Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 11-19-2008, 02:22 PM   #61
Guerrero2915
Earning My Ears
 
Guerrero2915's Avatar
 
Join Date: Nov 2008
Location: Texas
Posts: 64

Quote:
Originally Posted by Dizneydawn View Post
Thanks and I did pm you....

He got bumped into at the end of school today and tore his donor site a little bit...hurt like heck I guess and he just called asking to come home... so I am off...he made it through the day though! I am so proud of him...even if he is there at all...he handles it so much better than I would...
OUCH!!! It is good to hear that he made it through the day,Kids amaze me sometimes with the strength and resillence. And you are pretty strong yourself seeing our children in pain is alot to handle, not sure how I would do it if were one of mine. God Bless your strength.

I PMed you with my info.
__________________

Guerrero2915 is offline   Reply With Quote
Old 11-21-2008, 11:05 AM   #62
Dizneydawn
One Road Trip Away From A STRAIGHT JACKET! Wanna Come too?
 
Dizneydawn's Avatar
 
Join Date: Jan 2006
Location: Minnesota
Posts: 3,587

DVC Gold Member
Paid DVC Rent/Trade
Gold Membership

Hi guys..Baylor is going back to burn unit today...getting cast off and I will see the results of the graph for the first time...

Not sure what next steps are but will post...

Has anyone had kids who have been having night terrors before? The past 2 nights Baylor is waking up...not really...sobbing so hard he cannot breathe...and it is scary...going to talk to docs today - but wanted advice if you had any...

THANK YOU SO MUCH....to all that have sent postcards and packages for Baylor..he has his map out to make sure he knows where Texas is, Vegas, Maryland, Delaware, Florida and Illinois too...I may be forgetting someone...I will add if I did...

Anyway - will be back soon to let you know how he did ....
Dizneydawn is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 11-21-2008, 08:03 PM   #63
A Mickeyfan
DIS Veteran
 
A Mickeyfan's Avatar
 
Join Date: May 2000
Location: 148 miles SW of the world
Posts: 9,759

I hope all went well at the doc's! I just want to add that I too feel your family needs to keep your Disney trip... your son needs to have something happy and fun. The trip would be a good thing for him
__________________
RIP Lightning 9/20/2007
A Mickeyfan is offline   Reply With Quote
Old 11-22-2008, 10:23 AM   #64
Dizneydawn
One Road Trip Away From A STRAIGHT JACKET! Wanna Come too?
 
Dizneydawn's Avatar
 
Join Date: Jan 2006
Location: Minnesota
Posts: 3,587

DVC Gold Member
Paid DVC Rent/Trade
Gold Membership

Quote:
Originally Posted by A Mickeyfan View Post
I hope all went well at the doc's! I just want to add that I too feel your family needs to keep your Disney trip... your son needs to have something happy and fun. The trip would be a good thing for him
Thanks for the support...I am getting excited to leave...so is he...

So Baylor's graph site looked alittle caggey right now but the docs were thrilled and said it looked like it was from a month out post op...not 2 weeks so that is great...but it was purpley and very thin looing still..but the top og hi sleg looked great where the burn was not bad...from mid to his ankle was the worst...and they did graph the ankle...he has a walking cast on now..thinner than the last one...and next Tuesday will hopefully get a compression stocking on that he will have for the next 18 months to hold the graft and new skin buds down so it heals flat...that will come off and he can bathe but must be worn 99% of the time...

He is walking well on it though and can have more flexibility than we expected this soon so I am pretty happy for him...

Thanks again for all the support from so many of you...
Dizneydawn is offline   Reply With Quote
Old 11-22-2008, 09:00 PM   #65
kpadalik
DIS Veteran
 
kpadalik's Avatar
 
Join Date: Mar 2007
Location: North Port, FL
Posts: 1,269

Quote:
Originally Posted by Dizneydawn View Post
Hi guys..Baylor is going back to burn unit today...getting cast off and I will see the results of the graph for the first time...

Not sure what next steps are but will post...

Has anyone had kids who have been having night terrors before? The past 2 nights Baylor is waking up...not really...sobbing so hard he cannot breathe...and it is scary...going to talk to docs today - but wanted advice if you had any...

:
First let me say that I have been following your journey and your son's recovery and you are in my prayers. To have a child go through something like that must be awful and reminds us all to never take life for granted. You are a brave woman and your son has an amazing strength for all to be admired.

As far as the night terrors go, my DD (almost 6) has had night terrors before, although only a few. I'm not really sure what is recommended to get your child through the terror, but with my DD, I hold her and talk very softly while rocking her. Usually only a couple of minutes of reassurance calms her down and she drifts back to sleep. She never wakes up during these episodes and has no recollection of them. However, I would be almost positive that Baylor's night terrors are due to post traumatic stress disorder and definitely need to be discussed w/ a doctor.

Good luck to you and a speedy recovery for Baylor!

Kristin
__________________
kpadalik is offline   Reply With Quote
Old 11-22-2008, 09:02 PM   #66
Mommaof3
I have a wet noodle and I'm not afraid to use it!
 
Mommaof3's Avatar
 
Join Date: Aug 2004
Location: Texas coast
Posts: 422

Still praying

Just wanted to check in to keep up with Baylor's progress. I really hope your trip comes off as planned. It seems it would give him something to look forward to and help keep his mind busy. My mother wears a compression sleeve. She doesn't mind it at all. (not for a burn--different condition) It does attract some attention, but not lots. She has had it for about 8 years and we all forget about it now. I hope Baylor continues to heal both physically and spiritually. I also hope that your family has a nice Thanksgiving.
Melissa
__________________
[
Mommaof3 is offline   Reply With Quote
Old 11-22-2008, 10:01 PM   #67
Guerrero2915
Earning My Ears
 
Guerrero2915's Avatar
 
Join Date: Nov 2008
Location: Texas
Posts: 64

Just wanted to say I am glad he is progressing so quickly. Know that you are still in my prayers. Sorry i did not thatcard out today, (we had a leak at the house about 2 wks ago, and today there was water everywhere again) I will get it out ASAP though. God Bless.
__________________

Guerrero2915 is offline   Reply With Quote
Old 11-22-2008, 10:31 PM   #68
A Mickeyfan
DIS Veteran
 
A Mickeyfan's Avatar
 
Join Date: May 2000
Location: 148 miles SW of the world
Posts: 9,759

When exactly is your trip to Disney? If it is during any of my long weekend, I might be able to pop up and say hi I have a 16 yr DD that I can bring up and maybe she can hang out with your DS for a bit. We let our Disney pass expire but we can meet up for lunch or something... We currently only have Universal passes... so if you have plans on doing the parks there too... we can go there with ya...

You should try to plan a mini meet for all that may want to meet your son. He really is a trooper to endure what he has gone thru. It might bring up his spirits too, knowing that so many people care about him... people that do not even know him.
__________________
RIP Lightning 9/20/2007
A Mickeyfan is offline   Reply With Quote
Old 11-23-2008, 08:25 AM   #69
Dizneydawn
One Road Trip Away From A STRAIGHT JACKET! Wanna Come too?
 
Dizneydawn's Avatar
 
Join Date: Jan 2006
Location: Minnesota
Posts: 3,587

DVC Gold Member
Paid DVC Rent/Trade
Gold Membership

Quote:
Originally Posted by kpadalik View Post
First let me say that I have been following your journey and your son's recovery and you are in my prayers. To have a child go through something like that must be awful and reminds us all to never take life for granted. You are a brave woman and your son has an amazing strength for all to be admired.

As far as the night terrors go, my DD (almost 6) has had night terrors before, although only a few. I'm not really sure what is recommended to get your child through the terror, but with my DD, I hold her and talk very softly while rocking her. Usually only a couple of minutes of reassurance calms her down and she drifts back to sleep. She never wakes up during these episodes and has no recollection of them. However, I would be almost positive that Baylor's night terrors are due to post traumatic stress disorder and definitely need to be discussed w/ a doctor.

Good luck to you and a speedy recovery for Baylor!

Kristin
Hi...we are seeing a doctor next week if it does not go away...they think his medicine weaning may play a role because he is now able to not only feel but remember more...he remembers waking up and crying and cannot catch his breath because he is sobbing so hard and begins to crawl around in his bed like he is experiencing anxiety...

Thank you for the well wishes

Quote:
Originally Posted by Mommaof3 View Post
Just wanted to check in to keep up with Baylor's progress. I really hope your trip comes off as planned. It seems it would give him something to look forward to and help keep his mind busy. My mother wears a compression sleeve. She doesn't mind it at all. (not for a burn--different condition) It does attract some attention, but not lots. She has had it for about 8 years and we all forget about it now. I hope Baylor continues to heal both physically and spiritually. I also hope that your family has a nice Thanksgiving.
Melissa
We are going for sure but it may be a difference in some of the hotel stays - may stay off property a bit cheaper ...And I am glad we are going as well...he really needs this as does the whole family..this is the most stressfull events I have ever gone through..I can be in the hospital all day long but seeing the way this has affected his self -esteem has hurt me to the core...he is frusterated at his life reight now but truthfully...so aware of those still battling a bigger fight...when we went to the doctor on Thursday...he wanted to look back at the burn unit...visited some ogf his nurses...saw the man still there from Sioux Falls...he was sleeping so Baylor decided next Tuesday he wanted to bring him something to help him try and keep awake...he thought a movie from our home (they have tons of movies but when you are there for months...new videos are a nice change ...so we are going through our videos and bringing ones we are done with...
Quote:
Originally Posted by Guerrero2915 View Post
Just wanted to say I am glad he is progressing so quickly. Know that you are still in my prayers. Sorry i did not thatcard out today, (we had a leak at the house about 2 wks ago, and today there was water everywhere again) I will get it out ASAP though. God Bless.
Thanks and please yes still mail out a postcard to him..he loves looking forward to the mail system!

Quote:
Originally Posted by A Mickeyfan View Post
When exactly is your trip to Disney? If it is during any of my long weekend, I might be able to pop up and say hi I have a 16 yr DD that I can bring up and maybe she can hang out with your DS for a bit. We let our Disney pass expire but we can meet up for lunch or something... We currently only have Universal passes... so if you have plans on doing the parks there too... we can go there with ya...

You should try to plan a mini meet for all that may want to meet your son. He really is a trooper to endure what he has gone thru. It might bring up his spirits too, knowing that so many people care about him... people that do not even know him.
Thanks for that idea...we have Saturday the 13th open pretty much and will love to say hi to people whenever they may have the chance...we will be oing to Universal for my older son's B-day on the 14th...read my PTR...and you will see pics of the whole gang...DS 17 1/2...DD 15 too....and on the last 2 pages there is a new itenerary schedule...actually I think on the top of the last page...

Link is in my siggie....
Dizneydawn is offline   Reply With Quote
Old 11-23-2008, 09:09 AM   #70
twinklebug
Dreaming in Mickey Vision
Too bad I wasn't 20, oh, I mean 3 years younger
 
twinklebug's Avatar
 
Join Date: Mar 2005
Location: Left my heart in WDW, if found please leave at WL frontdesk
Posts: 6,634

HI - Thinking of Baylor's night terrors... My son's close enough to your son's age that I understand they're still "little" on the inside even though they push each other to grow up.

It may sound silly, and there's no need for any of his friends to know, but does he have a favorite toy, stuffed animal or even a blanket (again, I said it would sound silly LOL) that he'd feel safer with at night? My son was having sleep-walking nightmares every night after his father abandoned the family. The only thing that seemed to calm him down was keeping the light on at night, a light saber beside his bed & holding onto a few friends. I allowed him whatever he needed to make the transition and show him everything's fine I'm not worried about long-term effect of him sleeping with such aids, he'll outgrow it eventually and we're down to a night light now.
__________________
.......... .. ..
twinklebug is offline   Reply With Quote
Old 11-23-2008, 09:42 AM   #71
Dizneydawn
One Road Trip Away From A STRAIGHT JACKET! Wanna Come too?
 
Dizneydawn's Avatar
 
Join Date: Jan 2006
Location: Minnesota
Posts: 3,587

DVC Gold Member
Paid DVC Rent/Trade
Gold Membership

Quote:
Originally Posted by twinklebug View Post
HI - Thinking of Baylor's night terrors... My son's close enough to your son's age that I understand they're still "little" on the inside even though they push each other to grow up.

It may sound silly, and there's no need for any of his friends to know, but does he have a favorite toy, stuffed animal or even a blanket (again, I said it would sound silly LOL) that he'd feel safer with at night? My son was having sleep-walking nightmares every night after his father abandoned the family. The only thing that seemed to calm him down was keeping the light on at night, a light saber beside his bed & holding onto a few friends. I allowed him whatever he needed to make the transition and show him everything's fine I'm not worried about long-term effect of him sleeping with such aids, he'll outgrow it eventually and we're down to a night light now.
Already with you on that...I had his siblings bringhis 2 'Blankets" in the hospital...they actually came in wearing them like super capes! He did use them inthe hospital but since we got back he has not used them again...in fact at the hospital they gave him a blanket that people make for patients in the burn unit because they are there for so long...it was flannel with motorcross on it and smaller...like a lap blanket...

I need to dig them out...I am washing his sheets right now as we speak...and just put them back on his bed.

Thanks for the reminder...

How is your son doing now?
Dizneydawn is offline   Reply With Quote
Old 11-23-2008, 10:21 AM   #72
twinklebug
Dreaming in Mickey Vision
Too bad I wasn't 20, oh, I mean 3 years younger
 
twinklebug's Avatar
 
Join Date: Mar 2005
Location: Left my heart in WDW, if found please leave at WL frontdesk
Posts: 6,634

Quote:
Originally Posted by Dizneydawn View Post
Already with you on that...I had his siblings bringhis 2 'Blankets" in the hospital...they actually came in wearing them like super capes! He did use them inthe hospital but since we got back he has not used them again...in fact at the hospital they gave him a blanket that people make for patients in the burn unit because they are there for so long...it was flannel with motorcross on it and smaller...like a lap blanket...

I need to dig them out...I am washing his sheets right now as we speak...and just put them back on his bed.

Thanks for the reminder...

How is your son doing now?
Alex is doing much better (thanks!) - he still needs his "sleeping buddies" but He's not wandering into my room at night (or slunking down in a random corner) crying yet sleeping at the same time. I'm sure it was the feeling of loss of control and the built-in safety children just assume is there in life that did it. Now his father is back around a few hours every other sunday with promises of dogs, horses, trips to europe (none of which will happen) and already asking to keep the kids overnight at his girlfriend's house where he's living. It's been 2 years, but after what he did to the kids, Oh heck no Things are settled down into a routine and I won't have them upset.

Did you find the blankets yet?
__________________
.......... .. ..
twinklebug is offline   Reply With Quote
Old 11-23-2008, 01:37 PM   #73
momrek06
The first person to reply on any thread needs to quote the OPShell Smuggler!
BEE FRAGMENTS??? I do NOT eat bees!!
 
momrek06's Avatar
 
Join Date: Dec 2005
Location: Orange County, California
Posts: 22,295

Dawn: Wow, sounds like Baylor is doing well and receiving nothing short of EXCELLENT care between the hospital and now home.

Are the night terrors subsiding at all? That must be so upsetting for all of you to see this now. This poor child has had to endure allot and now these night terrors....

Keep us updated, Dawn!!!
__________________









KAR

momrek06 is offline   Reply With Quote
Old 11-24-2008, 06:50 PM   #74
A Mickeyfan
DIS Veteran
 
A Mickeyfan's Avatar
 
Join Date: May 2000
Location: 148 miles SW of the world
Posts: 9,759

Quote:
Originally Posted by Dizneydawn View Post
Thanks for that idea...we have Saturday the 13th open pretty much and will love to say hi to people whenever they may have the chance...we will be oing to Universal for my older son's B-day on the 14th...read my PTR...and you will see pics of the whole gang...DS 17 1/2...DD 15 too....and on the last 2 pages there is a new itenerary schedule...actually I think on the top of the last page...

Link is in my siggie....
Not sure what I can swing that weekend, if anything, it would only be up for one day, Saturday the 13th. I will see what I can do. I was hoping that you were coming closer to Christmas break. My DD cannot miss anymore school this semester since she missed 5 days when my mom died last month. I could try to drive up on a Friday night, have Saturday there, then head home on Sunday.. gotta see.

I read your link, you have your plate full.. and that is what you guys need. Lots of fun for all to have.. and good memories to replace the recent (bad) ones..
__________________
RIP Lightning 9/20/2007
A Mickeyfan is offline   Reply With Quote
Old 11-24-2008, 08:10 PM   #75
sanilacjack
DIS Veteran
 
Join Date: Feb 2003
Location: Michigan
Posts: 518

Wow!
Just read your entire thread. MY thoughts and prayers go out to Baylor and your family. It's amazing how you don't realize how strong you are as a mother until something like this happens.

We will arrive at the world this Thursday. I would be happy to send baylor a post card from Mickey with a "See ya real Soon" attached to it.

Kim
sanilacjack is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 04:34 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.