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Old 06-19-2013, 10:09 PM   #1816
SeaSpray


Frankly Scallop, I don't give a clam!
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Quote:
Originally Posted by carrie6466 View Post
That totally stinks. I don't even think I could do it right now anyway. Just talked to the oncologist because I'm having some side effects from the Tamoxifen (for the breast cancer) so she told me stop taking it immediately and call the gyno and tell him I need an ultrasound. I called today and they can get me in tomorrow. For some reason that really scared me. Probably because they are usually not able to get you in for a week.

I counted yesterday. Since I had surgery on March 28th, I have had 37 doctor visits. Some of them have been 2 or 3 different ones in a day. I'm ready to just say enough! already.
carrie: I hope all goes well with your ultrasound. You've been through so much in the last few months. You must be exhausted just by all of the doctor appts. let alone the surgery itself.
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Old 06-19-2013, 11:41 PM   #1817
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Well, I went to the doctor today and the result is that I get to go for an ultrasound and another biopsy on Saturday morning.


Only 61 days until WDW! So glad that I have something to look forward to.
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Old 06-20-2013, 01:49 AM   #1818
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Carrie:.. Thinking great thoughts and giant prayers for Saturday

I haven't checked in a while.. I read everything, but my brain How is everyone?

I haven't checked in honestly because I feel like Debbie Downer. I went shopping last week with my Son for his grad. Tried on a shoe, and lost my balance, went tumbling on my torn rotator cuff side. Fell RIGHT on it.. I managed to finish what we needed to do, and waited a few days, and went for Xrays yesterday. Not sure if I did anything worse

My Mother is still in the hospital, going on 6 weeks. I visit rarely, and my Dr I see weekly for talks has helped in not making me feel too guilty. I see her once or twice a week.. Right now I must focus on my son and making him feel special on Tuesday...

My husband has the second week of July off and we are looking into doing something? what who knows..LOL. Working for the airlines has good points, and majorly bad ones. No planning in advance, seeing what is available, and booking 24hrs prior.. LOL. But it would be nice, and my Dr thinks I need it in a bad way..

Giant gently hugs
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Old 06-20-2013, 08:17 PM   #1819
SeaSpray


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Quote:
Originally Posted by carrie6466 View Post
Well, I went to the doctor today and the result is that I get to go for an ultrasound and another biopsy on Saturday morning.


Only 61 days until WDW! So glad that I have something to look forward to.
Sending good thoughts for you on Saturday.

Quote:
Originally Posted by mommasita View Post
Carrie:.. Thinking great thoughts and giant prayers for Saturday

I haven't checked in a while.. I read everything, but my brain How is everyone?

I haven't checked in honestly because I feel like Debbie Downer. I went shopping last week with my Son for his grad. Tried on a shoe, and lost my balance, went tumbling on my torn rotator cuff side. Fell RIGHT on it.. I managed to finish what we needed to do, and waited a few days, and went for Xrays yesterday. Not sure if I did anything worse

My Mother is still in the hospital, going on 6 weeks. I visit rarely, and my Dr I see weekly for talks has helped in not making me feel too guilty. I see her once or twice a week.. Right now I must focus on my son and making him feel special on Tuesday...

My husband has the second week of July off and we are looking into doing something? what who knows..LOL. Working for the airlines has good points, and majorly bad ones. No planning in advance, seeing what is available, and booking 24hrs prior.. LOL. But it would be nice, and my Dr thinks I need it in a bad way..

Giant gently hugs
I'm sorry that you fell... *OUCH* I wonder if bad balance is related to fibromyalgia because I'm always walking and losing balance. I always think that my neighbors must think I'm drunk when I walk out to the mailbox. LOL

I don't think that you should feel guilty about not visiting the hospital more often. It would be bad for your stress levels and would directly negatively effect your health. I'm glad that you're seeing your doctor and that he's supporting you in this.

I hope that you get to do something fun in July when your DH is on vacation.





Well I've been feeling pretty good lately... until today. I feel like I've been hit by a truck. ALL of my joints are killing me. I hope this is only temporary. I thought that the Adderall was helping my fatigue and focus, but today I'm very tired. And my throat hurts. I guess my focus is OK since I'm able to be here reading and replying. So that's a plus. lol

Today is my day off so I did a quick food shopping and by the time I got back to my car I was having spasms in my lower back. Seriously?! Blah... I'll live. I hate to complain, so it's good to be able to come here and sound like a baby. lol
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*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*












































































~ Polynesian LVC July '10 ~ Polynesian LVC May '08 ~ RCI's 'Explorer of the Seas' Oct '07 ~ Polynesian LVC July '07 ~ Port Orleans Riverside May '07 ~ Disney Magic "Cruising Castaways" Cruise & Polynesian LVC Aug '06 ~ Animal Kingdom Lodge May '06 ~ Polynesian LVC Oct '05 ~ Wilderness Lodge CL & Polynesian LVC July '05 ~ Disney Magic 10-night "Lost at Sea" Hurricane Cruise Aug/Sept '04 ~ RCI Bermuda Cruise '03 ~ Caribbean Beach '02 ~ Grand Floridian LV '01 ~ Caribbean Beach '01 ~ DisneyLand '95 ~ WDW '85,'78,'76 ~
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Old 06-22-2013, 01:09 PM   #1820
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OH MY GOSH I was just typing such a long, important post and hit a wrong key and kaboom GONE~

Anyways, I have some news that I would like to share with you all that I hope might be of help to some of you. I am hoping it does. As you all know, I have had issues with multiple food allergies causing chronic inflamed hives since Christmas.

These did not go away until I eliminated dairy, wheat, gluten, soy, eggs, and grains from my diet. It was an elimination diet to see what I was reacting to. That was great except when I cheated a little here and there. Then I started eating like this all the time, eliminating processed foods as much as possible. In other words, only one type of salad dressing that fit the above criteria, whole pure maple syrup. If it was processed it had to have less than 5 ingredients in it. Whole, fresh foods, fresh fruit and vegetables. I stopped cooking with Olive Oil and started cooking with coconut oil. I saw an improvement in my hives (they stopped, except for the rare few that I had here and there). I also started supplementing my diet with flax seed and chia seeds and almond butter, and started eating apples as they contain quercitin which helps my hives.

Then I started really eating well. But found I started breaking out again. I started reacting to things like bananas when I started adding them back in and gluten free oats, strawberries, spinach, nutrtional yeast. What I am saying is although I am eating 90% better that what i was (junk food take out all the time - I do still eat chips and french fries sometimes) I was reacting to whole healthy foods that I did not have a problem with before.

I also had to go off all of my meds, no multi-vitamin, no fibro meds, no advil. The only thing I take now is a B6 supplement that is organic and contains no gluten. I have to say considering I am off my fibro meds, my fibro is certainly not any worse, except when I have my period.

My digestion is soo much better, no diarrhea (sorry if that's tmi), no heartburn, acid reflux, no loss of voice cause acid reflux is so bad, no more sinus congestion, no bloating, no gas, no water retention. AND I am losing weight! Slowly but surerly. Not even extra weight when I have my period. I do tend to get migraines when I have my period but so far, I am still medication free and get through it and it's getting better. I feel so much better in so many ways. Still do not have a lot of energy though due to lack of sleep but most of that is due to my son lately and my kitty and noisy neighbours I feel about 85 % better but not 100% yet.

So I went to the healthfood store trying to find a vegan protein supplement because I am trying to find a banana free strawberry free dairy free smoothie that I like but is filling for breakfast. This is the trickiest meal for me, since most of my choices for breakfast it would seem I am intolerant to. So while helping me I started discussing how every day I seem to have new foods that are giving me hives again and am afraid that my list of foods will diminish so that I won't be able to eat even healthy foods and how I miss my bananas, etc. He started describing intestine Permeability (sp?) I said do you mean "leaky gut?" I was excited I knew what he was talking about but scared cause when I briefly read about that, I thought OMGosh I am glad I don't have that, it sounds gross" LOL He said eliminate some foods, potatoes have to go still I think and drink bone broth. THe gelatin from the bone or the bone marrow is very healing to our intestines.

I started researching this more and more and messaging people who were going through the same things. What i found has been very interesting: It would seem that most people with auto-immune issues such as chrohn's, fibro, colitis, also have digestion issues such as heartburn, ibs, etc.

It would seem that ALL of these symtoms apply to me, and that they all started back at least 8 - 10 years ago after I moved here and started eating way more grains, and whole grain whole wheat at that - nothing white, all brown bread, pasta, wraps, and lots of dairy in an attempt to be healthy. That is around the time that all my sypmptoms began and steadily got worse. I truly believe that all of these issues, are due to years of undiagnosed food intolerances to dairy and wheat which then inflammed my intestines and whole body, When the body experiences so much inflammation, the intestine walls become permeable and undigested food then leaks into the system which your body sees as an invader and attacks it. Therefore, resulting in foods that you are not intolerant to giving you a reaction.

So I could keep eliminating foods until the cows come home and won't get any closer to feeling better. And the foods I can't eat without an immune reaction (hives) will continue to increase/and/or the severity of my intolerance will increase. So the key is to HEAL my tummy and then I will be able to tolerate foods more easily. I will however still be gluten free and probably grain free and diary free, but if I want to have the odd piece of cheese I want to be able to without causing pain and hives.

So there are several protocols I have discovered about when trying to heal a leaky gut. Read about them here....

http://blog.healclick.com/evolving-p...-gut-syndrome/

There are several modifications to these for those with specific conditions like chrohn`s, and autoimmune conditions.

But I am finding this all very interesting and the steps I have taken I have seen an improvement in less than 3 months.

Sorry for the book but I hope this can help someone At the very least, give someone some reading to do to make a decision on your own. All our systems are different so these things, If tried would have to be tweaked according to us, however I believe this is onto something.

Love you all, keep well.
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Old 06-22-2013, 09:35 PM   #1821
SeaSpray


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Loud people give me Skull Pain!
Call me "impatient"
 
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Posts: 16,599

Quote:
Originally Posted by brighteyes View Post
OH MY GOSH I was just typing such a long, important post and hit a wrong key and kaboom GONE~

Anyways, I have some news that I would like to share with you all that I hope might be of help to some of you. I am hoping it does. As you all know, I have had issues with multiple food allergies causing chronic inflamed hives since Christmas.

These did not go away until I eliminated dairy, wheat, gluten, soy, eggs, and grains from my diet. It was an elimination diet to see what I was reacting to. That was great except when I cheated a little here and there. Then I started eating like this all the time, eliminating processed foods as much as possible. In other words, only one type of salad dressing that fit the above criteria, whole pure maple syrup. If it was processed it had to have less than 5 ingredients in it. Whole, fresh foods, fresh fruit and vegetables. I stopped cooking with Olive Oil and started cooking with coconut oil. I saw an improvement in my hives (they stopped, except for the rare few that I had here and there). I also started supplementing my diet with flax seed and chia seeds and almond butter, and started eating apples as they contain quercitin which helps my hives.

Then I started really eating well. But found I started breaking out again. I started reacting to things like bananas when I started adding them back in and gluten free oats, strawberries, spinach, nutrtional yeast. What I am saying is although I am eating 90% better that what i was (junk food take out all the time - I do still eat chips and french fries sometimes) I was reacting to whole healthy foods that I did not have a problem with before.

I also had to go off all of my meds, no multi-vitamin, no fibro meds, no advil. The only thing I take now is a B6 supplement that is organic and contains no gluten. I have to say considering I am off my fibro meds, my fibro is certainly not any worse, except when I have my period.

My digestion is soo much better, no diarrhea (sorry if that's tmi), no heartburn, acid reflux, no loss of voice cause acid reflux is so bad, no more sinus congestion, no bloating, no gas, no water retention. AND I am losing weight! Slowly but surerly. Not even extra weight when I have my period. I do tend to get migraines when I have my period but so far, I am still medication free and get through it and it's getting better. I feel so much better in so many ways. Still do not have a lot of energy though due to lack of sleep but most of that is due to my son lately and my kitty and noisy neighbours I feel about 85 % better but not 100% yet.

So I went to the healthfood store trying to find a vegan protein supplement because I am trying to find a banana free strawberry free dairy free smoothie that I like but is filling for breakfast. This is the trickiest meal for me, since most of my choices for breakfast it would seem I am intolerant to. So while helping me I started discussing how every day I seem to have new foods that are giving me hives again and am afraid that my list of foods will diminish so that I won't be able to eat even healthy foods and how I miss my bananas, etc. He started describing intestine Permeability (sp?) I said do you mean "leaky gut?" I was excited I knew what he was talking about but scared cause when I briefly read about that, I thought OMGosh I am glad I don't have that, it sounds gross" LOL He said eliminate some foods, potatoes have to go still I think and drink bone broth. THe gelatin from the bone or the bone marrow is very healing to our intestines.

I started researching this more and more and messaging people who were going through the same things. What i found has been very interesting: It would seem that most people with auto-immune issues such as chrohn's, fibro, colitis, also have digestion issues such as heartburn, ibs, etc.

It would seem that ALL of these symtoms apply to me, and that they all started back at least 8 - 10 years ago after I moved here and started eating way more grains, and whole grain whole wheat at that - nothing white, all brown bread, pasta, wraps, and lots of dairy in an attempt to be healthy. That is around the time that all my sypmptoms began and steadily got worse. I truly believe that all of these issues, are due to years of undiagnosed food intolerances to dairy and wheat which then inflammed my intestines and whole body, When the body experiences so much inflammation, the intestine walls become permeable and undigested food then leaks into the system which your body sees as an invader and attacks it. Therefore, resulting in foods that you are not intolerant to giving you a reaction.

So I could keep eliminating foods until the cows come home and won't get any closer to feeling better. And the foods I can't eat without an immune reaction (hives) will continue to increase/and/or the severity of my intolerance will increase. So the key is to HEAL my tummy and then I will be able to tolerate foods more easily. I will however still be gluten free and probably grain free and diary free, but if I want to have the odd piece of cheese I want to be able to without causing pain and hives.

So there are several protocols I have discovered about when trying to heal a leaky gut. Read about them here....

http://blog.healclick.com/evolving-p...-gut-syndrome/

There are several modifications to these for those with specific conditions like chrohn`s, and autoimmune conditions.

But I am finding this all very interesting and the steps I have taken I have seen an improvement in less than 3 months.

Sorry for the book but I hope this can help someone At the very least, give someone some reading to do to make a decision on your own. All our systems are different so these things, If tried would have to be tweaked according to us, however I believe this is onto something.

Love you all, keep well.
Thanks so much for all of that info. I firmly believe that my fibromyagia, RA, and IBS are all related. When I feel bloated and nauseous, those are the days when my joints and muscles hurt the most and I feel the most fatigued. It seems like a huge task to try and find out the offending foods, but I really am going to put in more effort.

Hugs and pixie dust to all.

Edited to add: A few weeks ago I started to take probiotic capsules, in the hopes of improving my stomach/intestine issues. I thought they were working fairly well until the last couple of days.
__________________
*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*
*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*
John Terry Craig Robby Mushu BrownFamilyVacations.com

*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*












































































~ Polynesian LVC July '10 ~ Polynesian LVC May '08 ~ RCI's 'Explorer of the Seas' Oct '07 ~ Polynesian LVC July '07 ~ Port Orleans Riverside May '07 ~ Disney Magic "Cruising Castaways" Cruise & Polynesian LVC Aug '06 ~ Animal Kingdom Lodge May '06 ~ Polynesian LVC Oct '05 ~ Wilderness Lodge CL & Polynesian LVC July '05 ~ Disney Magic 10-night "Lost at Sea" Hurricane Cruise Aug/Sept '04 ~ RCI Bermuda Cruise '03 ~ Caribbean Beach '02 ~ Grand Floridian LV '01 ~ Caribbean Beach '01 ~ DisneyLand '95 ~ WDW '85,'78,'76 ~
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Last edited by SeaSpray; 06-22-2013 at 10:14 PM.
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Old 06-22-2013, 10:50 PM   #1822
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Quote:
Originally Posted by brighteyes View Post
OH MY GOSH I was just typing such a long, important post and hit a wrong key and kaboom GONE~

Anyways, I have some news that I would like to share with you all that I hope might be of help to some of you. I am hoping it does. As you all know, I have had issues with multiple food allergies causing chronic inflamed hives since Christmas.

These did not go away until I eliminated dairy, wheat, gluten, soy, eggs, and grains from my diet. It was an elimination diet to see what I was reacting to. That was great except when I cheated a little here and there. Then I started eating like this all the time, eliminating processed foods as much as possible. In other words, only one type of salad dressing that fit the above criteria, whole pure maple syrup. If it was processed it had to have less than 5 ingredients in it. Whole, fresh foods, fresh fruit and vegetables. I stopped cooking with Olive Oil and started cooking with coconut oil. I saw an improvement in my hives (they stopped, except for the rare few that I had here and there). I also started supplementing my diet with flax seed and chia seeds and almond butter, and started eating apples as they contain quercitin which helps my hives.

Then I started really eating well. But found I started breaking out again. I started reacting to things like bananas when I started adding them back in and gluten free oats, strawberries, spinach, nutrtional yeast. What I am saying is although I am eating 90% better that what i was (junk food take out all the time - I do still eat chips and french fries sometimes) I was reacting to whole healthy foods that I did not have a problem with before.

I also had to go off all of my meds, no multi-vitamin, no fibro meds, no advil. The only thing I take now is a B6 supplement that is organic and contains no gluten. I have to say considering I am off my fibro meds, my fibro is certainly not any worse, except when I have my period.

My digestion is soo much better, no diarrhea (sorry if that's tmi), no heartburn, acid reflux, no loss of voice cause acid reflux is so bad, no more sinus congestion, no bloating, no gas, no water retention. AND I am losing weight! Slowly but surerly. Not even extra weight when I have my period. I do tend to get migraines when I have my period but so far, I am still medication free and get through it and it's getting better. I feel so much better in so many ways. Still do not have a lot of energy though due to lack of sleep but most of that is due to my son lately and my kitty and noisy neighbours I feel about 85 % better but not 100% yet.

So I went to the healthfood store trying to find a vegan protein supplement because I am trying to find a banana free strawberry free dairy free smoothie that I like but is filling for breakfast. This is the trickiest meal for me, since most of my choices for breakfast it would seem I am intolerant to. So while helping me I started discussing how every day I seem to have new foods that are giving me hives again and am afraid that my list of foods will diminish so that I won't be able to eat even healthy foods and how I miss my bananas, etc. He started describing intestine Permeability (sp?) I said do you mean "leaky gut?" I was excited I knew what he was talking about but scared cause when I briefly read about that, I thought OMGosh I am glad I don't have that, it sounds gross" LOL He said eliminate some foods, potatoes have to go still I think and drink bone broth. THe gelatin from the bone or the bone marrow is very healing to our intestines.

I started researching this more and more and messaging people who were going through the same things. What i found has been very interesting: It would seem that most people with auto-immune issues such as chrohn's, fibro, colitis, also have digestion issues such as heartburn, ibs, etc.

It would seem that ALL of these symtoms apply to me, and that they all started back at least 8 - 10 years ago after I moved here and started eating way more grains, and whole grain whole wheat at that - nothing white, all brown bread, pasta, wraps, and lots of dairy in an attempt to be healthy. That is around the time that all my sypmptoms began and steadily got worse. I truly believe that all of these issues, are due to years of undiagnosed food intolerances to dairy and wheat which then inflammed my intestines and whole body, When the body experiences so much inflammation, the intestine walls become permeable and undigested food then leaks into the system which your body sees as an invader and attacks it. Therefore, resulting in foods that you are not intolerant to giving you a reaction.

So I could keep eliminating foods until the cows come home and won't get any closer to feeling better. And the foods I can't eat without an immune reaction (hives) will continue to increase/and/or the severity of my intolerance will increase. So the key is to HEAL my tummy and then I will be able to tolerate foods more easily. I will however still be gluten free and probably grain free and diary free, but if I want to have the odd piece of cheese I want to be able to without causing pain and hives.

So there are several protocols I have discovered about when trying to heal a leaky gut. Read about them here....

http://blog.healclick.com/evolving-p...-gut-syndrome/

There are several modifications to these for those with specific conditions like chrohn`s, and autoimmune conditions.

But I am finding this all very interesting and the steps I have taken I have seen an improvement in less than 3 months.

Sorry for the book but I hope this can help someone At the very least, give someone some reading to do to make a decision on your own. All our systems are different so these things, If tried would have to be tweaked according to us, however I believe this is onto something.

Love you all, keep well.
Thanks for the great info! A few years ago I completely cut out soda and have felt much better. About six months ago I cut out most fast food and definitely saw a difference with that. I most recently cut out potatoes because things like potato chips and French fries are very addictive to me and I will definitely over eat :/

I feel that something others need to look out for are artificial sweeteners! I have been speaking against these for years to my family members who swear by them and recently one of the top brands has been proven to cause cancer in rats!

As far as checking in: I volunteer each year for Camp Ronald McDonald and just came back from camp today after 8 days! It is such a beautiful place and everyone is so understanding there. I worked my butt off but had an amazing week! In a bit of pain now and extremely exhausted but its totally worth it. Now to recharge! Gentle hugs to everyone and much love!
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Old 06-23-2013, 01:20 PM   #1823
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sorry I have been mia. somehow my phone unsubscribed me! Now its taken me 45 minutes just to get to last page . Dis and my phone really dont like each other. My dd8 goes to dance nationals today so i may be mia a bit more.
Carie so sorry it been so hard sending pixie dust your way.

well phone really acting up. just know you guys are always in my thoughts
painfree vibes and pixie dust to all!
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Old 06-24-2013, 12:35 AM   #1824
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Quote:
Originally Posted by SeaSpray View Post
Thanks so much for all of that info. I firmly believe that my fibromyagia, RA, and IBS are all related. When I feel bloated and nauseous, those are the days when my joints and muscles hurt the most and I feel the most fatigued. It seems like a huge task to try and find out the offending foods, but I really am going to put in more effort.

Hugs and pixie dust to all.

Edited to add: A few weeks ago I started to take probiotic capsules, in the hopes of improving my stomach/intestine issues. I thought they were working fairly well until the last couple of days.
Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!
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Old 06-24-2013, 09:33 PM   #1825
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Quote:
Originally Posted by carrie6466 View Post
Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!
Hope everything turns out for the best!
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Old 06-24-2013, 09:40 PM   #1826
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I need to vent :(

So even with the fibromyalgia it has always been a dream of mine to participate in the Amazing Race! I know it will be hard for me to do but I have the determination and drive to do it. My sister and I have always talked about doing it together but now that she has gotten back together with her ex she ONLY wants to do it with him :/ She keeps telling me I "can't" do it and it really bums me out that people automatically count me out. I know the fibro will make it hard, but I know I would be able to handle it as long as I get to take all my meds with me. Haha. I'm just bummed that she's being a brat about it. Also, she now wants to postpone OUR trip to WDW and use MY DVC points to go on a cruise with her bf So yeah... sorry if that is a little off topic. Much love and gentle hugs to all!
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Old 06-25-2013, 09:30 PM   #1827
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Quote:
Originally Posted by rosanab1031 View Post
Thanks for the great info! A few years ago I completely cut out soda and have felt much better. About six months ago I cut out most fast food and definitely saw a difference with that. I most recently cut out potatoes because things like potato chips and French fries are very addictive to me and I will definitely over eat :/

I feel that something others need to look out for are artificial sweeteners! I have been speaking against these for years to my family members who swear by them and recently one of the top brands has been proven to cause cancer in rats!

As far as checking in: I volunteer each year for Camp Ronald McDonald and just came back from camp today after 8 days! It is such a beautiful place and everyone is so understanding there. I worked my butt off but had an amazing week! In a bit of pain now and extremely exhausted but its totally worth it. Now to recharge! Gentle hugs to everyone and much love!
How great that you volunteer at Ronald McDonald Camp each year! I'm sure that the kids and families truly appreciate all that you do there. I hope that you've been able to get some rest and are feeling a bit better now.

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Originally Posted by tiggspring View Post
sorry I have been mia. somehow my phone unsubscribed me! Now its taken me 45 minutes just to get to last page . Dis and my phone really dont like each other. My dd8 goes to dance nationals today so i may be mia a bit more.
Carie so sorry it been so hard sending pixie dust your way.

well phone really acting up. just know you guys are always in my thoughts
painfree vibes and pixie dust to all!
Hi tigg, I'm glad that you checked in! I hope that your DD has a good time at the dance competition. Sorry about your phone troubles, that can be annoying.

Quote:
Originally Posted by carrie6466 View Post
Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!
Hi carrie, have you gotten the official results yet? I hope that whatever it is, its nothing serious.

Quote:
Originally Posted by rosanab1031 View Post
So even with the fibromyalgia it has always been a dream of mine to participate in the Amazing Race! I know it will be hard for me to do but I have the determination and drive to do it. My sister and I have always talked about doing it together but now that she has gotten back together with her ex she ONLY wants to do it with him :/ She keeps telling me I "can't" do it and it really bums me out that people automatically count me out. I know the fibro will make it hard, but I know I would be able to handle it as long as I get to take all my meds with me. Haha. I'm just bummed that she's being a brat about it. Also, she now wants to postpone OUR trip to WDW and use MY DVC points to go on a cruise with her bf So yeah... sorry if that is a little off topic. Much love and gentle hugs to all!
I'm sorry that you sister doesn't feel that you could compete in AR. I think it's extremely difficult for anyone, let alone someone with fibromyalgia and all that that brings with it. But nobody should tell someone that they "can't" do it. I'd be upset too about her wanting to go to WDW with her BF instead of with you, especially since it's YOUR DVC! If you need someone to go to WDW just let me know.



Pixie dust and hugs to everyone.
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Old 06-26-2013, 01:02 AM   #1828
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Quote:
Originally Posted by carrie6466 View Post
Thanks for all the support. I had a biopsy done and an ultrasound. they wouldn't give me the us results, but I know they are looking at two 'things' because I could see them. One is a cyst on the ovary and the other is a polyp in the uterus. Two weeks for the biopsy to come back, then I'll know for sure.

I quoted the above, because I totally agree. I feel terrible some days, have the worst stomach aches and that causes everything to ache and it seems like it takes forever to g
feel better!
Carrie, I hope the biopsy come back and everything is ok for you.

Tigg, Glad to see you and I hope your daughter does well at the dance competition, and nice to see you.

Rosanab, I agree with you about sweeteners and potatoes. I think my almost daily consumption of potatoes is in part - part of my problem with all these issues. Potatoes are extremely bad for autoimmune conditions. I am also eliminating nightshades which I tend to eat a lot of too. Chocolate and coffee are almost out too now.

I am sorry to hear about your troubles with the AR. I think that is awesome that you are motivated to even want to do it.

Kudos to you for volunteering at such an important place.
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Old 06-26-2013, 01:04 AM   #1829
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Quote:
Originally Posted by SeaSpray View Post
How great that you volunteer at Ronald McDonald Camp each year! I'm sure that the kids and families truly appreciate all that you do there. I hope that you've been able to get some rest and are feeling a bit better now.

I'm sorry that you sister doesn't feel that you could compete in AR. I think it's extremely difficult for anyone, let alone someone with fibromyalgia and all that that brings with it. But nobody should tell someone that they "can't" do it. I'd be upset too about her wanting to go to WDW with her BF instead of with you, especially since it's YOUR DVC! If you need someone to go to WDW just let me know.



Pixie dust and hugs to everyone.
HAHAHA! Thanks SeaSpray!

Camp Ronald McDonald has become a very important part of my life and I go there for the kids as much as I go for myself. Haha. Camp just always makes me feel so much better! Granted I was VERY exhausted after words. Haha. Funny how that works that way I think it was because it was really cold this time around

My sister actually wants to do a cruise instead of our WDW trip so that she can bring her bf with her and wants me to bring my bf. I do want to do a cruise, but I want to do our WDW trip too. I am at a loss. But yeah it is my DVC and I will do what I want! Lol!

We should totally have a "Fibro Support" weekend! Or week! Haha! It would be great!

Wishing a painfree day to everyone!
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Old 06-27-2013, 09:45 AM   #1830
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Day 4 of a mild migraine. Woohoo.

So I'm wondering, does anyone else have lots of popping and cracking in your back and neck? I know it can be arthritis related too, but my xrays don't show it too bad, but the cracking has been getting worse and even painful sometimes now...which of course just sets off the fibro pain.
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