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Old 10-08-2009, 05:09 PM   #1
thatkid
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My Make-A-Wish Trip!

Hi!
I'm Alyssa. I'm 18 years old & i'm going on my Make-A-Wish trip to DisneyWorld from December 2nd-9th.
Joining me will be my Mom , Dad , Brothers Sean (14) and Derek (14)
I'm super excited! The main focus of my wish is Animal Kingdom & SeaWorld, because i love animals!
I have been sick since I was 14 years old. I have a rare blood/liver disease called porphyria (HCP). I have to be completely covered when i'm around the sun & flourescent lights (all UV rays.) I have peripheral neuropathy & gastroparesis, a completely paralyzed digestive system, and have to be fed through a tube. (GJ tube)
I have spent more than 150 days in-patient in the hospital over the past 3 years, with more in the future.
I'm in charge of planning my trip, so i'll need some help!
Any tips on travelling with a feeding tube would be excellent! I'm hooked up to the pump (its a portable one, in a small backpack) for 19 hours/day.
thanks for reading!

Last edited by thatkid; 11-26-2009 at 04:15 PM.
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Old 10-08-2009, 08:11 PM   #2
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You are at the perfect place to get help in your planning. Everyone here is such a huge help in planning. I learned alot from everyone on how to best plan for our trip. You will have a blast.
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Old 10-08-2009, 11:50 PM   #3
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Quote:
Originally Posted by thatkid View Post
Hi!
I'm Alyssa. I'm 18 years old & i'm going on my Make-A-Wish trip to DisneyWorld from December 2nd-9th.

The main focus of my wish is Animal Kingdom & SeaWorld, because i love animals!

thanks for reading!
Hi Alyssa! It sounds like you definitely need this trip. I think special things like Make-a-Wish help me to be okay with the little things in life that my daughter has to miss. I look forward to reading about your plans over the next couple months!
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Old 10-09-2009, 06:11 AM   #4
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Hi Alyssa So cool that you're going to be there to see all the holiday decorations and stuff!! I'm sure everyone will be more than willing to help however we can ...
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Old 10-09-2009, 07:58 AM   #5
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Hi Alyssa! Sounds like you deserve this trip! That's awesome you get to see Disney all Christmas-afied!
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Old 10-09-2009, 08:58 AM   #6
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Princess Alyssa!



Do be sure to tell us if we overwhelm you!! I know I can be a little over the top in planning! You are going at a wonderful time of year! Make sure you plan to go to Hollywood Studios in the evening to see the Osborne Lights - they are beautiful - dont forget you can youtube the attractions, and lights, and parades, and WISHES too - that way you can get a feel for what is there!!

How is your stamina? Will you need an ECV to help you get around the parks?

Are you going to stay at Give Kids the World?

Do you need to make Dining Reservations?

Do you need maps? My favorite poster is Robo and he has uploaded some easy maps to a website called Stitch Kingdom - he tells by color lines how to get to Toy Story Mania, or how to get to Boardwalk or Beach Club from Epcot...http://www.stitchkingdom.com/maps/ use the drop down menu to pick a park and a map!

Am I asking too many questions??
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Old 10-09-2009, 09:52 PM   #7
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Alyssa,

I am glad you started a new pre-trip report and that you have actual dates now! You will get to see all of the Christmas decorations which will be so exciting. I can't wait to hear your plans as they come along! Welcome back!
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Tyler's Wish Trip (Nov. 20-25, 2009): http://www.disboards.com/showthread.php?t=2154359 Sept. 12-20, 2009 Trip report: http://www.disboards.com/showthread.php?t=2292505
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Old 10-11-2009, 07:17 PM   #8
thatkid
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Quote:
Originally Posted by Sandy321 View Post
Princess Alyssa!



Do be sure to tell us if we overwhelm you!! I know I can be a little over the top in planning! You are going at a wonderful time of year! Make sure you plan to go to Hollywood Studios in the evening to see the Osborne Lights - they are beautiful - dont forget you can youtube the attractions, and lights, and parades, and WISHES too - that way you can get a feel for what is there!!

How is your stamina? Will you need an ECV to help you get around the parks?

Are you going to stay at Give Kids the World?

Do you need to make Dining Reservations?

Do you need maps? My favorite poster is Robo and he has uploaded some easy maps to a website called Stitch Kingdom - he tells by color lines how to get to Toy Story Mania, or how to get to Boardwalk or Beach Club from Epcot...http://www.stitchkingdom.com/maps/ use the drop down menu to pick a park and a map!

Am I asking too many questions??
I am able to walk on my own, but with lots of rests haha.
We are staying at GKTW! and we're making a ressie for crystal palace, i'm fed through a tube but want my picture with pooh and tigger
I actually printed maps off the disney site, with little markers of the places i need to see haha.
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my MAKE-A-WISH Trip Report!!
http://www.disboards.com/showthread.php?p=34622202
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Old 10-22-2009, 04:36 PM   #9
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Enjoy your trip! DW is an awesome place.
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Old 10-23-2009, 10:24 PM   #10
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Welcome Alyssa! You're going at a wonderful time! I would love to be there during the Christmas holiday season...it's beautiful and there is so much to see. This is the perfect place to get all the ideas you could ever want or need to make this the perfect trip and you sound like you deserve this trip very much. Take care of yourself and stay well and plan all the wonderful things you want to see and do...we're all here to help so just give us a shout when you want some input.
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Gracie's (Mikayla) Pre-Trip report
http://www.disboards.com/showthread.php?t=3146419
Trip dates are 9/26-10/2/13
Boo's (Nikolas) Trip Report starts on page 7 post#99
http://www.disboards.com/showthread.php?t=2263732
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Old 11-11-2009, 10:36 PM   #11
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I'm impressed with your plans! Can't wait to hear how the trip goes!
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Old 11-14-2009, 04:20 PM   #12
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Quote:
Originally Posted by thatkid View Post
I am able to walk on my own, but with lots of rests haha.
We are staying at GKTW! and we're making a ressie for crystal palace, i'm fed through a tube but want my picture with pooh and tigger
I actually printed maps off the disney site, with little markers of the places i need to see haha.
You're gonna LOVE, LOVE, LOVE GKTW!! Plan a few evenings there too. They have a party every night. My kids are younger & loved Christmas and Pirates & Princesses. We weren't there for Candy Land since we had to fly out before it started. I hear it's really neat. Be sure to look at the guide they give you when you arrive-it will help you plan when you really want to be at GKTW and if there are parties you feel like you can miss for late nights at the parks.
We did ressies for DS at Play-N-Dine at Hollywood & Vine since he's in love with JoJo & Goliath. He's tube fed also so we just made sure they knew he wouldn't be eating so we didn't get charged for him. They were fine with it.
We had a good idea of what we "had" to do since I've been there many times and took the kids about 4 years ago for their first visit. We still ended up going over the maps after we got there the night night before each park to finalize what "had to be done" and what we really wanted to do but wouldn't be broken hearted if we missed.
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Gracie's (Mikayla) Pre-Trip report
http://www.disboards.com/showthread.php?t=3146419
Trip dates are 9/26-10/2/13
Boo's (Nikolas) Trip Report starts on page 7 post#99
http://www.disboards.com/showthread.php?t=2263732
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Old 11-14-2009, 11:25 PM   #13
thatkid
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here's my list of must see's & do's for Disneyworld!
The reds are the things i really want to do, and the greens are the ones i'd like to do depending on time.
for those that have been there, do you think the reds are do-able, or is it too much? I was thinking of adding an extra color for things i really, really, really NEED to do, haha. should I? the only thing we're doing at GKTW (that we know of, so far) is the christmas party and disney character meets, and i have a princess lunch reservation on the 3rd at MK. And we're only doing a half-day at universal. (that we know of, i haven't looked at anything thats there yet)

Magic Kingdom
Jungle cruise
Monsters inc. laugh floor
Toontown hall of fame
Wishes


Epcot
Epcot character spot
Honey, I shrunk the audience
Soarin’
Pick a pearl

Test track
The seas with nemo and friends
Journey into narnia


Animal Kingdom
Tree of life
Kilimanjaro safaris
Camp Minnie mickey greeting trails

Discovery island trails

Hollywood studios
Muppet vision 3D
Sounds dangerous
Toy story mania



I'll be working on my universal list tomorrow. I can't believe there's less than 3weeks to go!
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my MAKE-A-WISH Trip Report!!
http://www.disboards.com/showthread.php?p=34622202

Last edited by thatkid; 11-15-2009 at 01:06 AM.
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Old 11-15-2009, 03:38 AM   #14
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Pick a pearl...you put that under Epcot? Is that where you do that? I thought it was at Sea World. Or am I thinking of something entirely different?
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Old 11-15-2009, 06:52 AM   #15
thatkid
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Its in the Japan pavilion at Epcot! You pick a clam?? shell and theres a pearl inside, and you can get it put in rings and stuff.
this is the thread i found out about it at: http://www.disboards.com/showthread.php?t=1520941

whats the one at seaworld?
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my MAKE-A-WISH Trip Report!!
http://www.disboards.com/showthread.php?p=34622202
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