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Old 06-18-2008, 01:17 PM   #1
mistymouse5001
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Smile One big dose of magic coming up Complete

The official Wish of my darling little wonder...


Well anywho (shout out Nicole) I have been blessed with the gift that is 4
very wonderful little men. Dilly is the star of this story so I will start the cast
of characters with him. Dilly soon to be 5. Enjoys all things trains,Disney and
Sprout.
Dylan came into this world with a ticker that didn't want to follow the rules!
So we took a trip to Vanderbilt Children's Hospital
where we stayed for 6 months waiting for a new heart, because of course when somethings broken it MUST be fixed! He was a very sick little boy and then at the last moment, when every little vein was all tuckered out, and we didn't think we were going to be taking our little
bundle back home.... guess what happened! He gotta heart
It really was a miracle. After the transplant he started gaining weight. A lot of it , from a frail bag of bones to the hefty little mac truck that is Dilly the invincible now. Our transplant coordinator (Gramma Judy) referred dilly to MAW and our tale begins! I will be sharing the rest of the cast info,
and our TR itinerary soon
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Last edited by mistymouse5001; 05-04-2009 at 02:56 AM.
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Old 06-18-2008, 01:47 PM   #2
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Wonderful Story!

What a great story and what a handsome little pirate you have!
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Old 06-18-2008, 10:05 PM   #3
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The land of clean floors...nevermore

So the rest of the cast would be DS8 on his own little extended vacation at his
evil, wicked stinky pirate dads.. having too much fun

DS2 The amazing rubber man Robbie. Too young for the trip, has to stay at home with handsome DB37 and get spoiled to pieces shopping and playing (poor guy!)

DS6 months Super sexy fatty man Zachery. Has more rolls than a deli, Staying with Gramms (age revealed=no presents at Christmas) so he can get snuggled and cuddled.

Now my fair skinned snuggle buns will make their first Disney trip when they are older. I'm not much on any outings that involve little guys not being able to talk. No sitters, trick or treating, play dates at other houses...I'm just
strange that way.But I still feel need to note their adventures also because they are going to be having their own very special very favorite kind of fun.

My DH Denny, great guy, never gets excited unless it has something to do with a football or golf and me....I'm just a mom.

So Dilly ds5 Dad and Mom dh41 dw&m29 going for our first time
September 5th through the 11th.

If it wasn't for the support of my husband brother and kids, life wouldn't happen...neither would worry headaches or messy floors
For this I rejoice
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Old 06-19-2008, 12:50 PM   #4
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So our wish team came to the house and we made a sign....and some
food....and some flowers.... and cake..... My DB came in from out of town and helped pull everything together and wrangled the kiddos while we
spoke with our wish team.I swear to you sometimes I think I would fall apart
at the seams if it wasn't for ol' wonder boy
They informed us that they work with GKTWhttp://gktw.com We would not be going to Disney World for one
day,but instead a 6 night seven day all inclusive vacation that included
Seaworld, Universal, and Walt Disney World. We were floored to say the
least.Really, I cried. So I went online and found out info on the places we would be going and found the disboards My new me time home.
Our wish trip team - were phenomenal ladies, Ms. Ann and Ms. Elizabeth.
Dedicating there lives to saving children, saving animals, saving the world.
They are really really special ladies We were blessed to meet them.
Oh! and both cancer survivors just like DH & DF!Too neat.
So that's all for now. Dylan's surprise party!(he doesn't know his wish has been granted)
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Old 06-23-2008, 05:48 AM   #5
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Woo Hoo! Can't wait to read more and get to know all about your little pirate.
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Old 06-23-2008, 09:41 AM   #6
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I can't wait to read your report! When are you thinking about taking your trip? My son is also in the initial process of a wish trip. His first choice is a Disney Cruise- second choice is WDW. We are hoping to go in March.

Do you mind if I ask what was wrong with your son's heart? My son also has a heart disease ( dilated cardiomyopathy) and might need a transplant in the future. Sorry if that is too personal- don't feel like you have to answer.

Carol
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4 night Wonder Cruise- July '07
Nathan's MAW trip to WDW- Nov '08
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Old 06-23-2008, 11:21 PM   #7
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Quote:
Originally Posted by oklamomof4boys View Post
I can't wait to read your report! When are you thinking about taking your trip? My son is also in the initial process of a wish trip. His first choice is a Disney Cruise- second choice is WDW. We are hoping to go in March.

Do you mind if I ask what was wrong with your son's heart? My son also has a heart disease ( dilated cardiomyopathy) and might need a transplant in the future. Sorry if that is too personal- don't feel like you have to answer.

Carol
Ok let's let DH explain Dilly's heart problem. "Dilly had cardiomyopathy.He had a hole in the center of his heart.there are 4 chambers in the heart,and the hole hit all 4 corners. Blood was going to his lungs twice when it should have been only once.His heart was enlarged to three times the normal size.Normally the leave some part of the original heart to graft to when the transplant,but dilly" heart was so damaged they had to transplant the entire heart and cut all the nerve endings.Dilly was able to accept a heart three times the size due to the enlarged area from his heart.so that was good,it left a greater chance for him to get a heart.Which a did."
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Old 06-24-2008, 12:28 PM   #8
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I completely understand it being therapeutic to talk about all you have been through. I belong to an online support group for parents who have the same heart condition as Nathan and it is so nice to talk to people who understand. Like you, I worry that people will get tired of hearing me talk about Nathan's heart. But anybody who has had a sick child knows it is a HUGE part of your life and affects everything we do!

Funny thing, I was thinking about starting a pre-trip report for Nathan and when I was thinking about what I would write ( I talk to myself a lot-lol!) I was wondering whether to include his " story". I, for one, would love to hear Dilly's story. I figure I am going to start out with a section on Nathan's history and anybody who wants to skip it, can just go down to the actual trip planning!
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Nathan's magical wish trip- Pre trip report [/U]
http://www.disboards.com/showthread.php?t=1866940

4 night Wonder Cruise- July '07
Nathan's MAW trip to WDW- Nov '08
7 night NYE Magic Cruise- Dec '09
4night/5night back to back Dream Cruise followed by 6days at WDW-June '11
Disneyland- over 12 times and counting
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Old 06-24-2008, 07:32 PM   #9
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Quote:
Originally Posted by oklamomof4boys View Post
I completely understand it being therapeutic to talk about all you have been through. I belong to an online support group for parents who have the same heart condition as Nathan and it is so nice to talk to people who understand. Like you, I worry that people will get tired of hearing me talk about Nathan's heart. But anybody who has had a sick child knows it is a HUGE part of your life and affects everything we do!

Funny thing, I was thinking about starting a pre-trip report for Nathan and when I was thinking about what I would write ( I talk to myself a lot-lol!) I was wondering whether to include his " story". I, for one, would love to hear Dilly's story. I figure I am going to start out with a section on Nathan's history and anybody who wants to skip it, can just go down to the actual trip planning!
You know that's a great idea I think we should, so we will and that's that!
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Old 06-25-2008, 12:59 PM   #10
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I can not wait to read more!!!

Oh yeah, subbing to read about your little pirate's special trip!
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Old 06-25-2008, 01:30 PM   #11
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Great start! I can't wait to read more!!!
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Old 06-25-2008, 08:54 PM   #12
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Thank you so much for reading!

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Old 06-25-2008, 09:07 PM   #13
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Chuck E. Cheese

Wow! Guess what! Called upon Queen Anne the Mighty Wish
Lady! I wanted to surprise Dylan about his trip with a party
at the Mouse Place. I gave her a call to see if her kids would be making an appearance and she says let me call you back, she got he whole party was donated! I thought I would be paying for everything!
Woo Hoo
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Old 06-27-2008, 11:37 PM   #14
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Can't wait to hear more! Doesn't Misty have the most handsome pirate in all of the seas! That smile melts my heart. Keep writing more because I will keep checking. All the best!
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Old 07-10-2008, 10:48 PM   #15
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Hey Misty! I'm just now getting a chance to look at your trip report log. This is pretty cool.

Dylan is absolutely adorable!!! I love the pirate look..how cute!! I look forward to meeting you guys next week. Have a good weekend!
Tanya
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