Jonah's wish trip *pictures added* - The DIS Discussion Forums

bex271 · 07-09-2008, 06:42 PM

I have been reading a lot of tr and gotten addicted to them so there for i'm going to try and do a ptr so please bare with me. We are leaving in a little over 4 months and hopefully this will help pass the time too.
We are getting to to disney world through a wonderful foundation Make A Wish (MAW). We are going for our one and only child, Jonah, who is 4 1/2 years old. We are going Nov 20-26 and can't wait. We are getting to to stay at Give Kids The World.

Our cast of characters:
DH:Kristian
Me:Becca
Ds:Jonah

Next post I'll give more info about Jonah (our miracle child) and how he got the wish.

becca

Bill_Lin · 07-09-2008, 07:03 PM

Yeah!

I am the first one to post on your thread. You have done a great job Becca. Excellent in fact.

We look forward to reading more about Jonah. What are the main things he wants to do?

Bill

bigdisgrandma · 07-09-2008, 08:27 PM

Welcome, we are glad to have you join us and can't wait to hear about your wonderful Jonah and his wish.

Denise

Iluvmickeymouse! · 07-09-2008, 09:27 PM

Yay another TR!!!! I am so thrilled to have another one to read!!!! My DH on the other hand...not so much!

bex271 · 07-09-2008, 09:45 PM

Quote:

Originally Posted by Bill_Lin

Yeah!
I am the first one to post on your thread. You have done a great job Becca. Excellent in fact.

We look forward to reading more about Jonah. What are the main things he wants to do?
Bill

since you asked me about it, it's only fair your the first

Quote:

Originally Posted by bigdisgrandma

Welcome, we are glad to have you join us and can't wait to hear about your wonderful Jonah and his wish.
Denise

Thanks for the warm welcome and i can't wait to tell his story

Quote:

Originally Posted by Iluvmickeymouse!

Yay another TR!!!! I am so thrilled to have another one to read!!!! My DH on the other hand...not so much!

I'm hoping i can do my own and keep up with the TR i'm reading. I'll be on forever.

bex271 · 07-09-2008, 10:13 PM

Now that the little guy is snug in bed. I actually have more then 5 mins to talk about him.

Jonah is 4 1/2 years old. He was born with treacher collins syndrome which is a cranial facial disorder. We knew he was going to have surgeries but we didn't know what that road was to lead us down. He was doing fine until he was a month old, at that time he suffered from a full respiratory arrest and was down for 45 mins. We weren't sure what his future at that time was going to be, it was meek to say the least we didn't get the reports. He was in a coma like state for 2-3 weeks, but obviously he pulled through or i would be here sharing his story and to make a long story a little shorter he ended up pulling himself off the vent 3 times, after being told that he would be able to live with out one. Well he showed them. He spent 5-6 weeks in the hospital all together. He came home with a trach (just a way to keep his airway open) and g-tube to get his food so he could grow.
He is very delayed but is making progress every day with therapy. He knows a lot more though then he can tell us.

becca

bex271 · 07-09-2008, 10:38 PM

A while back another mother had told me about MAW and told me i needed to contact them, at the time Jonah was way to young to qualify for a wish.
Well, last year as he had hit a quite few goals in therapy, his therapist suggested again that we contact MAW. He is nonverbal and at the time was just learning to use a simple device to choice colors so we talked to our volunteers (granters) for a while and of course he fell asleep during the interview. He loves to be stimulated, he likes lights and sounds and we are able to get his equipment and special things he needs through a local charities. So we decided what could be more stimulating and fun for him and get us away from therapy and doctors appt and let him be a kid more then going to Disney World and all his therapist wanted him to go too. It took a lot longer to get his wish granted then we had expected. We got the approval in march, which was a welcomed surprise because he had just gotten out of the hospital from and awful infection he had gotten post baha surgery. We had to pick our dates again and we are going for his 5th birthday. After he had healed from his infection and surgery we finally got to come home.
His speech therapist had just gotten back for DW and showed him picture of her kids and donald, he just grabbed for the picture (huge hurdle for him) and just about snatched it out of her hands so he could see it better, at that time i knew we had made the right choice.
I'm giong to leave off right there and get some shut eye. There is a lot i haven't told y'all about him but in due time, and i'll post pictures next time maybe.
Oh I almost forgot, the reason he got the wish is because of his airway issue is the main reason but he has other medical issues too.

Becca

Bill_Lin · 07-09-2008, 10:40 PM

Be honest now, Becca, I did not ask you about doing a TR, I nagged you ruthlessly

Thanks so much for sharing. Each of us adds a little light here, like a single candle. When we all shine together by sharing our stories and thoughts and dreams, a BRIGHT light appears for all of us.

Your story is so touching. WOW! The part about the picture speaks so clearly. I am deeply moved and excited for Jonah. He is going to have a BALL!!!!
Bill

bex271 · 07-10-2008, 05:57 AM

Quote:

Originally Posted by Bill_Lin

Be honest now, Becca, I did not ask you about doing a TR, I nagged you ruthlessly

Thanks so much for sharing. Each of us adds a little light here, like a single candle. When we all shine together by sharing our stories and thoughts and dreams, a BRIGHT light appears for all of us.
Your story is so touching. WOW! The part about the picture speaks so clearly. I am deeply moved and excited for Jonah. He is going to have a BALL!!!!
Bill

I wouldn't say ruthlessly. I love sharing his story because he is my only and he's been through so much. When he took the picture we started laughing and crying because at that we knew he understood what was happening.

He is considered legally blind, but does so much even without his glasses that i have a hard time believing it sometime like with the pictures.
We know he sees colors, lights, shapes, and movement we just don't know what kind of detail he sees.

We think he's going to have a ball, he has the only child syndrome he thinks he should always be center of attention so from what i've read on here of how the wish kids are treated it's going to be right up his ally.

becca

bex271 · 07-10-2008, 06:51 AM

Since we were lucky enough to have our dates over 6 months in advance we were able to do decide somethings but it's hard not knowing what time your flight leaves or returns, but we do have our adr and our mvmcp tickets.
Here is what we have so far.

Nov 20- We're flying down (don't know what time and it's killing me)
Nov 21- Magic Kingdom, lunch at crystal palace and MVMCP
Nov 22- Sea World
Nov 23- Universal Studios
Nov 24- Epot
Nov 25- Animal Kingdom/ DHS also his 5th birthday
Nov 26- Coming home
More planning details coming up but gotta go get the day started. This thing is addictive.

Becca

GoofyDoo · 07-10-2008, 07:53 AM

Awesome--another PTR!! I hope to get to go near the holidays some day! Won't he have tons to see--y'all will have a ball! Waiting for more...

Native NYer · 07-10-2008, 08:00 AM

I'm joining in! What a touching story. I'm so glad Jonah got his wish and will be visiting Disney in a few months. Your plans look great so far. Jonah's going to have a very memorable trip! I hope you'll do a trip report when you return.

bex271 · 07-10-2008, 09:46 AM

Quote:

Originally Posted by GoofyDoo

Awesome--another PTR!! I hope to get to go near the holidays some day! Won't he have tons to see--y'all will have a ball! Waiting for more...

Thank you for joining us I'll get more later but had a second while he's watching tarzan and before have to go to therapy.

Quote:

Originally Posted by Native NYer

I'm joining in! What a touching story. I'm so glad Jonah got his wish and will be visiting Disney in a few months. Your plans look great so far. Jonah's going to have a very memorable trip! I hope you'll do a trip report when you return.

Thanks for joining us. I'll do a tr when we get back. I wish there was a way to speed time up.

becca

Here is a quick picture of him after we asked about him seeing goofy or donald i can't remember.

the date is wrong the picture, this was taken about 2 or 3 weeks ago

bex271 · 07-10-2008, 03:26 PM

Magic Kingdom:
Crystal Palace 2:10 adr
jungle cruise
Many adventures of winnie the pooh
Buzz Light year ranger spin
meeting characters
Mickey's Very Merry Christmas Party
anything else we can do while we're there

Epcot
Figment into you imagination
The seas with Nemo and friends
Turtle talk
Imagination Pavilion
World Show Case for some shopping

DHS
Toy Story Mania
Playhouse Disney Live
Lights, Motor, Action Stunt Show
Al's Toy Barn
Maybe Fantasmic

Animal Kingdom
Kilimanjaro Safari
Festival of the Lion King
Finding Nemo- The Musical

That's what we have right now and with our trip being a few months away i'm sure it can and will change.

We want to leave a lot of time open for him to meet the characters and take in everything around him and be able to relax.

We are splitting DHS and Animal Kingdom into one day and that is also his 5th birthday.

I haven't gotten sea world and Universal/IOA figured out yet so any suggestions on these would be great. We aren't big thrill ride seekers but Kristian has never been to Universal/IOA and i haven't been in since i was in high school ( not giving that one away). Neither one of us have been to sea world but really looking forward to going.

Well, that's all i have for right now and it's time for Jonah to get his feeds and wake up from his nap.

becca

bex271 · 07-11-2008, 05:42 AM

I didn't realize how schedule orientated i am until yesterday. I totally forgot that jonah's therapist and her staff had taken the week off. So we drive the hour it takes to get there to an empty place no cars or vans or trucks nothing. I look over and the horses are running free. Strange eerie feelings and then it dawns on me oh yeah they aren't here this week

I have never felt sooo stupid as i did yesterday.

becca

07-09-2008, 06:42 PM	#1
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	Jonah's wish trip pictures added I have been reading a lot of tr and gotten addicted to them so there for i'm going to try and do a ptr so please bare with me. We are leaving in a little over 4 months and hopefully this will help pass the time too. We are getting to to disney world through a wonderful foundation Make A Wish (MAW). We are going for our one and only child, Jonah, who is 4 1/2 years old. We are going Nov 20-26 and can't wait. We are getting to to stay at Give Kids The World. Our cast of characters: DH:Kristian Me:Becca Ds:Jonah Next post I'll give more info about Jonah (our miracle child) and how he got the wish. becca Last edited by bex271; 12-05-2008 at 04:17 PM.

07-09-2008, 07:03 PM	#2
Bill_Lin Grateful to God Join Date: May 2007 Location: Great Northwest Posts: 747	I'm first, so there everyone else Yeah! I am the first one to post on your thread. You have done a great job Becca. Excellent in fact. We look forward to reading more about Jonah. What are the main things he wants to do? Bill __________________ Make a Wish Trip to Orlando, Sept. 17-23, 2007 Give Kids the World Village Information for Families Wish Trip Planning Tips Wish Trippers Unite! One-The Original Home Page for Wish Trippers Wish Trippers Unite! Two- The New Home Page for Wish Trippers How to Start Your Own Trip Report see post #30 My essay- The Magic of Disney: Revisited My Disney Poems

07-09-2008, 08:27 PM	#3
bigdisgrandma Mouseketeer Join Date: May 2008 Location: West Jordan, Utah Posts: 372	Welcome, we are glad to have you join us and can't wait to hear about your wonderful Jonah and his wish. Denise __________________ OKW Aug 1994, Sept 2008 All Star Sports With 14 people Aug 1997 Marriott Residence Inn May 2000, Feb 2003, Mar 2005, Mar 2006 Port Orleans Riverside June 2002 Pop Century Nov 2005, Jan 2008 Karlyn's Wish is Coming True http://www.disboards.com/showthread.php?t=1868674

07-09-2008, 09:27 PM	#4
Iluvmickeymouse! Proud mama to a DD who beat HLH Join Date: Jun 2005 Location: Iowa Posts: 612	Yay another TR!!!! I am so thrilled to have another one to read!!!! My DH on the other hand...not so much! __________________ Me DH DD8 DD5 A Wish to see Cinderella's Castle--DD's MAW trip '07

07-09-2008, 10:13 PM	#6
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	Jonah's story Now that the little guy is snug in bed. I actually have more then 5 mins to talk about him. Jonah is 4 1/2 years old. He was born with treacher collins syndrome which is a cranial facial disorder. We knew he was going to have surgeries but we didn't know what that road was to lead us down. He was doing fine until he was a month old, at that time he suffered from a full respiratory arrest and was down for 45 mins. We weren't sure what his future at that time was going to be, it was meek to say the least we didn't get the reports. He was in a coma like state for 2-3 weeks, but obviously he pulled through or i would be here sharing his story and to make a long story a little shorter he ended up pulling himself off the vent 3 times, after being told that he would be able to live with out one. Well he showed them. He spent 5-6 weeks in the hospital all together. He came home with a trach (just a way to keep his airway open) and g-tube to get his food so he could grow. He is very delayed but is making progress every day with therapy. He knows a lot more though then he can tell us. becca

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07-09-2008, 10:38 PM	#7
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	why he's getting his wish A while back another mother had told me about MAW and told me i needed to contact them, at the time Jonah was way to young to qualify for a wish. Well, last year as he had hit a quite few goals in therapy, his therapist suggested again that we contact MAW. He is nonverbal and at the time was just learning to use a simple device to choice colors so we talked to our volunteers (granters) for a while and of course he fell asleep during the interview. He loves to be stimulated, he likes lights and sounds and we are able to get his equipment and special things he needs through a local charities. So we decided what could be more stimulating and fun for him and get us away from therapy and doctors appt and let him be a kid more then going to Disney World and all his therapist wanted him to go too. It took a lot longer to get his wish granted then we had expected. We got the approval in march, which was a welcomed surprise because he had just gotten out of the hospital from and awful infection he had gotten post baha surgery. We had to pick our dates again and we are going for his 5th birthday. After he had healed from his infection and surgery we finally got to come home. His speech therapist had just gotten back for DW and showed him picture of her kids and donald, he just grabbed for the picture (huge hurdle for him) and just about snatched it out of her hands so he could see it better, at that time i knew we had made the right choice. I'm giong to leave off right there and get some shut eye. There is a lot i haven't told y'all about him but in due time, and i'll post pictures next time maybe. Oh I almost forgot, the reason he got the wish is because of his airway issue is the main reason but he has other medical issues too. Becca

07-09-2008, 10:40 PM	#8
Bill_Lin Grateful to God Join Date: May 2007 Location: Great Northwest Posts: 747	Asked you? Be honest now, Becca, I did not ask you about doing a TR, I nagged you ruthlessly Thanks so much for sharing. Each of us adds a little light here, like a single candle. When we all shine together by sharing our stories and thoughts and dreams, a BRIGHT light appears for all of us. Your story is so touching. WOW! The part about the picture speaks so clearly. I am deeply moved and excited for Jonah. He is going to have a BALL!!!! Bill __________________ Make a Wish Trip to Orlando, Sept. 17-23, 2007 Give Kids the World Village Information for Families Wish Trip Planning Tips Wish Trippers Unite! One-The Original Home Page for Wish Trippers Wish Trippers Unite! Two- The New Home Page for Wish Trippers How to Start Your Own Trip Report see post #30 My essay- The Magic of Disney: Revisited My Disney Poems

07-10-2008, 06:51 AM	#10
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	what we've got planned so far Since we were lucky enough to have our dates over 6 months in advance we were able to do decide somethings but it's hard not knowing what time your flight leaves or returns, but we do have our adr and our mvmcp tickets. Here is what we have so far. Nov 20- We're flying down (don't know what time and it's killing me) Nov 21- Magic Kingdom, lunch at crystal palace and MVMCP Nov 22- Sea World Nov 23- Universal Studios Nov 24- Epot Nov 25- Animal Kingdom/ DHS also his 5th birthday Nov 26- Coming home More planning details coming up but gotta go get the day started. This thing is addictive. Becca

07-10-2008, 07:53 AM	#11
GoofyDoo Missing Orlando... Join Date: May 2008 Location: Texas Posts: 340	Awesome--another PTR!! I hope to get to go near the holidays some day! Won't he have tons to see--y'all will have a ball! Waiting for more... __________________ Amy We're off to see the World! A Wish Trip Report WDW 1988 ~ 1999 ~ 2008

07-10-2008, 08:00 AM	#12
Native NYer DIS Veteran Join Date: Dec 2007 Location: New York City Posts: 7,953	I'm joining in! What a touching story. I'm so glad Jonah got his wish and will be visiting Disney in a few months. Your plans look great so far. Jonah's going to have a very memorable trip! I hope you'll do a trip report when you return. __________________ Jennifer

07-10-2008, 03:26 PM	#14
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	the must do list Magic Kingdom: Crystal Palace 2:10 adr jungle cruise Many adventures of winnie the pooh Buzz Light year ranger spin meeting characters Mickey's Very Merry Christmas Party anything else we can do while we're there Epcot Figment into you imagination The seas with Nemo and friends Turtle talk Imagination Pavilion World Show Case for some shopping DHS Toy Story Mania Playhouse Disney Live Lights, Motor, Action Stunt Show Al's Toy Barn Maybe Fantasmic Animal Kingdom Kilimanjaro Safari Festival of the Lion King Finding Nemo- The Musical That's what we have right now and with our trip being a few months away i'm sure it can and will change. We want to leave a lot of time open for him to meet the characters and take in everything around him and be able to relax. We are splitting DHS and Animal Kingdom into one day and that is also his 5th birthday. I haven't gotten sea world and Universal/IOA figured out yet so any suggestions on these would be great. We aren't big thrill ride seekers but Kristian has never been to Universal/IOA and i haven't been in since i was in high school ( not giving that one away). Neither one of us have been to sea world but really looking forward to going. Well, that's all i have for right now and it's time for Jonah to get his feeds and wake up from his nap. becca Last edited by bex271; 07-10-2008 at 04:08 PM.

07-11-2008, 05:42 AM	#15
bex271 Mouseketeer Join Date: May 2007 Location: alabama Posts: 446	I didn't realize how schedule orientated i am until yesterday. I totally forgot that jonah's therapist and her staff had taken the week off. So we drive the hour it takes to get there to an empty place no cars or vans or trucks nothing. I look over and the horses are running free. Strange eerie feelings and then it dawns on me oh yeah they aren't here this week I have never felt sooo stupid as i did yesterday. becca Last edited by bex271; 07-11-2008 at 09:09 AM.

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