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Old 09-09-2010, 06:20 PM   #76
my*2*angels
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WOW! The magic has already started! So glad Hayley loves her bag! Melissa did such a FANTASTIC job on it! Your kids are absolutely ADORABLE!
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Old 09-10-2010, 09:24 AM   #77
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Originally Posted by my*2*angels View Post
WOW! The magic has already started! So glad Hayley loves her bag! Melissa did such a FANTASTIC job on it! Your kids are absolutely ADORABLE!
Thank you! I think they are adorable too!

Melissa did a WONDERFUl job with the bag! Hayley loves it!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 09-10-2010, 09:27 AM   #78
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I think your itinerary looks great!

One thing to think of is on Monday your 'Ohana meal is going to take till about 7. You might want to get there a bit early to check in (20 minutes early) if you want to make it back to MK to see SpectroMagic or Electrical Parade (or whatever it is called now ). Keep in mind that Main St. will be jammed and it might be a pain to push through all those people to get towards the castle. If you do go back, walk through the Emporium on the left hand side. It might be faster. Plus you need to watch Wishes from the Hub if you want to see Tinker Bell fly!

Anyways, if dinner takes long and you don't think you are going to make it, you can watch Wishes from the beach at the Poly and see everything. The music from Wishes is piped in to the beach.

I love the bag Hayley received!!!!!! AWESOME!!!!
I am thinking we may just skip wishes that night. Grandma (my mom) said she would buy us tickets to the MVMCP party, so we will see the special holiday fireworks that night. We are planning that for our last night! Monday will be our first full park day and we will probably be tired. I love the idea of ending our last park day at the Magic Kingdom with a the MVMCP!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 09-11-2010, 07:41 PM   #79
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So a little boy rang the doorbell selling boy scout popcorn and what did we find when we opened the door? OUR FIRST BIG GIVE PACKAGE!!! The mail mail had put it between the storm door and the front door!

It is from Melissa B. THANK YOU SO MUCH MELISSA!!!!!!





Very excited and wanting to open it now! But I had to take the picture!



What's inside?



A perfect bag just for "Princess Hayley" Complete with Cinderella's Carriage!!! WOW, can you tell she loved it?





She wanted to sleep with her new bag, but I convinced her that she needed to keep it nice for the trip! It will be a great carryon bag for her to carry herself on the plane!!

THANK YOU SO MUCH MELISSA!!! IT REALLY MADE OUR DAY TO GET OUR FIRST BIG GIVE PACKAGE!!!
What a very cute bag.
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PTR..http://www.disboards.com/showthread....1#post37518385

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Old 09-13-2010, 12:08 AM   #80
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That is a really cute bag, and I LOVE her smile with it!
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Old 09-13-2010, 05:21 PM   #81
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Another Big Give!!!

Woo Hoo! We still have 2 months and 1 day to go until our trip and we have already received another Big Give present!!

Thank you so much to the LAXTON FAMILY!!!




(Hayley is doing one of her many breathing treatments and Nathan is getting ready to leave for Boy Scouts)

The gift card was SO generous and appreciated VERY MUCH!!! The kids are already discussing what they are going to spend it on and I am sure that will change many times before we actually get to Disney and they get a chance to use it! Thank you so much for making sure they will have some extra spending money to make this trip even more special!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 09-14-2010, 12:35 AM   #82
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I love the smiles with the neb in her mouth, Katlyn still uses a mask so it is hard to see smiles when she is doing her neb, it looks more like a fish on her face . How fun that the kids are getting to start have fun with the Big Give.
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Old 09-14-2010, 04:13 AM   #83
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You are very welcome. My DH has CF (Delta V mutation) and your story obviously piqued my interest. We were given our own miracle thanks to GOD and IVF in 2006 (at the age of 40) !! I am glad I found the Big give and you!!
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Old 09-14-2010, 02:15 PM   #84
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You are very welcome. My DH has CF (Delta V mutation) and your story obviously piqued my interest. We were given our own miracle thanks to GOD and IVF in 2006 (at the age of 40) !! I am glad I found the Big give and you!!
What a small world! I am so glad that you were able to have your own miracle!! I hope and pray that someday soon they will find a cure for CF, so Hayley will be able to have a child of her own someday too!

Again, thank you so much for the gift card!! I will make sure to post in our trip report how they spent it and show pictures of what they bought with it!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 09-14-2010, 03:04 PM   #85
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Just found your PTR. How exciting! We are going on our MAW trip October 5 to 12. Congrats on the BIG WISH! That's awesome! I will be following!
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Old 09-14-2010, 03:06 PM   #86
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Have you guys tried Cayston yet? We just did the first round. Its not sticky like Tobi and my husband is definitely breathing better. Our Mary does not have the Delta 508 mutation like her Daddy she has a mutation that starts with a Y (my husband has it too) that they don't know much about but no symptoms yet (knock on wood). I was tested in 2003 but they did not test for mutations back then just CF. My husband actually passes the "sweat test" but the Pseudomonas, FEV of around 38% and absence of the vas deferens prompted us to figure out he likely had a mutation. Then after Mary was born she got sick at 6 months and had to start inhaled meds he got tested and so did she so we could see what we were dealing with.
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Old 09-15-2010, 07:44 PM   #87
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Getting caught up on ptr's and tr's. Love your Big Give pictures. Love those smiles!!
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Old 09-17-2010, 01:33 AM   #88
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Quote:
Originally Posted by rcq925 View Post
So a little boy rang the doorbell selling boy scout popcorn and what did we find when we opened the door? OUR FIRST BIG GIVE PACKAGE!!! The mail mail had put it between the storm door and the front door!

It is from Melissa B. THANK YOU SO MUCH MELISSA!!!!!!





Very excited and wanting to open it now! But I had to take the picture!



What's inside?



A perfect bag just for "Princess Hayley" Complete with Cinderella's Carriage!!! WOW, can you tell she loved it?





She wanted to sleep with her new bag, but I convinced her that she needed to keep it nice for the trip! It will be a great carryon bag for her to carry herself on the plane!!

THANK YOU SO MUCH MELISSA!!! IT REALLY MADE OUR DAY TO GET OUR FIRST BIG GIVE PACKAGE!!!
Sorry that I just now saw this!!! I am so glad she enjoyed the bag!!! I can't wait to hear about your special trip!!! (And I am excited that the bag was her first gift!)

Your kids are beautiful!! Those smiles are amazing!!!

Thanks for all of the compliments on the bag, ladies! The design is from HeatherSue -- she does a fabulous job on them!!!
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Old 09-17-2010, 04:51 PM   #89
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Quote:
Originally Posted by rcq925 View Post
Woo Hoo! We still have 2 months and 1 day to go until our trip and we have already received another Big Give present!!

Thank you so much to the LAXTON FAMILY!!!




(Hayley is doing one of her many breathing treatments and Nathan is getting ready to leave for Boy Scouts)

The gift card was SO generous and appreciated VERY MUCH!!! The kids are already discussing what they are going to spend it on and I am sure that will change many times before we actually get to Disney and they get a chance to use it! Thank you so much for making sure they will have some extra spending money to make this trip even more special!!
How cool. Nothing is better than a little extra spending cash at DW.
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Kerri-19,Korissa(wish Child) 17, Kyra 15, Steven 11, Kylee 8 (post wish child),
PTR..http://www.disboards.com/showthread....1#post37518385

TR..http://www.disboards.com/showthread.php?p=40564833

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Old 09-17-2010, 07:41 PM   #90
rcq925
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Quote:
Originally Posted by llaxton View Post
Have you guys tried Cayston yet? We just did the first round. Its not sticky like Tobi and my husband is definitely breathing better. Our Mary does not have the Delta 508 mutation like her Daddy she has a mutation that starts with a Y (my husband has it too) that they don't know much about but no symptoms yet (knock on wood). I was tested in 2003 but they did not test for mutations back then just CF. My husband actually passes the "sweat test" but the Pseudomonas, FEV of around 38% and absence of the vas deferens prompted us to figure out he likely had a mutation. Then after Mary was born she got sick at 6 months and had to start inhaled meds he got tested and so did she so we could see what we were dealing with.
We have not tried Cayston yet. She does pretty well with Tobi for now, so we will probably stick with it. I am so glad that Cayson works for your DH!! Also glad that Mary is just a CF carrier. Hayley is a double Delta F508 and her brother Nathan is a carrier.
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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