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Old 02-16-2009, 09:00 PM   #31
TruBlu
I was very excited to see how yummy it looks!
You can do what we do and go to BOTH!
I could have been contender.... instead, I'm just itchy
 
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Things have been a little crazy in my house, so I've not been on the boards much. Mommasita, any news?

I was watching Mystery Diagnosis today (an old episode I DVR'ed) and you'll never guess what the girl had..... the same thing I do!!! It has several names... her doc was calling it pseudo tumor something. It was a little scary for me to watch. She ended up having brain surgery. Hopefully mine wont get that bad. BUT, on the positive side... her surgery worked and she was doing great!!!
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Old 02-16-2009, 09:58 PM   #32
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I see my Dr. on Thursday of this week. Thanks for asking. I am not around as much either. I am still home, but somehow just don't have the energy.
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Old 02-17-2009, 06:42 AM   #33
TruBlu
I was very excited to see how yummy it looks!
You can do what we do and go to BOTH!
I could have been contender.... instead, I'm just itchy
 
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Quote:
Originally Posted by mommasita View Post
I see my Dr. on Thursday of this week. Thanks for asking. I am not around as much either. I am still home, but somehow just don't have the energy.
If you feel up to it, please let us know how it goes. I'll be praying for you.
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Old 02-17-2009, 11:55 PM   #34
The Orchid
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Oh my gosh, pulsating tinnitus is annoying beyond belief! I get episodes of it now and then. I find that having white noise helps. I always keep a white noise machine running in my bedroom AND a fan to drown out the pulsing. My ENT doctor said that the tinnitus is an internal noise and that the brain can't comprehend both internal noise and external noise at the same time. So he said to keep a TV on or play music by day, and at night use a fan or white noise machine. I need both to get rid of the freaking noise. Jeez, it really is annoying. You have my sympathy!

And I would seriously look into a second opinion from another ENT doctor. I'm sorry you're going through such a tough time. Ya gotta be able to trust your doctors. If you don't feel really good about them, it's time to move on. I had to fire my rheumatologist. He told me there was nothing else he could do for me and I was still sicker than hell and getting sicker! I told him "I'm 37 years old, that is not good enough!" So I found another rhuematologist who prescribed a drug cocktail that has changed my life. So I am a firm believer in second opinoins! I hope you find a doctor who is a better fit! Even if there really is nothing else that can be done, a good bedside manner is what builds trust and confidence.

Good luck!
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Old 02-19-2009, 08:03 PM   #35
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Hi everyone. Just a little update if you will.

I saw my Dr. this morning for my results, and they do indicate MS. They are not going to say a definite Yes just yet. I need another MRI. I also was at the hospital later today for the EMG, and this indicated the same, with muscle loss, and a pinched ulnar (sp) nerve. The Dr. explained very well. My B12 is also critically low, and now I am on weekly injections of the B12, to do at home. . My husband did it, and now I am in some wicked pain..LOL. I was having the shots done by the Dr, and he wanted to see if it was helping, it did seem to go up, but after a month of no injections, it shot back down. So hopefully this will keep that on track . I have my results of the brain scan, and just have to stop reading it. I faxed it through to my insurance, as the Dr's don't want me to go back to work Monday, and tomorrow is the day my insurance was up. Hoping there is no hassle on that part, but am unsure. First time in my lifetime that I am experiencing anything like this.

I have a referral for another Neurologist, and need to place that call tomorrow. Today was just a wild wild day. My son left for a school trip to Quebec City for 2 days, and we had a wicked snow storm, and I was a very nervous Mom this morning. I had to bring him to school for 6am , so I had to also bring my DD with me. Not an easy chore raising the troops at 5am, and then having all this today. Just both emotionally and physically exhausting.

Thanks for reading, if you got this far. I just wanted to updated you all.
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