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Old 10-30-2014, 10:59 AM   #1
CTDisneyfan816
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My ongoing battle with kidney disease

I have now been on dialysis for over a year. Been battlling Kidney Disease for 4 1/2 years (now it's End Stage Renal Disese, ESRD). A friend has been undergoing testing to be a donor. She isn't a match for me but would be placed on the paired exchange program. They would search nationally for a match for me and one she could donate to. Should be within a year! Right now I am scheduled to go to Disney Dec. 13-21 but that could change!
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Old 10-31-2014, 09:19 AM   #2
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I have now been on dialysis for over a year. Been battlling Kidney Disease for 4 1/2 years (now it's End Stage Renal Disese, ESRD). A friend has been undergoing testing to be a donor. She isn't a match for me but would be placed on the paired exchange program. They would search nationally for a match for me and one she could donate to. Should be within a year! Right now I am scheduled to go to Disney Dec. 13-21 but that could change!
That is a long time..


I sure hope it works out before the year, and you re schedule your trip, if that is how I am reading it?

What a great friend you have as well..
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Old 10-31-2014, 09:56 AM   #3
CTDisneyfan816
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That is a long time..


I sure hope it works out before the year, and you re schedule your trip, if that is how I am reading it?

What a great friend you have as well..
Thanks, I had another friend try earlier this year but due to health concerns for her she was not a viable donor. And if this person didn't work out a cousin is waiting. Though from what I have been told it looks like a done deal here. My hope is I get to go on the trip in December and a kidney shortly therafter, but if something happened sooner and I had to postpone to late 2015, well it will be for something positive
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Old 11-02-2014, 10:36 AM   #4
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I recognized you immediately from the December thread and wanted to pop in to send you my best wishes. I hope for great things for you in this coming year and am sending you strength. I sincerely hope you are able to enjoy your upcoming trip and that a match is found and you are on your way back to good health soon.
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Old 11-05-2014, 12:00 PM   #5
CTDisneyfan816
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my friend has completed all testing and is going in front of the panel Monday. If approved she is on the list Thursday of next week
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Old 12-11-2014, 02:48 PM   #6
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So my trip is this Saturday and I got my dialysis times for next Monday, Wednesday and Friday -- 1:15 pm! I'm glad I am going and will still have fun but needless to say 4 hours in dialysis then pretty much kills those days for parks.
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Old 12-11-2014, 11:44 PM   #7
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So my trip is this Saturday and I got my dialysis times for next Monday, Wednesday and Friday -- 1:15 pm! I'm glad I am going and will still have fun but needless to say 4 hours in dialysis then pretty much kills those days for parks.
I am also glad you are going..

That does sound long... Chin up
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