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Old 12-23-2010, 11:09 AM   #1156
tiggspring
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Merry Christmas to one and all!



May Santa fill your stockings with Pain free vibes, Lots of energy and love
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Old 12-23-2010, 11:22 AM   #1157
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Just in case Tink deletes her last post I wanted eveyone to understand what she was upset about ..the last post by Bright eyes which she reacted to by saying "i'm out". Here it is unedited. While I see some confusion as to what tink was refering to I see no flaming...This will be the last time I bring up this subject unless somone else here has any thoughts as to what might have happened. We all gotta take care of each other



Wow, just WOW!! I'm out!


Quote:
Originally Posted by brighteyes
These are the tests that you knew I had done in October to test for the Ebstein Barr virus. They test if there are antibodies to the virus plus with my high white cell count that has been high for the last three years. We talked about this at length in October when I had it done, so am not sure what new test you are thinking of.
That way of testing has been out for a long time I think.

My results came back positive for the Ebstein Barr virus. I just never got the results till now so I did not know how they came out even though my dr. strongly suspected the results.So no new test just the same old I guess.

And no she did not really go over anything as before she tested said there was not really anything that could be done about it, just that we would know what was causing all the excessive fatigue. So there was none of that from her. Unfortunately. I just figured it's something I will always have to deal with.

Originally Posted by Tinker'n'Fun
I haven't really done a lot of research lately but did the lack of results lead to the CFS diagnosis or is there is new blood test out there? Sorry that the diagnosis has you so down. Hopefully your doctor went over all the information and you are working towards the best course of action for yourself. Hope the fibro flair eases and your Holiday is good.
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Old 12-23-2010, 11:27 AM   #1158
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BTW

Anyone looking for another diagnosis to rule out might want to get tested for cat scratch fever

My friend who is newly diagnosed went to a hematologist. He said cat scratch fever can lay dorment for many many years. he also knew of the xmrv virus studies surrounding FMS so thats very enroraging!
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Old 12-23-2010, 11:53 AM   #1159
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Quote:
Originally Posted by tiggspring View Post
BTW

Anyone looking for another diagnosis to rule out might want to get tested for cat scratch fever

My friend who is newly diagnosed went to a hematologist. He said cat scratch fever can lay dorment for many many years. he also knew of the xmrv virus studies surrounding FMS so thats very enroraging!
My DH had a terrible case of cat scratch fever. He was so sick with it. Luckliy he has never had any problems since.
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Old 12-23-2010, 02:13 PM   #1160
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Hi there everyone: I have posted from time to time but promise to be more "present"--

I started this thread a while back because Fibro tends to be dismissed sometimes as not a "real" disease and as we all know it IS real and causes severe symptoms--at times worse than others.

I am glad the thread is still surviving and hope it continues to be a calm and reassuring place where people can share info and vent without repercussions.

Merry Christmas to you all and I hope 2011 is better for all of us!

Cheryl
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Old 12-23-2010, 06:23 PM   #1161
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Quote:
Originally Posted by EDuke98080 View Post
My DH had a terrible case of cat scratch fever. He was so sick with it. Luckliy he has never had any problems since.
I have never heard of that!! I have a cat, does that have anything to do with it?? My cat is fully vaccinated however. Sounds kinda freaky to me...what is Cat Scratch Fever???

Anyways I hope we ALL can have a merry christmas and wonderful holiday season, even those who chose not to be here anymore. I mean that for EVERYONE who is here past and present.
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Old 12-23-2010, 06:43 PM   #1162
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Quote:
Originally Posted by brighteyes View Post
I have never heard of that!! I have a cat, does that have anything to do with it?? My cat is fully vaccinated however. Sounds kinda freaky to me...what is Cat Scratch Fever???

Anyways I hope we ALL can have a merry christmas and wonderful holiday season, even those who chose not to be here anymore. I mean that for EVERYONE who is here past and present.
This has been on my mind to post this or not because I usually keep my "drama" private. I really try not to have it at all but here I am. I have apologized to Tink in private with a very long message because it has never been my intention to ever hurt or offend anyone. However, since I repeatedly seem to trigger or upset Tink very much I have suggested politely that we respectfully ingore each other so I do not continue to upset her.

I would just please ask ANYONE if EVER any of my posts or messages seems rude or offensive or anything like that then please tell me that I have offended you and simply ask me. If I am upset, I am not a syde person, if it is important enough to me, I will just come out and tell you what is bothering me.

However, if I ever upset anyone here I would hope that respectfully I could be told and then I will review my response and apologize or explain myself what I really meant. Sometimes I can offend without knowing but it is not in my nature to be mean to anyone EVER. If I have a problem I will either ignore, or tell you what my problem is. I would just please ask the same from anyone else because this whole incident is unnecessary and very unfortunate in my opinion and I hope it never happens again.

Ok done now. Thanks for listening.
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Old 12-23-2010, 07:06 PM   #1163
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Quote:
Originally Posted by toocherie View Post
Hi there everyone: I have posted from time to time but promise to be more "present"--

I started this thread a while back because Fibro tends to be dismissed sometimes as not a "real" disease and as we all know it IS real and causes severe symptoms--at times worse than others.

I am glad the thread is still surviving and hope it continues to be a calm and reassuring place where people can share info and vent without repercussions.

Merry Christmas to you all and I hope 2011 is better for all of us!

Cheryl
Cheryl so glad to see you!!!!!!

Merry christmas!
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Old 12-23-2010, 11:47 PM   #1164
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Quote:
Originally Posted by EDuke98080 View Post
My DH had a terrible case of cat scratch fever. He was so sick with it. Luckliy he has never had any problems since.
Wow.. Were his symptoms like ours? I think my infectious specialist ruled this out when she found my toxoplasmosis.
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Old 12-24-2010, 01:27 AM   #1165
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He got cat scratch fever from our then kitten. His arms got scratched rather badly while we were giving a flea bath. The symptoms were high fever achy body sever redness at the sight of scratching and very swollwn large lymph nodes. The fever acute symptoms lasted about a week but it took about three months for him to feel ok. Our PCP said sometimes the lymph nodes actually have to be removed because they never go back to normal but my DH's did return to normal. I guess there is something that cats can carry under their claws and if you get sctratched badly enough it can get into your blood stream and make you really sick. It is more common with kittens than adult cats from what I hard about it. I don't think it is that common, it hasn't stopped me from having cats.

Merry Christmas to all!

Erika
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Old 12-24-2010, 09:36 AM   #1166
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Quote:
Originally Posted by EDuke98080 View Post
He got cat scratch fever from our then kitten. His arms got scratched rather badly while we were giving a flea bath. The symptoms were high fever achy body sever redness at the sight of scratching and very swollwn large lymph nodes. The fever acute symptoms lasted about a week but it took about three months for him to feel ok. Our PCP said sometimes the lymph nodes actually have to be removed because they never go back to normal but my DH's did return to normal. I guess there is something that cats can carry under their claws and if you get sctratched badly enough it can get into your blood stream and make you really sick. It is more common with kittens than adult cats from what I hard about it. I don't think it is that common, it hasn't stopped me from having cats.

Merry Christmas to all!

Erika
Thanks Goodness!! I have a cat but have never had a fever for that long, so I think I am ok. And he never really scratched me when he was a baby, just slept on my neck a lot. He's too big now for that. Glad your DH is ok now!!

Merry Christmas.
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Old 12-27-2010, 03:11 AM   #1167
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Hi Everyone!!!

Hope you had a wonderful holiday. Mine started off a bit rocky my DD11 decided to stay up till 4am thenset her alarm and hid it. She got her siblings up at 7 needless to say the lack of sleep caused some caos..I was so tired I sould bearly speak, DH was too and furious. her siblings just wanted to stay in bed a little longer preferably with us. We managed to pull it together and have a good time but buy 11 I was done. Conked out on couch for several hours. Something I never do since its better for me to go to bed. Dh just didnt have the heart to wake me.

Speaking of DH he got me Epic Mickey for the wii!!!!
We played tonight and it was awsom After awhile I got tired and he took over and I backseat painted with the Prima guide or we would have been lost. Very intracate, involved game similar to Zelda or gauntlet on nintendo 64 for those of you old enough to have played that anyway it looks like we will play it together taking turns being mickey since I get tired kinda fast for an involved game that will take many hours to complete. I would like to finish before I'm 50. Its nice to have something to do together that doesnt involve kids, work,school or Dr's.

Anyway see you all soon. Hopfully my sleeping patterns will not be affected forever by my wonderful soon to be 12 year old daughter
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Old 12-27-2010, 03:36 PM   #1168
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LOL at your daughter hiding her alarm! (sorry!)

My Christmas Eve and Day were good--however the 26th was awful. I guess I must have been overtired--ached ALL over--every joint it seemed like. Mostly stayed in bed and rested--something I have not done in a LONG time. Still having pain today but not as bad. NOT feeling like working however--good thing I'm the boss!
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Old 12-29-2010, 01:28 AM   #1169
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Sad

Hi all,

Just wanted to post and let you folks know that my cat Izzy died tonight. I am so sad. I hope everyone else had a better day than I.

Erika
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Old 12-30-2010, 10:34 AM   #1170
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Erika: I am so sorry about Izzy! Was it sudden or had he/she been sick?

Take care of yourself during this stressful time.

Cheryl
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