Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read

Thread Tools Rate Thread Display Modes
Old 04-05-2010, 09:35 AM   #76
DIS Veteran
The elephant topiaries near MK have a special meaning for me
I'm a girl
antmaril's Avatar
Join Date: Apr 2001
Location: Michigan
Posts: 7,037


Thank you for the update. I'm very happy to hear that you are in remission, but so sorry that you are in such pain. I hope that this will eventually subside and you can reclaim your life (and do the happy dance!)

You are in my continued thoughts and prayers.

antmaril is offline   Reply With Quote
Old 04-05-2010, 11:19 AM   #77
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
Join Date: Aug 2003
Posts: 10,236

Marsha, I am happy to hear the news about your remission but my heart breaks for you knowing you are having to deal with all this pain.

I pray that you will be able to find some relief.

Continued thoughts and prayers.
luvmarypoppins is offline   Reply With Quote
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 04-05-2010, 01:43 PM   #78
karen l
DIS Veteran
karen l's Avatar
Join Date: Sep 2005
Location: NH
Posts: 1,361

Marsha, that's great news about the remission & I hope the neuropathy goes away soon. Continued prayers & best wishes.
karen l is offline   Reply With Quote
Old 04-05-2010, 02:23 PM   #79

The puppy has now left the building and I am exhausted
Will you be rolling?
I can't wait to try them all
Join Date: Jul 2001
Location: Staten Island, NY
Posts: 6,729

Marsha happy to see you posting.

Very happy that you are in remission and so sorry about the pain. We are all thinking of you. Hang in there.
DVC 09/00 OKW - 6/02 BCV

Upcoming/planned trips:
May - HH
Oct. 2015 - F&W/BCV

DCL '01 Eastern, '03 Western, '05 West Coast Cruise ºoº '07 11 N. Med. Cruise, '13 Western
AnnaS is offline   Reply With Quote
Old 04-05-2010, 10:53 PM   #80
Join Date: Aug 2009
Posts: 250

Originally Posted by Mackey Mouse View Post
Hi all..

Thanks for checking on me.. I wish I had the best news actually it is good, but with a little twist to it..

I have a remission from the Multiple Myeloma, but the treatment has left me with horrible,, painful neuropathy in my feet. There is no respite from this, no peace, I wish there was.. I take lots of pills such as neurontin for the nerve pain, which I do not think works and I am sure there are others who have nerve pain that would agree with me, and also lots of pain medication every 4 hours, just to get through the day.. The nights are the worst, because when your body relaxes, that is when this activates and so add in pain and burning in my feet, well that does not make for a restful night until the pain pills kick in along with the ativan.. I sound like a drug addict but there is no way around this, it is that bad..

Now, I am praying that this is not permanent, and just a side effect from the treatment that will eventually go away.. that is what I am praying for. I am doing reiki, I am doing massage, I am going to call a pain clinic today to see if they can help me. I am in process of switching my treatment to the Cape while I am in this remission. Alll big procedures will be done at Dana Farber but maintenance will be here on Cape Cod..

There will be no WDW in my future for now as I cannot do any walking, or it will be and a scooter for sure, but I will get there at some point. I know Tom would want that for me.. and I will let you all know when I am going so if you see this woman on a scooter, crying her eyes out behind her sunglasses, missing her guy terribly.. that would be me..

I am trying, truly I am........if I could say to you all the neuropathy was gone... well I would be doing a happy dance for sure.. but I am still struggling..

Any suggestions are always appreciated... and I am willing to try holistic as well.. they claim that even accupuncture cannot help this...

so.. thanks for asking, that is where I am, even the computer hurts to sit at... can you believe it, my beloved computer and it causes pain to my feet..

hugs all around,
I pm'd you
itsheresomewhere is offline   Reply With Quote
Old 04-05-2010, 11:53 PM   #81
When we were kids (long time ago) they did this with cows.
Deesknee's Avatar
Join Date: May 2004
Location: South of Boston, MA
Posts: 4,060

Would love to join you in a happy dance WHEN the neopathy goes away. So happy to hear you are in remission. As always you are in my prayers.

How many surprises can we fit into 1 week? TR - Aug 2013- http://disboards.com/showthread.php?t=3164295

Vow renewal trip report http://disboards.com/showthread.php?...0#post46760210

Triplets + singleton = living happily ever after in Mass
Deesknee is offline   Reply With Quote
Old 04-06-2010, 11:28 PM   #82
DIS Veteran
Rustysmom's Avatar
Join Date: Aug 2004
Location: Dreaming about the Mouse in Brooklyn, NY
Posts: 1,504

I'm so sorry you're in so much pain. I hope the neuropathy goes away soon.
Mary , Chris a Prince (16) ,and little Princess (8)
11/1992-CBR-Honeymoon 11/1997-ASM-DS' first trip! 08/2007-CBR-Free dining! DD's first trip! 11/2007-Won a trip to the Beach Club!07/11-Royal Pacific & Dolphin
Rustysmom is offline   Reply With Quote
Old 04-07-2010, 05:23 PM   #83
We're having a mini party!
I couldn't believe how many there was in the bag!
Tinks1984's Avatar
Join Date: Mar 2007
Location: Lancs, England
Posts: 5,149

Hi Marsha,

I don't appear on this board often, but I check in now and then to see how you're all doing and I'm pleased you're in remission but also saddened to hear you're in pain from the treatment.

I hope soon you'll find something to help you through this and that you'll be fully on the mend as Tom would want.

For now, thankyou so much for taking the time to come on and let us all know you're doing as good as possible, and my thoughts and prayers are with you to get you on the right path to feeling better again
May '93 - Off-site - Marriott International Drive - May '95 - CBR - June '98 - CBR - April '08 - ASSp - May '10 - ASSp
"If you can dream it, you can do it. Always remember that this whole thing was started with a dream and a mouse." - Walter E. Disney (1901-1966)
Tinks1984 is offline   Reply With Quote
Old 04-16-2010, 11:39 AM   #84
Can speak and read 4 languages fluently! The TF is impressed!
In need of tube riding lessons for the water slide!
Yo quiero ir a WDW
Prefers reading tags to threads!
Mskanga's Avatar
Join Date: Feb 2000
Location: The Twilight Zone
Posts: 7,917

Marsha ;

I just read about your neuropathy issue and Sonya also suffers from it , imagine that in addition to the knee replacement AND chemo.....and yes she lived on ativan an pain killers for a while too.
The good news is that I just asked her and she said it's not nearly as bad as it was before , so let's hope that it improves for you too.

Cancer sucks......big time. But I am glad to hear that you are in remission !
Mskanga is offline   Reply With Quote
Old 04-22-2010, 10:55 AM   #85
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
Mackey Mouse's Avatar
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

Thanks for letting me know hers is not as bad as originally... I hope that mine just quietly goes away... oh please, oh please.
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 04-22-2010, 11:19 AM   #86
Call me crazy but I prefer the single bath
Nothing beats the Magic of a Disney Resort!
Will DIS from the Potty
Alice, how's it hanging?
Pea-n-Me's Avatar
Join Date: Jul 2004
Location: MA
Posts: 22,501


Post your best iPhone/smartphone pictures here!

All Star Music 2001/Polynesian Lagoon View Concierge 2002/Contemporary 2003/Disney Wonder 2003/Yacht Club and Disney Wonder 2004/Pop Century 2005/Dolphin and Pop Century MNSSHP 2005/Disney Magic and Pop Century 2006/Coronado Springs MNSSHP 2006/Dolphin and Disney Wonder 2007/Port Orleans Riverside 2008/Caribbean Beach 2009/Dolphin and Animal Kingdom Lodge Concierge 2011/Grand Floridian and Dolphin, MNSSHP 2013
Pea-n-Me is offline   Reply With Quote
Old 04-25-2010, 10:53 AM   #87
Dole Whips are the best
kathyseb's Avatar
Join Date: Feb 2004
Location: IN
Posts: 373


I am so sorry you are going through this. Will keep you in my prayers.
11-12-07 The day my heart broke

Jason 9-21-81 to 3-21-05 You are forever in our hearts

Nathan 2-17-80 to 6-23-02 Lost but never forgotten

Thanks to Dan Murphy for my Donor Awareness & Alzheimer Ribbons
kathyseb is offline   Reply With Quote
Old 06-06-2010, 04:35 PM   #88
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
Join Date: Aug 2003
Posts: 10,236

Marsha, just wanted you to know that continued prayers are with you.
luvmarypoppins is offline   Reply With Quote
Old 06-06-2010, 09:24 PM   #89
RIP, Max!
JerseyJanice's Avatar
Join Date: Aug 1999
Location: Beautiful Bergen County
Posts: 9,483

Hi, Marsha.

I am so happy to read that you are in remission, not so glad that you're in so much pain.

Here's a wish and prayer that the neuropathy goes away after your treatment.
1972, 1974, 1976 Childhood WDW Trips Offsite
2/99 Coronado Springs Resort
9/00 Contemporary Resort/French Quarter
6/02 Wilderness Lodge
2/08 PO Riverside/Dolphin
8/08, 8/09, 8/10 Pop Century
10/10 All-Stars Music (FWF)
9/11 Coronado Springs Resort (FWF)
6/12 Wilderness Lodge (With Deluxe Dining!)
JerseyJanice is offline   Reply With Quote
Old 07-25-2010, 09:15 PM   #90
karen l
DIS Veteran
karen l's Avatar
Join Date: Sep 2005
Location: NH
Posts: 1,361

Hi Marsha, I hope you're doing well & are able to enjoy the summer weather. You're in my prayers. Best wishes.
karen l is offline   Reply With Quote

Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
thread Thread Starter Forum Replies Last Post
Multiple questions about McCarran Airport PDJPrinceCharming Las Vegas 5 12-22-2009 09:17 AM
Visa waiver valid for multiple visits? CharleyUK UK Trip Planning Forum 2 11-10-2009 04:51 AM
Howto book multiple staterooms EllieJ Disney Cruise Line Forum 2 11-09-2009 01:07 PM
Double vs. Tandem Strollers - parents with multiple children! LittleMissMagic Disney for Families 12 11-08-2009 09:51 AM
Booking multiple rooms using a DVC cruise voucher WeLuvDCL DVC-Mousecellaneous 2 11-04-2009 08:39 PM

facebooktwitterpinterestgoogle plusyoutubeDIS Updates

All times are GMT -5. The time now is 05:31 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2015, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.