Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS Updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read


Reply
 
Thread Tools Rate Thread Display Modes
Old 11-25-2006, 06:57 AM   #1
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

Coping with new chemo

Holidays are so difficult when a family member is ill... I do hope you all managed to have a decent one...

We have been trying to get DH through this new round of chemo which has not been good at all. There is a new chemo drug on the market, just having finished trials, but it does have some horrific side effects....which is it causes the person to have acne, and painful acne, as it targets new growth. I am not sure he is going to be able to stay on this as it is rather painful and somewhat disfiguring....the disfiguring part we could deal with, but the pain is something else...

Anyway, we are in contact with the doctor and DH was very stoic at the Thanksgiving table, but I knew he was uncomfortable......As soon as the guests left, he went to bed....

I do hope that your loved ones who are ill at the holidays can fare well through their illnesses and take solace in their families gathering near..

Hugs all around....
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 11-25-2006, 07:42 AM   #2
pjb_hockey_mom
Reminds me of a bad attempt at an Etch a Sketch drawing
 
Join Date: Nov 2005
Location: Central Mass
Posts: 514

Hi Mahsha,

I'm so sorry to hear your husband is in such pain. I'm hoping the dr. can give him something or change something to get him through this. Will you hear from him soon or see him next week?

How are you holding up? How about your daughters?
__________________
pjb_hockey_mom is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 11-25-2006, 08:32 AM   #3
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

Hugs PJB... I keep thinking about your Dad too...

The girls are hanging in, we are all just in shock....I have never in my life seen anything like this.....I do not know what to say here, Tarceva is the name of the new drug that just passed clinical trials, but Dear God, this is horrific...

I wish it were Tuesday already and I could bring him to Boston and see his doctor, these weekends are nightmares for families who are dealing with Cancer and trying to deal with it on their own in their homes....

He is on an antibiotic now to prevent infection from these sores.......I just cannot go into description here, it is that bad..

Hugs all around.
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 11-25-2006, 09:06 AM   #4
pjb_hockey_mom
Reminds me of a bad attempt at an Etch a Sketch drawing
 
Join Date: Nov 2005
Location: Central Mass
Posts: 514

Dad is doing okay. Chemo is catching up and starting kick his butt. We leave tomorrow morning for Disney and he's really looking forward to getting some rest and spending time with his grandsons.

I'm concerned more for you and Tom though. I know chemo effects everyone so differently, but I'm frustrated that he has to be in so much discomfort.

Can he take anything for the pain? Tylenol PM to help him rest....or even Benadryl maybe?

__________________
pjb_hockey_mom is offline   Reply With Quote
Old 11-25-2006, 09:37 AM   #5
Mackey Mouse
Me read the Navigator? I don't think so

tsk, tsk said in my best Bahsten accent

Tommy made Flubber
 
Mackey Mouse's Avatar
 
Join Date: May 2000
Location: MA
Posts: 17,397
DISboards Moderator

He is sleeping with the Ativan, so that is a good thing. it is the day time that is hard....we have benadryl and he is now on an antibiotic to help with the eruptions....I have sent an email to the dr and will call him around 10 if he does not call me..

I want you to have the best time in WDW......I wish we were going to be there at the same time, your Dad and Tom could meet and give each other some support, who knows better than someone who has been through it. I am hoping Tom will rally and be able to go, but am unsure with what is going on, just sitting here waiting for a call now.

You take care and enjoy your time with your Dad and the kids at WDW.. Hugs to you and yours.
__________________
Mackey Mouse, Are you a Tigger or an Eeyore?

Co-Moderator Restaurant Boards
Moderator, Coping and Compassion Board

"Great spirits have always encountered violent opposition from mediocre minds." -Albert Einstein
Mackey Mouse is offline   Reply With Quote
Old 11-25-2006, 08:44 PM   #6
Cherry

DIS Veteran
 
Cherry's Avatar
 
Join Date: Sep 1999
Location: Virginia
Posts: 364

It makes me so sad to hear that your husband is having so much trouble with his chemo this time. I can relate to everything you're saying. And to have to wait so long to get to the doctor to get some relief must be just awful.
I am praying that he will be able to rest and that the pain will subside, and that the doctor will change him to something different with less side effects, or will be able to give him something that will make this drug more tolerable. Truly, my heart aches for you both.

Hugs to you and your husband.
__________________
Cherry is offline   Reply With Quote
Old 11-25-2006, 08:56 PM   #7
meeskamouska
Doesn't go with jelly
Don't you put on your Depends before DISing....that the way I roll!!!
 
meeskamouska's Avatar
 
Join Date: Oct 2006
Location: North Texas
Posts: 2,923

When my baby brother was on chemo he suffered from pain very little...this sounds like a really rough form of chemo. I will keep your husband as well as his doctors in my prayers. And of course you and your girls...I will send happy thoughts and prayers.

Tera
__________________
[img]http://www.********************/timers/tickers/b40jewyfzkrzatcr.png[/img]

Men are taught to apologize for their weaknesses, women for their strengths. ~Lois Wyse
meeskamouska is offline   Reply With Quote
Old 11-27-2006, 12:12 PM   #8
JunieJay

SSDN
I feel very connected to my strong Italian
Alan Rickman is at the top of the list
 
Join Date: Aug 2006
Posts: 6,744

Oh Marsha, I am so sorry to hear Tom is not tolerating the chemo well. Hopefully tomorrow will bring you some answers and some relief.
JunieJay is offline   Reply With Quote
Old 11-27-2006, 01:51 PM   #9
CarolAnnC
Caught Smuggling Jello Shot Syringes From PI
Likes to shoot off her glock in chat
Goin' to the Chapel
 
CarolAnnC's Avatar
 
Join Date: Oct 2000
Posts: 13,532

I hope tomorrow brings some help for Tom and his suffering. I ask "why" so often, and can only rely on my faith as to why so many good people are suffering here on earth. More prayers as always for you both..
__________________
CarolAnnC is offline   Reply With Quote
Old 11-27-2006, 02:41 PM   #10
safetymom
Have will travel
ABD trips = clothes optional
 
Join Date: Aug 2001
Location: Now living near the parks!
Posts: 42,156

Marsha, I am so sorry to hear the suffering he is going through. Sending prayers for all of you.
safetymom is offline   Reply With Quote
Old 11-27-2006, 07:39 PM   #11
escape
Mouseketeer
I don't buy it. I'm much more weird than that!
 
Join Date: Jun 2005
Location: Razorback country!
Posts: 4,783

Marsha, my heart breaks for your DH and for all of you. I hope the doctor is able to give your DH something to help ease the pain. Sending prayers and good thoughts your way.
__________________
Susie

Disney Races Completed: 2007 - WDW Half, Tower of Terror 13K; 2008 - WDW Marathon , Minnie 15K, Disneyland Half; 2009 - Race for the Taste; 2010 - GOOFY Challenge; Disneyland Half; WDW Wine & Dine Half; 2012 - WDW Half, WDW Relay
;2013 - Disneyland Dumbo Double Dare
escape is offline   Reply With Quote
Old 11-27-2006, 10:56 PM   #12
NeedaVacation03
My first pair of real sneakers came from Kmart and no one thought anything about it
 
Join Date: Mar 2005
Location: Home of the Buckeyes
Posts: 969

Marsha, I hate reading this about your husband. I hope that it is something they can get under control soon. I am still so new to this chemo thing, I dont really have much insight. But I have thought about you and your husband all weekend and wish only the best for you both.
NeedaVacation03 is offline   Reply With Quote
Old 11-28-2006, 05:04 PM   #13
CarolynU
Proud Mum twice over
The TF enjoys making people stare at the screen in amazement! :)
The TF thanks Carolyn!
 
Join Date: Feb 2002
Location: Kent
Posts: 1,140

Marsha I am so sorry for your husband's pain and the worry that it must be causing to you all. Keep strong.
CarolynU is offline   Reply With Quote
Old 11-29-2006, 08:29 PM   #14
lyeag
DIS Veteran
 
lyeag's Avatar
 
Join Date: Dec 2004
Location: OK
Posts: 3,237

I am so sorry. I hope they can do something for the pain. It is so hard to watch someone you love go through something like this. It makes you feel so helpless. I am keeping you in my prayers.

Laura
__________________
Don't swing on a string, it's much too frail, the best sort of swing is a Tigger's tail!
December 2009 CR Atrium Club
Dec 2006 CR Atrium Club, Dec 2004-CR
lyeag is offline   Reply With Quote
Old 12-09-2006, 10:03 PM   #15
winotracy
This is NOT an ask Tracy question!
Moi??? Talking too much?!? How can that be?
Skeet Shooting is not, I repeat not on our Disney Cruise!
 
winotracy's Avatar
 
Join Date: Oct 2004
Location: DeForest, WI
Posts: 7,617

I spent some time in the last two days with Tommy and Marsha in WDW. Marsha wanted you all to know that Tom is doing well. They are heading home tomorrow morning.
winotracy is offline   Reply With Quote
Reply



Thread Tools
Display Modes Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 06:52 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.