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Old 10-14-2008, 11:00 PM   #16
llurgy
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Originally Posted by teresajoy View Post
Definetely NOT too much information!! We love lots of details around here!! I second the Chef Mickey and Ohana recommendations! I have never actually BEEN to Ohana's but it looks like so much fun from what I've read!!! How does she feel about ugly stepsisters?? They are at 1900 Park Fare, and are TONS of fun!!!!! Cinderella is there too, but I think most people go for the stepsisters! I wrote about it in my TR ,if you want to read it. (the Wickedness installment).

How long does it usually take to get your dates when you've been approved?
I will definately look into the Chef Mickey and the Ohana, thanks.

I will read your wish trip tomorrow, its gone midnight now and I have to home-school in the AM......though she has been getting up rather late these past few mornings (I think she may be coming down with something) so I may get a good couple of hours 'me' time in the morning.

Just to be sure, is it the link that says "A sort of Trip Report" in your sig?

The person from M-A-W said that it could take about 2 to 4 weeks to be assigned volunteers and then it could be as long again to get dates. But then she also said that depending on the availability of volunteers and GKTW vacancies we could get everything done in 4 weeks.......So.......I guess its just wait and see what happens. I will be grateful as long as we get to go this winter as we think she wont be able to enjoy it in another year. Her energy has gone down in tandem with her oxygen saturations in the 8 years since she has been diagnosed, she is able to do less and less each year.

Mandy
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Becca's Make-A-Wish report

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Becca's MAW/GKTW/Disney Trip was January 21st to January 27th 2009
Me ...... David ...... Becca

Last edited by llurgy; 10-14-2008 at 11:06 PM. Reason: I forgot to write the other half of my post :)
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Old 10-14-2008, 11:15 PM   #17
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The offer is definitely still open, just send me a PM with your address. Mickey and friends appear at Chef Mickey's, Cape May, and Mickey appears with Stitch and Pluto at O'Hana. She might really like O'Hana for bfast since Stitch seems more up her alley! Plus, at O'Hana they bring the food to your table so there would be no getting up to get plates of food for you guys. Chef Mickey's has Mickey, Minnie, Pluto, Goofy, and Donald, but it has usually hard to get into the closer your trip gets.
We will probably go for the O'Hana. I will look at reviews and info at both places tomorrow. I need to find out how late they do breakfasts, or if they do lunches.

Becca is not a morning person so we have to accommodate with having late starts. She can get up but if we wake her too early she runs out of energy far earlier in the day than if we had just let her get the rest her body demands. If we dont rush her out of bed in a morning she can usually plod through the day and make it into late evening.....Get her out of bed too early and she has crashed by lunchtime the poor love. She will be p'eed at us if we do that
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Me ...... David ...... Becca
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Old 10-14-2008, 11:21 PM   #18
teresajoy
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Originally Posted by llurgy View Post
I will definately look into the Chef Mickey and the Ohana, thanks.

I will read your wish trip tomorrow, its gone midnight now and I have to home-school in the AM......though she has been getting up rather late these past few mornings (I think she may be coming down with something) so I may get a good couple of hours 'me' time in the morning.

Just to be sure, is it the link that says "A sort of Trip Report" in your sig?

The person from M-A-W said that it could take about 2 to 4 weeks to be assigned volunteers and then it could be as long again to get dates. But then she also said that depending on the availability of volunteers and GKTW vacancies we could get everything done in 4 weeks.......So.......I guess its just wait and see what happens. I will be grateful as long as we get to go this winter as we think she wont be able to enjoy it in another year. Her energy has gone down in tandem with her oxygen saturations in the 8 years since she has been diagnosed, she is able to do less and less each year.

Mandy
The soto of a trip report is a TR, but not the one with 1900 Park Fare, that one is the purple "Diser Sistas" button. But, you can read both if you want. The first one is only one page long.
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Old 10-14-2008, 11:27 PM   #19
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Originally Posted by llurgy View Post
We will probably go for the O'Hana. I will look at reviews and info at both places tomorrow. I need to find out how late they do breakfasts, or if they do lunches.

Becca is not a morning person so we have to accommodate with having late starts. She can get up but if we wake her too early she runs out of energy far earlier in the day than if we had just let her get the rest her body demands. If we dont rush her out of bed in a morning she can usually plod through the day and make it into late evening.....Get her out of bed too early and she has crashed by lunchtime the poor love. She will be p'eed at us if we do that
I found this information for you:
Ohana's Character Breakfast: 7:30am - 11:00am
Chef Mickey- Breakfast Buffet: Breakfast (7:00 am - 11:30 am)
Dinner Buffet: Adult (5:00pm - 9:30 pm

This page has links to the different character meals:
http://www.wdwinfo.com/Just_for_kids...ter_dining.cfm
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Old 10-15-2008, 08:48 AM   #20
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Just found your PTR and I am loving it! Becca is an amazing girl! We will be at GKTW Jan 19 to 25, I have a 12 year old daughter too and I know that she would love to be Becca's friend! Maybe we will luck out and be there at the same time.
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Nick's pre-trip report - http://www.disboards.com/showthread....8#post28150528
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Old 10-15-2008, 10:13 AM   #21
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Quote:
Originally Posted by teresajoy View Post
The soto of a trip report is a TR, but not the one with 1900 Park Fare, that one is the purple "Diser Sistas" button. But, you can read both if you want. The first one is only one page long.
I have read your sort of trip report and from then gotten dragged into reading of your babies in heaven

I have just started to read your Sista's TR and I am planning to read yours and Heathers at the same time.....LOL.....I am going to be Boz-eyed by the time I am done.

Thanks for the Dining info and link, I have them bookmarked now

Mandy
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Becca's MAW/GKTW/Disney Trip was January 21st to January 27th 2009
Me ...... David ...... Becca
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Old 10-15-2008, 11:00 AM   #22
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Originally Posted by mom2lilnick View Post
Just found your PTR and I am loving it! Becca is an amazing girl! We will be at GKTW Jan 19 to 25, I have a 12 year old daughter too and I know that she would love to be Becca's friend! Maybe we will luck out and be there at the same time.
Oh goodie, another TR to read, I will get around to it honestly, I love reading TR's and I have been avidly devouring them since landing on these boards a few weeks ago.
The only trouble is with reading so many in such a short time is that I am starting to get mixed up with who is going when and whom belongs to which trip. My mind is a turmoil....LOL!

It would be neat if our girls managed to meet up, fingers crossed.
Becca is more excited about maybe meeting other kids at the village than she is about Disney I think and she is really excited about Disney!!!

Mandy
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Old 10-17-2008, 09:59 PM   #23
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You went and tricked me into reading your PTR by posting on MY TR!

You seem like such a nice family and I can't wait to read more about you guys!

Like my sister said, there's no such thing as too much information on your PTR! It's your TR and you get to write whatever you want!

I bet you can't wait to find out your dates!
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Old 10-17-2008, 10:31 PM   #24
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Originally Posted by HeatherSue View Post
You went and tricked me into reading your PTR by posting on MY TR!

You seem like such a nice family and I can't wait to read more about you guys!

Like my sister said, there's no such thing as too much information on your PTR! It's your TR and you get to write whatever you want!

I bet you can't wait to find out your dates!
I'm sorry, I didnt mean to trick you.

I have been reading about your family for the past 72 hours and I feel like I have known you all forever.
Why are you posting on my thread and not updating yours?? Joking....lol....but really, time is a ticking away

Oh, I forgot to say on your trip report, my DH is not so much of a Disney lover either, he is not a hater like Henry but he prefers all of the baddie cartoonies and says Disney ones are all too goody two-shoes and blah.

I look in the mail everyday but no package yet, but then it has only been one week since we found out Becca qualified for a wish and only two weeks since I approached them initially. I will be patient.....I will be patient....I WILL be patient

Mandy
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Old 10-20-2008, 12:12 AM   #25
teresajoy
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Quote:
Originally Posted by llurgy View Post
I have read your sort of trip report and from then gotten dragged into reading of your babies in heaven

I have just started to read your Sista's TR and I am planning to read yours and Heathers at the same time.....LOL.....I am going to be Boz-eyed by the time I am done.

Thanks for the Dining info and link, I have them bookmarked now

Mandy




Quote:
Originally Posted by llurgy View Post
I'm sorry, I didnt mean to trick you.

I have been reading about your family for the past 72 hours and I feel like I have known you all forever.
Why are you posting on my thread and not updating yours?? Joking....lol....but really, time is a ticking away

Oh, I forgot to say on your trip report, my DH is not so much of a Disney lover either, he is not a hater like Henry but he prefers all of the baddie cartoonies and says Disney ones are all too goody two-shoes and blah.

I look in the mail everyday but no package yet, but then it has only been one week since we found out Becca qualified for a wish and only two weeks since I approached them initially. I will be patient.....I will be patient....I WILL be patient

Mandy

Oh, what a sweet thing to say! Really though, it takes 72 hours to read our trip reports?

I can't wait for you to get your dates either!
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Old 10-20-2008, 08:05 PM   #26
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Oh my gosh!! Another Wish Trip!! FUN! (How did I miss this?)... I think I need to get my nose out of our TR and read some others!!!

Ok...now I have to go back and actually READ this one...

**runs away to read**
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Old 10-20-2008, 08:40 PM   #27
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Originally Posted by llurgy View Post
Question:

Has anyone on a Make-A-Wish trip not gone to their destination via plane?

I have read loads of trip reports and it seems that everyone has flown to their trip destination.
We have been told that to make sure that Becca can cope with the cabin pressure she would have to be tested in an anearobaric chamber first. We would also have to have oxygen on the plane and once we got there. Because of this we were going to drive and in fact driving is preferable so we dont have to think about what may happen.

So, has anyone driven the Make-A-Wish journey?
We live in Ohio so I am talking about around a 1000 miles.

Mandy
I drove the van on our trip from Jackson, MS. It was about an 11 hour drive for us. I think it would be longer for you, but I would bet that your MAW chapter would provide lodging on the way there and on the way back. So you could have THAT much LONGER to enjoy your trip!! And if you are homeschooling, then she won't miss anything!!

I am sorry to hear of all of your struggles. I will keep reading...have not gotten far...but that is my 10 cents for now.
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Old 10-20-2008, 08:48 PM   #28
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I thought we had better introduce ourselves

This is my Darling Hubbie David (47 years old) and Myself (44 years old)


The is the Star of the show and our small family, Becca (12 years old)


Becca at Cabela's posing in a Davy Crockett hat


We have a Baby Jogger Stroller for walking on trails and such. Becca cant do a lot of walking and we were becoming really "un-fit" as a result of it so we invested in the stroller so we could enjoy the great outdoors once again. It enables Becca to do the bit of walking she can do and gives her somewhere to collapse when done...LOL.
Becca and Daddy


Becca pretending she had walked to the 4 mile post marker


Me not pretending


So thats our little family. We moved over to the States from England in 1999 so we haven't any family over here, consequently we are very close. This will be the first vacation we have been on since landing in the states all those years ago. The plan was to visit England every couple of years but because of Becca's illness we only managed to go back once in 2000. We miss family from home but are grateful that DH's Mum comes over once a year to visit.

Mandy
Ok...my last post of the night, I promise!! But I did this all out of order!!
Your family is simply beautiful! I can't wait to see when you guys end up going...

You guys will have a blast.

We got LOTS of advice from lots of folks (DISboards and others)...and one thing we learned was that we needed to things that we were interested in and not do stuff just because everyone else is doing it. If you are pretty sure Becca won't like something...or wants to do something different...then go with it.

And...the other thing I learned...is that you can't do everything. Even the magic button (bypasses most lines) may not allow you to do more because WISH kids tend to need to rest more, too.

anyway...enough from me!!!! I can't wait to read more!!
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Old 10-20-2008, 09:22 PM   #29
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Hi Maroo
Hi, nice to see you here, I haven't written much yet but I thought I should start the PTR as otherwise I would forget and start after everything had happened. This way I can write things as they actually happen.
So.....Not much news as yet but the most important news to us was that Becca DID qualify for a wish from the M-A-W foundation, all of the dates and planning are secondary to that miracle.

We know we will only be able to do very little in the parks but getting the magic button makes a big, big difference. In one visit it could be the difference between Becca going on 2 rides instead of waiting for 20 minutes and only having enough energy to go on only one ride. On a good day she could finish up going on lots of rides. It all depends on whether or not the dreaded headaches make an appearance. She gets ill with the headaches and we have to stop/drop and roll to somewhere where she can just have peace and quiet and rest.
These headaches can happen just on a visit to Wally's World or the Mall. Other times if she has the adrenaline going they can happen when the adrenaline stops, its like her body goes past its limits when excited and then crashes when the excitement has passed.
She has been known to get ill just visiting good friends whom we haven't seen for ages. She looks forward to it so much, then we get there and she get migraine and gets sick. A half a hour nap later and she is fine again.

The headaches are due to her low oxygen sats. They cant fix the problem that causes the low oxygen.
On Friday we are off on an introductory visit to Dublin Ohio (2 hours away) to have an initial visit with a Neurologist. It is going to be his job to try and treat her headaches without being able to treat the cause of the headaches (poor man, it is going to be a dilemma for him me thinks).

I have read your PTR I think, you're the one that had to take the wheelchair for your 'charge' in the van whilst everyone else flew on the plane aren't you?

I didn't realize you had made a TR too. I will have to read it tomorrow. Early beddie-byes time tonight because I have to go to the dentist early tomorrow morning Me don't like dentist, me scared

Mandy
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Becca's MAW/GKTW/Disney Trip was January 21st to January 27th 2009
Me ...... David ...... Becca

Last edited by llurgy; 10-20-2008 at 10:20 PM.
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Old 10-21-2008, 08:42 AM   #30
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I am a bit overwhelmed at the moment.
I found out yesterday but was so amazed about it and had questions that I am only just writing about it now after asking permission to make sure I was allowed to of course .

Yesterday we received a PM telling us that Becca was going to be part of the BIG GIVE

The so,so very kind and generous people over on the Dis-boutique part of the board are going to be making some custom clothes for our Becca to wear when she has her WISH trip to WDW!!! I mean, how awesome is that??
Not only is she getting her wish, but on top of that she is going to have some cool togs to wear too?

Overwhelmed is now a common word in our house. DH is stoked!
Becca still doesn't know, saving it for a little while until we can give the announcement of 'custom clothes' the proper amount of time and attention it deserves!

Thanks everyone from the Big Give

Mandy
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Me ...... David ...... Becca
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