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Old 10-18-2008, 10:15 AM   #16
seaprincess
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Thank you so much for your responses. It means so much for you to reach out to me and offer your thoughts and prayers. When I told my DH of all the wonderful messages we received he smiled and had tears in his eyes.

I am going to start making plans for our vacation for December. God willing he will be able to travel and appreciate all the parks.I am definitely going to go to Guest Services to inquire about the Disability Cards for him. I am not certain if he will be able to ride many rides, but if they are gentle enough I would love for him to enjoy the experience. One of the most amazing things happened this morning, when I called to make ADR's for our trip everything was so booked up already. A cast member from BWI Concierge put me in touch with the Manager of Le Cellier restaurant, my DH's favorite restaurant of all, I asked her if she could put us on a wait list and if something came available she could let me know. She actually was so compassionate that she made a reservation for us and I was so touched by her kindness. We will be celebrating our wedding anniversary that very day so this will be extra special. The Magic of Disney never ceases to amaze me. I just wish Mickey could make the tumor disappear.

I hope you all have a great afternoon and thank you all for being here.
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Old 10-18-2008, 10:31 AM   #17
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Please know I am keeping you and your DH in my thoughts & prayers.

I hope this web site can be of some help to you:

http://www.braintumor.org/GeneralMenu/

Peace be with you.
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Old 10-18-2008, 10:57 AM   #18
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You are in my thoughts. WDW is the very best place to escape the awful deal that cancer brings. You will find the strength that you need somehow, and lean on us when you need to.
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Old 10-20-2008, 10:53 PM   #19
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Quote:
Originally Posted by seaprincess View Post
I am definitely going to go to Guest Services to inquire about the Disability Cards for him. I am not certain if he will be able to ride many rides, but if they are gentle enough I would love for him to enjoy the experience.
Sorry to hear about your DH's situation.
You should be able to find a lot of helpful information in the disABILITIES FAQs thread (link in my signature). There is information about Guest Assistance Cards in post #6 of that thread. Post #2 has information about renting wheelchairs and post #3 has some links to past thread that would be helpful.
One thing to be aware of - if your DH is using a wheelchair, he will need to use whatever is the accessible entrance/boarding area. If he's not, you may find that the regular line/boarding area is a shorter wait. For example, the last few times we rode on Small World, the wait in the regular line was basically as fast as people were able to walk in and walk onto the boat. Some boats were even being sent out partially filled because people were not walking up fast enough. Because we travel with DD who uses a wheelchair, we had no choice and had to use the wheelchair boarding area. Our wait was over 25 minutes.
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Old 10-22-2008, 02:47 AM   #20
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So sorry to hear of your husband's diagnosis. They do have make-a-wish foundations for adults. I think if you look up the kids make-a-wish, they have links to the programs that sponsor adults. They do have much stricter criteria, but maybe they would be able to help you out. Try these:

ADULT MAKE-A-WISH PROGRAMS

* Dream Foundation: Granting wishes for Adults with terminal illnesses (in the last six months of life)

* Fairy Godmother Foundation: Wish Recipients are adults, 18 and older, with a year or less to live.

* United Special Sportsmen Alliance: A non-profit Christian organization that routinely coordinates with other caring organizations worldwide in fulfilling a dream wish. If you know of a child [or adult] who is terminally ill or disabled and would like to go on a FREE DREAM HUNT, FISHING TRIP AND CAMPING OR CANOEING please contact U.S.S.A and we will try to fulfill their “Dream Wish.” Working with deer, elk, turkey, bear, pheasant farms, and property owners as well as, preserves and ranches has made our hunting, fishing trips and outdoor adventures known nationwide.


Good luck, I know that this is hard. I'm dealing with my own brain tumor, not as serious as your husband's, but I know some of the heartache that goes into finding out that you have a tumor and trying to figure out what to do with the rest of your life. I hope you have a wonderful trip!
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Old 10-22-2008, 09:01 AM   #21
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Fairy Godmother Foundation is no longer an option

This is a quote from their website:

"Dear Friends of Fairygodmother Foundation:

I am writing with regret to inform you that after ten years of granting end of life wishes for terminally ill adults, the Fairygodmother Foundation will be closing its doors effective October 31, 2008.

As you know, this has been a very difficult year for the American economy which has created tremendous challenges for nonprofit organizations. Like many other organizations, Fairygodmother Foundation experienced a number of financial challenges over the last year that unfortunately we are unable to overcome. Therefore, the Board of Directors of Fairygodmother Foundation made the difficult decision at a recent meeting to dissolve the corporation.

We are extremely proud of what has been accomplished. Over 1,000 wishes have been granted in all 50 states, providing our wish recipients the opportunity to bring closure and quality to the end of their lives. We greatly appreciate your support; we could not have done this without you. So many lives have been touched over the last 10 years, and special memories created for the loving family members of our wish recipients to cherish for years to come.

On behalf of the Staff and the entire Board of Directors of Fairygodmother Foundation, thank you for all that you have contributed over the years to help us fulfill our mission. We could not have done it without you.

With deep gratitude,

Gerald Cholewa
Chairman, Board of Directors"

hug to your dh & you!
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Old 10-22-2008, 07:20 PM   #22
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Good evening and thank you so much for the information about the Adult Make a Wish Organizations. It is such a shame that the economy has forced the Fairy Godmother Program to close its doors. It sounds as if they have made many people's wishes come true over the years.

I have been very busy taking care of my DH and am still struggling to get everything done on a weekly basis. We used to pride ourselves on staying on top of things and now I feel like there are not enough hours in the day for one person to fulfill the endless "to do list". I looked in the mirror this morning and realized how "tired" I look. I knew I felt this way on the inside, but it is now starting to show on the outside as well. I am not sure if there is any magic cream to make dark circles go away. I only wish I could sleep at night....too many things to worry about!! I know my DH is aware that I am struggling and am frustrated, I just wish we could communicate better. Expressive Aphasia is such an awful condition, I feel as if he is trapped inside his own mind. He tries so hard and I commend him, I just wish I could wave a magic wand and make him better again.

On a more positive note I am making good progress planning our December Disney surprise vacation. I made reservations at the Boardwalk Inn and even took advantage of the DIsney VISA offer for free dining...who would have ever thought you would see "free dining" in December? This will definitely come in handy. I have to give many KUDOS to the Special Needs Department at WDW. They called me an hour after making the ressie and helped me with arranging all necessary items for the room since they did not have a true "accessible" room available. That alone felt like "Pixie Dust" from above! I have been somewhat lucky making dining ressies so I think the rest will eventually fall in place. This trip will obviously be different depending on his stamina. It will be very crowded in the parks so close to Christmas so I did not go crazy booking too many activities. Normally we are in full go mode! I will certainly look into the Guest Services Disability Card. I truly think this will be helpful. I need to look into renting a scooter for my DH and have heard positive things about Walker Mobility Rental. Has anyone had any experience with this company?

I feel very blessed to have found this forum as it is nice to share my thoughts with you. Thanks for caring so much!

With Much Gratitude,

Lisa
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Old 10-23-2008, 05:49 AM   #23
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Lisa.....good for you.. you two go and have the best time. We will be going ourselves first week in December......on a chemo holiday, and Tom will do the best he can and we will too....our grown up children are going to....they grew up with WDW and want to be there with their Dad..
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Old 10-23-2008, 08:26 AM   #24
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Dear Mackey Mouse,

I am glad that you all are going to WDW as well. It is a shame that we will miss each other. We originally were going to be on DCL's Western Carribean Cruise at the end of November and staying at WDW for three days afterwards. Unfortunately, Ben will be on chemo again at the beginning of November and because this is such a new experience for us (traveling that is) I felt uncertain about taking him out of the country in case an emergency would arise. My hope is that if he becomes stable enough, the doctor might ok him to travel on a cruise and perhaps we might be able to steal away to the Bahamas with DCL.

I truly hope you all have a Magical vacation and I think it is wonderful that your children will be there to celebrate with the both of you. The holidays are so magical at WDW that even when someone is not feeling well, the spirit of the season makes you smile.

Have a wonderful day!
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Old 10-23-2008, 09:49 PM   #25
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I hope you both have wonderful trips, seaprincess and Mackey Mouse. We're going next week, just for a few days because Jim wants to see it one more time. I'm doing my best to see that he has a wonderful trip. We're wishing you love, luck and pixie dust! And saying prayers for us all!
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Old 10-23-2008, 11:23 PM   #26
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I will.
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Old 10-24-2008, 08:52 AM   #27
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To Elfster,

I see that your DH is suffering from ALS - My dear friend had this terrible disease and I took care of him, if you need to talk, I am here!

Louise
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Old 10-25-2008, 01:37 PM   #28
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Seaprincess, I am so very sorry to hear about your husband. Mine was diagnosed with colon cancer at the age of 38. He battled this horrible disease for 2 years, but sadly, never recovered. I know what you are going through....I can only tell you to cherish every minute you get to spend with your husband. I hope you are able to make some fantastic memories at WDW.

Since my husband's passing, I've taken our 2 boys on a Disney trip every year. It has become our "tradition" and I tell them that their Dad would be so happy that we are able to have some fun--just the three of us!

I wish you all the best, and pray that God gives you comfort and strength. We are sending you love & hugs from Illinois....
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Old 10-25-2008, 09:31 PM   #29
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Hi karendvc07,

Thank you for your kind words. I am so sorry to hear of your husband's passing after battling cancer. It just does not seem fair that so many people are suffering from the horrible disease. I only hope that they will some day find a cure for cancer. I guess I kept thinking I was the only one with a husband that is fairly young and going through this ordeal. It is so comforting to share my story on this board and to receive such warm support makes me keep the faith.

I think it is wonderful that you take your boys to WDW every year. I think you are right to tell them how happy their Dad would be as I am certain he is smiling down upon you all as you dedicate your life to raising your boys and taking care of your family. My biggest regret is not having children. I can not imagine what life will be like if something happens to him and I think how wonderful it would have been to have a child (children) to carry on his legacy. I will always cherish our memories and hope that we can continue to spend as much time together as God grants us.

Thank you for taking the time to share your story with me and for your thoughts and prayers. I am finding myself coming to this forum several times daily just for comfort. Right now it is a positive and much needed outlet for my mind to keep it focused.

Have a wonderful evening.
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Old 10-26-2008, 07:16 AM   #30
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Hugs to all here.. those of us battling with our loved one.. remember as a caretaker, you need a break every so often..

My break yesterday was to go shopping with my youngest daughter for her wedding gown....we found it, she was beautiful in it. The wedding is early summer.. and we are praying that DH will be relatively strong for it.

Our trip to WDW in Dec is the shot in the arm he needs.. and if we need to do it again and again, we will.... just taking our time, soaking in the magic, and enjoying the beautiful sunshine.. It is what makes the winter bearable for us in New England, those little breaks.

So SeaPrincess, go and enjoy, laugh, and just take your time and smell those roses.. KarenDVC07.. hugs to you too. so young, way too young to go away from you and your children...have a wonderful trip in his memory..
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