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Old 06-08-2009, 12:32 PM   #31
keetmommy
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I hope your surgery goes and well and she recovers quickly for your trip in October
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Old 06-08-2009, 09:05 PM   #32
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I just found your pre trip report through the Wish Trippers thread. Your daughers are absolutely adorable! I'm so sorry that you are going through all this right now. Hopefully Jozzlyn's surgery will be fine and she'll come out with flying colors. Keeping my fingers crossed.
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Old 06-18-2009, 12:03 AM   #33
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I'm sure you're very busy right now, but when you get a chance, please let us know how the surgery went. Jozlynn is in our thoughts and prayers.
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Old 06-18-2009, 08:36 AM   #34
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Yes...please let us know how she is doing! And how are you?! I hope you are holding up and getting a little rest.

Hang in there! We are praying for you guys.
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Old 06-18-2009, 12:54 PM   #35
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Thank you all for the prayers. Jozlynn's surgery went good. It took a lot longer than they expected because they found more to fix. They realized that her right pulmonary artery was almost completely closed! They had fixed it when she was a baby but it closed again, so they were able to put a stent in there to keep it open. They also put an ASD devise in to close the hole.

She has had a rough few days, but her SATs (oxygen level in her blood) are very good now. The Doctors think that she will have even more energy now and that she may have a full year(maybe more) before they have to re-replace her pulmonary and tricuspid valves, if the heart has grown by then.

I am doing good. Although I hate to see my baby girl suffer, I feel a little more relieved now especially because she's starting to feel a little better.

It might be a little while still before we get the dates. MAW said that they will end up picking some dates but they won't actually buy the plane tickets until we get the doctor's to give the ok to travel. They are waiting until after she gets evaluated by some specialist due to some blood work that has not returned to normal since her hospital stay a few months ago. Hopefully they'll get to the bottom of that really soon. October is only 4 months away!!

Thank you all again for all of your concern, I am really sorry that this thread has turned out to be nothing but medical updates instead of Disney planning. I am getting really anxious to get focused on Disney
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Old 06-18-2009, 01:04 PM   #36
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Yeah! An update! I have to admit, I was getting a little worried...


I am so glad the surgery went well and I am thankful they did it when they did, because it sounds like they certainly needed to get in there and take a look!

I hope they can get the other medical issue with the labs straight, too!

Please don't worry about not talking Disney yet. The whole reason for your trip is the medical stuff and a lot of us just live life on our pre-trip reports anyway...even birthday parties, graduations, summer pics, etc...so this definitely relates!

I am glad you updated us and feel free to continue to update us!
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Old 06-23-2009, 12:32 PM   #37
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I'm glad to hear that everything seemed to go well. Hopefully she will recover quickly so you can go to WDW soon!
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Old 07-18-2009, 11:00 AM   #38
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I'm so sorry Jozlynn had to have another surgery. But it seems like she is recovering well. I hope you'll be able to get into full planning mode soon and have fun anticipating Disney. It really is something that you will remember for the rest of your lives...
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Old 07-27-2009, 05:54 PM   #39
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Talking Dates!!

Hi everyone,
First of all I have to thank Eeyore's Butterfly who sent a very cute get well card signed by a bunch of Disney characters. Jozlynn reads the card daily!

A little medical update: Jozlynn is doing better than we ever expected!! I didn't even realize how badly she needed the surgery until now. She has more energy than ever!!

We finally got a date!! October 2nd-8th
American airlines is doing some sort of promotion/media thingy for MAW and Jozlynn is going to be the special guest. It sounds like she'll get some special treatment on the airplane and then a party once we get to GKTW.

The wish granters have been so wonderful, they've sent a few gifts. They also have come by a few times to visit, even dressed like clowns!

I'll try to update more soon, I've just been so busy with college...only 3 weeks left until I get a little break!!
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MAW pre-trip report Goodbye Hospital Hello Disney!!! MAW video http://vimeo.com/7210389

Mommy to Jozlynn,8 HRHS,PAIVS,TS,PAS,PFO,ASD(heart defects) www.littlezippers.com
and Ariana,6 Heart Healthy!

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Old 07-27-2009, 09:50 PM   #40
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I am so glad she is going so well It sounds like your trip is already off to a great start. How exciting about your plane trip.

Best wishes on your last 3 weeks!
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Old 08-10-2009, 07:28 PM   #41
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Subbing after following from the Big Give site. Going back to read now!!!
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Old 08-10-2009, 08:09 PM   #42
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I also just found this from the Big Give site. Such cute girls you have! And such a beautiful family! What are you going to school for by the way?
I love your daughter's names they are very unique! I can't wait to hear more about your planning!
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Old 08-11-2009, 05:21 AM   #43
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Yet another follower over from The Big Give

Your girls are absolutely adorable! I am so glad she is doing well post surgery, sounds like she turned out better than you hoped which is always a great thing. I'm sure you'll get to all that Disney planning soon enough, and the folks here are a wealth of knowledge! I'm looking forward to updates and seeing what the Big Give has in store!
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Old 08-11-2009, 07:12 AM   #44
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You're family is just beautiful! I wish you an amazing trip!
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Old 08-11-2009, 12:07 PM   #45
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Hello! Your daughters are such sweeties! I can't believe how much you guys have been through. I'm 25, as well, with a 4 and 2 year old. Your story and your faith are inspiring. Your daughters sound like quite the characters (Spongebob the bear, Monkey the lamb, the princess with a cheese head ) How precious! I'm so happy for you that you were selected for MAW. I will pray that all goes well for you!
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