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Old 12-13-2009, 10:35 AM   #3586
momma_mouse
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Quote:
Originally Posted by SueM in MN View Post
I'm not sure what email you used, but if you used the general WDW email, I just wanted to point out that there is some specific contact information for special dietary needs. Most people have found the information helpful when they have used those, so if you used them and did not find it helpful, I'm sorry to hear that.

The contact numbers and emails are listed in post #3 of the disABILITIES FAQs thread. You can find a link to that thread in my signature.

To maroo, sending hope and pixie dust for Rachel to be well enough to have a good time at WDW.

I used the e-mail addy from post #3. Yep, not much help at all, unless we want to eat a bunch of table service meals. (which we would love to, but can't afford) I guess we'll just be packing her lunch.
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Old 12-13-2009, 12:54 PM   #3587
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MommaMouse, You may find this web site helpful http://allears.net/din/guestceliac.htmThere is also a section in the book "WDW for your special needs" published by Passporter.
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Old 12-13-2009, 03:24 PM   #3588
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Hi Kelly,

Yes, Jessica did introduce us!! Thanks for asking about Brigge. Things aren't good, but we are managing. She got a broviac and started TPN at the end of September..it lasted 6wks..and then she got a line infection. We were inpatient for 2wks and ended up having to pull the line. We were home for all of a week and she got so bad (dehydrated, total gut shut down etc) so she had another broviac placed and were inpatient for 4 days..She's home now and is doing better, but we've got alot of "stuff" going on....heart issues, psych issues, endocrine issues. You name it!!! I think our list is up to 16 specialists at CHB!!!

We are planning Brigitte's trip for the week after you guys (NH school vacation week). I will tell you that the week your looking at is typically VERY crowded. We went two years ago in April and it will be HOT. We had 90 degree days...the kids just wanted to swim at the pool most of the days. So we would go to the parks early, in time for RD, stay until lunch time. We'd go back to POFQ swim, nap etc..go to dinner (I did early ADR's between 4-5) and then hit the parks at night when it would cool off.

I just picked up the 2010 Unofficial Guide and resubscribed to TGM...just to get the touring plans. I highly suggest following them as much as possible. They really work. We didn't stand in a single line the entire time we were there...We went last February (froze our butts off..it was unseasonably cold though)...didn't follow the touring plans and waited in ALOT of lines.

Good luck in your planning!!! Have a happy holiday too!!!

Shannon
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Old 12-14-2009, 09:23 AM   #3589
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Originally Posted by pnutallergymom View Post
Fast forward to this trip. I am totally freaking out. We have told our MAW chapter that we aren't interested in GKTW, or the other parks and that B's wish is just to do Disney....
Thanks so much!!
I just wanted to add about staying at the GKTW property....it is truly amazing, and this is a once and a life experience, and I highly suggest you stay there, you will be amazed about how you do not have to lift a finger for anything...except if you pick the phone up and call for room serivce Boston Markert...

There was not a day that I walked out of villia to go eat or do some of the activities there and not be in tears...the look on your child's face when you get there is priceless.

We are going back to Disney Feb 16th for a vacation, but mostly cause we want to go spend a day or two volunteering our time there...I think I even cried when I was talking to the volunteer lady on the phone...

We are staying on Disney property, Port Olreans French Quaters, and are excitied...but we just can wait to be able to go back to GKTW...

As for US/IA...I understand where your coming from, as we are just doing MK/AK/HS/Epcot during our Feb trip, but when you go with a wish child,they give you this amazing pass ( in some asspects, better than the Disney ones) and you never wait for a ride, a show or a anything when you are there. They walk you right to a speical area of the ride and you go on before anyone else, if you want front seats, than you get front seats. You will also get a private meet and greet with all the superheros, which my son loved, so your older boys will love it.

Please check out my trip report, I have TONS of pictures from our trip.

Good Luck with the planning, but please consider GKTW, it truly is so magical..
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Old 12-14-2009, 11:48 AM   #3590
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Quote:
Originally Posted by dmbfan View Post
We are going back to Disney Feb 16th for a vacation, but mostly cause we want to go spend a day or two volunteering our time there...I think I even cried when I was talking to the volunteer lady on the phone...
Dmbfan, I don't even HAVE a wish child, I just volunteer there - but I tear up every time I talk to someone at GKTW! You are not alone
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Old 12-14-2009, 02:14 PM   #3591
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Hey guys!!

I just wanted to let you guys know that we are OFF to Disney!!!!

We are driving down and won't get there till tomorrow, but I will be out of pocket for most of the week.

I will be lurking on here and also checking my PM's...so PM me if you guys have any issues or questions that can't hold till I get back.

There are lots of families just returning, so I am sure you guys will have a bunch of fun without me - talking about those trips! But I will catch up when I get back!
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Old 12-14-2009, 02:42 PM   #3592
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Quote:
Originally Posted by dmbfan View Post
There was not a day that I walked out of villia to go eat or do some of the activities there and not be in tears...the look on your child's face when you get there is priceless.

I'm so excited to go with our family! All of the TR's make it sound so amazing!


As for US/IA...I understand where your coming from, as we are just doing MK/AK/HS/Epcot during our Feb trip, but when you go with a wish child,they give you this amazing pass ( in some asspects, better than the Disney ones) and you never wait for a ride, a show or a anything when you are there. They walk you right to a speical area of the ride and you go on before anyone else, if you want front seats, than you get front seats. You will also get a private meet and greet with all the superheros, which my son loved, so your older boys will love it.

I figure we'll give them a try, even though our kids are little, and I'm sure there will be some rides and shows that they'll love.
Quote:
Originally Posted by LindaBabe View Post
Dmbfan, I don't even HAVE a wish child, I just volunteer there - but I tear up every time I talk to someone at GKTW! You are not alone
We were told our dates were approved, but no other details of the trip yet. I sure hope we are staying at GKTW!

Quote:
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Hey guys!!

I just wanted to let you guys know that we are OFF to Disney!!!!

Have a great trip Maroo!!! You're so sweet to stay "in the loop" even while you're gone!
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Old 12-14-2009, 05:40 PM   #3593
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Quote:
Originally Posted by dmbfan View Post
Wow everyone...it was about a year ago this month that we were planning Jake's MAW trip...and here I am again, but this time to share that we are going back to Disney World in Feb, and very excitied to go and volunteer hopefully a full day at GKTW. We want to be able to give back and see the smiles of other wish familys'.

Has anyone been back after their wish trip to volunteer? We are just so excitied we can can not wait.

Also looking at stayin at Port Orleans....anybody stay there?....
I am so excited y'all are getting to go back!
We are planning to go back also...we are still debating between March 2010 and June 2010!
I too hope to visit GKTW! Such a magical place!
Do you have a PTR started?
Maybe I just missed it as I am about 4 pages behind!
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Old 12-14-2009, 08:40 PM   #3594
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Maroo, have a blast!

Anyone else going to be there Jan 9th-16th? Karen
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Old 12-14-2009, 09:12 PM   #3595
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Quote:
Originally Posted by WishMom09 View Post
I am so excited y'all are getting to go back!
We are planning to go back also...we are still debating between March 2010 and June 2010!
I too hope to visit GKTW! Such a magical place!
Do you have a PTR started?
Maybe I just missed it as I am about 4 pages behind!

You know I did not think of doing a pre trip report..lol...I will be talking to the lady at GKTW tomorrow and go over what days and times they will need us, so maybe after that, I will start one. I do know I will share photos when we get back for sure. To be honest, I feel like we need to do more, so we did go thru their wish list and I will ask them tomorrow, what on the wish list they need. The kids want to use some of their "disney spending money" and bring gifts that they might need.

I also wanted to add to the US/IA....we actually were able to do both parks with the pass the gave us in less than a day, and we did go back on day 2 to the kids favorite rides and than dinner at Margartiaville( as we are HUGE Buffett fans)...so I do suggest take about 6 hours at both parks and than go back to the village, have dinner there and enjoy the activies that night.
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Old 12-14-2009, 11:35 PM   #3596
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We are back!

We are back and I have soooooooooooooo much to share....we just got home a bit ago so I will get on and share later this week....soooooooooo many photos to go through!

Maroo - can you pm me a code for the photo passport - we did not get one at GKTW....and I know we have a ton of amazing pictures!!!

So excited to get some rest and share!
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http://www.disboards.com/showthread.php?t=2324802 - pre-trip report
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Old 12-15-2009, 07:16 AM   #3597
LindaBabe


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Quote:
Originally Posted by alizesmom View Post
Maroo, have a blast!

Anyone else going to be there Jan 9th-16th? Karen
I'll be at GKTW, working in the warehouse, on the 16th. Maybe we could meet for a hug, at least, on my way to work?

Quote:
Originally Posted by Savannah's Mami View Post
We are back and I have soooooooooooooo much to share....we just got home a bit ago so I will get on and share later this week....soooooooooo many photos to go through!

Maroo - can you pm me a code for the photo passport - we did not get one at GKTW....and I know we have a ton of amazing pictures!!!

So excited to get some rest and share!
Welcome home! Maroo's on a trip this week - but checking her pm's so please send her one!
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Old 12-15-2009, 08:29 AM   #3598
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Unhappy Our "Welcome back" trip ended in the PICU

Well, Lydia developed pneumonia after about five days here and we had to take her into emergency Saturday night and she was transferred to the Florida Children's Hospital PICU that night. Last night we got to go the the peds floor (which is really nice and new) and we're hoping to be flying home with medical transport today or tomorrow. We are staying at the RM House right next to the hospital (what an awesome place!). Just wanted to let you who know us know.
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Old 12-15-2009, 09:52 AM   #3599
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Sooo sorry to hear that, Linda, keeping your family in our prayers!
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Old 12-15-2009, 11:24 AM   #3600
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Quote:
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Well, Lydia developed pneumonia after about five days here and we had to take her into emergency Saturday night and she was transferred to the Florida Children's Hospital PICU that night. Last night we got to go the the peds floor (which is really nice and new) and we're hoping to be flying home with medical transport today or tomorrow. We are staying at the RM House right next to the hospital (what an awesome place!). Just wanted to let you who know us know.
Linda, Im so sorry to hear Lydia ended up in the hospital. Good thoughts for you all and I hope you make it home today.
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