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Old 08-29-2007, 01:56 PM   #16
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I forgot to mention it in my previous post that we are using Advair. We also spoke to our doctor about the risks and was told that the risks outweigh the benefit. We have been using it for a couple of years and have had no problems.
I also find it difficult when we have an asthmatic cough and we are in public and you get those glances from people like they are afraid of catching something from you. It is more difficult with our kids when they are in school, at a party or another activity. I find myself "explaining" to everyone how they have asthma and that they're not sick. It makes me feel like I'm labelling them and I hate it! Now, we're finding that our oldest DS12 uses it as an excuse because he has such problems with asthma flare-ups when doing physical activities at times, that now he's becoming afraid to be active and the "asthma" is his crutch. Thanks for listening!
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Old 08-29-2007, 02:02 PM   #17
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Quote:
Originally Posted by LuvOrlando View Post
It's true Tara, most people have no idea what the disease is or how it works. DS has a friend who 2 times questioned whether or not he could 'catch' Asthma from my son. I explained it to him both times but I'm still not sure he understands that the cough isn't from being sick. I try and educate everyone around DS, coaches, teachers & parents of friends...
Even adults don't seem to be able to get this.

I get so tired of the dirty looks, and muttered insults when I cough in reaction to people's perfumes, smoke, etc. Believe me, if I could avoid coughing, I would! I won't eat out in states that allow smoking in restaurants, I'll go out of my way to walk around designated smoking areas, I'll bring an air purifier to work, etc. But, I cannot control the habits of others and thus, if you smoke outside the designated area, or get in an elevator with me when you are wearing perfume, I am going to cough. It is an asthmatic reaction and I cannot control it! Urgh, I know that on this thread I am really preaching to the choir.

Thank you to those of you who are working so hard to help your children learn to live with asthma and to educate the world around them. Your work will help more people than you realize.

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My DS seems to be improving. His Soccer practice yesterday went over just fine, even in the heat and humidity. Hopefully his Tae Kwon Do class this evening will be just as uneventful.
Excellent! Did he get his meds midday?

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I hate that he is on the more dangerous Advair but since its for Asthmatics who are hard to control and it works well I guess the benefits outweigh the risks. Does anyone out there have a child on Advair or use it themselves? I'm curious if some people switch to less dangerous maintainance meds when Asthma season is over?
I don't know much about Advair so I can't really help.

My DSis (respiratory therapist) tells me that the ideal goal should be to figure out which meds each individual responds to best. Supposedly some maintenance meds are best for environmental asthma and others for exercise induced asthma, etc. But, every individual still responds differently. Thus, although the drugs are frequently referred to by strength they don't really work in exactly the same way.

I have definitely been known to cycle on and off of maintenance meds depending upon my reactions. However, with your DS, I'd recommend that you be careful with this approach. If you have really been able to document an allergy season for him when 95% of his reactions occur, then you probably could switch him off the Advair in other seasons. But, if only 70% of his reactions occur during this season, or if the season is tough to predict, then I suspect it would be safer to keep him on the 'stronger' drugs. Have you discussed these concerns with your new doctor?
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Old 08-29-2007, 06:00 PM   #18
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LuvOrlando, I'm not familiar with Advair or the other med you mentioned, we have never used either. We use regular Albuterol in the nebulizer as needed.

Isn't it a shame that people don't understand that an asthmatic cough is not contagious? I feel like I'm apologizing & explaining constantly when he's in a flare-up. My DS has that awful hacking, barking cough that lasts for a week or more. He coughs so hard at night that he throws up, and gasps for breath. His teachers often send him to the nurse for it, because it is disturbing the class!
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Old 08-30-2007, 05:04 AM   #19
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I am sorry to hear about your son. A great source of information and treatment is the National Jewish Center in Denver. http://www.njc.org/

My late husband had very very bad asthma and would be hospitalized every 6 weeks or so until he found that hospital. He never had a bad episode after that. They worked miracles for him.
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Old 08-31-2007, 05:26 PM   #20
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I am sorry to hear about your son. A great source of information and treatment is the National Jewish Center in Denver. http://www.njc.org/
Good information.

Without giving out too much personal information, I must applaud the OP for her responsible approach and desire to educate others. I find appalling that her former allergist was unwilling to write a simple note to help her son avoid triggers.

There is not much variability among the inhaled steroids in efficacy or patient response. Advair is more effective for many because it combines a long-acting airway muscle relaxer, which helps nighttime and exercise-induced symptoms, with the anti-inflammatory. It is very safe for the vast majority of patients. Cycling on and off controllers is not a good idea. Inflammation is present year-round. An ounce of prevention.... And no, I don't work for GSK.

LuvOrlando, I would ask your new allergist about immunotherapy (allergy shots) if you haven't already, since medication only modifies symptoms, the downstream effects of the allergic and asthmatic response, whereas induction of tolerance to environmental triggers can halt or even reverse progression of asthma. Certainly would be nice to reduce any patient's medication need.

Yes, I too have asthma. It doesn't have me.
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Old 08-31-2007, 08:25 PM   #21
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I'm an adult asthmatic. I've been on Advair for five years now, and about three years ago added Singulair to the mix. Between the two my asthma has been controlled enough that I use a rescue inhaler maybe twice a month!

Of course I also try to avoid my triggers.

I haven't used my nebulizer since April, and then used it prophylactically--I was going to an all day outdoor rock concert--some of my my triggers are heat with direct sun and singing at the top of my lungs. Needless to say...

I agree with the psoter who said that the important thing is to learn the triggers and figure out which preventative meds work best for you.

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Old 09-01-2007, 07:04 AM   #22
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Old 09-01-2007, 09:11 AM   #23
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I am so sorry to hear about your cat. It's always a very difficult time when those type of decisions need to be made. Our pets are part of our families and therefore the loss is tremendous. We had to put our dog to sleep when our oldest DS12 was a year old. She was only 5 yrs old but had developed a cancerous brain tumor therefore there was no alternative. She was failing rapidly. My children constantly ask if we can have a pet but do to our allergies/asthma, I'm afraid to take in a new one.
We will be praying for you to get through this time of sorrow and know that we're hear for you whenever you need someone to listen.
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Old 09-01-2007, 06:07 PM   #24
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Old 09-01-2007, 06:29 PM   #25
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Hi LuvOrlando, it's Tara. I hadn't checked in for a few days, and I am so sorry to hear about your cat. We have a cat too, I can't imagine how you must feel. We just debated getting another one, DS's friend has 3 kittens to give away, and they are just so darn cute.

The Ragweed that started about a week ago is really bothering me (sneezing, itchy, watery eyes & throat) but fortunately it has not bothered DS at all.
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Old 09-02-2007, 07:36 AM   #26
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Old 09-05-2007, 08:51 PM   #27
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LuvOrlando, I'm so sorry to hear about your cat . We lost our first cat very suddenly when we were dealing with infertility issues. She was our "baby" and it was just awful, so I feel for you. Luckily we found our current sweetheart a few weeks later. Maybe when the time is right, you'll be able to offer a loving home to a new kitty.

I can't believe the nurse at your DS's school is not on top of maintainence meds. I taught first grade before DS was born, and I always had a post-it note taped to my desk to remind me about any kids who had meds to take (if the nurse didn't call at the right time, I would call her and check) as well as a note in the sub folder to send so and so to the nurse at x time for meds (a touchy line to walk with all the HIPPA rules, so I usually ask the parents to write a note giving me permission to put it in the folder).

Maybe you could call the school nurse about 15 min past his scheduled meds time to make sure he's gotten it (a pain for you, I know, but at least your DS will get his meds). Also, does his school have one full time nurse? I ask because the school I taught in had a nurse who split her days between our school and another one about 15 min away, leaving the secretary to dispense meds . The whole situation just made me VERY nervous-especially when I had a student who was deathly allergic to bee stings, which left me as the next in line to administer the shot if he got stung! I hope the school gets with the program soon. If they don't, I would take my concerns to the principal, and then to the director of student services if needed.
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Old 09-07-2007, 09:37 AM   #28
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Old 09-07-2007, 02:11 PM   #29
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We've been to CHOP a few times too (not for asthma), what a long day that is. There was always a 90 min. wait or longer too. How ironic that your DS also suffers from nose bleeds - my DS10 does, and I had them as a child as well. About 3 years ago our family doctor suggested we have his vessels cauterized, but the specialist did not see the need for it. He still gets nosebleeds about 2-3 times a week, mostly at night.

The ragweed is pretty bad today, I know I am suffering from the sneezing and itchy & watery eyes. And YES we need rain!!!!!!!!!!
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Old 09-07-2007, 02:27 PM   #30
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Luv, sorry to hear about your cat
Do you still have other pets in your home?
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