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Old 07-26-2010, 03:30 PM   #1
kayrason333
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Talking Pre-Trip MAW Sept 26-Oct 2 2010 :)

Hello! We just got approved for our MAW trip and we are so excited!!
let me start by introducing our family....
I am Kayla, mommy to 2 wonderful boys. I am currently a stay at home mom.
My husband is Joe, we have been married for 6 years and were high school sweethearts .
Our wish child is Jackson, he is almost 3 now and he is currently in remission from cancer (neuroblastoma).
Our other son is Austin, he is almost 5 years old and he is a Type 1 diabetic.

My mother, father and Aunt will also be joining us for a few days so they can play with us. They were all 3 with us during our toughest times, I am so glad that they will be there to see the smiles on the boys faces.

A quick story....I am not the best story teller, so try to stick with me ...oh, and it will probably not be quick ...............
Jackson was diagnosed at 9 months old (in 2008) and underwent treatment in Dallas (where we live), after 2 rounds of chemotherapy his tumor shrunk and we had a consult with a local surgeon about removing the tumor. The surgeon in Dallas said he would not feel comfortable removing the tumor and that we could "wait and watch" what the tumor did....no thanks.
After some research, we found a doctor in NY that does tumor resections for neuroblastoma patients and we heard he was amazing. We sent Jacksons' medical file to him and got the call that we were waiting for....they wanted us to go to NY and they would do the surgery!!!
Me, my husband and Jackson left for NY to meet our doctor and we would have 1 week to explore NY and have some fun before our little man had his surgery.
My mom, Aunt and our older son Austin met us in NY a few days later and Austin was starting to get sick. In an effort to not get Jackson sick before surgery, my husband took Austin to a pediatrician in NY to get some antibiotics (at this point, Austin had not been diagnosed with diabetes). Austin had been having some problems with potty training and he was always thirsty, so my husband asked the doctor to check for sugar in his urine while they were there.
While my husband and Austin are at the pediatrician, I am at the oncologist with Jackson, my mom and my aunt...we were visiting with the doctors, doing bloodwork, etc. Next thing I know, my husband is on the phone saying that him and Austin are headed to the hospital in a cab and that Austin has diabetes! What??!!!
The next couple of weeks will always be a blur. We spent 3 days in the hospital with Austin learning how to take care of his diabetes and after he got out of the hospital, we went right back in with Jackson for his tumor removal and a week long recovery.
I am still not sure what me and my husband would have done without my mom and aunt there, they helped tremendously and made our situation a little easier to handle.
To make a long story longer, we are definitely needing this time as a family to have fun and unwind and we are so excited that my mom and aunt will be there for a few days to have fun with us.


I look forward to talking to everyone on here and getting tips and ideas on what to do for our trip!!

Last edited by kayrason333; 07-26-2010 at 05:12 PM.
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Old 07-26-2010, 03:32 PM   #2
kayrason333
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Also, we don't have all of the details of our wish trip. We know the flights are booked but thats all I know so far. Not sure what to expect.....but we know it will be fun!!

Here are my boys......


Last edited by kayrason333; 07-27-2010 at 01:46 PM.
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Old 07-27-2010, 10:00 AM   #3
kayrason333
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Unhappy

Wow....maybe I did something incorrectly. I am new to this, so I am not sure, but everyone one else who seems to be new has lots of welcome to the board messages.
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Old 07-27-2010, 12:04 PM   #4
visitingapril09
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I am here!! Hi there.

I am Alison I have a previous wish child and then one with type 1 also!!
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Old 07-27-2010, 12:14 PM   #5
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Go here:

http://www.disboards.com/showthread.php?t=2356343

and share this link!!
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Old 07-27-2010, 12:22 PM   #6
kdzbear
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Welcome! I will actually be at Disney the same time as you and your family. I am taking a moms only trip with 2 other moms. My son had his Wish trip last November. I can't wait to hear about your plans. I would love to try and help with any questions you might have!
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Tyler's Wish Trip (Nov. 20-25, 2009): http://www.disboards.com/showthread.php?t=2154359 Sept. 12-20, 2009 Trip report: http://www.disboards.com/showthread.php?t=2292505
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Old 07-27-2010, 12:26 PM   #7
wishin' on a star
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Welcome! I am so glad your family is getting this much deserved trip!!! We went on our daughter's MAW trip in May, and I'm still working on my trip report. I will follow along with you as you plan!

Make a post on the Make a Wish thread in the DISabilities section here and introduce yourself there. Others will find your story that way!
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Make-A-Wish PTR Catherine's MAW TR
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Old 07-27-2010, 12:55 PM   #8
kayrason333
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Thank you everyone!! I was starting to feel lonely
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Old 07-27-2010, 01:06 PM   #9
maroo
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Oh no! I almost missed your thread!

Someone posted on our Wish Trippers thread and I came right over.

Welcome to the DISboards!

Feel free (more than free - we want you to come!) to come over to the Wish Trippers thread and meet some more Wish Families over there.

The link is the blue one in my signature below. Just jump right in - it is a super long thread - don't feel like you have to read it all.

You may want to check out Post #1 and Post #2, though.
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Old 07-27-2010, 02:25 PM   #10
Mom2mitokids
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Hi Kayla,

I'm a newbie too. Not getting a lot of post either. I guess it just takes time. Welcome aboard. The boys are so handsome. Can't wait to hear more about your trip.
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Kerri-19,Korissa(wish Child) 17, Kyra 15, Steven 11, Kylee 8 (post wish child),
PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

http://www.facebook.com/HopeforKylee
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Old 07-27-2010, 02:27 PM   #11
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Oh...just saw your dates. Not too far off.
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Kris.. Mommy to 5 kiddos...
Kerri-19,Korissa(wish Child) 17, Kyra 15, Steven 11, Kylee 8 (post wish child),
PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

http://www.facebook.com/HopeforKylee
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Old 07-27-2010, 06:30 PM   #12
J'sMum
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Hiya ! looking forward to your PTR and TR
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PreTrip Report for J' http://www.disboards.com/showthread.php?t=2499099

Trip Report for J' http://www.disboards.com/showthread....1#post38619970
Dance to the petals on the streams running down,
they're there for you singing, just to lose that frown.
Dance from the song you feel beat within your heart,
it beats within you naturally loving from the start.
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Old 07-28-2010, 12:11 AM   #13
kctwinmommy
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Welcome!! Your trip is right before ours!! Good luck with all the planning!!
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Pre-trip report http://www.disboards.com/showthread.php?t=2486678
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Old 07-28-2010, 02:57 AM   #14
yinyanggirls
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Hi there! It sounds like your trip to NY was fate, kismet, grace, something!!! I have way too much experience in doctors not knowing what is going on. I'm sorry that both your boys had to go through the poking and prodding and medical hell, but they look so happy and healthy now. Oh, we used to live in DFW also. Moved here (AZ) 4 yrs ago) but we miss it!
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Old 07-28-2010, 03:22 PM   #15
cantwaittoseemickey
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Hi! Welcome to the boards! Your boys are so handsome I am so sorry they both had to go through so much and being away from home I bet it was very scary. How wonderful that your family could meet you there and help out. My family has been there with Ty and it was so helpful. I look forward to reading your ptr
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