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Old 01-16-2009, 10:46 AM   #31
jessica52877
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Hope you all are okay as I see it has been a while since you posted! Is everyone excited for the cruise?
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Old 01-16-2009, 11:23 AM   #32
momtoBrandon&Jacob
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I just came across your TR and wanted to say God Bless to you and your beautiful family.
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Old 01-16-2009, 12:49 PM   #33
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thx everyone. I will update this soooon! It has been an insane month. We were at the hospital all week this week and internet access was intermitent.

I do have awesome news though!

We think we have NED for AJ!!!!!!

(No Evidence of Disease)

He has a spot of radiation necrosis on his brain still so there is a blip. Hopefully it won't cause any serious issues and the radiologist still hasn't seen the spinal scans, but our oncologist said everything looked good ott.

Praise the Lord!

We got pixie dust yesterday and I will update with pictures soon!!!

THANK YOU, THANK YOU, THANK YOU!!! It brought smiles to their faces after this long week.
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Old 01-16-2009, 01:06 PM   #34
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WOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

NED!


Congrats!!!




This is you guys, soon!!

Woo Hoo!!!!!
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Old 01-16-2009, 03:10 PM   #35
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Woo hoo!!! Fabulous news for sure!! These are the best 3 letters ever!!!
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Old 01-16-2009, 03:43 PM   #36
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MAW gave AJ a Bon Voyage party at Culvers last Saturday. Here are a few pics





as you can see in his face, he has the button, he's going to use it! LOL



our wish coordinators
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Old 01-16-2009, 04:00 PM   #37
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Quote:
Originally Posted by camarks1234 View Post
thx everyone. I will update this soooon! It has been an insane month. We were at the hospital all week this week and internet access was intermitent.

I do have awesome news though!

We think we have NED for AJ!!!!!!

(No Evidence of Disease)

He has a spot of radiation necrosis on his brain still so there is a blip. Hopefully it won't cause any serious issues and the radiologist still hasn't seen the spinal scans, but our oncologist said everything looked good ott.

Praise the Lord!

We got pixie dust yesterday and I will update with pictures soon!!!

THANK YOU, THANK YOU, THANK YOU!!! It brought smiles to their faces after this long week.
Fantastic news on the NED!!!
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Old 01-16-2009, 04:03 PM   #38
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Quote:
Originally Posted by camarks1234 View Post
MAW gave AJ a Bon Voyage party at Culvers last Saturday. Here are a few pics





as you can see in his face, he has the button, he's going to use it! LOL



our wish coordinators
You can see the determination in his face as far as that button is concerned

Sweet that Culvers had his name up in the ticker lights outside, that must have felt awesome seeing that as you parked up!!
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Old 01-16-2009, 06:32 PM   #39
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NED





Love his name on the sign. You can see in his face how excited he is. I can't wait to read about all the F.U.N. you all are going to have
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Old 01-19-2009, 07:53 AM   #40
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just found your report and your children are beautiful. so wonderful for you to hear NED . that is great. have a wonderful trip
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Old 01-27-2009, 11:24 AM   #41
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Just found this thread. Only a few more days for you now!! Can't wait to hear all about it!!
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Old 01-27-2009, 12:57 PM   #42
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AWESOME! You guys are so close!
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Old 02-22-2009, 01:34 PM   #43
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Well, we've been back a couple weeks now and I apologize for not undating right away. I have posted the start of a trip report here

I just want to thank everyone here for all the advice, stories and sharing of experiences that helped make it such a wonderful trip. Thank you for all of the pixie dust, and just everything.

PS: We loved it SO much we booked a (is it called a bounceback?) $99 cruise for Sept and are taking my parents to experience the magic! Woohoo! We are officially DCL addicts!!!!!
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Old 02-22-2009, 02:19 PM   #44
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Going to read the TR now! I am glad you seemed to enjoy it! AJ deserved some fun family time!
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