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Old 09-30-2009, 09:24 PM   #316
jenb1023
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I love hearing the story from your point of view! What an amazing day!
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Old 09-30-2009, 10:20 PM   #317
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wow, i too just found this thread. what a great family you have both in your house and in your new found friends here on the dis. i tell my family how great it is to feel like you have special people to get support from here, but your story shows just how true it is. i am so happy about the test results, may God continue his blessings on your family. thank you for sharing your story with us.
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Old 10-02-2009, 04:12 PM   #318
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wow, i too just found this thread. what a great family you have both in your house and in your new found friends here on the dis. i tell my family how great it is to feel like you have special people to get support from here, but your story shows just how true it is. i am so happy about the test results, may God continue his blessings on your family. thank you for sharing your story with us.

The people on these boards are some of the most incredible people that I have ever met in my life. They take so much time to help each other out. People that they have never met but care enough to take care of each other.

We are so very thankful and blessed to have good results for Lucas.
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Old 10-03-2009, 08:13 PM   #319
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As if the morning could not get any better or more magical they said but wait there is more. A true magical moment. We left Mickey's house after getting some wonderful family pictures. We were told that there was someone that wanted to meet the boys We walked out of the house and guess who was coming down the street. Mickey Mouse himself and he had a lot of friends following him. It was one of those picture perfect moments. Mickey throws up his arms and goes down on one knee and my boys goes into his arms. What a moment! I still remember that first thought that ran through my mind. This is just for my boys, MY BOYS. I just could not believe it!!! What a dream come true. I mean this was just for my boys. I was just so overwhelmed.
















After meeting Mickey the other characters came up and they were able to meet all of them. Then we all got pose for the most amazing picture. A family photo in front of Mickey's house with all of the characters. What a picture!!!





Then it was time to board Lilly Belle to go to Main Street USA for the opening show. It was so sweet to see the boys walking with the characters. Lucas was walking with Mary Poppins and Alice and Alex was walking hand in hand with Mickey Mouse. I got to walk with Chip or Dale I forgot to check her the color of the nose to see who I got. But following the boys and watching them interact with the characters was truly amazing. Then we got to ride the train next to Mickey Mouse. He did such a wonderful job communicating with the boys. He would ask them ages and he showed them where he signed their autograph books (note all through hand gesture). He was so amazing with boys. Well it was time to arrive on Main Street USA. He got off the train and was given Pixie Dust to throw out and to open the park. WE WERE THE OPENING FAMILY. WOW!!!! It was an incredible experience. Then we took another family portrait with the cast from Main Street USA and Mickey Mouse. Then it was time to say good bye to Kent and Ed. That was a sad time. Then we had another amazing moment. Lucas had shared how he had saved up with money to buy a train at Disney and Kent disappeared again and came back with yet another surprise. They had left the boys a monorail train set and also a Disney Steam Train Set at package pickup. Then it was sad to be saying good bye to two very special friends. But after all of that we still had not actually done anything in Magic Kingdom. We still had a full day ahead of us. Maroo was able to spend the rest of the morning with us. Lucas took to her immediately. We started to ride rides and he wanted to ride only with Maroo. So he had a riding buddy for awhile. He really enjoyed being with her. But after a wonderful morning with Maroo it was time to say good bye to her. We enjoyed Magic Kingdom the rest of the afternoon and then over to Contemporary Hotel to the Pirates and Pal Party. It was fun and very special to watch “Wishes” fireworks from the water. The pirates on the boat where amazing. We had a wonderful time. Needless to say after that was over we all were very very tired. The boys were asleep before we left the parking lot. They did not even wake up as we put them to bed. I know a special night of magical dreams








Saying Good-Bye to Ed
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Old 10-03-2009, 09:05 PM   #320
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I love these pics they are so sweet and just bring tears to my eyes.
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Old 10-03-2009, 09:56 PM   #321
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WOW! What a magical morning! Thank you for sharing your Disney Magic with us. Lucas has some amazing photos and memories to share!
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Old 10-04-2009, 08:46 AM   #322
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I love these pics they are so sweet and just bring tears to my eyes.
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WOW! What a magical morning! Thank you for sharing your Disney Magic with us. Lucas has some amazing photos and memories to share!


We have been so blessed to have so many wonderful pictures. I had alot of trouble trying to pick out photos because there was so many. We were also very blesses with a posting on disboard. Someone posted were you the opeing family at MK on 7/9 luckly Maroo was there and said yes! To make a long story short there were four families that had taken pictures of us during the Opening Show. I was wishing that we had pics of that moment and some amazing people took time to post and sent us pics. It has been a truly amazing ride!
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Old 10-04-2009, 10:42 AM   #323
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What a magical day!!!
such a heart lifting experience and I have really enjoyed being allowed just a glimpse!!Thank you for sharing it with us...
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Old 10-07-2009, 08:40 PM   #324
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What a magical day! It gives me chills and goosebumps! How is Lucas feeling?
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Oct 30-Nov 3, 2009 Pop - me and DD, May 15-17, 21-23, 2010 - Universal/Poly
Jan 22-30, 2011 - POFQ, May 10-13, 2012 DCL on the Dream Sept 7-11, 2012 DD's surprise bday trip - BC
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Old 10-07-2009, 09:27 PM   #325
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What a magical day! It gives me chills and goosebumps! How is Lucas feeling?
Oh it was true magic. I still get chills just thinking about that day!

Lucas is feeling good. He is starting to have more back pain again. We go see an orthopedic surgeon in two weeks. He is having surgery on Tuesday to have his port taken out. I thought he would be excited about that but he is sad. He says it is his best friend and even has named it porty. He said he is afraid his tumors will come back and needs his friend "porty" to help with his medicine. Thank you for asking about him
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Old 10-08-2009, 08:59 AM   #326
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Oh it was true magic. I still get chills just thinking about that day!

Lucas is feeling good. He is starting to have more back pain again. We go see an orthopedic surgeon in two weeks. He is having surgery on Tuesday to have his port taken out. I thought he would be excited about that but he is sad. He says it is his best friend and even has named it porty. He said he is afraid his tumors will come back and needs his friend "porty" to help with his medicine. Thank you for asking about him
Aw!

I wish his doctor would let him keep his port a little while longer? Maybe Lucas is right?

But they can always put another one in if he ever needs it! Then he gets a NEW friend! Two for one!

Tell Lucas I said hello (and Alex, too!)...give them both a HUGE hug for me!
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Old 10-08-2009, 06:55 PM   #327
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Aw!

I wish his doctor would let him keep his port a little while longer? Maybe Lucas is right?

But they can always put another one in if he ever needs it! Then he gets a NEW friend! Two for one!

Tell Lucas I said hello (and Alex, too!)...give them both a HUGE hug for me!
I am with you on the port. I just think it is too soon. I do believe Lucas might be on to something.

We had to get his medical records to take to the orthopedic surgeon and we did found out today not only is his L5 vertra collapsed he also has a diffuse bulge disc. So that maybe where his pain is coming from.

Lucas and Alex says hello and sends hugs back your way . Ed has emailed Lucas again to give him another Lilly Belle update. Which is so cool.
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Old 10-16-2009, 08:50 PM   #328
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How did taking the port out go?
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Oct 30-Nov 3, 2009 Pop - me and DD, May 15-17, 21-23, 2010 - Universal/Poly
Jan 22-30, 2011 - POFQ, May 10-13, 2012 DCL on the Dream Sept 7-11, 2012 DD's surprise bday trip - BC
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Old 10-19-2009, 08:21 PM   #329
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Sorry I have been MIA. Last week was Fall Break and it was all about my boys. So I promised them no computer. Well I tried as best that I could. Also Lucas had his surgery last week. His port is now out. Surgery went well but he did get sick alot after he woke up. But all in all he did well. I got tickled at him the first thing he asked for when he woke up was his port. He said he was my best friend and I can not wait until I get to meet him in person. So I gave him his cup and he cuddled it and went right back to sleep. He has been carry it around and showing everyone that will look. I am hoping to finish my TR this week. That is if everything works out.

Thanks for checking on us Jen!
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Old 10-19-2009, 08:38 PM   #330
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Glad he did well! Thanks for updating!
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