Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 11-10-2009, 03:59 AM   #1
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

Multiple Myeloma, updated 1/26/11

They say that God cannot give you more than you can handle.....I really wonder about that statement and am having real questions lately..

I try to be upbeat for all of you, you all know I lost my beloved Tom on October 1....truly one of the great husbands and friends and people are grieving that loss and will for some time..

But it seems his wife.. me has to put her grieving on hold and get into the battle herself with this blood cancer called multiple myeloma....not even sure I am typing it right... the pain is bad in my arm as the liquid tumor is on my neck and so yesterday I walked the halls of Mass General where my loved one walked and had my first treatment of Radiation.....the same radiologist who he adored....and now I am in the battle myself...

There is no cure, it is chronic, there will be tests and more tests,chemo, bone marrow biopsy one is done., now that was not fun... but I ask you this.....keep my family who is in a mess in your good thoughts....they lost their Dad, they are worried about their Mom and I am taking it the best I can.. At times my typing with be erratic as the nerves in my right arm are affected by this tumor... '

Remember this.. all of you here.. life is precious, take your time, smell the roses, do good and love each other... you just never know where life will take you.. I will be in and out but will check in... please stay safe and healthy...

Best,
Marsha
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein

Last edited by Mackey Mouse; 02-17-2010 at 06:02 AM. Reason: updating
Mackey Mouse is offline   Reply With Quote
Old 11-10-2009, 06:05 AM   #2
antmaril
DIS Veteran
The elephant topiaries near MK have a special meaning for me
I'm a girl
 
antmaril's Avatar
 
Join Date: Apr 2001
Location: Michigan
Posts: 6,978

Oh Marsha, I'm so sorry to hear this news. Please know that you are in my thoughts and prayers every day
antmaril is online now   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 11-10-2009, 08:03 AM   #3
JandJ
If I close my mind in fear . . . Please pry it open
I had a very productive day ... yesterday
 
JandJ's Avatar
 
Join Date: Nov 2005
Location: FL
Posts: 2,979

I am so sorry to read this news. You are in my thoughts
My father was diagnosed with Multiple Myeloma in 2004. It started with back pain that never got better. His doctor did a lot of blood work, which the biggest indicator was apparently his calcium level. There was a new type of chemo released to MM patients in 2005 and that made him feel really good for a few years. The radiation helped with the pain. I trust you have the best doctors. Learn all you can. There is a MM foundation that is VERY encouraging and very informative: http://www.multiplemyeloma.org/
Take good care of yourself
__________________
Married at Disney's Wilderness Lodge Resort / Sunrise Terrace / October 2005

All that I am or ever hope to be I owe to my angel Mother (1940 - 2005) Daddy's little girl (1933 - 2008)

Egypt, Mexico, Belize, Honduras, 7 Caribbean islands, England, France, Italy, Holland, Belgium, 12 states, DC - check! Where to next??
JandJ is offline   Reply With Quote
Old 11-10-2009, 08:27 AM   #4
minniebeth
I count on y'all to keep me up to date ;)
I'm ok going up, just can't go down...
 
minniebeth's Avatar
 
Join Date: Feb 2006
Location: columbus, ohio
Posts: 7,921

Marsha,
I have followed your posts here and you and your family have been in my prayers. I don't know how it started really, but one day I was reading a lot of the posts here and my DD12 asked me what I was doing. I told her I was reading the DisBoards and she asked if I was reading about WDW (again ) I told her about this board where people share about some of their life experiences and that I pray for them every night. I have a whole list of people who I keep in my thoughts and prayers. The one thing I've come to realize in life is that even though we all have our sorrows to bear, everyone else does too. It gives me peace in my own life to recognize that and to pray for others, even if we don't know them IRL. She asked me to share the posts with her. She has started to pray for a lot of people on here too. She attends a Catholic school and they have prayer intentions each day before lunch. She has prayed for many here at school, where the rest of the class does then too. She is our little spiritual leader at home as well, a true angel.
You have been one of those she prayed at home and school for. Please know that when you share this, the prayers multiply in ways not even known.

We hear over and over that God does not give us more than we can bear, and more and more, even through my faith, I feel so heavy about understanding this. Life just seems so unfair at times. I am so sorry to hear about the Multiple Myeloma. I hope your pain can be managed and that you get the best care possible. You fought so hard with Tom, now it's time to fight on behalf of yourself. You are a true warrior. I will be praying for strength for you. You and your family will be in my thoughts and prayers each day.
Your words of wisdom are beautiful and touching and help to put the meaning of life in perspective. Thank you.
Take Care of yourself!
__________________
minniebeth

minniebeth is offline   Reply With Quote
Old 11-10-2009, 08:36 AM   #5
denegate
Mouseketeer
 
Join Date: Jan 2007
Posts: 219

I followed your journey with your husband. I was inspired by your courage and strength. I was impressed by your ability to put others at ease. I am sad to read that you will now be fighting your own battle. I believe you have the ability to be as positive for yourself as you have been for so many others on this board fighting their own health battles. Stay strong - I will keep you and your family in my prayers. Take Care.
denegate is offline   Reply With Quote
Old 11-10-2009, 08:39 AM   #6
DebbieinWA
Mouseketeer
 
Join Date: Feb 2006
Posts: 207

I am so sorry! You will definitely be in my thoughts and prayers, as will your girls.
DebbieinWA is offline   Reply With Quote
Old 11-10-2009, 08:49 AM   #7
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,674

Marsha,

I'm so sorry to hear this. I hate to say but sometimes God does give you more than you can handle! Hang in there and know that we are all thinking of you. And please take REALLY good care of yourself, especially this time of year when there is so much going around. I know you already know this but make yourself the #1 person in your life now.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 11-10-2009, 09:10 AM   #8
dee47

"I can't unleash my full potential in a two page summary."
 
dee47's Avatar
 
Join Date: Feb 2002
Location: WA
Posts: 1,466

DVC Gold Member
Paid DVC Rent/Trade
Gold Membership

No words...Just lots and lots of prayers and
__________________
Dee





dee47 is offline   Reply With Quote
Old 11-10-2009, 09:37 AM   #9
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,889

Marsha
I am just so sorry to hear this. You have been through so much with Tom, your dd and now yourself. You have been a source of strength, encouragement and compassion for all of us, so now its our turn to pray for you, lift you up and encourage you. My thoughts and prayers will be with you as you battle the beast. Its so true about life being precious, since my dx I never take anything for granted either and do strange things like stared at ants this summer. I know God does now give you more than you can handle and I know you can do this. I pray that alll those who take care of you will show you kindness and compassion, that your pain might not be too hard to handle and that you will get the best treatment possible. Also stop by the breast cancer sistas thread on the cb, they adopted me and are also a great bunch of people with lots of strength, encouragement etc. Blessings to you always.
luvmarypoppins is offline   Reply With Quote
Old 11-10-2009, 01:28 PM   #10
amandamc8
Earning My Ears
 
amandamc8's Avatar
 
Join Date: Apr 2008
Location: 'The Shires' - England
Posts: 62

Marsha, I am so sorry to hear that you have to go through this... and your poor family too. Life is indeed very cruel at times. You took the time during your battle with Tom to offer me support on my journey with Miles and his pancreatic cancer, even when times were so tough for you - and I know that I am certainly not the only one who has felt the benefit of your positive and supportive messages.

I am not a person of faith, but I do believe that we all have people looking out for us and supporting us along our way... we both have our very recent additions to the angels looking down on us. Please know that you will very much be in my thoughts as you once again fight the vicious beast.

Much love to you and your family,
Amanda and Hayley
__________________
DVC Member SSR, AKL, BWV & VB - DLP 1992-2012 - DLH, NBC, SL, HNY - too many times to count!
2005 CBR - 2007 POFQ - 2008 BC, Bahamas on the Wonder & SSR - 2009 OKW - 2010 AKL, Med on the Magic, & SSR
2011 SSR, Med on the Magic, BWV, & VB -
2012 CSR, GCH, Alaska on the Wonder, BWV, AKL & NYE on the Dream!
xx In loving memory of my wonderful Husband Miles 1968-2009 Gone but never, ever forgotten... We miss you so much xx



amandamc8 is offline   Reply With Quote
Old 11-10-2009, 01:36 PM   #11
CarolAnnC
Caught Smuggling Jello Shot Syringes From PI
Likes to shoot off her glock in chat
Goin' to the Chapel
 
CarolAnnC's Avatar
 
Join Date: Oct 2000
Posts: 13,531

When I first heard this news my heart sank to my feet. It is unbelievable to me that you are stricken with this horrible disease, after you fought the fight with Tom side by side during his battle.

I am here, I only wish I was closer to your physical location...

Your words to live for today are the truest words one can speak. Nobody knows the future, and I thank God sometimes that we do not....

Hugs to you Marsha from me, John and the girls...
__________________
CarolAnnC is offline   Reply With Quote
Old 11-10-2009, 01:46 PM   #12
WDWLVR
DVC @ The Boardwalk
Have veranda will cruise
We cruised under a DVC flag - how cool is that?!?
 
WDWLVR's Avatar
 
Join Date: Feb 2000
Location: Chicagoland for work; Disney for fun!
Posts: 31,617

Marsha, I'm so saddened to read that so soon after losing your beloved Tommy that you are in your own fight. You and your family have shown your strength and I know you will get through this. You are in my thoughts and prayers.
__________________
Mary My first visits: WDW '76 DL '79 DCL '99 DVC '00
WDWLVR is offline   Reply With Quote
Old 11-10-2009, 04:16 PM   #13
quasar4legs
DIS Veteran
 
quasar4legs's Avatar
 
Join Date: Oct 2008
Posts: 1,356

Marsha, I am so shocked to hear this terrible news.

I shall be thinking of you and your family.
Koala cuddles to you
__________________
Me Dh DS (18)
quasar4legs is offline   Reply With Quote
Old 11-12-2009, 07:57 PM   #14
Mickey1974
This just totally cracks me up! I can picture some little guy doing this!!
 
Mickey1974's Avatar
 
Join Date: Jan 2008
Location: Minnesota
Posts: 112

The title of your post, Marsha, caught my eye. And although I don't know you I just wanted to share my deepest sympathy to you for the loss of your husband and for your diagnosis. I wish I could hug you and tell you that it will all be okay. Cancer sucks...what else is there to say about it!

In 2004 my mother was diagnosed with multiple myeloma. We all wondered how, why, what is this, what's gonna happen next??? Fortunately we live in one of the greatest medical cities in the world...Rochester, MN...home of the Mayo Clinic. Although my mother passed away a year later in 2005 (she developed a severe and deadly form of pnuemonia) we were encouraged by the clinics research and of the advances of the treatment of MM. I met a woman who had lived with the disease for over 12 years!! The doctors would tell us that they couldn't cure it but they could certainly treat it. I don't follow-up on the disease as much as I used to but within the last year I know I read that the clinic had received some major funding for more research and they are hoping one day to find a cure. It won't take your pain away but hopefully you'll find that to be some encouraging news.

Good luck...wishing you a positive outcome and sending many prayers your way.
__________________
What a long, strange trip it's been!
Moi Daddy'o Sissy Tootsie and Charlie
Mickey1974 is offline   Reply With Quote
Old 11-13-2009, 01:45 PM   #15
Kathy C
Mouseketeer
 
Kathy C's Avatar
 
Join Date: Aug 1999
Location: Pearland, TX
Posts: 450

Marsha,

I'm at a loss for words. Although I don't post often, I followed your journey with Tom, and am so sorry you have to fight the battle yourself. Will keep you and your family in my thoughts and prayers. Please, when you're feeling up to it, keep us posted.

Kathy
Kathy C is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
thread Thread Starter Forum Replies Last Post
Multiple questions about McCarran Airport PDJPrinceCharming Las Vegas 5 12-22-2009 08:17 AM
Visa waiver valid for multiple visits? CharleyUK UK Trip Planning Forum 2 11-10-2009 03:51 AM
Howto book multiple staterooms EllieJ Disney Cruise Line Forum 2 11-09-2009 12:07 PM
Double vs. Tandem Strollers - parents with multiple children! LittleMissMagic Disney for Families 12 11-08-2009 08:51 AM
Booking multiple rooms using a DVC cruise voucher WeLuvDCL DVC-Mousecellaneous 2 11-04-2009 07:39 PM

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 07:38 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.