Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Disney Trip Planning Forums > Disney Trip Reports > Completed Trip Reports
Find Hotel Specials & DIScounts
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read

Thread Tools Rate Thread Display Modes
Old 10-20-2008, 05:00 PM   #1
Wonders if the Tag Fairy is still around?
macntosh's Avatar
Join Date: Sep 2005
Location: Dallas, TX
Posts: 1,376

Princess Mya's MAW Trip Report: First Day and Going Away Party Posted 3/6/09

Well I thought I would at least get a place holder and start this party.

Let's start with the cast:

I am the Disney addict that has pulled in the whole family, when my wife and I met 12 and 1/2 years ago I worked for Warner Bros, but had always enjoyed the Disney Gang. We were married only six months after meeting each other and I took her to Disney for our Honeymoon, which is a story in itself and I will share at a later date.

My wife is the girl next door and the strongest women I know for going through all of this with me. She herself is a type one diabetic since the age of six, so for over 25 years she has faced a life threatening disease with charm and elegance. She has provided me with love and friendship in good times and bad and most of the time when I don't deserve it.

Our first son Griffin was Born Still on June 6th, 2001, D-Day. With our dark sense of humor we now refer to that day as Delivery Day or worse dependent on our mood. That was a very trying time for us, but we let him go from our hands to His and work hard at never forgetting our first precious angel.

Mya our wish child was Born on November 13th Mya Quinn is a perfect princess with Hannah Montana Attitude. She was born 8 weeks early and lived in the NICU for 17 days before coming home. When she came home we thought she was just perfect, but a friend of ours who had a baby shortly after her thought our child was "stiff". At about four months of age we had her evaluated and no body wanted to diagnose it, but they would say under their breath Cerebral Palsy. It was at one year of age that she had her first Brain Scan, it revealed what we thought. Mya had two small clouds at the base of her skull that were causing messages to not make it all the way to her legs as planned. This resulted in increased muscle tone and tightness in her legs that standard stretching and such does not really fix.

Mya crawled on her belly until she was almost two, walked with a walker for 6 months and then used forearm crutches for almost a year and half. Oh was she cute on those bright purple things with stickers all over them. Finally she walked but had to hold a hand for quite some time and still likes to hold one when using steps, stairs or uneven ground.

Other then her legs though, our child is smart as a whip. She started kindergarten this fall, but already reads like a first grader and has started to learn sign in order to communicate with her little brother, who is deaf. She also assists with his care which includes being sure his trach does not become clogged or if he needs assistance with some medical issues, she’s willing to yell out loud for us.

Our third child is Aidan and if I didn't know better this is the child I would have thought would be receiving the wish. Aidan was born March 9th of 2007 and at three days of age was transported to the same Hospital Mya had spent 17 days in, only this time he was going to stay much longer. Aidan was going to have an emergency surgery and we found out that he had a dieing small intestine, at the end of surgery he had lost 75% of his small intestine. Mya's stay in the NICU was going to be a cake walk as opposed to what we were about to experience. When it was all said and done, Aidan's stay lasted a little over 8 months, one code blue, multiple de-canulations, many ambu bag experiences, medically enduced paralysis, sleepless days and nights, multiple surgeries, many deaths around us, tracheostomy, feeding bags and deafness just to mention a few.

Well that was long and I'm sure a lost a few of you, but next I will write about how we got involved with Make A Wish.

This is our Journey and I hope you enjoy it.

Here is Our Story

Chapter 2?
New Camera and the Big Give has Begun

Gifts from Maroo

Arial Outfit from PeachyGreen

Crayon rolls and other things from gcast1

Autoraph books from Heather

Tonight's surprise gift 2/6/09

Hannah Montanah outfit from mommyof2princesses

Two cute outfits by Tinka_Bella

Cute outfit for Aidan given by revrob

Last edited by macntosh; 03-05-2009 at 12:38 PM.
macntosh is offline  
Old 10-20-2008, 05:22 PM   #2
DIS Veteran
iu97alum's Avatar
Join Date: Jun 2007
Location: Irving, TX
Posts: 573

Originally Posted by macntosh View Post
Well I thought I would at least get a place holder and start this party.

Let's start with the cast:

Well that was long and I'm sure a lost a few of you, but next I will write about how we got involved with Make A Wish.

This is our Journey and I hope you enjoy it.
I FOUND IT! Great start! Can't wait to hear more!!
Princess Emily's MAW PTR

1/08 VWL
1/09 DCL Wonder

iu97alum is offline  
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 10-20-2008, 05:38 PM   #3
DIS Veteran
bellasmommy0's Avatar
Join Date: Aug 2007
Posts: 666

I am subbing in.. You are a very strong family to survive all that you have!! God Bless you! And your kids are GORGEOUS!!
bellasmommy0 is offline  
Old 10-20-2008, 05:40 PM   #4
DIS Veteran
bellasmommy0's Avatar
Join Date: Aug 2007
Posts: 666

I am subbing in!! Your kids are gorgeous!!
bellasmommy0 is offline  
Old 10-20-2008, 05:49 PM   #5
DIS Veteran
Join Date: Apr 2006
Posts: 1,132

Goodness, your family has been through so much! How strong you all are! I agree with what others have said-your children are beautiful. I look forward to reading more!


Nathan's magical wish trip- Pre trip report [/U]
WDW twice including Nathan's MAW trip to WDW
8 cruises and counting- almost Platinum!
Disneyland- over 14 times and counting
oklamomof4boys is offline  
Old 10-20-2008, 05:50 PM   #6
I hate when you've been salivating over something and then it disappoints!!
Who has a big toe the same size as the rest of their toes??? I know I don't have uniform feet
babytrees's Avatar
Join Date: May 2005
Location: Maryland
Posts: 17,905

Mac-what a great beginning!!
"For some, normal is the failure of potential"

mom to Cassidy and Abi
my favorite princesses
babytrees is offline  
Old 10-20-2008, 06:06 PM   #7
Jello Shot Chick
I am scarred for life from wearing knock off brands
I opened the door and gave them the "nanny death stare"!
jackskellingtonsgirl's Avatar
Join Date: Nov 2004
Posts: 25,805

Mac - Looking forward to hearing all about this journey!
"What a fool believes he sees, no wise man has the power to reason away." Doobie Bros.
"I'd rather laugh with the sinners than cry with the saints." Billy Joel
BLT/AKV May '15 AKV Oct. '14 GF/BWV June '14 BWV June '13 Boardwalk Oct. '12 AKV June '12
AKV CL June '11 AKV June '10 AKL Dec. '09 AKV CL Aug. '09 AKL/SSR/Poly/AKV Aug. '08 AKL Dec. '07 WL Aug. '07 AKL Feb. '07 Pop Dec. '06 AKL Aug. '06 Pop Oct. '05 Pop Jan. '05

jackskellingtonsgirl is offline  
Old 10-20-2008, 06:07 PM   #8
I happened to be posting on the thread
I told dh it must have been something in the water over there
tinknme's Avatar
Join Date: Jun 2005
Location: Illinois
Posts: 22,076

Mac look forward to reading more!

tinknme is offline  
Old 10-20-2008, 06:49 PM   #9
I'll never grow old
Could only make the Pep Squad
tinker1bell's Avatar
Join Date: Mar 2005
Location: In my wildest dreams
Posts: 6,362

Hi Mac,

I cannot wait to hear more. Have you set a date yet?
In loving memory of June,,09/04/06 "Keep the board going for me while I'm gone....." TERRYDevout Member of the Champagne Girls!!

tinker1bell is offline  
Old 10-20-2008, 07:34 PM   #10
mom2lilnick's Avatar
Join Date: Aug 2008
Location: Nebraska
Posts: 483

Wonderful start. I can't wait to hear more.

Wife to one amazing guy Jeff
Mom to three wonderful kids..
Kayla, Noah and my wish child Nicholas .

Nick's pre-trip report - http://www.disboards.com/showthread....8#post28150528
mom2lilnick is offline  
Old 10-20-2008, 09:02 PM   #11
DIS Musician
Piano Teacher
Can't stay awake at night for the "hen parties"
PNO4TE's Avatar
Join Date: Jul 2001
Location: Fredericksburg, VA
Posts: 31,520

Hi, Mac! I am in!! I can't wait to read more about your wonderful family and this trip of a lifetime!

"Music... this is the favorite passion of my soul." ~ Thomas Jefferson
‎"Good wine is a necessity of life for me" ~ Thomas Jefferson

In memory of June. 09/04/06. "Keep the board going for me while I'm gone..."
PNO4TE is offline  
Old 10-21-2008, 02:31 PM   #12
DIS Veteran
maroo's Avatar
Join Date: Aug 2008
Location: MS
Posts: 8,042

I am in!

Great job!! I am in!!!

But I have a question...how is Aiden now (I don't think I spelled that right???!?!)...how is he doing?

I can't wait for you guys to get dates!
maroo is offline  
Old 10-21-2008, 07:18 PM   #13
DIS Veteran
llurgy's Avatar
Join Date: Oct 2008
Location: Bysville, Ohio
Posts: 585

I'm subbed for the ride.
Your faminly is wonderful.
Looking forward to the next instalment.

Becca's Make-A-Wish report


Becca's MAW/GKTW/Disney Trip was January 21st to January 27th 2009
Me ...... David ...... Becca
llurgy is offline  
Old 10-21-2008, 11:19 PM   #14
Wonders if the Tag Fairy is still around?
macntosh's Avatar
Join Date: Sep 2005
Location: Dallas, TX
Posts: 1,376

Wow seeing all these supporters and well wishers makes me think I better hold up my end of the bargain.

Well let's go back and talk a little more about Mya, this time including pictures.

As I stated before Mya spent only a few minutes with us upon delivery before she was quickly rushed to Cook Childrens Hospital in Ft. Worth. She was taking by Teddy Bear Transport, so for two days I got to make the drive back and forth between the two hospitals while Naomi recovered from her delivery.

It was quite the journey for us, but for Mya it was nothing but a time to rest and get read for the big world.

Once she was released and when we found out that something just wasn't quite right, we got her involved in therapy, we have always been quite agrresive with this doing both physical, occupational and even Equine when we found out about it's availability.

Through all of this she has been nothing but the little trooper. She got her first experience with Disney when she was about 2 1/2. I had business in California and with free miles chose to bring the two of them out with me. This is her first visit with Cinderella and Mickey.

For her third birthday I had found the Dis and they made us some wonderful shirts and showed us how to save some money. We spent it at the Wilderness Lodge and had a blast pin trading and doing rides and all those things you desire from an experience such as that. She no longer used her crutches, but did wear out more quickly then others.

It was at that time Naomi and I said we would be bringing her back for her sixth birthday, not knowing exactly what the future held for us, but to say the least two weeks ago there was no way I thought it would actually be happening. So fast forward to early this summer. I was familiar with Make A Wish, but thought it was only for the Terminally Ill and that wasn't Mya. I did however hear someone say that we should ask, because they had hear policy may have changed. So being the sales person that I am and know the worse someone can do is just say no. I submitted her name. A week later we got a call asking for Dr's names and such. I thought this is where it ends and to be honest forgot about the opportunity. Then we got the call and well that is what this posting will be all about.

Currently I am hoping for a late February Date, this way we might also be able to celebrate Aidan's upcoming Trach Removal and hopefully he will be walking himself by then. I have booked a breakfast at Cinderella's Royal Table and would love to attend the Pirate and Princess Party if it is actually happening one of those last two weeks of the month. I also want to go at a time when others are still in school, before the Spring Breaks so that the park is more accessable for all of us.

So here is the clan and man are we excited!
macntosh is offline  
Old 10-21-2008, 11:53 PM   #15
DIS Veteran
jham's Avatar
Join Date: Feb 2007
Posts: 3,003

I love reading about and seeing your family! Your kids are gorgeous! I'm looking forward to your trip! I'll be there February 7-14

Me (Jeanne) DH DD16 DS15 DS11 DD8 Buddy
jham is offline  

Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates

All times are GMT -5. The time now is 08:18 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: