Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 04-05-2010, 08:35 AM   #76
antmaril
DIS Veteran
The elephant topiaries near MK have a special meaning for me
I'm a girl
 
antmaril's Avatar
 
Join Date: Apr 2001
Location: Michigan
Posts: 6,984

Marsha:

Thank you for the update. I'm very happy to hear that you are in remission, but so sorry that you are in such pain. I hope that this will eventually subside and you can reclaim your life (and do the happy dance!)

You are in my continued thoughts and prayers.

Marilyn
antmaril is offline   Reply With Quote
Old 04-05-2010, 10:19 AM   #77
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,967

Marsha, I am happy to hear the news about your remission but my heart breaks for you knowing you are having to deal with all this pain.

I pray that you will be able to find some relief.

Continued thoughts and prayers.
luvmarypoppins is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-05-2010, 12:43 PM   #78
karen l
DIS Veteran
 
karen l's Avatar
 
Join Date: Sep 2005
Location: NH
Posts: 1,360

Marsha, that's great news about the remission & I hope the neuropathy goes away soon. Continued prayers & best wishes.
__________________
Karen
karen l is offline   Reply With Quote
Old 04-05-2010, 01:23 PM   #79
AnnaS

The puppy has now left the building and I am exhausted
Will you be rolling?
I can't wait to try them all
 
Join Date: Jul 2001
Location: Staten Island, NY
Posts: 6,649

Marsha happy to see you posting.

Very happy that you are in remission and so sorry about the pain. We are all thinking of you. Hang in there.
__________________
DVC 09/00 OKW - 6/02 BCV

Upcoming/planned trips:
March - SSR
October BCV F & W - 4 N. DCL Dream Double Dip

DCL '01 Eastern, '03 Western, '05 West Coast Cruise ºoº '07 11 N. Med. Cruise, '13 Western
WDW - CBR, POR, POP, OKW, BWV, BCV, AKV, VWL, HH & VB, SSR,
AnnaS is offline   Reply With Quote
Old 04-05-2010, 09:53 PM   #80
itsheresomewhere
Mouseketeer
 
Join Date: Aug 2009
Posts: 250

Quote:
Originally Posted by Mackey Mouse View Post
Hi all..

Thanks for checking on me.. I wish I had the best news actually it is good, but with a little twist to it..

I have a remission from the Multiple Myeloma, but the treatment has left me with horrible,, painful neuropathy in my feet. There is no respite from this, no peace, I wish there was.. I take lots of pills such as neurontin for the nerve pain, which I do not think works and I am sure there are others who have nerve pain that would agree with me, and also lots of pain medication every 4 hours, just to get through the day.. The nights are the worst, because when your body relaxes, that is when this activates and so add in pain and burning in my feet, well that does not make for a restful night until the pain pills kick in along with the ativan.. I sound like a drug addict but there is no way around this, it is that bad..

Now, I am praying that this is not permanent, and just a side effect from the treatment that will eventually go away.. that is what I am praying for. I am doing reiki, I am doing massage, I am going to call a pain clinic today to see if they can help me. I am in process of switching my treatment to the Cape while I am in this remission. Alll big procedures will be done at Dana Farber but maintenance will be here on Cape Cod..

There will be no WDW in my future for now as I cannot do any walking, or it will be and a scooter for sure, but I will get there at some point. I know Tom would want that for me.. and I will let you all know when I am going so if you see this woman on a scooter, crying her eyes out behind her sunglasses, missing her guy terribly.. that would be me..

I am trying, truly I am........if I could say to you all the neuropathy was gone... well I would be doing a happy dance for sure.. but I am still struggling..

Any suggestions are always appreciated... and I am willing to try holistic as well.. they claim that even accupuncture cannot help this...

so.. thanks for asking, that is where I am, even the computer hurts to sit at... can you believe it, my beloved computer and it causes pain to my feet..

hugs all around,
Marsha
I pm'd you
itsheresomewhere is offline   Reply With Quote
Old 04-05-2010, 10:53 PM   #81
Deesknee
When we were kids (long time ago) they did this with cows.
 
Deesknee's Avatar
 
Join Date: May 2004
Location: South of Boston, MA
Posts: 4,060

Would love to join you in a happy dance WHEN the neopathy goes away. So happy to hear you are in remission. As always you are in my prayers.

Dee
__________________
How many surprises can we fit into 1 week? TR - Aug 2013- http://disboards.com/showthread.php?t=3164295

Vow renewal trip report http://disboards.com/showthread.php?...0#post46760210

Triplets + singleton = living happily ever after in Mass
Deesknee is offline   Reply With Quote
Old 04-06-2010, 10:28 PM   #82
Rustysmom
DIS Veteran
 
Rustysmom's Avatar
 
Join Date: Aug 2004
Location: Dreaming about the Mouse in Brooklyn, NY
Posts: 1,504

I'm so sorry you're in so much pain. I hope the neuropathy goes away soon.
__________________
Mary , Chris a Prince (16) ,and little Princess (8)
11/1992-CBR-Honeymoon 11/1997-ASM-DS' first trip! 08/2007-CBR-Free dining! DD's first trip! 11/2007-Won a trip to the Beach Club!07/11-Royal Pacific & Dolphin
Rustysmom is offline   Reply With Quote
Old 04-07-2010, 04:23 PM   #83
Tinks1984
We're having a mini party!
I couldn't believe how many there was in the bag!
 
Tinks1984's Avatar
 
Join Date: Mar 2007
Location: Lancs, England
Posts: 5,111

Hi Marsha,

I don't appear on this board often, but I check in now and then to see how you're all doing and I'm pleased you're in remission but also saddened to hear you're in pain from the treatment.

I hope soon you'll find something to help you through this and that you'll be fully on the mend as Tom would want.

For now, thankyou so much for taking the time to come on and let us all know you're doing as good as possible, and my thoughts and prayers are with you to get you on the right path to feeling better again
__________________
RACHEL
May '93 - Off-site - Marriott International Drive - May '95 - CBR - June '98 - CBR - April '08 - ASSp - May '10 - ASSp
"If you can dream it, you can do it. Always remember that this whole thing was started with a dream and a mouse." - Walter E. Disney (1901-1966)
Tinks1984 is offline   Reply With Quote
Old 04-16-2010, 10:39 AM   #84
Mskanga
Can speak and read 4 languages fluently! The TF is impressed!
In need of tube riding lessons for the water slide!
Yo quiero ir a WDW
Prefers reading tags to threads!
 
Mskanga's Avatar
 
Join Date: Feb 2000
Location: The Twilight Zone
Posts: 7,917

Marsha ;

I just read about your neuropathy issue and Sonya also suffers from it , imagine that in addition to the knee replacement AND chemo.....and yes she lived on ativan an pain killers for a while too.
The good news is that I just asked her and she said it's not nearly as bad as it was before , so let's hope that it improves for you too.

Cancer sucks......big time. But I am glad to hear that you are in remission !
Mskanga is offline   Reply With Quote
Old 04-22-2010, 09:55 AM   #85
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

Thanks for letting me know hers is not as bad as originally... I hope that mine just quietly goes away... oh please, oh please.
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 04-22-2010, 10:19 AM   #86
Pea-n-Me
Survivor
Call me crazy but I prefer the single bath
Nothing beats the Magic of a Disney Resort!
Will DIS from the Potty
Alice, how's it hanging?
 
Pea-n-Me's Avatar
 
Join Date: Jul 2004
Location: Southeastern Coast of Massachusetts
Posts: 21,807

__________________



Post your best iPhone/smartphone pictures here!

All Star Music 2001/Polynesian Lagoon View Concierge 2002/Contemporary 2003/Disney Wonder 2003/Yacht Club and Disney Wonder 2004/Pop Century 2005/Dolphin and Pop Century MNSSHP 2005/Disney Magic and Pop Century 2006/Coronado Springs MNSSHP 2006/Dolphin and Disney Wonder 2007/Port Orleans Riverside 2008/Caribbean Beach 2009/Dolphin and Animal Kingdom Lodge Concierge 2011/Grand Floridian and Dolphin, MNSSHP 2013
Pea-n-Me is offline   Reply With Quote
Old 04-25-2010, 09:53 AM   #87
kathyseb
Dole Whips are the best
 
kathyseb's Avatar
 
Join Date: Feb 2004
Location: IN
Posts: 373

Marsha,

I am so sorry you are going through this. Will keep you in my prayers.
__________________
11-12-07 The day my heart broke

Jason 9-21-81 to 3-21-05 You are forever in our hearts

Nathan 2-17-80 to 6-23-02 Lost but never forgotten

Thanks to Dan Murphy for my Donor Awareness & Alzheimer Ribbons
kathyseb is offline   Reply With Quote
Old 06-06-2010, 03:35 PM   #88
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,967

Marsha, just wanted you to know that continued prayers are with you.
luvmarypoppins is offline   Reply With Quote
Old 06-06-2010, 08:24 PM   #89
JerseyJanice
RIP, Max!
 
JerseyJanice's Avatar
 
Join Date: Aug 1999
Location: Beautiful Bergen County
Posts: 9,483

Hi, Marsha.

I am so happy to read that you are in remission, not so glad that you're in so much pain.

Here's a wish and prayer that the neuropathy goes away after your treatment.
__________________
1972, 1974, 1976 Childhood WDW Trips Offsite
2/99 Coronado Springs Resort
9/00 Contemporary Resort/French Quarter
6/02 Wilderness Lodge
2/08 PO Riverside/Dolphin
8/08, 8/09, 8/10 Pop Century
10/10 All-Stars Music (FWF)
9/11 Coronado Springs Resort (FWF)
6/12 Wilderness Lodge (With Deluxe Dining!)
JerseyJanice is offline   Reply With Quote
Old 07-25-2010, 08:15 PM   #90
karen l
DIS Veteran
 
karen l's Avatar
 
Join Date: Sep 2005
Location: NH
Posts: 1,360

Hi Marsha, I hope you're doing well & are able to enjoy the summer weather. You're in my prayers. Best wishes.
__________________
Karen
karen l is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
thread Thread Starter Forum Replies Last Post
Multiple questions about McCarran Airport PDJPrinceCharming Las Vegas 5 12-22-2009 08:17 AM
Visa waiver valid for multiple visits? CharleyUK UK Trip Planning Forum 2 11-10-2009 03:51 AM
Howto book multiple staterooms EllieJ Disney Cruise Line Forum 2 11-09-2009 12:07 PM
Double vs. Tandem Strollers - parents with multiple children! LittleMissMagic Disney for Families 12 11-08-2009 08:51 AM
Booking multiple rooms using a DVC cruise voucher WeLuvDCL DVC-Mousecellaneous 2 11-04-2009 07:39 PM

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 11:51 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.