Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Completed Trip Reports
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





 
 
Thread Tools Rate Thread Display Modes
Old 05-03-2009, 09:07 PM   #1
mlbarbian
Earning My Ears
 
mlbarbian's Avatar
 
Join Date: May 2009
Location: Northern Kentucky
Posts: 48

Luke's Wish Trip May 16-22

We are so excited to be going to Disney, and I am so excited to have found this board. There are so many knowledgeable people on here and it is so amazing that they give their time to help us less informed with our trips - Thank You.

We are leaving May 16th, and I am feeling so unprepared right now. We have a 4 year old (Luke) and an 18 month old (Madeleine). I am hoping for the best and planning for the worst, expecting many meltdowns.

We feel so fortunate to be going to Disney through the Make-A-Wish Foundation. I know Luke will have a truly magical experience and I am so excited for him.

I know I will have lots of questions, and I plan to do lots of reading on the boards here.

Thank you,
Michelle
mlbarbian is offline  
Old 05-03-2009, 09:45 PM   #2
mlbarbian
Earning My Ears
 
mlbarbian's Avatar
 
Join Date: May 2009
Location: Northern Kentucky
Posts: 48

Luke's Story

Here is a little about us. Luke was our first child. At 10 weeks, we took him to the pediatrician for his 2 month appointment. I was really dreading the SHOTS he would be getting. The doctor was doing his examination and spent a bit of time on his abdomen. He noticed that his liver was quite larger than it should be, so he sent us to Children's Hospital to have some tests done. No shots today (I think I would have preferred the shots) On this day, he had lots of blood drawn, urine tests, etc. We also met with a Gastroenterologist. He explained to us what some of the possibilities were. I remember him talking about the possibility of a liver transplant. At this point I began to realize the severity of the situation. The Gastroenterologist sent us for an MRI the following day, he also had more blood and urine tests. That afternoon, the doctor called me (my husband was not home from work yet), and said the following(which I will never forget) "We got the results of the MRI. He has Neuroblastoma, it's cancer. It's serious, you will be in our thoughts and prayers." He proceeded to tell me that we were meeting with the oncologist the following day. This was probably the worst phone call I had ever gotten, of course I broke down and called my husband. He was on his way home.
Everything happened very fast at this point. We met with the oncologists. Luke then had a liver biopsy and bone marrow biopsy done to determine the histology of the cancer (staging, etc.). The results were mostly favorable, however one of the factors came back undesirable, so he had to have 8 rounds of chemotherapy. He had to have surgery to have a central line put in. He had stage 4S Neuroblastoma. His prognosis was very good. He is now 4 years old, and you would never even know he was so sick.
__________________
Luke's Wish Trip Planner (May 16-22, 2009):
http://www.disboards.com/showthread.php?t=2166561

Luke's Carepage:
http://www.carepages.com/carepages/LJBarbian

My website - cute hair accessories for little girls:
www.crunchybowtique.com
mlbarbian is offline  
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 05-04-2009, 07:58 AM   #3
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

Thank you so, so much for sharing your story with us!!!

Thanks for sending me the link! I will share it on the Wish Trippers Unite thread!

Do you know how to post pictures? If you would like?

You guys are leaving next week! I know you must be SOOO excited! It is a magical trip!

Have you guys been to Disney before?
maroo is offline  
Old 05-04-2009, 09:36 PM   #4
mlbarbian
Earning My Ears
 
mlbarbian's Avatar
 
Join Date: May 2009
Location: Northern Kentucky
Posts: 48

Pictures

I am going to try posting some pics.

Here is the whole family at Easter. It's really hard to get a picture where everyone is cooperating, so this is the best we got:


Luke and Madeleine in the snow:


This is my favorite picture of Luke. He is with his blanket, with the bunny that I have sewn onto it. He sleeps with this thing every night, and this is exactly how he looks when he has it:


Here is Madeleine in her 1 year picture:
__________________
Luke's Wish Trip Planner (May 16-22, 2009):
http://www.disboards.com/showthread.php?t=2166561

Luke's Carepage:
http://www.carepages.com/carepages/LJBarbian

My website - cute hair accessories for little girls:
www.crunchybowtique.com
mlbarbian is offline  
Old 05-05-2009, 01:05 PM   #5
maroo
DIS Veteran
 
maroo's Avatar
 
Join Date: Aug 2008
Location: MS
Posts: 8,042

Oh, your kids are SOOOO precious!

I love the pics!!!
maroo is offline  
Old 05-05-2009, 01:37 PM   #6
kdzbear
DIS Veteran
 
kdzbear's Avatar
 
Join Date: Jul 2006
Location: KS
Posts: 1,321

Your children are adorable! I am so glad that you get to go on a Disney Wish trip. I would be glad to answer any Disney questions you might have. I have traveled to Disney when my two littlest were the ages of your children now. I hope that Luke is in remission now. Great start to your report!
__________________
Me DH DD13 DS8 DD6

Tyler's Wish Trip (Nov. 20-25, 2009): http://www.disboards.com/showthread.php?t=2154359 Sept. 12-20, 2009 Trip report: http://www.disboards.com/showthread.php?t=2292505
kdzbear is offline  
Old 05-05-2009, 01:45 PM   #7
that's nice
DDC #330

Maybe the entire internet is slowing down because of this thread
 
that's nice's Avatar
 
Join Date: Nov 2008
Location: CT
Posts: 12,615

Michelle,
I'll be following your PTR. Our DD3 cancer was discovered when she turned 1. Our pediatrician felt something in DD belly at her 1yr well visit. It was a whirlwind of a week for us. Our DD was diagnosed with a Wilms Tumor and had surgery to remove her kidney. She also had a central line and had 5 months of chemo which ended on August 14th 2007. She has been cancer free since her surgery.

I'm so glad that Luke is doing better! There is so much info here on the DIS.... and on the wish trippers thread. Don't be scared to ask questions.. there are so many people that are willing to help!

Tim
that's nice is offline  
Old 05-05-2009, 02:09 PM   #8
BeckySob
Mouseketeer
 
BeckySob's Avatar
 
Join Date: Mar 2009
Location: Elkhorn, Nebraska
Posts: 124

Welcome Michelle!

Your children are gorgeous! Thanks for sharing your story and the pictures. Pictures are always nice!! We love pictures!!

As you know, ask any question you may have. No question is too stupid to ask!

Have you been to DisneyWorld before? Will you be staying at GKTW?
__________________
BeckySob is offline  
Old 05-05-2009, 02:22 PM   #9
kmparrish5
Mouseketeer
 
Join Date: Apr 2009
Location: Texas
Posts: 112

Welcome! Your trip is just around the corner. You leave to go home the day before we arrive. I am happy to hear that Luke is doing well now. Your children are adorable. I know they must be very excited about going to Disney. My kids can hardly stand the wait.....18 days and counting!
__________________
Kristy , Stephen , Bailee (10 -wish kid) , Caroline (6), and Landon (2)
Bailee's PTR/TR link:
http://www.disboards.com/showthread....4#post31360944

kmparrish5 is offline  
Old 05-05-2009, 03:32 PM   #10
Corrine 1973
What do you mean I am not a princess, don't you see my crown!!!
 
Corrine 1973's Avatar
 
Join Date: Mar 2009
Location: Northern Illinois
Posts: 1,946

Your kids are sooooooo cute!

I am so glad that Luke is doing well and you will very soon be going to Disney World.

This will also be my families first trip to Disney World so we are in the same boat. We will be going in September. One thing I have learned in my Disney reserch is something cool for parents who have small children who can't go on rides that other people in the party want to go on. The CM will allow one adult to stay back with the infant/child while the others ride on the ride and allow that person to ride as soon as there party returns and not get in the back of any lines (though with a GKTW or MaW button there will not be long lines anyway.)

Can't wait to hear more and see some more great pics!
Corrine 1973 is offline  
Old 05-05-2009, 05:52 PM   #11
MaryAz
DIS Veteran
 
MaryAz's Avatar
 
Join Date: Mar 2008
Posts: 6,267

Congrats on your trip! Luke is quite a guy. We are going the same time as you are! I have not gone before but have planned for monthes so if ther is anything I can answer I would be happy to.
__________________
Me Dh: DD 10 DD 7
MaryAz is offline  
Old 05-05-2009, 07:32 PM   #12
josabbimommy
Mouseketeer
 
josabbimommy's Avatar
 
Join Date: Apr 2009
Location: Mineral, VA
Posts: 82

Thank you for starting your pre trip report. When are you going home? We arrive in Orlando on the 22nd of May. I too am very excited. I have not heard from the wish organization but know someone who used to work there and she says they usually wait til the week before to give info.....so you should get something this week or early next. I would not hesitate to call them...as a matter of fact, I'm thinking of doing that myself with my son's trip.
__________________
Amberleigh Chris
DS12 DD8 DD5
Grandma gets to come too!!
1986: Grand Floridian
2007: Off-world
2009: GKTW, Joseph's MAW Trip
2012: The Caribbean Resort, Pirate Rooms!
2013: Universal Studios and IOA (Harry Potter Trip!)
2014: Art of Animation, Finding Nemo Suite

Joseph's MAW Trip Report:
http://disboards.com/showthread.php?t=2140175

We are returning to Disney World!!
josabbimommy is online now  
Old 05-05-2009, 11:13 PM   #13
mlbarbian
Earning My Ears
 
mlbarbian's Avatar
 
Join Date: May 2009
Location: Northern Kentucky
Posts: 48

Well, the wish volunteer called tonight, yay!! They are coming over on Thursday night to give us all our info. It will be such a relief to have all the info (flight time, character meal reservation, etc) so I can start to really put our trip together. I don't even know if the character meal is a breakfast, lunch or dinner.

Here is what I know I want to plan for us at this point:
Magic Kingdom - at least one day
Universal - at least one day
Sea World - feed dolphins and maybe the clam/pearl dive
Epcot - we have to go at least a half day because my brother and his family were just there in January and have video of the Turtle Talkin with Crush, so my son already knows he wants to do that.
I can't remember which park the Disney cars are at, but we HAVE to go there, my son is obsessed (and also saw pictures from my brother's trip)

I know there are also activities some mornings and evenings at GKTW that I want to be there for.

I need to sit down and make some charts or something to organize my thoughts, I am such a visual person.

More to come, when I get more organized

Michelle
__________________
Luke's Wish Trip Planner (May 16-22, 2009):
http://www.disboards.com/showthread.php?t=2166561

Luke's Carepage:
http://www.carepages.com/carepages/LJBarbian

My website - cute hair accessories for little girls:
www.crunchybowtique.com
mlbarbian is offline  
Old 05-05-2009, 11:58 PM   #14
MaryAz
DIS Veteran
 
MaryAz's Avatar
 
Join Date: Mar 2008
Posts: 6,267

I made an Excel spreadsheet so I could see it all at once. Happy planning!
__________________
Me Dh: DD 10 DD 7
MaryAz is offline  
Old 05-06-2009, 03:07 PM   #15
mlbarbian
Earning My Ears
 
mlbarbian's Avatar
 
Join Date: May 2009
Location: Northern Kentucky
Posts: 48

Quote:
Originally Posted by MaryAz View Post
I made an Excel spreadsheet so I could see it all at once. Happy planning!
Could I see a copy of your spreadsheet? It sounds like it would be very useful.

Thank you
__________________
Luke's Wish Trip Planner (May 16-22, 2009):
http://www.disboards.com/showthread.php?t=2166561

Luke's Carepage:
http://www.carepages.com/carepages/LJBarbian

My website - cute hair accessories for little girls:
www.crunchybowtique.com
mlbarbian is offline  
 



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
thread Thread Starter Forum Replies Last Post
1st Trip Report, I just can't stop myself! (April 17th - April 25th) POP kimiza Completed Trip Reports 47 07-16-2009 08:30 AM
My first PTR and my DS4's first trip to the World. PrincessBrideJo Completed Trip Reports 46 05-18-2009 09:33 PM
PTR - Last trip as Family of Four 5/4-5/8 momto2nenas Disneyland Trip Reports 27 05-10-2009 09:31 PM
First Trip - Need opinions on dining choices! kmartin555 Disney Restaurants 19 05-05-2009 09:17 PM
First Disney trip e2_erin Disney for Families 4 05-04-2009 02:08 PM

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 05:58 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.