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Old 02-19-2010, 06:04 PM   #46
Momofwishkid
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How cool the Troopers want to be apart of James trip. I'm sure MAW will have something set up for the ride to the airport. I would call and inquire before you worry to much.
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Old 02-19-2010, 06:05 PM   #47
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[QUOTE=pacrosby;35506105 Sorry. I'm no help [/QUOTE]

I'm not so sure there is much help...I'm thinking we are going to rent a 15 passenger van, and have me dad drive us up, then he'll have to turn around and drive back, My dad is such a sweetie he will do it without one complaint, but still I'll feel kinda bad. The Wish people offered to pay for the parking at the lot for our car for the week, and that's all. I'm still working on it though!
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Old 02-19-2010, 06:23 PM   #48
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How cool that the Troopers stopped by for a special visit! I love the story of the very first "WISH". It was a boy in Phoenix who wanted to be a cop when he grew up but he was probably not going to grow up, so they made him an honorary officer. So cool how it all began.

I don't know what conversation you've already had, but if you are just assuming they won't pay for transport, you could come out and ask them in a nice way such as, "I was just wondering if I need to start making arrangements for the trip to Anchorage or if you guys had something in mind for that?". Doesn't sound like you are accusing or mad, but also let's them keep a surprise if they happen to have one for you.
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Old 02-20-2010, 01:12 AM   #49
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Quote:
Originally Posted by yinyanggirls View Post
I don't know what conversation you've already had,.
I talked to the co-ordinator a few days ago and he said they would pay for the parking of our car at the airport...and they are taking us out to dinner that night. I'm still looking into another way, I'm just tired tonight, and don't feel like trying
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Old 02-20-2010, 01:14 AM   #50
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I understand. I have several questions I haven't asked yet, because I'm hoping it will just all work out and I don't want to annoy them. They are probably assuming your personal vehicle holds all 8 of you though....
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Old 02-20-2010, 01:23 AM   #51
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I understand. I have several questions I haven't asked yet, because I'm hoping it will just all work out and I don't want to annoy them. They are probably assuming your personal vehicle holds all 8 of you though....
I know, isn't it crazy!? I just am so thankfull for everything, I feel like, how dare I ask for one more thing? Everytime they call about something else I cry, I'm sure they think I'm a nut case.
I'm so emotional lately I even hate when people hug me...it's like opening the water gate, wahhhhhh, there I go...honestly, I think MAW could have offered us dinner at Taco Bell and I'd cry.
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Old 02-20-2010, 02:08 AM   #52
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Quote:
Originally Posted by alaskanabbott View Post
honestly, I think MAW could have offered us dinner at Taco Bell and I'd cry.


I know what you mean.


I meant to comment on your question about driving, so I guess I'll just add it here. I can imagine your apprehension about driving but I would give it a try. It would be so nice to have the option to do what you want WHEN you want. It's nice of GKTW to offer to drive you but I'm sure they won't be sitting and waiting by a van in case you want to go anywhere. Why not give it a try and if you just feel totally overwhelmed you could always leave it in the driveway or offer to return it early. I think you'll be okay if you just avoid traffic hour (or on the way to the parks, I guess it would be around opening?) I would get some more opinions on the main threads about timing and then just see if you can tweak your travel times so that they are during less hectic hours. I have a feeling you'll adapt, or the rather the other drivers around you will adapt.
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Old 02-20-2010, 11:39 AM   #53
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super cool picture! I know all too well about the NG tubes. I also had an NJ tube which took 45 minutes to put in once, ughh. The last nose tube change is AWESOME, lol. I didn't care how sick i looked, I wouldn't have changed that unless I had too, haha. He's much tougher than me.
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Old 02-20-2010, 08:49 PM   #54
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Amber,

just wanted to say hi! Your family seems so awesome -- great kids (must be some good parenting). We are going on my daughter's wish trip to GKTW on 4/17, so looking forward to reading about your plans and trip! I haven't done much planning (read: almost none yet), but mean to, uh, soon....

I can relate to the NG tube stuff -- my daughter (3) had one in for two months (was on a slow, continuous feed via pump). Not fun, especially when it had to be changed or came out. But a lifesaver, nonetheless. We were oh-so-happy when she got her g-tube placed -- you (and James) will LOVE the convenience of a more permanent feeding tube!

On the driving front, if you think either you or your husband can stomach it at all, I might really try to go for the rental, if I were you. If not, you will be at the mercy of GKTW's shuttle schedule. Just think of how convenient it would be to be able to come and go when you pleased (and make a run to Walmart). Ironically, I can understand your hesitancy to drive. I say ironically, because I grew up in a completely opposite location -- New York City. But because I grew up in NYC and lived there for years as an adult, I NEVER had to drive (used subways, etc, almost exclusively). So when I first started driving again(at age 30+), I was terrified. And am still not quite as comfortable as those who grew up doing it as second nature. But I would bite the bullet and drive in Florida just to have the convenience of coming and going when we need to. Just food for thought.

Well, this is a long post, but I pretty much just wanted to say hi and welcome. I'm not on the boards as much as a lot of others, because I still haven't figured out how to balance life with a medical child and everything else (read: my life is chaos and spinning completely out of control!). But I hope to check in from time to time and see how your planning is going.

Good luck planning!
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Old 02-20-2010, 09:37 PM   #55
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Hey Amber!
Okay, this might sound crazy, but I would [B]e-mail[B]your chapter and explain the whole car situation, that you appreciate the offer to pay for parking, but that your car won't hold your whole family and you were wondering if anything else could be worked out as far as transport. I'm the same way that you are as far as hating asking a million questions, but I find it much easier to e-mail..LOL. Just a thought!

As far as the use of a rental car in FL..the drives are relatively short, and they insure them for a reason. I seriously think you all would be fine, but it's not something to stress over.

So sorry to hear the kiddos are sick! We'll be keeping you all in our thoughts that it passes quickly.
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Old 02-20-2010, 10:42 PM   #56
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Quote:
Originally Posted by thatkid View Post
I didn't care how sick i looked, I wouldn't have changed that unless I had too, haha. He's much tougher than me.
Alyssa~Yeah, he was regretting the decision once we had to replace it, but it was a quick change, and the last one, hurray!

Quote:
Originally Posted by Wee Annie View Post
We are going on my daughter's wish trip to GKTW on 4/17, so looking forward to reading about your plans and trip! I haven't done much planning (read: almost none yet), but mean to, uh, soon....
Hi Ann, congrats on your trip. I'm not doing well with the planning yet either. I went onto GKTW website last night and that helped a little. James is almost 13 and I think the only GKTW entertainment he is interested in in Christmas (hey even teenagers LOVE Christmas)

I can relate to the NG tube stuff -- my daughter had one in for two months (was on a slow, continuous feed via pump). Not fun, especially when it had to be changed or came out. But a lifesaver, nonetheless. We were oh-so-happy when she got her g-tube placed -- you (and James) will LOVE the convenience of a more permanent feeding tube!
James gets his g-tube next Friday...we have to go to Anchorage and I guess he'll have to spend two nights in the hospital, but he usually is in for at least two weeks, so two nights is nothing! I'm a little nervous about the g-tube, we're "use" to the NG, and I don't know th equirks of the g-tube. James is also on a slow continuos feed, he has low volume tolerance, and to give him all his cals it takes about 20 hours. Can I ask two questions? 1. Do you think he'll be feeling pretty yuck from the surgery still after two weeks? 2. Was your daughter able to move feeds faster with the g-tube?


Quote:
Originally Posted by pipersmom View Post
Hey Amber!
Okay, this might sound crazy, but I would [B]e-mail[B]your chapter and explain the whole car situation, that you appreciate the offer to pay for parking, but that your car won't hold your whole family and you were wondering if anything else could be worked out as far as transport. I'm the same way that you are as far as hating asking a million questions, but I find it much easier to e-mail..
Hi Amanda~I think you're right, I'm just going to email them and let them know...I did talk to my dad today and he said he will drive up one of the kids and all the suitcases, then drop us off and drive home. That's a seven hour round trip for him, but he is o.k with it.
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Old 02-20-2010, 11:20 PM   #57
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What a beautiful family you have! Thanks for sharing!
I only have two tidbits to offer -
1. You WILL need a stroller for your little one at WDW - there were times when my 12 year old looked like she wanted to kick her two year old cousin out of hers!
2. As far as the tonsils and adenoids, I know that compared with what you deal with every day, it probably seems minor, I just wanted to tell you that noone warned me that the recovery time can be as much as two weeks - I thought that if you weren't aware of that you may want to know - I wish I had when my youngest had hers out.
Anyway - have fun on your trip - I am excited for you all!
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Old 02-21-2010, 01:38 AM   #58
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Ok so I started planning...this is very tentative and I will add to it, but I think it's a start.


Monday March 15

1:30am Leave for Orlando
5:30am arrive Seattle
8:25 leave Seattle
5:30pm Arrive Orlando
6:30 Get to GKTW
7:45pm Orientation at GKTW
9:30pm Mayor Tuck in?


Tuesday March 16
7am Wake-up
8am Breakfast at GKTW
9am Animal Kingdom till close (6pm)
6:30pm back at GKTW for dinner
7:30 play at GKTW


Wednesday March 17

7am Wake-up
8am Breakfast at GKTW
9am Epcot all day (9pm)
lunch-at Epcot ?? Not sure where yet
dinner-pizza


Thursday March 18

7am Wake-up
8am Breakfast at GKTW
9am Sea Wolrd until close (7pm)
7:30pm Christmas
9:30



Friday March 19

7am Wake-up
8am Breakfast at GKTW
9am WDW until close (11 pm)
lunch-WDW ?? I'm thinking of a charactor meal, any ideas for a teen boy?
dinner-WDW?? probably burgers or pizza




Saturday March 20

7am Wake-up
8am Breakfast at GKTW
9am Universal till close
lunch- US
dinner-US




Sunday March 21(last full day)
7am Wake-up
8am Breakfast at GKTW
9am Beach day? the kids really want to go see the beach
6pm Back to GKTW for our last night


Monday March 22
leave Orlando 8am
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Old 02-21-2010, 02:05 AM   #59
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Quote:
Originally Posted by snowwhitesmom View Post
What a beautiful family you have! Thanks for sharing!
I only have two tidbits to offer -
1. You WILL need a stroller for your little one at WDW - there were times when my 12 year old looked like she wanted to kick her two year old cousin out of hers!
2. As far as the tonsils and adenoids, I know that compared with what you deal with every day, it probably seems minor, I just wanted to tell you that noone warned me that the recovery time can be as much as two weeks - I thought that if you weren't aware of that you may want to know - I wish I had when my youngest had hers out.
Someone talked about a double stroller rental at WDW, and I think we are going to do that. I have a 10 yr old boy who can be very gloomy when he's forced to walk much, and am hoping he can squeeze in, otherwise, he's been known to hitch a ride with his brother!
As far as the adnoids/tonsils...I think we're going to do it the begining of August, then she'll have a few weeks to recover before school starts.
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TR-THE WEEK OF YES!http://www.disboards.com/showthread.php?t=2428215
GKTW-3/10 ASMO-2/11 Disney Wonder-2/12Disney Wonder-11/12Disney Magic-1/13
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Old 02-21-2010, 03:06 AM   #60
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James update

Tonight has been a rough night for James. He wasn't able to go to school yesterday, (he only goes half days now) and he is in a lot of pain tonight. We tried all the pain meds, but nothing is working. I brought James the laptop to look at pictures of GKTW and WDW to get his mind off the pain. He may post on here tonight of he feels up to it.
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