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Old 11-05-2008, 06:54 AM   #76
jmskinner
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My son got to play that game at school and really enjoyed it. I'm sure Becca will also.
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Old 11-05-2008, 07:15 AM   #77
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Haven't been able to read the entire thread, have to stop here. I will finish up tonight. I just wanted to say hugs to your family. I hope the meds for the migranes work, at least a bit. I have had them all my life and they just aren't fun. How wonderful about the Wish trip and the Big Give, well that is just icing on the cake. Those ladies (and gentlemen) make the most wonderful stuff. I found you through Maroo's trip report about Lauren.

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Now give us a Skelly or an Eyeore...... We luvs Eyeore
And last but not least, I love Eyeore also, so we are friends for life.
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Old 11-05-2008, 08:21 AM   #78
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we are still waiting on date
but it would be fun to meet you guys
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Old 11-05-2008, 11:15 AM   #79
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Originally Posted by eyor44 View Post
Haven't been able to read the entire thread, have to stop here. I will finish up tonight. I just wanted to say hugs to your family. I hope the meds for the migranes work, at least a bit. I have had them all my life and they just aren't fun. How wonderful about the Wish trip and the Big Give, well that is just icing on the cake. Those ladies (and gentlemen) make the most wonderful stuff. I found you through Maroo's trip report about Lauren.



And last but not least, I love Eyeore also, so we are friends for life.
Welcome to my Pre-trip report, lovely to have you on board for the ride.

I think it is exceptional what the Big Give does for Wish Kids and their families, it is like some kind of Magic that has suddenly come into Becca's life - Ours too.
Maroo's TR is brilliant, poignant yet hilarious at the same time, i really look forward to reading it, i will be sad when it is over though.

Mandy
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Me ...... David ...... Becca
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Old 11-05-2008, 11:18 AM   #80
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Originally Posted by jmskinner View Post
My son got to play that game at school and really enjoyed it. I'm sure Becca will also.
Becca played it last night with her Daddy, she loved the monsters one. All I could hear from the sidelines was "Does yours drool?" or "Does yours smell?"

Mandy
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Old 11-05-2008, 01:52 PM   #81
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Welcome to my Pre-trip report, lovely to have you on board for the ride.

I think it is exceptional what the Big Give does for Wish Kids and their families, it is like some kind of Magic that has suddenly come into Becca's life - Ours too.
Maroo's TR is brilliant, poignant yet hilarious at the same time, i really look forward to reading it, i will be sad when it is over though.

Mandy
You are so sweet!! Here I was just reading away...and I saw my name...and did a double take... You are so sweet!! I am speechless...I better get back to writing!!
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Old 11-05-2008, 04:17 PM   #82
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The coolest Big Give ever! No dates yet and already Big Gived...that should be like being "booed"... what IS that anyway??? Being Boo-ed...? or Boo'd? or whatever?
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I dunno what boo-ed is either, I did read someone explaining it on another thread but I still didn't understand and now I cant find the thread again to give you the link

Mandy
check your PMs. It's too late for being booed though.
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Old 11-10-2008, 07:45 AM   #83
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check your PMs. It's too late for being booed though.
Thank you for my Gobble

Mandy
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Old 11-10-2008, 08:00 AM   #84
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Meds update

As you know we went to see the Neuro on the 24th Oct.
He put Becca on Topomax - A 25mg dose once and day for 15 days and then twice a day thereafter.
Well........Becca very quickly turned into a complete Zombie! Listless, fatigued and lacking any sort of concentration altogether......Needless to say, trying to teach her school has been a total pain in the ****.
Last Monday after long phone talks with the doctor (through his nurse/answering service) we had the 25mg dose cut in half and she was getting more and more zombified.
She was taking her meds at night before bed. Wednesday and Thursday last week she woke up (late) and had her breakfast and then promptly disappeared to the bathroom and threw up, Friday she didnt even manage breakfast!

Now we know our daughter and the only times she throws up is if she gets the sudden onset migraine or she is coming down with something and she basically throws up for a full day.
This was different.....for a start, she hadnt had enough energy or verve in her to even start working up a migraine and once she threw up just that once she was fine
Anyways, to cut a long story short on Friday I again played telephone tag with the doctor/nurse/answering service and took her off the meds.
She has to go see the Neuro again tomorrow to discuss alternative meds.

I am afraid if he suggests something with the antihistamine properties in it we are going to veto it.
This exercise was meant to improve her quality of life but the meds just change her into a blob that didnt even have enough energy to work up any kind of headache. The migraines she suffers from are brought on by her doing too much and not having sufficient Oxygen to fuel what she is doing.

Mandy
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Old 11-10-2008, 10:09 AM   #85
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I'm sorry Becca's been having trouble with her meds... That's no fun! I think it was wise to stop them if she was reacting like that. A lot of kids get all zombie like from antihistamines. I hope they're able to find something that will work for her.
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Old 11-10-2008, 10:25 AM   #86
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good luck with the Doctor tomorrow. Hopefully he will have an acceptable alternative.
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Old 11-10-2008, 10:58 AM   #87
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I would say that it is not working then
jason is on verapamil for his daily head ache meds
then he get a Maxalt as soon as he gets one
sorry she is having pain migraines are no fun
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Old 11-10-2008, 11:44 AM   #88
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Hopefully we will get something that works.
We dont want to put her on meds just for the sake of it, it is all a balancing act.
The meds to stop the headaches are making her a zombie and spoiling quality of life.....she doesnt do things when on the meds to get an headache as she is too tired.
She gets the headaches when she "overcooks" things but on the meds she doesnt reach that stage but either way she has no quality of life.
Without the meds at least she can enjoy life until the headache comes, with the meds she doesnt enjoy anything.
Our ultimate aim is to improve her lifestyle. The headaches are painful yes, but she doesnt get them all the time, they are cause and effect. PLUS....within 1/2 an hour and a quick nap the migraine is gone and she is back to normal. With the meds she is bad all the time.
Becca says she prefers the headaches!!

Sorry to ramble......

Mandy
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Old 11-10-2008, 03:20 PM   #89
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We have our dates!!!!!

We have our dates subject to Doctors approval!!!

January 21st thought January 27th

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Old 11-10-2008, 03:25 PM   #90
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I would love a huge meet up!! I am used to lots of kids, I work in a school, plus I take my sisters kids to church with me every Sunday.

Kayla really wants to meet Becca!
It looks like Kayla and Becca will be meeting!!

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