennedy Space Center, Gatorland, Busch Gardens and other tickets that become available. And I've heard there is so much to do at the Village itself! I have one of those personalities....you know, everything has to be planned out to a T. I understand that this trip I have to leave that part of me behind and just go with the flow. If you have any suggestions about planning something that someone is already planning? Lord help my family!

So, any tips you could afford me would be greatly appreciated. I really like this forum, glad I found you!
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Old 09-13-2010, 11:51 AM   #4
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Just found your trip and am looking forward to reading along. I don't have any real advice for you as to what you should do, just make it all about Tyler and what he wants to do and you will have a wonderful time!
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Old 09-13-2010, 02:07 PM   #5
kissesbykim
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Quote:
Originally Posted by Woth2982 View Post
Hello! My cousin had the same cancer when she was 5. She is now 19 and the star of her college field hockey team! She turned down a FH scholarship to play D3 so she could have a life while in college. Glad to see your son is doing so well! Can't wait to read about your plans!
I'm so glad to hear about your cousin! Wow! Hockey star! I know Ty will bounce back like that too!
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Old 09-13-2010, 02:10 PM   #6
kissesbykim
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Originally Posted by MickeyReeds View Post
Just found your trip and am looking forward to reading along. I don't have any real advice for you as to what you should do, just make it all about Tyler and what he wants to do and you will have a wonderful time!
Oh yes! Ty is definitely the decision maker on this trip! He usually is anyways, nothing makes us happier than to see him happy! I just hope he doesn't wear himself out too much....he doesn't know when to stop and rest! Thank you!
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Old 09-13-2010, 02:34 PM   #7
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We're going the week before you and I know what you mean about wanting to plan! You can see in my PTR that I have tried to make some sort of plan outline. Maybe it will give you an idea.

Good luck!
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Old 09-13-2010, 03:43 PM   #8
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Quote:
Originally Posted by kissesbykim View Post
So I talked to the MAW DW cordinator and she was giving me the rundown of our vacation. First off...I haven't flown in 12 years. That's right...12 years. The thought of it makes me all jittery . There is so much to do here in California, we always just drive. So I'm a little nervous about the long flight (red eye of course) to Florida. AJ is just 18 months old...I'm hoping that he doesn't scream the whole flight. I need them to sleep. Any suggestions?

The limo to go to the airport will arrive at 9pm on the 5th. We are about an hour away from the airport. We board our plane at 12:12, smack dab in the middle of the night. MAW is giving us a harness set to use on the plane for the baby. After a short layover in Houston, we are going to arrive in Orlando at 10:30.
GKTW sends us a greeter who will help us get our bags and rental car. I'm really glad we have such a late flight, this will give us plenty of time to rest up and enjoy GKTW.

Our first day will be spent at the Village . This will be my DH's second visit to GKTW. He stayed there when he was 15 during his sisters MAW trip (she had Lymphoma). Our wish coordinator said she's heard of people staying there twice but never as a child then as a parent. I think it's neat. There is going to be a lot going on in DW during our vacation and the MK closes early on both Thursday and Friday that week for MNSSHP. Epcot will be hosting the Food and Wine Festival. So we will be at Epcot day one (Thursday). I'm hoping that it isn't crazy crowded. Day 2 (Friday) will be spent at AK and HS. Day 3 we will be spent at DW....MAW has scheduled Tyler and I at the Pirates League, a wonderful activity that will dress us up and paint our faces as pirates . This is what Ty's wish is centered around.

We are really having a difficult time deciding what activities to do next. As most of you know, GKTW gives families tickets to US (2 day passes) and SW. There is also possibilities for Kennedy Space Center, Gatorland, Busch Gardens and other tickets that become available. And I've heard there is so much to do at the Village itself! I have one of those personalities....you know, everything has to be planned out to a T. I understand that this trip I have to leave that part of me behind and just go with the flow. If you have any suggestions about planning something that someone is already planning? Lord help my family!

So, any tips you could afford me would be greatly appreciated. I really like this forum, glad I found you!
Hi there and to the disboards. You will be getting lots of great info here. Where in So Cal do you live? We are also from here. We live up in the Antelope Valley. Do you go to CHLA? This will be our second time going to GKTW. Our youngest made a wish to go there and now my second daughter choose to go back. Our first time going there was our first time on a plane. I really don't want to get back on, but will do it for my daughter. I did say direct flight as I may not get back on again...lol
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Old 09-13-2010, 04:49 PM   #9
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Quote:
Originally Posted by Mom2mitokids View Post
Hi there and to the disboards. You will be getting lots of great info here. Where in So Cal do you live? We are also from here. We live up in the Antelope Valley. Do you go to CHLA? This will be our second time going to GKTW. Our youngest made a wish to go there and now my second daughter choose to go back. Our first time going there was our first time on a plane. I really don't want to get back on, but will do it for my daughter. I did say direct flight as I may not get back on again...lol
We actually live in Nor Cal, somewhere between Sac and Tahoe. So we go to Sutter in Sac for care. Thank God for these wish organizations ! They give these children something WONDERFUL to look forward to! As unfortunate it is that you qualify for two wishes, it is such a blessing ! Thank you for reading our PTR! I love this forum!
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Old 09-13-2010, 08:09 PM   #10
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Hello!!

I found your wish trip pre-trip report! I know you guys are going to have a blast!

I put a link on the Wish Trippers thread to your report...I hope that is ok! That way some more of our folks will find ya and come over and say hello!

Feel free to ask any questions on the wish trippers thread, too. It is the blue link in my siggie - just jump right on in!

Check out post 2 for some wish trip hints, too!
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Old 09-13-2010, 08:29 PM   #11
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Originally Posted by kissesbykim View Post
I'm so glad to hear about your cousin! Wow! Hockey star! I know Ty will bounce back like that too!
He most definitely will!
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Old 09-13-2010, 10:59 PM   #12
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Quote:
Originally Posted by kissesbykim View Post
We actually live in Nor Cal, somewhere between Sac and Tahoe. So we go to Sutter in Sac for care. Thank God for these wish organizations ! They give these children something WONDERFUL to look forward to! As unfortunate it is that you qualify for two wishes, it is such a blessing ! Thank you for reading our PTR! I love this forum!
Ok...Some reason when you said Disneyland and a hour from the airport I thought of LAX. This forum is the greatest.
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PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

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Old 09-14-2010, 01:35 AM   #13
kissesbykim
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Quote:
Originally Posted by maroo View Post
Hello!!

I found your wish trip pre-trip report! I know you guys are going to have a blast!

I put a link on the Wish Trippers thread to your report...I hope that is ok! That way some more of our folks will find ya and come over and say hello!

Feel free to ask any questions on the wish trippers thread, too. It is the blue link in my siggie - just jump right on in!

Check out post 2 for some wish trip hints, too!
Thank you so much! I found the thread and I love meeting other wish families. Thanks again!
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Old 09-14-2010, 01:55 AM   #14
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Joining in here too. I thought So Cal like Kris too, as we are in So. Cal to (about 20 min. from Kris). Look forward to hearing your plans and then hearing about your trip.
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Old 09-14-2010, 11:21 AM   #15
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Here's my wish boy Tyler...



My little monster AJ....

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