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Old 10-06-2008, 09:01 AM   #76
zalansky

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Elfstar - continued prayers coming your way. I will definitely think of you Oct 11th! I wanted to tell you that my husband and I just went to Animal Kingdom this past weekend and stayed in a savannah view and it was WONDERFUL! It'll be worth every penny for the lifetime of memories you will make from this trip. Enjoy every minute. Hugs...
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Old 10-06-2008, 10:20 PM   #77
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Thank you, Zalansky, we're getting excited about the 11th now. This will be the minister's first wedding (not sure how I feel about that but everybody has to start somewhere) - he asked Jim if we'd like a rehearsal - he told him no, just "wing it"! Men! This should be interesting!!
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When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!

Last edited by Elfstar; 10-06-2008 at 10:27 PM.
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Old 10-09-2008, 10:52 PM   #78
Elfstar
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Hi, Friends,

Two more days till the wedding! We're both excited and even though he's losing ground, Jim's looking forward to both that and our trip. Some planner I am, the girls at work surprised me today with a bouquet of roses and a rose boutonniere for Jim for Saturday. I hadn't even thought about flowers! We were both really touched. And some surprise cash to help with our trip! I cannot believe how lucky I am to work with such caring people. I always contribute to whatever's going on, I'm just not used to being on the receiving end. I hope to think of a novel way to thank them all.

Jim's come down with a headcold; I hope it doesn't become any worse than it is. The hospice nurse ordered him an antibiotic and some cough medicine and assured us that it's more preventative than anything else. He's down in the dumps again, just wishing his ordeal was over. He was cheered a bit by the flowers and thoughtfulness; I just keep reminding him of the nearness of our trip and suggesting he'll feel somewhat better then. I just pray he will be able to enjoy it.

Thank you all for listening. Between my work family and my Dis family, I can vent enough to keep me going!
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When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!
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Old 10-10-2008, 07:50 AM   #79
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Tomoorrow!!! Can't wait to hear all about your trip and here's to hoping Jim's cold hits the road before you get to Disney.
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Old 10-11-2008, 09:39 AM   #80
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So today's the big day! I hope everything is wonderful!!
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Old 10-11-2008, 02:30 PM   #81
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congratulations on your big day! I am praying that it is very special for you both! Keep us posted and we will keep you in our prayers.
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Old 10-11-2008, 06:33 PM   #82
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So, how was your big day?

Hugs to you & Jim!

to you both!
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Old 10-11-2008, 06:37 PM   #83
Elfstar
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Yay, we're married! And Jim took special care and effort and thanked the minister and guests and told them he was very happy! His cold seems somewhat better, last night was kind of rough but I don't think I gave him the full dose of cough medicine he was supposed to have. I re-read the label today and it's double what I thought.

I am very happy, too, and seeing him happy just compounds that for me!

Now we have our trip to look forward to. Thanks for all your thoughts and prayers for our day today!
__________________
When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!
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Old 10-12-2008, 06:04 PM   #84
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Congratulations to you both! Thank you for reminding us what love truly is all about!!!!
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Old 10-12-2008, 10:07 PM   #85
Elfstar
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dis8297, thank you! We do love each other a great deal!

The irony of all this is, a very long time ago, Jim asked me how I knew I loved him. One of the things I said was that I knew I could take care of him if he became totally helpless, never having any thought in the world that this would ever happen. Well, it has, and while I get really down once in a while about our fate and all the plans we made that we'll miss, I've never had a second thought about all this, never once wanted out, and he has never said I should walk away, no matter how down he is. We do get a little feisty at each other once in a while, he because I try to push him to do what he should but doesn't want to, and me because he's a great order giver - while I'm taking care of one thing, he's spouting off two or three others as if he thinks I've got two heads and eight hands! But then we always get to laughing at ourselves, and it's all better!

Our day was nice, the weather couldn't have been better - we almost went outside for the ceremony but the breeze was rather stiff so we decided to stay in. I realized this morning that we had the ceremony sort of backwards - the minister was facing us but all six guests were standing behind him so they saw us instead of him. That actually makes more sense (although we did it accidentally) because we could be heard and seen. Jim's best friend/best man did all his responses for him except for the "I will" which Jim managed himself. And he had his hand on the best man's to put the ring on my finger. Jim didn't want a ring because he can't wear one. He had a good day as far as his symptoms acting up goes , and after about two hours everyone left so he didn't get too tired. But the excitement must have done us in because I slept till 10:30 today, and he slept till 1:00.
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When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!
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Old 10-13-2008, 09:14 AM   #86
elizke
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I found this thread today in my efforts to find support. My cousin was diagnosed a few months ago. She is 51, and in the last year has gone from a few unexplained tripping incidents to a wheelchair and slurred speech. Her parents are taking care of her, and they are in their 80's. I just visited them and it's the saddest sweetest thing I've ever seen, the way they care for her with gentle love and good humor, and no one ever compalins. I admire them all more than I can ever say.

DH, in an effort to do something constructive, signed us and our kids up for a Walk to Fight ALS next Saturday in Springfield. It's such an unfair disease and we all feel so helpless, and this is one thing we can do. Elfstar, I'll add you and your DH to my thoughts and prayers as I walk, along with all other posters here who have suffered at the hands of this horrible disease.
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Old 10-13-2008, 06:53 PM   #87
Elfstar
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Thanks, elizke, and thank your family for doing this. I'll be walking myself at the next one near us. I'm sorry your cousin is going through this, too. This is the most cruel disease I've ever run into. But we'll do our best as long as we can, and we're adding your cousin to our prayer list, too.
__________________
When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!
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Old 10-15-2008, 02:41 PM   #88
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Congratulations to the happy couple and will be thinking and keeping you both in my prayers. Shirley
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Old 10-19-2008, 10:14 AM   #89
Elfstar
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Well, it's been a week (and a day) and we're still happily married (and they said it wouldn't last - ).
Jim's speech has really gone south the past couple of weeks and he was trying like mad to get me to understand something yesterday - after about 10 minutes of "charades" and rewording, I figured out he was trying to tell me Happy One Week Anniversary! He even had the time right, too! Oh my gosh, how sweet! He was never an inconsiderate man but he is so much more conscious of "the little things" now.

He's no longer able to hold the suction tube unassisted and is having some trouble guiding his chair. He's starting to sleep more during the day and is asking for his anti-anxiety medication more often. I am so glad that our trip is only 10 days away - I want him to be able to enjoy it as much as he can.

I am nowhere near ready to lose him.....
__________________
When life gets tough, we go to WDW!!
1991 - CBR ; 1995, '99, 2004 - Off site
2005 - July 3 - 6 off site, 7 - 10 POFQ
2006 - 3 trips this year - all Disney'd out for now.
2007 - another wonderful week at WDW (off site)
2008 - the saddest year of my life - DH has ALS; AKL for his final trip.
2009 - DH passed on 1/3 - "memory trip" 3/5 - 3/9 with his daughter.
Memory trip 6/28 - 7/4 POFQ - first solo trip, a little rough
F & W Festival trip - 9/24 - 9/29 with sister-in-law - AKL
2010 - 6/19-25, DTD hotel - carried DH in my heart, had a lovely trip!

Last edited by Elfstar; 10-19-2008 at 11:15 AM.
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Old 10-28-2008, 08:08 PM   #90
shancan911
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Elfstar, if you check the boards before you leave, here's wishing you and Jim a wonderful Disneymoon at AKL. Make the most out of this adventure, and take lots of photos. These will be memories you will cherish forever.
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