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Old 10-15-2010, 02:12 PM   #136
rcq925
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30 days!!!!!



WOO HOO! I never thought we would make it, but we are finally down to our last 30 days!!

Hayley is still coughing, but it has not gotten any worse! So hopefully it is just a virus!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 10-15-2010, 02:13 PM   #137
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Quote:
Originally Posted by Jdougherty View Post
I'm subbing. I love MAW kids, I have a soft spot for them.

prayers from colorado that it's a simple cold and Hayley is back on the raod to recovery soon.

I grew up outside of southbed and my aunt live in FW, I loved visiting her and the zoo. Your right it's an awesome zoo.
Thanks for joining along! Never been to Colorado, but hope to get there some day. Love the Fort Wayne Zoo! Hoping to hit their Halloween special weekend this weekend!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
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Old 10-15-2010, 02:15 PM   #138
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Quote:
Originally Posted by PennyLane1084 View Post
Hello, I just Subscribed to your PTR. I am addicted to these MAW trips. Just watching how excited these kids get always brightens my day. Hayley and Nathan are adorable. YAY FOR THE BIG GIVE!!

Thank you for joining along! We are finally down to the last 30 days and so excited!!!

The Big Givers are so awesome! I can't even find the words to express how thankful we were to be chosen. I definitely want to participate in the Big Give when we return! I can't sew a lick, but I can do pixie dust!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 10-15-2010, 02:20 PM   #139
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So we will be getting there on the 15th and have almost the same schedule as you! We are planning on Universal on the 16th, Sea World on the 18th and we will also be at MVMCP on the 19th. We should try to find each other at some point. Since Haley and Michael's medical conditions are so similar I think it would be neat for them to meet!
That would be great!! That is so funny that you have the same schedule. I tried to put quite a bit of research into what days to do which parks since we had so much time to plan and I think I have a pretty good plan.

But I know that things can change and I am expecting the unexpected!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
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Old 10-15-2010, 03:45 PM   #140
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I am glad to hear that Hayley was not admitted! I am really praying that the test results come back with good news!!!
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Old 10-15-2010, 05:06 PM   #141
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Yay..glad that she wasn't admitted! I hope her cough gets better, and that you get good test results next week.

Quote:
Originally Posted by rcq925 View Post
Hayley's appointment yesterday at the CF clinic was so so. Her first round of PFT's (Pulomanry Function Test) were not good numbers. She has a pretty good cough going on right now and I thought for sure she would be admitted into the hosptial for IV antibiotics, but the doctor listened to her and said her lungs sound clear. So that is good. We did an albuterol breathing treatment and then did the PFT's again and her numbers increased, so this was good as well.

He gave me a prescription for an oral antibiotic. If her cough does not get better in the next few days or gets worse, we will fill it and see what happens. We did a throat culture, to see what if any bacteria are growing in her lungs. Results on that should be back on Monday or Tuesday for that.

She did gain weight and grew taller, so those are both good.

So now we play the waiting game. I guess if she was going to get sick, better now then closer to the trip. If we end up in the hosptial, she will have to do two weeks of IV antibiotics, but we still should be able to get done and all better before our trip!

Our trip is only 31 days away! Woo Hoo!

So please keep your fingers crossed that Hayley gets better soon and we can avoid the hospital!
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Old 10-15-2010, 09:41 PM   #142
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Two more Big Gives!!!!

Guess what came in the mail today?

TWO BIG GIVES!!!!:banana:

We had a busy night, school carnival at the kids school, but they could not wait to open the presents, so we opened them really fast and headed to the carnival. Hayley did not get to try on her outfit, so I will post a picture of her in it tomorrow.

First Big GIve was from Jenny (DIS id: EnchantedPrincess)





Nathan LOVED his Phineus shirt and wants to wear it to school! Not until after the trip!



Hayley LOVED LOVED LOVED her skirt and Minnie shirt! We did not have time to try it on before the carnival and after we had a hour and half of vest and breathing treatments to do (plus she got her hair spray painted blue and pink and had on face paint. We did not want to risk getting anything on her beautiful outfit, so we will wait to try it on and take a picture until tomorrow!

Jenny also included some pixie dust that was much appreciated!!



THANK YOU SO MUCH JENNY!!!! We appreciate all you did more than words can say!!!

Next up is a Big Give is from Wendy (Dis id: billwendy)

Mom and Dad got something this time!!



Beautiful Mickey Head shirts with a hawaiian theme! Perfect for O'Hana!!






Hayley got a beautiful princess hair comb! Which she absolutely LOVED!!






A few more pictures of our gorgeous new shirts!!!

THANK YOU SO MUCH WENDY!!! We so appreciated all the time and effort you put into making us the wonderful shirts!!!!

We are all going to be styling on Hayley's Wish Trip!

THANK YOU AGAIN JENNY AND WENDY!! You guys are awesome!!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 10-15-2010, 11:49 PM   #143
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Love the Big Give shirts! Those are adorable!! I have never seen a princess hair clip like that before. Too cute! The Minnie outfit and Pheneas shirt are awsome! She has such a pretty smile How cool you will all match
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Old 10-16-2010, 04:39 PM   #144
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Yay!!! you guys look adorable!!! I was hoping they would work for Ohana!!! Awwww, the little princess looks adorable too!!!! Im so glad she like the pixie dust. You guys have a WONDERFUL TRIP!!!!!!
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Old 10-16-2010, 07:40 PM   #145
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More Big Gives!!!

First of all let me post pictures of Hayley in the Minnie outfit that Jenny made her!





Doesn't she look adorable? THANK YOU AGAIN JENNY! She loves this outfit!!!

Today we got two MORE BIG GIVES!!! And we have one waiting for us at the post office! We were at Nathan's flag football game when the mail came and we got a notecard telling us we have a package at the post office. I will get that one on Monday!!

So first up is from Jen (DIS id: Scouthawk).







It was a beautiful Christmas dress that will be perfect for Christmas at Give Kids the World and the MVMCP!!! Hayley loves it! She really loves the Mickey and Minnie and little tree lights on the front!

THANK YOU SO MUCH JEN! She is going to look so cute in it!!!

The next package was from Dania (Sorry I am not sure of your Dis name, I did not see it on the package!!







Some wonderful Pixie Dust from Dania!!! The kids loved they little bags and the autograph books!! The cards and activites will give us some great things to do on the airplane and limo ride!!!

THANK YOU SO MUCH DANIA!!!
WOW, I am just overwhelmed with emotion when I think of all of the wonderful things we have received from the BIG GIVE!! Thank you from the bottom of our hearts for helping to make Hayley's Wish Trip so much more special!!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
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Old 10-16-2010, 07:43 PM   #146
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I'm loving all of the Big Give gifts! What beautiful clothes and fun pixie dust!! So glad to see such big smiles!
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Old 10-16-2010, 08:05 PM   #147
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Hi. I am enjoying your thread!!
We are arriving the same day as you..your children are beautiful. Enjoy the rest of your planning.
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Old 10-18-2010, 11:17 AM   #148
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Quote:
Originally Posted by rcq925 View Post
So first up is from Jen (DIS id: Scouthawk).







It was a beautiful Christmas dress that will be perfect for Christmas at Give Kids the World and the MVMCP!!! Hayley loves it! She really loves the Mickey and Minnie and little tree lights on the front!

THANK YOU SO MUCH JEN! She is going to look so cute in it!!!
Wow! That got there quick! I wasn't expecting you to get it until today! Hayley looks beautiful in everything. I am glad I was able to take part. I had so much fun making this dress! Have a fantastic trip!!!!!
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Old 10-18-2010, 06:35 PM   #149
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OMG More Big Gives!!!

I just cannot believe the generosity of the Big Givers!! You are all such wonderful people for all you do for wish kids!! Words can never express how truly grateful and thankful I am for all you have done for our family to make this a wonderful trip!!

THREE, yes I said THREE BIG GIVE packages arrived today! I think the kids thought it was Chistmas!

The first package is from Cheryl (Dis ID: wdwmickey).











It is a gorgeous scrapbook for Hayley's Wish Trip!! This thing is truly beautiful and I know took so much time and effort to put together! I can tell all the love that went into making it!!

THANK YOU SO MUCH CHERYL!!!!!
I am not at all "crafty" and I could never had put together a scrapbook this beautiful! It is going to be so beautiful when we add all the pictures to it and something that Hayley will always have to remember this magical week of her life. Thank you so much! I will be sure to post some pictures of the completed project when we get it done!

Next package is from the Macoy Family (Not sure of your Dis ID.









Nathan LOVES his shirt! It is so cute! And looks great on him (if I can get him to keep the collar down ) He keeps thinking he is a cool dude with it up!




Hayley absolutely LOVES her dress Sleeping Beauty is her favorite princess and pink and yellow are her favorite colors! The dress is perfect for her in every way! She looks so beautiful in it!! I finally found a few little white T-shirts at Target today (do you know how hard it is to find short sleeve, plain white shirts in the fall in Indiana?) to put under a few of the dresses she got, in case it is a little cooler in Orlando than I am hoping it will be!



THANK YOU SO MUCH TO THE MACOY FAMILY!!!!

I so appreciate all the time and love you put into making this beautiful dress and shirt!! Can't wait to have the kids wear them to Disney World!!!

The next gift is from Allison and Malachi (DIS id: TEBI73)







We all got matching family Wish Trip T-shirts!!! And they had a favorite character for each of us!!!! (Sleeping Beauty for Hayley, Minnie Mouse for me, Yoda for Nathan, and Grumpy for Shaun)

It was only the four of us at home so we had to take a picture of the girls and a picture of the boys, since we could not take one of all four of us together!!

WE LOVE THE SHIRTS!!! Can't wait to wear them!





This package also included some pixie dust for the kids. Some coloring activites to keep them busy on the plane!! And a Family photo frame that will be perfect for a great picture from our trip! Hayley wanted to know if that was a picture of you guys in the frame?

THANK YOU SO MUCH ALLISON AND MALACHI!!!!Thank you for the time and love you put into make the family shirts for all of us! I can't wait to get a picture at Disney with the four of us wearing them!!!

THANK YOU! THANK YOU! THANK YOU! Words just do not seem to be enough, but the time, effort and love you have all put into these gifts is truly appreciated more than you could ever know!!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
http://www.disboards.com/showthread....7#post39032507
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Old 10-18-2010, 06:41 PM   #150
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Hayley's cough has not gotten better, a little worse in fact. So we filled the oral antibiotic and are hoping that will keep us out of the hospital! We should know in about 48 hours if the oral antibiotic will help or not. If not, into the hospital we go. She will have to have 14 days of IV antibiotics in her port. Luckily we usually stay in the actual hospital 2-5 days until they get her medication levels correct and she starts to improve. But we are down to 26 days left until we leave, so we will be cutting it close!

Please keep Hayley in your prayers that she gets better quick so she can enjoy her trip!! Thank you so much for any prayers!

The Big Give gifts are certainly keeping her spirits up and making her smile!! Thank you so much for that!!
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PTR- http://www.disboards.com/showthread.php?t=2450895

TR- Hayley's Magical Make A Wish Trip-
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