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Old 02-15-2010, 05:38 PM   #16
Mtopher4
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I'm worried about getting sea sick on the cruise. This is our very first cruise. Any Advise?
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
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Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-15-2010, 06:35 PM   #17
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I hope they'll let you extend Lisa, will keep my fingers crossed for you. As far as seasickness, i've never cruised either, but I have heard that seabands are wonderful. I think they're relatively inexpensive also.
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Old 02-15-2010, 11:33 PM   #18
Mtopher4
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Good idea on the seabands :-) I heard today a couple years ago our MAW chapter would not approve extentions.... I hope they do for us .. My fingers are crossed ;-)
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
TEXAS
Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-15-2010, 11:55 PM   #19
yinyanggirls
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Hi Lisa! I'm glad you are leaving replies on other threads so more people will find you. Your family is so sweet. I'm curious, since your kids are older than my Tessa (4), how do the siblings handle having a sister with fairly severe needs? My oldest "looks" like a typical 8 yr old, but it is obvious to see that she is not, and yet my youngest has yet to ask why. She kind of treats her like a younger sibling or just does her own thing. With the Wish Trip coming up I have mentioned a few things to her about Phoebe being "different" (no mention of life threatening conditions, I think she would assume it means impending death). I hope you don't mind my asking, but I am trying to be prepared to help her understand her sister.
Also, I noticed that there is one pic of Ashley standing with the other girls, and then saw the pic of her on the bus. Does she use a wheelchair full-time or just for convenience if she tires out? Make sure you check out the disABILITIES main page because there are helpful hints on using chairs at WDW (maybe cruises too?) and other special needs tips.

As for sea-sickness, Tessa gets car-sick. Never had a problem in an airplane, roller coaster or anything else, so I don't know if she would be sea-sick. Anyway, we got some great tips from people here to try the Sea-bands and they seem to have worked 100% on our recent driving trip (4 days of driving). A pregnant friend of mine also recommended Preggie Pop Drops, candies, that you can get at Babies R Us. I think they are ginger and are supposed to help reduce feelings of nausea. I had some for Tessa on the drive but I don't think she needed them with the bracelets on. Oh, we found the bracelets at WalMart in the pharmacy section.

Seems like you have some great dates to choose from. Will you have to take the kids out of school?

I hope your chapter lets you extend your trip.
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Old 02-16-2010, 01:28 AM   #20
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Hi Lisa, Im so glad you posted so I could find your PTR. Your kids are just adorable. A cruise sounds great I cant wait to hear all about it and I hope they approve your extension unfortunatley my chapter dosent. Cant wait to hear more!
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Old 02-16-2010, 09:51 AM   #21
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Hi Melissa..
Thank you so much for your long post :-)

Since Ashley came home from the hospital with me and Jess had to stay..Christopher now 8 bonded with her first and when Jess came home asked what was wrong with Jessica's head because he thought the shape of Ashley's was perfectly normal. He was about a week from age 3 when this happened :-) He is still VERY close with Ashley. He calls kids like her or even with Down syndrome..surgery kids lol The part that REALLY affects him and Ashley is starting to notice too..All the stares and rude comments mean people make. I can't even tell you the number of times we have been followed around the mall or a store with a child..staring..pointing..and laughing. By the time we leave Christopher is in tears and so am I. Jess knows she has Apert but doesn't really get the difference yet..except for her surgeries and toes and fingers. They want to be in Kindergarten together next year so I'm sure that's when the issues will start to come up. Sometimes I want to just scream at rude kids and people but from talking with others with differences I have leaned that is the worst way to handle it and it only makes the person with the difference feel worse I remember when the girls were babies before Ash had her forehead built..I hated taking them anywhere because with twins..I became an immediate people magnet and instead of seeing the look on peoples faces I would tell them quickly before they even saw her that she had apert..I am so glad that time has passed
I wish I could help you more with the sibling stuff..I'm still learning myself. I wish they had some sib shops closer to my house. Maybe that's something you can look into for Tess.
About the Wheelchair.. Ashley had her first stage of Toe separation with skin grafts taken from her stomach Jan. 5th. She had many stitches on both of her feet and couldn't walk much for 6 weeks. She went to school without the wheelchair for the first time today :-) Previously I had been using a stroller for long distances as she does tire easily. She also has a lot of bone fusion in her feet and her ankles aren't set right so they hurt after a while. I need to go back and read more about Phoebe again.. all the PTR's everyone starts to blend together. I remember her and Tess's adorable faces though :-) Just not your story
Thank you so much for the tips on sea sickness.. I'd really hate for that to mess with our trip
I don't understand why some chapters allow for extensions and other's don't especially if you pay the difference yourself



Hi Momtowishkid .... Thank you for your post :-)
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
TEXAS
Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-16-2010, 03:07 PM   #22
pnutallergymom
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Hi Lisa!!

Just stopping in to say Hi!! Looking forward to following along with your planning!!!!
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Old 02-16-2010, 03:47 PM   #23
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Hi Shannon :-)

Melissa.. forgot to say.. YES I am taking them out of school for the wish trip :-)
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
TEXAS
Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-16-2010, 04:11 PM   #24
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Hello!

Coming by real quick to post!

I used to be able to spend HOURS and HOURS during the day on the DIS - but my job has changed some and I can't as much any more.

But your daughter is PRECIOUS! She is so cute! I love the picture of her on the bus because it reminds me of Lauren riding the bus.

I have put a link to your pre-trip report on the Wish Trippers thread so that other wish trip families can find ya! Once you get dates, you can post them over there and I will add them to the first page as well.

A cruise will be so much fun!!!

There is a whole Cruise Board on this very website that will have a TON of information for you, too. Here is the link: Cruise Line Board

If you have any questions about sea stuff or Disney Cruise line, they should be able to help you! We have had a few wish families take a cruise, but I don't think we have had many reports back - so I would love to see a trip report from you guys, if you have time.

Glad you found us!!!
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Old 02-16-2010, 04:37 PM   #25
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Hi Maroo :-)

Thank you for al the information :-)

I spent quite a few hours looking at Lauren's MAW report :-) So Awesome...
So nice that you got to go with her...
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
TEXAS
Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-16-2010, 07:34 PM   #26
Mtopher4
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Help with MAW procedures

So the wish granters cme out and interviews Ashley..she told them she wanted a Disney Cruise. We get the passports and the call and tell us she has been approved or her wish.. We picked 3 different dates.

Now what Happens? Does someone have to sponsor the trip before we find out what the dates are?
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Lisa, Wife of 18-1/2 years to Mike and Mom to Christopher age 11 and twin girls Ashley and Jessica age 8
TEXAS
Disney Fantasy Apert Cruise May 11-18, 2013
http://www.apert.org/Bock
Ashley'sMAW pre-trip planning http://www.disboards.com/showthread....1#post35407954




May 9-13th
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Old 02-16-2010, 08:12 PM   #27
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Quote:
Originally Posted by Mtopher4 View Post
So the wish granters cme out and interviews Ashley..she told them she wanted a Disney Cruise. We get the passports and the call and tell us she has been approved or her wish.. We picked 3 different dates.

Now what Happens? Does someone have to sponsor the trip before we find out what the dates are?
Congrats on getting the dates narrowed down. It depends on the chapter your in wether our not you get a sponser. Our chapter you can sign for a sponser but you dont have to. There is someone else here on the Dis that had to have a sponser before they can even officially let the kids in it but Im pretty sure they still got their dates ahead of time. For us it took a few weeks to get dates after we put in the 3.
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Old 02-16-2010, 10:44 PM   #28
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Hurray!! Another pre-trippie!!!
Your kiddos are very cute! Your daughters are so sweet looking. All the wish kids on the dis are extremely cute and stuff!! I don't have my own wish kid, but I have friends who were wish kids and a sister-in-law who was a wish kid, so it all hits close to home for me. You will have a blast on your cruise, I heard they are great! Welcome to the boards!!
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Old 02-17-2010, 07:24 AM   #29
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I am Tonya mom to Ty. Welcome to our little family of Wish trippers (and others that read and attend wish trips with others) Your kids are precious.How exciting for Ashley to choose a cruise! I have never been on a cruise so I cannot wait to hear about your families cruise.
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Old 02-17-2010, 08:27 AM   #30
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Wow, have you all been through a lot! I'm sorry to read about all of Ashley's surgical issues. Nonetheless, she has an amazing smile and a brightness to her eyes despite everything she has been through. I hope that you get your dates soon - I think that part was the hardest of all the waiting that we did!

I do look forward to following along!

Kelly
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