Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 09-09-2007, 07:34 PM   #31
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:34 AM.
LuvOrlando is offline   Reply With Quote
Old 09-09-2007, 07:38 PM   #32
TaraPA
I will think of that animatronic as him
I also wouldn't mind if they made it racier!The germs would just skeeve me out!
 
TaraPA's Avatar
 
Join Date: Sep 2000
Location: Lehigh Valley, PA
Posts: 16,131

Hey LuvOrlando - I was just about to PM you to check out the DIS Meet for this area that I posted in another thread on the C&C Board! Everyone has very different schedules so this will be hard to get everyone together on the 1st try, but it's worth a shot. I'm at The Promenade 4-5 days a week so I can easily meet at different times as well.

How are you & your surviving kitty doing?? I hope every day gets a little better for you.
__________________



AKL/BWI CL split stay 8/14 Dane's birthday**Poly Girls Trip 5/14**Poly/AKV Girls Trip 3/14**AKV Kidani Girls Trip 12/13 **BWI CL/CSR BC Dane's surprise 13th birthday 8/13**BWV Girls Trip 4/13**WL CL/AKV Jambo family trip 3/13**CSR surprising family trip 12/12**POR Girls Trip 10/12 ** BC CL/Dolphin Family Trip 3/12** BCV/Poly Girls Trip 3/12**AKV Kidani 11/11 Girls Trip! **Dolphin 3/11 family trip ** Swan - 3/11 GIRLS TRIP!**AKV Kidani Girls Trip 10/10!**Dolphin 2/10- ESPN Weekend/family trip**BLT 11/09 Girls Trip** Dolphin 12/08 Girls Trip**Solo trip/offsite 05/08** Dolphin 12/07 mom & Dane trip**AKL 12/06 family trip**AS Music 11/02 mom & Ty trip**Disneyland - Anaheim Hilton 5/02 adults only!** AS Sports 9/01 family trip**Swan 10/00 family trip**CSR 10/99 family trip**offsite 1989,1987, 1970's
TaraPA is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 09-09-2007, 08:23 PM   #33
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:34 AM.
LuvOrlando is offline   Reply With Quote
Old 09-09-2007, 08:47 PM   #34
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:33 AM.
LuvOrlando is offline   Reply With Quote
Old 09-10-2007, 06:46 AM   #35
TaraPA
I will think of that animatronic as him
I also wouldn't mind if they made it racier!The germs would just skeeve me out!
 
TaraPA's Avatar
 
Join Date: Sep 2000
Location: Lehigh Valley, PA
Posts: 16,131

Good Morning LuvsOrlando!! I don't know about those 3 meds at all - BUT - when my DS started with Albuterol (or maybe it was the Albuterol/Prednisone combo) they did tell me it can cause behavior changes in children - and it DID! DS was much more aggitated while on the albuterol. I think I even remember using the word "evil" to describe him! I haven't noticed this side effect since he's older (or either used to the meds) but that could very well be what is causing the meltdowns. That plus school starting could be doing it. My little guy, DS7 (non asthma) has been very short fused the last 2 weeks since school started, and he has always been timid & quiet, always listened to me. For the past 2 weeks he has been slamming doors, bawling his head off & throwing things when he doesn't get his way. I'm chalking it up to school starting & the shorter amount of sleep he gets because of this.
__________________



AKL/BWI CL split stay 8/14 Dane's birthday**Poly Girls Trip 5/14**Poly/AKV Girls Trip 3/14**AKV Kidani Girls Trip 12/13 **BWI CL/CSR BC Dane's surprise 13th birthday 8/13**BWV Girls Trip 4/13**WL CL/AKV Jambo family trip 3/13**CSR surprising family trip 12/12**POR Girls Trip 10/12 ** BC CL/Dolphin Family Trip 3/12** BCV/Poly Girls Trip 3/12**AKV Kidani 11/11 Girls Trip! **Dolphin 3/11 family trip ** Swan - 3/11 GIRLS TRIP!**AKV Kidani Girls Trip 10/10!**Dolphin 2/10- ESPN Weekend/family trip**BLT 11/09 Girls Trip** Dolphin 12/08 Girls Trip**Solo trip/offsite 05/08** Dolphin 12/07 mom & Dane trip**AKL 12/06 family trip**AS Music 11/02 mom & Ty trip**Disneyland - Anaheim Hilton 5/02 adults only!** AS Sports 9/01 family trip**Swan 10/00 family trip**CSR 10/99 family trip**offsite 1989,1987, 1970's
TaraPA is offline   Reply With Quote
Old 09-10-2007, 05:35 PM   #36
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:33 AM.
LuvOrlando is offline   Reply With Quote
Old 09-11-2007, 12:07 PM   #37
arminnie
Tossed the butter kept the gin
I had to save it for "special" occasions (like when no one I knew would see me)
 
arminnie's Avatar
 
Join Date: Aug 2003
Location: Arkansas and New Orleans
Posts: 7,434

Quote:
Originally Posted by LuvOrlando View Post
Does anyone out there have a child on Advair or use it themselves? I'm curious if some people switch to less dangerous maintainance meds when Asthma season is over?
I've used Advair for many years now. I don't consider it dangerous for me at all - it has the exact same meds that I took separately for many years before.

For me (and many other asthmatics) there is no asthma season - it is a year round disease that must be kept under control ALWAYS not just seasonally.

Is your son seeing a pulmonary specialist (preferably a pediatric pulmonary specialist)? I know it can mean one more doctor to add to the list, but they really do treat the long-term health of the lung itself - not just the symptoms cause by the allergies. My pulmonary doctor works very closely with my allergist.

Last year I had to use albuterol twice a day for about 6 months because of an infection. But my pulmonary doctors' goal has always been for me NOT to need the rescue inhaler very often.

Good luck with your son's treatment. Having such a caring parent helps him more than any specific doctor.
__________________
Fear the tree!
arminnie is offline   Reply With Quote
Old 09-11-2007, 12:28 PM   #38
arminnie
Tossed the butter kept the gin
I had to save it for "special" occasions (like when no one I knew would see me)
 
arminnie's Avatar
 
Join Date: Aug 2003
Location: Arkansas and New Orleans
Posts: 7,434

I just finished reading the rest of the thread - I am so sorry about your pet loss. I can still barely talk about the loss of my first dog 14 years ago.

I am definitely a dog person (2 now), but I had to go with my sister to have a cat put down last year. It was a stray from the neighborhood that had only been around about a year - but I cried and cried over the loss of that cat.

Hugs.
__________________
Fear the tree!
arminnie is offline   Reply With Quote
Old 09-11-2007, 12:29 PM   #39
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:33 AM.
LuvOrlando is offline   Reply With Quote
Old 09-11-2007, 02:43 PM   #40
outlander
I AM keeping my fingers crossed
But oysters are so ugly and pearls are so pretty
 
outlander's Avatar
 
Join Date: Mar 2006
Location: In my own little world...it's nice!
Posts: 1,579

Oh luvs, I wish I would have seen this earlier! YES, YES, YES...I believe Singulair could very well be the problem. My son had the EXACT same sypmtoms when he was on it. He would just by so moody and crying all the time. I thought I was crazy but it was definitely when he was on the Singulair. I was fortunate that my doctor supported me when I mentioned it to him, otherwise I think I would have kept him on it longer and he (we) would have been miserable. He now takes Zyrtec for the seasonal allergies but he is on Flovent (similar to your Advair) YEAR ROUND. It really is important that you keep him on the maintenance meds year round. For a couple of years I would not believe that it was better for my son to be on meds all the time and every time I would try to think I knew best, he would end up in the hospital. It would work for a few months, but really even a few weeks makes a difference and to try to guess the 'seasons' and triggers that are going to effect their reaction with symptoms. It's just not worth it. Especially since you still have constant environmental triggers that are keeping his immune system in a irritated state. When you are having to use the rescue inhaler (albuterol) more than a few times a month, the asthma is not in control.
I've learned the hard way.
__________________
outlander is offline   Reply With Quote
Old 09-11-2007, 04:03 PM   #41
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:32 AM.
LuvOrlando is offline   Reply With Quote
Old 09-14-2007, 07:37 AM   #42
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:31 AM.
LuvOrlando is offline   Reply With Quote
Old 09-14-2007, 08:22 AM   #43
outlander
I AM keeping my fingers crossed
But oysters are so ugly and pearls are so pretty
 
outlander's Avatar
 
Join Date: Mar 2006
Location: In my own little world...it's nice!
Posts: 1,579

Quote:
Originally Posted by LuvOrlando View Post
Hi Outlander,

Thank heavens my DS has never been in the hospital... that must have been absolutely horrible for you.
Yeah, it's not fun. Not only because they are sick but because you (as a parent) wish there was something more you could do. Fortunately, I really feel like we have his asthma controlled better now. Hopefully he won't have to be admitted again.

Quote:
Unfortunately, DS can't take any of those non-drowsy allergy formulas like Zyrtec and Alavert because they all seem to cause severe hyperactivity. He can't even take cough syrup other than Codeine for the same reason. Even caffeine in soda is banned in my home. Sadly, he is not the only one that can't tolerate these stimulants... they make me off the wall too so I guess there must be a genetic link.
That's too bad, the Zyrtec has really worked for us when nothing else would. It really seems to be different than all of the others in so many ways. In fact, even though our insurance won't cover it, we still get it because it works so good. Hopefully you can find something that will work for you.

Quote:
DS has missed 2 doses of Singulair but he still had an outburst just now over the fact his band instrument wasn't waiting for him when he got home and won't get it until 7:15 this evening. Yes, I know he just sounds spoiled but really this just isn't him I can't even get mad. He had a fit on the sofa as DD was doing her home work and we just sat there open mouthed and stared at him All I could say is "Are you feeling sick or something?"

The only thing left is the Advair but I'm not sure if extreme hyperactivity is a side effect or not. I really wish the Dr would have called back but he has not yet done so so, at least for now I'm on my own
Singulair was definitely our culprit. I doubt the Advair would have such a side effect because it is very specific. It is not absorbed readily throughout the body like normal medications.

Quote:
As for the rescue inhaler, he doesn't use it often, only when there is a flare up. But when there is a flare up he can be on it for a few days before he stabilizes. I can't really say whether his Asthma is under control. I'm not quite sure if it is expected to disappear under the right meds or if occasional trouble is just to be expected.
It's good that he doesn't use it often. Of course flare ups will occur. There is no cure for asthma, we can only manage it. The key is to manage it well and minimize flare ups.

Quote:
Originally Posted by LuvOrlando View Post
Here we are a few days later and DS is holding up well.

I didn't know at first but I wasn't the only person to feel the consequences of his medication. DS told me that his best friend angered him on Tuesday at soccer practice. As a result my DS actually tripped his friend His friend got very angry and didn't talk to him for 2 days, DS was unrepentant at first. Thankfully, after the medication got out of DS's system, he realized how out of line he had been and apologized on his own. We were talking about how he could deal with the problem and he came up with the solution on his own. So they are ok now. Still, I feel so badly for DS... what a terrible burden illness is on kids.
I hope he gets feeling better. It does effect everyone.

Quote:
At the moment DS has quieted down. But I know this is only temporary. Within the month he will have another severe episode because all the corn around us will need to be harvested.
Stay on the Advair! I can't remember if you said whether or not he still has the Accuchamber (spacer). Those are *really* helpful to get more of the medication into the lungs. Asthmatics can't fully expand their lungs during an attack anyway so getting a good dose is really hard with the inhaler alone. The spacer 'holds' the medication and allows the user to take a few good breaths instead of just one. If you don't have a nebulizer (that has really made a difference for us too) then you at least need a spacer. We need to give these guys the best chance we can for them to get the medication they need. Especially during an attack.


I hope everything goes well!
__________________
outlander is offline   Reply With Quote
Old 09-14-2007, 10:59 AM   #44
PoohnPglet
DIS Veteran
 
PoohnPglet's Avatar
 
Join Date: Jun 2004
Location: In the land of the lost...
Posts: 1,172

Hello - another asthmatic with a child that has asthma here! (I only scanned the last page of posts so I am sorry if I repeat anything.)

My asthma was undiagnosed as a child. I think mainly because while I do wheeze when I have an attack it is mostly coughing. My doctor always just said I had a cold and sent me home. When I was a pre-teen/teen, most of my symptoms slowly just ebbed away until I was symptom free. Until I was 29 and had a really bad case of pneumonia. Since then, my asthma is back like it never left. The doctor said that it does happen that asthma will go into "remission" only to come back due to a particularly bad respiratory illness. Now I take Advair and use an albuterol rescue inhaler when necessary.

My son was diagnosed by the time he was 3 after 2 hospital stays. He was put on Singulair, Flovent and Flonase (no Advair yet although he did go on that at about 10ish), with the occasional round of steroid treatments as well as a nebulizer and a rescue inhaler. (I don't care what anyone says, a nebulizers delivers the albuterol better than any inhaler.) My son did have trouble during the changing of the seasons with allergies, but his big danger was catching any kind of cold/resp infection. They would almost always lead to a trip to the hospital with a case of pneumonia.

I had some very scary times over the years dealing with peoples ignorance. Like the school nurse when he was in 3rd grade refusing to give him his inhaler because he wasn't struggling enough to use it. I asked her what she meant by that and she said that most kids waited to come to get their inhalers until they were coughing and breathless and that my son wanted his when he was just wheezing. I was like what? And my son's doctor called up the principal and ask if she needed to come to the school to educate them about asthma and how denying meds could be life threatening? (Anyway, I digress)

My son is now 17 and the only meds he takes now are over the counter Claritin-D when the pollens are high. We keep a rescue inhaler on hand, but I had to toss out the last one of his in a never opened box because it was 3 months expired. (My symptoms are active so we do have reliable ones on hand!) He plays sports, skates, surfs and doesn't have any problems. (Although he is still ticked that he cannot go to the Air Force Academy because of his asthma.) I suppose I do have to worry that there is the potential his can come back, so I have really focused on him being as healthy as I can - eating fruits and veggies, watching fats and sugars, taking vitamins, drinking plenty of water etc...

So, I guess I just wanted to tell you to hang in there, stay vigilant and if your doctor is not your partner in this find another one!


(Wow - long post! Sorry!)
__________________
“I know that you believe you understand what you think I said, but I'm not sure you realize that what you heard is not what I meant.”
WDW vs DL It's all good...
PoohnPglet is offline   Reply With Quote
Old 09-14-2007, 01:04 PM   #45
LuvOrlando
DIS Veteran
 
LuvOrlando's Avatar
 
Join Date: Jun 2006
Location: Where is the love -Blackeyed Peas
Posts: 9,329

-

Last edited by LuvOrlando; 09-03-2011 at 10:30 AM.
LuvOrlando is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 05:57 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.