Tyler's Wish Trip - Nov. 20-25, 2009 / Dream Factory

[kdzbear]

Originally Posted by NiniMorris

Soooo happy to know the girls (and Tyler) liked their dresses! It is the first time I made anything for outside my family and I was so nervous!

Bri was so glad to see a picture of Bre wearing the dress! It was actually Bri's favorite dress I made for our last trip. (and she is a bit jealous that I was able to find a nice green to go with it. Her favorite color...I guess I'll have to remake hers! LOL)

Hope everyone gets to feeling better soon. Have a great trip!

Nini

The dresses are beautiful. My Bre likes to dress like little sis, but it is so hard to find matching clothes since one wears toddler sizes and the other pre-teen sizes. Thank you so much! I feel honored that we were your first family that you made dresses for. They are gorgeous! I need to figure out how to make some. I need to make 13 pouches this afternoon for my Girl Scout troop to take to camp this weekend to hold their swaps!

[princess&her4princes]

Aww, the shirts and dresses you got are adorable!!! What talented people!!! I'm so sorry to hear that DH and Tyler are sick...praying the rest of you stay healthy!!!

[kdzbear]

Originally Posted by princess&her4princes

Aww, the shirts and dresses you got are adorable!!! What talented people!!! I'm so sorry to hear that DH and Tyler are sick...praying the rest of you stay healthy!!!

Thank you for the compliments. Well, Hayley and I are now sick too, but it is not the flu! We just have sinus and ear infections. The doctor is a little worried about Hayley and if she starts wheezing at all we have to give her breathing treatments twice a day. Hopefully, we should all be well soon and I will be able to take my Junior Girl Scouts camping this weekend!

[chrissid7]

ohhhhh nooooo! Im sorry you guys arent feeling well! I will be crossing fingers and toes that you get to go camping too.

I just found out that 2 of the kids who were at our Halloween party have the flu so im a lil freaked out.

I hope Hayleys stays minimal and she doesnt start wheezing. Isnt it a mess? Im sooo ready for summer to come back

[maroo]

Gosh - I am sorry you guys are sick!

I hope you feel better very soon!

[kdzbear]

Originally Posted by chrissid7

ohhhhh nooooo! Im sorry you guys arent feeling well! I will be crossing fingers and toes that you get to go camping too.

I just found out that 2 of the kids who were at our Halloween party have the flu so im a lil freaked out.

I hope Hayleys stays minimal and she doesnt start wheezing. Isnt it a mess? Im sooo ready for summer to come back

Originally Posted by maroo

Gosh - I am sorry you guys are sick!

I hope you feel better very soon!

I feel much better this morning after two doses of antibiotics. Hayley is back to her bouncy and happy self. Tyler is still running a high fever that does not want to come down. My husband has finally made an appointment to go and see the doctor this afternoon. He has been sick since Friday and probably got the rest of us sick.

Breanna, my little trooper, is still healthy and she needs to stay healthy so she can go on the camping trip this weekend. I started making 15 cute little swap bags and one of the serger threads came unthreaded. I tried my best to rethread it, but I can't. My husband said he would look at it again this morning. I will post pictures of them when I am done. Swaps are little knick-knack like items on pins that the girls trade at camp. We are making cute Indian corn ones. I will post pictures of those too. At meeting today we need to make 140 of them! At least there are 13 girls making them. I feel sorry for the troops with only four girls that need to make that many.

[Dreamer & Wisher]

We are back from our trip. We had a wonderful time, but it sure was warm.

I am so glad to see the kids liked their shirts and they fit them!

I hope you are all feeling better soon.

[inkedupmomma]

uhm..ok.. I swore that I subbed to your PTR!! I am smoking something?? Didn't I make a post on here??

Ugh.. I am losing t, or am entirely so busy that I don't know what I am doing anymore!

Just wanted to say, I hope Tyler is feeling better!! Was it swine?? Sick kids are the worse!! BUT, let them get it all out right now! then you can all be a-ok for your upcoming trip!

Also, how fortunate for you to get such AWESOME big gifts gives! or big give gifts..LOL! der.. I obviously can not type either lol! I am truly so happy for you guys! Your son reminds me of my nephew so much! Although, and I know this is going to sound terrible, your boy "looks" more normal than my nephew. Please do not take offense to that! I just mean, if I saw him, I would never think, oh there is something wrong. My nephew however, clearly looks like something is off. But e is the cutest thing, god love him!

I wish my sister would be smart and try to participate in something like you have done for Tyler! she could surely use some goodness in her life!

Can you please explain this weighted blanket? what are they for?

and SUBBING fer real fer real now lol!

[kdzbear]

Originally Posted by Dreamer & Wisher

We are back from our trip. We had a wonderful time, but it sure was warm.

I am so glad to see the kids liked their shirts and they fit them!

I hope you are all feeling better soon.

Thank you! We love the shirts! They are so cute and you are so talented!

Originally Posted by inkedupmomma

uhm..ok.. I swore that I subbed to your PTR!! I am smoking something?? Didn't I make a post on here??

Ugh.. I am losing t, or am entirely so busy that I don't know what I am doing anymore!

Just wanted to say, I hope Tyler is feeling better!! Was it swine?? Sick kids are the worse!! BUT, let them get it all out right now! then you can all be a-ok for your upcoming trip!

Also, how fortunate for you to get such AWESOME big gifts gives! or big give gifts..LOL! der.. I obviously can not type either lol! I am truly so happy for you guys! Your son reminds me of my nephew so much! Although, and I know this is going to sound terrible, your boy "looks" more normal than my nephew. Please do not take offense to that! I just mean, if I saw him, I would never think, oh there is something wrong. My nephew however, clearly looks like something is off. But e is the cutest thing, god love him!

I wish my sister would be smart and try to participate in something like you have done for Tyler! she could surely use some goodness in her life!

Can you please explain this weighted blanket? what are they for?

and SUBBING fer real fer real now lol!

It was not swine flu. I am glad you are here now! Weighted blankets are used to calm down children when they have sensory overload. They are often used at night time to help children feel more secure and the weight helps them to fall asleep. They are used as lap blankets in classrooms for kids with special needs since just the little bit of extra weight on their laps helps them to concentrate! They are fairly easy to make and Tyler's blankets have been lifesavers. He would be up all night before he had his. A friend's church was making them for a local charity and she helped me make the first one and then I purchased a serger to make his heavier one. Hayley also has one that she sleeps with, but hers is not a necessity. They are also great for babies when made with the proper weight since the babies can't pull them up over their faces or get stuck in them like they can with traditional blankets. There are blessings and detriments to Tyler "looking normal". He can tend to blend in, but when he has a meltdown, which is frequent people just, stare at you like why aren't you doing anything. I just have to wait for the melt down to stop. He also can't talk well and people just assume he is shy. Diapers are a whole other issue. I get more rude comments from strangers wondering why he is so big and still in diapers. Your sister should check out Unique's website. They specialize in chromosome disorders and can give her a good starting point. We were lucky that the hospital sent us Rainbows, who provided Tyler with physical and speech therapy from the day he came home from the hospital. I have also learned that you have to be proactive or a special needs child will get lost in the bureaucracy. I have learned to fight for his needs and to never take no for an answer when he needs something.

Everyone with the exception of Breanna is still sick. I am finally starting to feel a little better, but I spent all last night coughing. Aaron is still spiking fevers and he has been sick since last Friday. Tyler and Hayley are still running fevers and their antibiotics are giving them the runs so we had to call the doctor and get additional medication for them to help alleviate the new problem that the antibiotics were causing. We hope that everyone will be well again soon. I do not remember the last time my husband missed a day of work so the fact that he has missed a whole week in unheard of. Everyone tested negative for both flu viruses and the doctor is not sure what we have other than then initial virus caused ear infections and sinus infections. I can finally breathe, but I am weak and tire easily. I am still trying to figure out how to go camping this weekend. I know lots of people are praying for our family and we thank you for this!

[kdzbear]

A new Big Give package came tonight. The return address says that it is from Stephen in NC. The box was filled with amazing goodies!











There were little photo albums for each child. There was a Disney ball for each child and Tyler and Hayley were having fun with the balls. The box contained Disney activity books. There were beautiful customized autograph books for each child.



The box continued to hold more treasures. There is a Disney bag that had each family member on it with special Disney Ear hats. Tyler’s had Stitch ears and Breanna’s had High School Musical ears. My husband loves that it has the Dream Factory logo on it. It is too cute!



Then the final three pieces made Tyler’s eyes light up! They were custom made Stitch clothes. When we began the Wish process Tyler could sign Stitch, but he could not say, “Stitch”, but now he can. He loves the clothes and did not want to take them off. He is not smiling since he is still sick. You can see in the pictures that Tyler and Hayley are still under the weather. I am hoping that Breanna stays healthy through the campout this weekend.









My husband commented that the autograph books look professionally done. He also wants to participate in the Big Give from the giving side after Tyler’s trip. You all have made a huge impression on him! Thank you again for all of the gifts. It means a lot to see Tyler, Hayley and Breanna smile so much!

[pipersmom]

Such cool big give stuff! Keeping my fingers crossed that all will go well for the camping trip this weekend, I was a GS until I graduated from high school and have many wonderful memories of swaps and camping trips and visiting places I otherwise would never have been able to. Only two more weeks for you!!

[StefaniLyn]

Great pictures! The autograph books DO look professionally made. And the Stitch pirate outfit - ADORABLE!

Whenever I tell my my DD8, Kennedy, that something she made, cooked, or created is exceptionally good, she tells me it's because she added a secret special ingredient . . . . LOVE.

I can see that all of the BIG GIVE items are made with that same special ingredient as well. A lot of LOVE

[inkedupmomma]

Originally Posted by kdzbear

It was not swine flu. I am glad you are here now! Weighted blankets are used to calm down children when they have sensory overload. They are often used at night time to help children feel more secure and the weight helps them to fall asleep. They are used as lap blankets in classrooms for kids with special needs since just the little bit of extra weight on their laps helps them to concentrate! They are fairly easy to make and Tyler's blankets have been lifesavers. He would be up all night before he had his. A friend's church was making them for a local charity and she helped me make the first one and then I purchased a serger to make his heavier one. Hayley also has one that she sleeps with, but hers is not a necessity. They are also great for babies when made with the proper weight since the babies can't pull them up over their faces or get stuck in them like they can with traditional blankets. There are blessings and detriments to Tyler "looking normal". He can tend to blend in, but when he has a meltdown, which is frequent people just, stare at you like why aren't you doing anything. I just have to wait for the melt down to stop. He also can't talk well and people just assume he is shy. Diapers are a whole other issue. I get more rude comments from strangers wondering why he is so big and still in diapers. Your sister should check out Unique's website. They specialize in chromosome disorders and can give her a good starting point. We were lucky that the hospital sent us Rainbows, who provided Tyler with physical and speech therapy from the day he came home from the hospital. I have also learned that you have to be proactive or a special needs child will get lost in the bureaucracy. I have learned to fight for his needs and to never take no for an answer when he needs something.

Everyone with the exception of Breanna is still sick. I am finally starting to feel a little better, but I spent all last night coughing. Aaron is still spiking fevers and he has been sick since last Friday. Tyler and Hayley are still running fevers and their antibiotics are giving them the runs so we had to call the doctor and get additional medication for them to help alleviate the new problem that the antibiotics were causing. We hope that everyone will be well again soon. I do not remember the last time my husband missed a day of work so the fact that he has missed a whole week in unheard of. Everyone tested negative for both flu viruses and the doctor is not sure what we have other than then initial virus caused ear infections and sinus infections. I can finally breathe, but I am weak and tire easily. I am still trying to figure out how to go camping this weekend. I know lots of people are praying for our family and we thank you for this!

WOW! Being sick sucks! I am so sorry! I am glad it is not the swine flu though! I'm not scared like everyone else is about it, but still, any flu stinks! Will continue to keep you guys in our prayers!!

As for the looking normal thing, my nephew is tallish, but kind of hunched over. But looks his age some what, and honesty like I said, you can tell something is up, and people STILL do the same things they do to you! I guess fine or having an issue isn't the case? You are just supposed to kep your kid in check no matter what! I hate society most times! I guess God graced me with two very healthy kids for the protection of others..cause I would open up a can of whoop..well you know what, if someone even looked at me slightly funny about my kid! I'm quick to say something if someone says something about my nephew too!

I am super interested in these weighted blankets now! Idk, if you know, but my Jack was "tested" for autism If you met him, you could clearly see he is not. BUT, man is he a handful! Doesn't sleep through the night, aggressive, but can be sweetest kid ever! and smart as a whip! But he DOES NOT sleep through the night! He still gets up mid way through and hops into our bed! I wonder if a weighted blanket would keep him satisfied and sleep through the night!! We also have an appointment set up for a sleep specialist at CHOP (Children hospital of Philadelphia) , so maybe they have some ideas!

Anywho, happy Friday, and please keep us updated about your sickies!

[inkedupmomma]

oh wow! the big give is so wonderful! congrats!!!

[NiniMorris]

You know...I've never thought about weighted blankets.... my DS8 does not sleep through the night. The most I can hope for is 4 hours of uninterrupted sleep. Since he sleepwalks too, and hubby works nights...well sometimes it is MUCH less than 4 hours.

Since he has many 'symptoms' of autism,I don't know why I didn't think about this! I mean they do use weighted blankets in his therapies...DUH!!!


Thanks for the idea!

Nini