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Old 03-02-2010, 05:54 PM   #136
snowwhitesmom
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I have always loved that poem - and I ADORE the shirts! great job!
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Old 03-02-2010, 10:28 PM   #137
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Amber,

The T-shirts came out awesome!!!! You did such a good job!! Were they easy to do?? I just got a few of the links and might attempt it as well. Any tips??


Hope James starts to feel a bit better soon!! Ask all the questions about the tube you need to...I think we're all pretty much pros now!! You will be too!!
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Old 03-02-2010, 10:31 PM   #138
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The best laid schemes o' mice an' men

....gang aft agley!

Our plan was to leave town on Sunday the 14th, in the afternoon, since we check into the airport at 11:30pm on Sunday. Now Macylea (James' twin sister) has her first wrestling tournament in Anchorage on Saturday the 13th. So I guess we're going to go to Anchorage on Saturday now and getting a hotel room. This has us spending all day Sunday in Anchorage until we check into the airport at 11pm. Honestly, you can see all of Anchorage in an hour, lol, so I'm not sure what we'll do with the rest of the time....I guess we're going to start our vacation as Alaska tourists.

On another note, drs are going now with the idea that James has "something" nuerologicaly wrong with him. If you didn't read in my intro, James has been progressivly getting worse since last May, and so far no one knows why. He is in extreme pain in his abdomen, so all drs have been focusing on it being a a GI issue, though I had some suspicions it wasn't. Namely James eyes began crossing, and he now seeing double vision all the time, his gross motor skills dropped to a 4 year old level and his fine motor skills now have dropped to a 6year old level. He forgets simple things, like his last name, or a teacher. So they put him through the whole gambit of tests about two weeks ago and came back with the thought he has a nuerologic disorder, what? we still don't know but now we go see the Pediatric Nuerologist. Alaska has ONE Peds. Nuero. so at first they said it would be May before we get in, but if the Dr calls and tells them it's an emergency we can get in sooner.
So is this bad news? I'm not sure. I think we are all sooo ready to just know what is happening that we almost get excited about the possiblity of a diagnosis, even one that is sucky.
Like James said a few weeks ago, he asked me if he had cancer, I guess some kids at school told him he looked like he has cancer, and I told him no, he does not have cancer. He said "so what do I tell them I have" and I told him that while the drs were pretty sure he doesn't have cancer, b/c his blood work doesn't show cancer, but we don't actually know what he has yet. He said "that's too much, I'll just tell them I have the flu".
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Old 03-02-2010, 10:37 PM   #139
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Quote:
Originally Posted by pnutallergymom View Post
Amber,

The T-shirts came out awesome!!!! You did such a good job!! Were they easy to do?? I just got a few of the links and might attempt it as well. Any tips??


Hope James starts to feel a bit better soon!! Ask all the questions about the tube you need to...I think we're all pretty much pros now!! You will be too!!
I went to a store called JoAnnes fabric (you may have one) and they have the different color shirts on sale for 4 for $10. Then I bought two kinds of transfer paper...one for darks and one for lights (the color of the shirt). I just followed the instructions and did all of them in an hour. I am not crafty at all, so if I can you can. I'm actually going to make one for each kid now, it was fun! The ladies on the creative link were amazing, I posted what I wanted and I had 4 or 5 designs within a few hours. They would have changed things and stuff, but I loved them as they were. I would take Maroo up on her advice and put in your title it's for MAW, I think they were extra helpful. I hate to capitalize on that, but it's once-in-a-lifetime, so I did.
Good Luck,
PS If I may, I will ask questions as they arise...so far I have to say WAY easier than the NG!
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Old 03-03-2010, 07:03 AM   #140
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Amber, I suppose its good the doctors are getting a better idea of what's going on, but I am sure you could use a hug.
He said "that's too much, I'll just tell them I have the flu".
okay - how cute is that?
I hope you alll are having a wonderful day!
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Old 03-03-2010, 11:41 AM   #141
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Quote:
Originally Posted by snowwhitesmom View Post
Amber, I suppose its good the doctors are getting a better idea of what's going on, but I am sure you could use a hug.
He said "that's too much, I'll just tell them I have the flu".
okay - how cute is that?
I hope you alll are having a wonderful day!
We figured that all the kids in his school will be begging for the flu shot next year!
And I'm better today, virtual hugs accepted! We wanted to take up three with us on Saturday and leave three with grandpa to drive up the next day, and it just so happened the 3 we wanted to take are excited to go to Anchorage early, and the other three had plans they want to stay in town for! So really instead of this being an irritation, I need to think of it as an early start to our trip PLUS we get a little extra sleep that day, and I never complain about EXTRA sleep
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Old 03-03-2010, 05:21 PM   #142
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yep - just consider it the first leg of the trip!
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Old 03-03-2010, 10:27 PM   #143
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Sounds like the extra day will work out fine. You did a great job on the shirts! I'm impressed!

Just to warn you, I've worked with 6 different neurologists in three different states since Phoebe was born, and I can only say that one came across as human. It seems that neuros tend to have a God-complex. If your state only has one to begin with he is likely to be an extra big jerk. For your sake, I hope I'm wrong but I just wanted to warn you. Don't let him belittle you, or cut you off or let you leave with unanswered questions. Hopefully he'll be a genius and figure the whole thing out.
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Old 03-03-2010, 11:45 PM   #144
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Sounds like the extra day will work out fine. You did a great job on the shirts! I'm impressed!

Just to warn you, I've worked with 6 different neurologists in three different states since Phoebe was born, and I can only say that one came across as human. It seems that neuros tend to have a God-complex. If your state only has one to begin with he is likely to be an extra big jerk. For your sake, I hope I'm wrong but I just wanted to warn you. Don't let him belittle you, or cut you off or let you leave with unanswered questions. Hopefully he'll be a genius and figure the whole thing out.
UGh, not what I want to hear right now...the states only Peds GI already pulled that on me last week. Maybe he'll try to be th ehero and figure this out...we can hope!
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Old 03-03-2010, 11:53 PM   #145
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Originally Posted by alaskanabbott View Post
UGh, not what I want to hear right now...the states only Peds GI already pulled that on me last week. Maybe he'll try to be th ehero and figure this out...we can hope!
I'm sorry to be so negative. I just remember feeling so blind-sided after meeting with several of them. I wasn't prepared for the attitude and it got me off track. I left thinking I should have said.....

So again, I really hope I'm wrong but just wanted you to go in thinking that this guy could be a jerk, but that doesn't have to stop you from getting the answers you need! I hope they get you in before May!
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Old 03-05-2010, 12:17 PM   #146
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I'm sorry to be so negative. I just remember feeling so blind-sided after meeting with several of them. I wasn't prepared for the attitude and it got me off track. I left thinking I should have said.....

So again, I really hope I'm wrong but just wanted you to go in thinking that this guy could be a jerk, but that doesn't have to stop you from getting the answers you need! I hope they get you in before May!
It's not negative, I understand completely. I have the same problem with his GI docs, every one has had a very big head on his shoulders. I've heard good reviews on this Neuro, and I'm really hoping for him to be good, b/c otherwise that means we're leaving state again for his medical care, and I honestly can't bare the thought of that. I'm soooo tired of learning hospital routines! So I guess we'll see. Yesterday James' doc said she was calling the Neuro to see how fast she can get us in, maybe we'll know by the end of the month if he's a good-guy or a bad-guy
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Old 03-05-2010, 12:55 PM   #147
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Hello from snow-town

James and I are working on his school project "Alaskan Black Bears" and we decided to put up an update.

1. Still no loaner wheelchair. The one that they brought up first was too small, not in the seat but in the legs. James is tall, he's almost 13! but he's not very wide, so the 12" chair was great in the bum, not for his heaight SO we are waiting for another to come up. They ordered him a brand new chair as his rental until his custom one is done. Please send good vibes that the rental will actually be here by the time we leave!

2. We have our plan for how we're getting to Anchorage. Hubby, me and the 15 yr old, and the twins (James and Macylea) are going up next Saturday, then grandpa will come Sunday afternoon with the youngest, Mackenzie-5 the oldest Dakota-17, and Elijah-10. Our wish group is having a dinner for us at a popular restraunt at 6pm, and we have to check into the airport at 11:30which means we'll probably be sitting in the airport for an extra 3 hours, since I can't figure out anything to do in Anchorage at 8pm on a Sunday night with 6 kids I'm thinking about asking the hotel if there is anyway we can get a really good deal on the room for a 1/2 day since we only need it until 11pm...hmmm I guess it can't hurt to ask?

3. James is feeling better now from the g-tube placement. It's still a little red and swollen, but all in all he's feeling better. He has been going to scholl from 11:30am to 3pm, and I think that helps get his mind off of things, and I get a little respite from being a caretaker, hurray for school!

4. I kind of lost the excitment of planning...I've read all the books the library has on Disney World, went to all the sites, now I think I'm just ready to DO IT! I still need to find sandals for the kids, we're all still in snow boots! but I stopped buying shorts and t-shirts, hubby started questioning the sanity of each kid having 6 pairs of shorts that they'll probably never wear again, and I had to agree I think I may make all the little kids a shirt, I'm thinking it would be fun while we're on the planes down to have matching shirts, but I'd have to drug my teen-agers to do it, and if the teen-agers won't, DH will ask why he should have too....do boys ever actually grow up?

5. I want to try to do the Pirate dinner with the family, but I don't know how to fit it in. We have only 6 days to do anything, since we get in late the first day and leave early the last. We're doing full days at WDW, Sea Wolrd, US, and Epcot, half day at AK and the kids really want to go to the beach our last day, then if we still have time after we play at the beach we thought we'd do IOA.. We're doing SW on Thurs b/c the kids are super excited about Christmas, so we figured since SW closes early, we'd make it to x-mas on time. Maybe the day we do the AK we can do the dinner? Does anyones plans ever actually turn out how you planned them?

OK that's enough for awhile back to the Alaska Black Bear report!
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Old 03-05-2010, 07:37 PM   #148
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Quote:
Originally Posted by alaskanabbott View Post
I'm thinking about asking the hotel if there is anyway we can get a really good deal on the room for a 1/2 day since we only need it until 11pm...hmmm I guess it can't hurt to ask?

What hotel are you staying at the first night? If it's someplace that has any kind of lobby, maybe they'd at least let you hang out there the following evening. At least they'd have chairs, a tv, etc.

I think I may make all the little kids a shirt, I'm thinking it would be fun while we're on the planes down to have matching shirts, but I'd have to drug my teen-agers to do it, and if the teen-agers won't, DH will ask why he should have too....do boys ever actually grow up?
What about making the big kids a t-shirt with just a small logo on the pocket side (like a surf t-shirt would have a logo there). Then it wouldn't be too obvious and a little more "cool".
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Old 03-05-2010, 08:55 PM   #149
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Glad James is feeling better!! How did the Black Bear Report go?? It's amazing how much homework we have as parents!!

I'm hoping you have a good night in Anchorage. Does the hotel have an indoor pool?? If so that always kills at least an hour or so.

I love the T-shirts!! Could you tell me who did the Phinneas and Ferb disign?? My little guy loves them!! and my chapter doesn't give him a shirt, so I decided to make him one. Thanks!!

How is your other son feeling???
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Old 03-05-2010, 09:18 PM   #150
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Quote:
Originally Posted by yinyanggirls;35710532
[QUOTE=Maryrn11168;35711362
Glad James is feeling better!! How did the Black Bear Report go?? It's amazing how much homework we have as parents!!

I agree, whew.... glad that report is over! lol...actually, he did 99% of it, I helped him cut, and type, that's all.

I'm hoping you have a good night in Anchorage. Does the hotel have an indoor pool?? If so that always kills at least an hour or so.

I love the idea of the pool, and hanging in the lobby, I'll definately see what we can do,

I love the T-shirts!! Could you tell me who did the Phinneas and Ferb disign?? My little guy loves them!! and my chapter doesn't give him a shirt, so I decided to make him one. Thanks!!

I don't know how to send you her info, so I'm giving you the link to the thread where she sent it to me, I figure then you can PM her maybe? http://www.disboards.com/showthread.php?t=2409350

How is your other son feeling???

Elijah is great, takes more than a brain bash to slow him down!
Good luck with the shirts, it was super easy, really!
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