Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread Display Modes
Old 12-18-2006, 04:05 PM   #1
Shugardrawers
Ovarian Cancer Survivor!
I need to bust a royal wee!
Having a torrid affair with the
I like my pickles whole
 
Join Date: Aug 2003
Location: Newport News, VA
Posts: 9,284

Well, Merry Freaking Christmas to me

I'm finishing off the year with news of a relapse. I just don't know what to say beyond that yet. I'm still processing this. I'm tired. I'm just really tired.
__________________
QUEEN of DAMN NEAR EVERYTHING
Shugardrawers is offline   Reply With Quote
Old 12-18-2006, 04:20 PM   #2
safetymom
Have will travel
ABD trips = clothes optional
 
Join Date: Aug 2001
Location: Now living near the parks!
Posts: 42,098

I am so sorry to hear this. Please know you can come here to vent.
safetymom is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 12-18-2006, 04:25 PM   #3
Shugardrawers
Ovarian Cancer Survivor!
I need to bust a royal wee!
Having a torrid affair with the
I like my pickles whole
 
Join Date: Aug 2003
Location: Newport News, VA
Posts: 9,284

I try to be a realist about this but that doesn't stop me from getting my hopes up. Each time I relapse the diagnosis is more grim. Unless I can get into a clinical trial at Johns Hopkins for both laser surgery and medication my doctor feels 6 months is optimistic. Even if I can get into those trials, there's no guarantees.
__________________
QUEEN of DAMN NEAR EVERYTHING
Shugardrawers is offline   Reply With Quote
Old 12-18-2006, 04:50 PM   #4
Wish I lived in Fl
DIS Veteran
 
Join Date: Jan 2004
Location: Massachusetts
Posts: 2,019

I am sorry for the bad news. Prayers said. I hope you are accepted to the Johns Hopkins study.
Wish I lived in Fl is offline   Reply With Quote
Old 12-18-2006, 05:04 PM   #5
safetymom
Have will travel
ABD trips = clothes optional
 
Join Date: Aug 2001
Location: Now living near the parks!
Posts: 42,098

Yes I hope you are accepted to the study. I will keep you in my prayers.
safetymom is offline   Reply With Quote
Old 12-18-2006, 05:35 PM   #6
JunieJay

SSDN
I feel very connected to my strong Italian
Alan Rickman is at the top of the list
 
Join Date: Aug 2006
Posts: 6,744

First and foremost, I am so sorry that you got this bad news.

Next, what will it take for you to get into the clinical trial at Johns Hopkins? Is there some sort of waiting list, how does it work?

From what I know of you here on the DIS boards, you've been a really amazing trooper. You're in my prayers. Keep us posted.
JunieJay is offline   Reply With Quote
Old 12-18-2006, 05:38 PM   #7
Shugardrawers
Ovarian Cancer Survivor!
I need to bust a royal wee!
Having a torrid affair with the
I like my pickles whole
 
Join Date: Aug 2003
Location: Newport News, VA
Posts: 9,284

In my favor, I'm relativly young at 42 for having primary peritoneal cancer and otherwise extremely healthy. This makes me an ideal candidate for any kind of study they can come up with. In fact, some researchers have fought over me If anyone qualifies, it's me. It'll be after the first of the year but I'll know more soon. Thank you all.
__________________
QUEEN of DAMN NEAR EVERYTHING
Shugardrawers is offline   Reply With Quote
Old 12-18-2006, 05:41 PM   #8
JunieJay

SSDN
I feel very connected to my strong Italian
Alan Rickman is at the top of the list
 
Join Date: Aug 2006
Posts: 6,744

Quote:
Originally Posted by Shugardrawers
In my favor, I'm relativly young at 42 for having primary peritoneal cancer and otherwise extremely healthy. This makes me an ideal candidate for any kind of study they can come up with. In fact, some researchers have fought over me If anyone qualifies, it's me. It'll be after the first of the year but I'll know more soon. Thank you all.
Well thats encouraging.

I live near Johns Hopkins, want me to go up there and give them the what for? I will, you just say the word.

Either way, I'll be following your posts and certainly keeping you in my prayers.
JunieJay is offline   Reply With Quote
Old 12-18-2006, 05:41 PM   #9
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

OK.. I want to say bad words here but of course I cannot as they will not pass the filter and then being the mod here that would not be appropriate..

But Gosh darn it, I am so angry over this.....OK....Shugar, please know we are praying for you here.. I do not know what to say.. This disease is so bad, it tricks you into thinking you beat it, you are fine.....it gives you a few months of hope and feeling good and then it smacks you down again.

I know what a relapse means.. each time you do battle again with chemo hoping that this time it will kill all those cancer cells, knowing full well that each time you have a reoccurrence, your chances get slimmer and slimmer.. I understand, and feel your frustration. Just gear up and start working on those trials at Johns Hopkins.. try to get in.. what else can you do??

Hugs to you tonight.. I am not sure what else to say here except know that you are in my prayers. I am without words and pretty angry and questioning yet again.....Why??
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 12-18-2006, 06:25 PM   #10
bytheblood
DIS Veteran
 
bytheblood's Avatar
 
Join Date: Feb 2004
Posts: 17,323

Prayers being said! For comfort and the study!!
bytheblood is offline   Reply With Quote
Old 12-18-2006, 07:09 PM   #11
Cherry

DIS Veteran
 
Cherry's Avatar
 
Join Date: Sep 1999
Location: Virginia
Posts: 364

I am so sorry you have to go through this. I don't know what else to say. You are in my prayers. From the posts of yours that I have read, I know you are an amazing person, and you will continue to fight your way through this. I hate this disease, it just wears you down. I am praying that you will get into that trial.
__________________
Cherry is offline   Reply With Quote
Old 12-18-2006, 08:50 PM   #12
Blueeyes101817
Diehard Cowboys fan!
Tag trading will not be as profitable as pin trading
Being watched
 
Blueeyes101817's Avatar
 
Join Date: Jan 2004
Location: New Jersey
Posts: 24,391

Blueeyes101817 is offline   Reply With Quote
Old 12-18-2006, 08:58 PM   #13
minkydog
DIS Cast Member
hey! I've got two college degrees and a steady job. if I wanna watch mindless TV, so what?
DIS Official Rum Taster
I used to be in the all-natural camp.
 
minkydog's Avatar
 
Join Date: Dec 2004
Location: North GA
Posts: 16,335

NOOOoooooo Not fair! I am so sorry to hear this. You were doing so well. I hope JH can take you very soon. Here's a hug, it's all I've got, but you can have it.
__________________
Never underestimate the determination of the mother with a handicapped child
minkydog is offline   Reply With Quote
Old 12-18-2006, 09:11 PM   #14
Jake & Crew
Mouseketeer
 
Jake & Crew's Avatar
 
Join Date: Feb 2006
Location: Rhode Island
Posts: 385

I know how tired you feel, the night before Thanksgiving at a 5pm appt I was told that we were back "in the game". I felt wiped beyond belief. Sat in the parking lot and cried. Then put on my "strong side" for the kids.

Well here we are a few weeks later and this week the rollercoaster is up. I am doing a 5 day treatment, the CT scan is showing it localized and if the treatment does what it is supposed to we will be back on track.

What I am trying to say is scream, yell, cry, sleep for a day to work off the tired feeling then for your own well being be positive! I will pray for you, as I am sure many will. You will be in that program, I just know it!!


My positive thoughts and prayers I am sending out to you!!!!
__________________
me; dh; dd13 dd11
Childhood Trips:1975 ~ off-site 4/83~off site 4/85~ Poly
"Grown Up" Trips:3/96~WL 5/06~Poly/Cruise2/07 ~ WL Grand Gathering
4/08 BWV & OKW ~ 8/10 BWV & AKLV ~ 8/12 BCV & AKLV

Next Up: BWV + BCV + BLT with Grandparents ~ August 2014!!!!


Jake & Crew is offline   Reply With Quote
Old 12-19-2006, 12:41 AM   #15
yecats
DIS Veteran
 
yecats's Avatar
 
Join Date: Jan 2003
Location: Mandeville, LA
Posts: 1,246

Your in my prayers and wishes for you to get in the program and kick the s#&t out of the cancer.
__________________
I live to vacation.
yecats is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 11:39 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.