The THYROID Thread - Page 95 - The DIS Discussion Forums

mrsklamc · 07-07-2011, 07:41 AM

Well-- The Dr.'s assistant said she would try and order the thyrogen at the end of June, so I emailed her yesterday and she just responded that she had submitted my insurance info to the Thyrogen company and would let me know as soon as she hears anything. I am tempted to tell her to skip it and do the cytomel-- just because of my fertility issues I don't want anything holding me up. What do you ladies think you would do?

luvmarypoppins · 07-07-2011, 09:08 AM

Micayla - do you mean you dont want to wait to see if there will be a delay in getting the thyrogen versus just knowing you can go another route, because as soon as the scan is completed you want to TTC?

mrsklamc · 07-07-2011, 09:20 AM

Quote:

Originally Posted by luvmarypoppins

Micayla - do you mean you dont want to wait to see if there will be a delay in getting the thyrogen versus just knowing you can go another route, because as soon as the scan is completed you want to TTC?

Yes- well not as soon as, b/c you have to wait two months to get the tracer dose out of your system. But I'm trying to decide whether to wait on the thyrogen or just go ahead and do 4 weeks cytomel, 2 weeks with nothing.

luvmarypoppins · 07-07-2011, 09:45 AM

Well, you did do that before and wasnt it so draining on you? I have never gone that route, so I cant comment on that part of it. (cytomel). I guess if you could handle the diet and those side effects at the same time, it would be ok. I dont think I could physically or mentally do it both at once with all the symptoms you described you had before.

Can they guarantee you that you will have the thyrogen? Remember I specifically asked the rad. onc. about this and she gave me the whole US thyrogen update.

dischick also had no problem getting the thyrogen but she lives in the ny metro area too. so maybe we have a good supplier as my rad. onc said.

If they are getting it for you from the midwest plant than it should be ok? Also I think you would probably have a better chance of getting it from a hospital who has a cancer center or large teaching hosp. etc. Like the largest hospital by you or within distance, in indiannapolis?

mrsklamc · 07-07-2011, 10:09 AM

I would have done ok on the cytomel/withdrawal process last time if it weren't for the fact that the lab tech screwed up the blood test, and THEN we had to wait to get in for another round of radiation once my blood labs came back.

luvmarypoppins · 07-07-2011, 01:10 PM

Christine should chime in here with her word of wisdom for sure, and Christine if you do, OT, what kind of car did you end up getting? My ds just leased the hyundai sonata. I dont like the leather seats.

Well in my own endo horror story. I just called to change my visit. Its for July 18 and dh will be out of here so I thought no problem. She says, I will give you the next available date, I said thats nice , She .?says...

December!! I said, wiat what about August? She says the dr. will not be here. She said do you have diabetes? I said NO!! I have cancer!! So what, diabetes takes a higher precedence there? I said look, I need a sono, blood work etc. and that is to be done 2 weeks before the visit so I am not scheduling that unitl I get a new date. So I said then dont cancel that date yet etc. So she says a secretary in the endocrionology dept. will call me back. Gheesh. I didnt know it would be so hard to get a visit. Maybe its just her since she is the only female endo besides one of the chief ones. And there goes another day in the...General Hospital or aka How I cant get a stinkin appt. visit with the endo.

Christine · 07-07-2011, 03:50 PM

Quote:

Originally Posted by luvmarypoppins

Christine should chime in here with her word of wisdom for sure, and Christine if you do, OT, what kind of car did you end up getting? My ds just leased the hyundai sonata. I dont like the leather seats.

Okay, I'll chime in!!

I haven't been reading in a few days, sorry about that.

Micayla, if you think you can tolerate the withdraw/Cytomel scan, I would do it. However, I am not a HUGE fan of Thyrogen as it hasn't been good for me. You seemed to weather through the last time pretty well, except for at the end when it got screwed up. If you think the whole Thyrogen thing is going to mess you up, then skip it. I do wonder, though, how will going hypo affect fertility issues and pregnancy issues? Will that delay you further also? Takes a good while for the body to recover from hypo. I don't overly like the idea of conceiving when the body is not at its peak. So, you see, I'm torn too.

As for the car, I'm paralyzed on that one. I think I'm really leaning toward the Elantra; however, it's so popular I can't even look at one on the lot. Which also means I'll pay sticker--something I.NEVER.DO. The Sonata's okay. What don't you like about the leather seats? Is the leather worse than any other leather you have experienced? I have never had leather seats. My friend has leather in her Camry but does not like it either. I'm a dirty slob so I think leather would work well for me.

I also have a bad cold right now. Can I get some Coping and Compassion!!!!! I haven't had a cold in YEARS. They are awful.

dischick4778 · 07-07-2011, 08:41 PM

I guess I didn't know, but is there a thyrogen shortage? It just seemed like the norm at my hospital. There wasn't even a question that I would not get it. The Dr. told me the alternative was 4 weeks off synthroid which as he put it would be torture. Is this a NY thing?

Also, does having thyroid issues contribute to not being able to conceive? I have asked both my endo and obgyn about this and neither one indicated this as a concern for me having future children. They only said we would have to adjust my meds once I was pregnant. We aren't thinking about it right now as my son is only 1, but I was thinking it would be nice in the future. I didn't even realize this was a possible issue.

Luvmarypoppins - where do you live and why is it so challenging to get an appointment?! That is a terrible way to treat you. I hope it works out for you.

mrsklamc · 07-07-2011, 08:52 PM

Dischick- don't worry about fertility. LOTS of women have kids after thyroid cancer; the only risk I have found is a slight-very slight- increased risk of alopecia. And I only found that because I research obsessively. They will want to monitor your levels closely. My fertility issues are a 'bonus' problem apart from my cancer.

I did ask the Dr's assistant if I could start taking Cytomel. She said she would get back to me no later than Tuesday-- I'm sure they are swamped between the holiday and the fact that the doctor's only in three days per week normally.

And YES, Christine, you can have compassion! I HATE colds.

Christine · 07-08-2011, 07:25 AM

Quote:

Originally Posted by dischick4778

Also, does having thyroid issues contribute to not being able to conceive?

The only way they would contribute is if your TSH is out of whack.

I don't know what Micayla's issues are specifically, but if she goes off her meds for 4-6 weeks she's going to get VERY hypo. When she goes back on her meds, it will take a long while for her body to "right" itself. I would think that this could definitely complicate getting pregnant temporarily.

mrsklamc · 07-08-2011, 11:19 AM

Dr. says the thyrogen will be available this month "as far as she knows" and she's "OK with waiting."

Though I don't have most of the traditional symptoms, they think I may have PCOS, which is unrelated to the thyroid stuff. I just lost the medical/environmental/genetic lottery.

luvmarypoppins · 07-08-2011, 07:34 PM

Micayla - I think our hosp. literature says something like thyrogen allows our patients to have a good quality of life while undergoing treatment? Something like that, or does not intfere with life?? I would have to look up the exact words. But you get the jist.

I would pick the thyrogen in a minute, but that is just me. You have to do what is best for you.

Christine -I just didnt like the feel of them, but the moon roof is nice.

dischick - I live about Mid Suffolk. You can get to my town by either exit 62,63 or 64 on the expressway. I go to SB. Home of the best ideas in medicine, well thats what is says on tv

Well in my endo saga. I am getting the blood work tomm., monday dh is taking me for a sonogram. Only bad thing is its in the hospital. Its the only available appt. I dont like going there, too many bad memories, but our friend is having surgery and maybe we can see how he is etc. Then the 18th I asked my oldest ds to take me to the endo. So he will ask his boss on tues. He better say yes. So I had to call and say keep, keep the visit etc. They must think I am a looney tune! And now our compressor has blown out of our central ac unit. Can I just say its hotter than blazes here. I dont think this is too good for the synthroid. I am sweating most everything out. I had cramps yest. so I ate a banana today. Worse, the guy cant get the part for a week since our unit is so old and dh refuses to get a whole new unit, just too expensive he said right now. Oh well.

luvmarypoppins · 07-09-2011, 12:13 PM

Well I just got back from the blood test and after it was over and I was signing the papers, I realized that she didnt check off the vitamin D blood test,

Hmm, I questioned? the tech. She said, yes she wrote your vit d deficiency diagnosis but didnt order the test.

So she told me to call the nurse on monday and ask if they want the test to be run.

I dont know if my endo wanted it done or not. I think she always does it, so I really cant remember. I am also wondering if she is a bit rushy with the patients. I am seriously going to be looking at all my paperwork before I leave the office at the check out desk.

luvmarypoppins · 07-10-2011, 07:18 PM

Chatty one here

Tomm. ds19 is taking me for my sono as dh forgot he has a meeting. Good since he wants to volunteer there anyway, helps with getting into the nursing program possibly. Also our friend is having surgery so I might pop into the surgery pre wait area and read the board and see how he is etc.

Here is my question. When you have a sono, how far up or down do they go on your neck., I looked at the order and it said check lymph nodes in neck and thyroid bed. for lymph node mets.

My question and I am going to ask the sonographer is since I had the level 2 infected lymph node will they go that high up, its under my ear etc, where does the neck lymph nodes start, level 2 or 3. I dont know if the endo knows about this (the rad. onc. also didnt get the surgeons note about his biopsy etc.). I guess I just want to cover all my lymph node bases if I can etc.

Any thoughts.

mrsklamc · 07-10-2011, 07:24 PM

I don't think they went up as high as under my ear.

07-07-2011, 01:10 PM	#1416
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Christine should chime in here with her word of wisdom for sure, and Christine if you do, OT, what kind of car did you end up getting? My ds just leased the hyundai sonata. I dont like the leather seats. Well in my own endo horror story. I just called to change my visit. Its for July 18 and dh will be out of here so I thought no problem. She says, I will give you the next available date, I said thats nice , She .?says...December!! I said, wiat what about August? She says the dr. will not be here. She said do you have diabetes? I said NO!! I have cancer!! So what, diabetes takes a higher precedence there? I said look, I need a sono, blood work etc. and that is to be done 2 weeks before the visit so I am not scheduling that unitl I get a new date. So I said then dont cancel that date yet etc. So she says a secretary in the endocrionology dept. will call me back. Gheesh. I didnt know it would be so hard to get a visit. Maybe its just her since she is the only female endo besides one of the chief ones. And there goes another day in the...General Hospital or aka How I cant get a stinkin appt. visit with the endo.

07-07-2011, 08:41 PM	#1418
dischick4778 DIS Veteran Join Date: Sep 2004 Location: Queens, NY Posts: 1,209	I guess I didn't know, but is there a thyrogen shortage? It just seemed like the norm at my hospital. There wasn't even a question that I would not get it. The Dr. told me the alternative was 4 weeks off synthroid which as he put it would be torture. Is this a NY thing? Also, does having thyroid issues contribute to not being able to conceive? I have asked both my endo and obgyn about this and neither one indicated this as a concern for me having future children. They only said we would have to adjust my meds once I was pregnant. We aren't thinking about it right now as my son is only 1, but I was thinking it would be nice in the future. I didn't even realize this was a possible issue. Luvmarypoppins - where do you live and why is it so challenging to get an appointment?! That is a terrible way to treat you. I hope it works out for you. __________________ 1986, offsite 1988, offsite 1996, Dixie Landings 1998, Coronado Springs 2001, Caribbean Beach Resort May 2002, Port Orleans French Nov. 2002, Old Key West Aug. 2003, Old Key West Nov. 2003, Old Key West Nov. 2004, Animal Kingdom Lodge Aug. 2005, Grand Californian Aug. 2005, Old Key West Nov. 2005, Boardwalk Villas Aug. 2006, Saratoga Springs Nov. 2006, Boardwalk Villas July 2007, Old Key West Nov. 2007, Beach Club Villas Nov. 2008, Boardwalk Villas Apr. 2009, All Star Music Aug. 2009, Old Key West June 2011, AKV Kidani Village July 2011, AKV Kidani Village ~Our Disney Family~

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07-07-2011, 07:41 AM	#1411
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,452	Well-- The Dr.'s assistant said she would try and order the thyrogen at the end of June, so I emailed her yesterday and she just responded that she had submitted my insurance info to the Thyrogen company and would let me know as soon as she hears anything. I am tempted to tell her to skip it and do the cytomel-- just because of my fertility issues I don't want anything holding me up. What do you ladies think you would do?

07-07-2011, 09:08 AM	#1412
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Micayla - do you mean you dont want to wait to see if there will be a delay in getting the thyrogen versus just knowing you can go another route, because as soon as the scan is completed you want to TTC?

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The DIS Register to remove Join Date: 1997 Location: Orlando, FL Posts: 1,000,000

07-07-2011, 09:45 AM	#1414
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Well, you did do that before and wasnt it so draining on you? I have never gone that route, so I cant comment on that part of it. (cytomel). I guess if you could handle the diet and those side effects at the same time, it would be ok. I dont think I could physically or mentally do it both at once with all the symptoms you described you had before. Can they guarantee you that you will have the thyrogen? Remember I specifically asked the rad. onc. about this and she gave me the whole US thyrogen update. dischick also had no problem getting the thyrogen but she lives in the ny metro area too. so maybe we have a good supplier as my rad. onc said. If they are getting it for you from the midwest plant than it should be ok? Also I think you would probably have a better chance of getting it from a hospital who has a cancer center or large teaching hosp. etc. Like the largest hospital by you or within distance, in indiannapolis?

07-07-2011, 10:09 AM	#1415
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,452	I would have done ok on the cytomel/withdrawal process last time if it weren't for the fact that the lab tech screwed up the blood test, and THEN we had to wait to get in for another round of radiation once my blood labs came back.

07-07-2011, 08:52 PM	#1419
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,452	Dischick- don't worry about fertility. LOTS of women have kids after thyroid cancer; the only risk I have found is a slight-very slight- increased risk of alopecia. And I only found that because I research obsessively. They will want to monitor your levels closely. My fertility issues are a 'bonus' problem apart from my cancer. I did ask the Dr's assistant if I could start taking Cytomel. She said she would get back to me no later than Tuesday-- I'm sure they are swamped between the holiday and the fact that the doctor's only in three days per week normally. And YES, Christine, you can have compassion! I HATE colds.

07-08-2011, 11:19 AM	#1421
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,452	Dr. says the thyrogen will be available this month "as far as she knows" and she's "OK with waiting." Though I don't have most of the traditional symptoms, they think I may have PCOS, which is unrelated to the thyroid stuff. I just lost the medical/environmental/genetic lottery.

07-08-2011, 07:34 PM	#1422
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Micayla - I think our hosp. literature says something like thyrogen allows our patients to have a good quality of life while undergoing treatment? Something like that, or does not intfere with life?? I would have to look up the exact words. But you get the jist. I would pick the thyrogen in a minute, but that is just me. You have to do what is best for you. Christine -I just didnt like the feel of them, but the moon roof is nice. dischick - I live about Mid Suffolk. You can get to my town by either exit 62,63 or 64 on the expressway. I go to SB. Home of the best ideas in medicine, well thats what is says on tv Well in my endo saga. I am getting the blood work tomm., monday dh is taking me for a sonogram. Only bad thing is its in the hospital. Its the only available appt. I dont like going there, too many bad memories, but our friend is having surgery and maybe we can see how he is etc. Then the 18th I asked my oldest ds to take me to the endo. So he will ask his boss on tues. He better say yes. So I had to call and say keep, keep the visit etc. They must think I am a looney tune! And now our compressor has blown out of our central ac unit. Can I just say its hotter than blazes here. I dont think this is too good for the synthroid. I am sweating most everything out. I had cramps yest. so I ate a banana today. Worse, the guy cant get the part for a week since our unit is so old and dh refuses to get a whole new unit, just too expensive he said right now. Oh well.

07-09-2011, 12:13 PM	#1423
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Well I just got back from the blood test and after it was over and I was signing the papers, I realized that she didnt check off the vitamin D blood test, Hmm, I questioned? the tech. She said, yes she wrote your vit d deficiency diagnosis but didnt order the test. So she told me to call the nurse on monday and ask if they want the test to be run. I dont know if my endo wanted it done or not. I think she always does it, so I really cant remember. I am also wondering if she is a bit rushy with the patients. I am seriously going to be looking at all my paperwork before I leave the office at the check out desk.

07-10-2011, 07:18 PM	#1424
luvmarypoppins I am debating whether to put a new one back on his O.K. who is the sista here right now? ((Hug)) Join Date: Aug 2003 Posts: 9,345	Chatty one here Tomm. ds19 is taking me for my sono as dh forgot he has a meeting. Good since he wants to volunteer there anyway, helps with getting into the nursing program possibly. Also our friend is having surgery so I might pop into the surgery pre wait area and read the board and see how he is etc. Here is my question. When you have a sono, how far up or down do they go on your neck., I looked at the order and it said check lymph nodes in neck and thyroid bed. for lymph node mets. My question and I am going to ask the sonographer is since I had the level 2 infected lymph node will they go that high up, its under my ear etc, where does the neck lymph nodes start, level 2 or 3. I dont know if the endo knows about this (the rad. onc. also didnt get the surgeons note about his biopsy etc.). I guess I just want to cover all my lymph node bases if I can etc. Any thoughts.

07-10-2011, 07:24 PM	#1425
mrsklamc I apologize in advance, but what is a click clack? Join Date: Oct 2006 Location: Husker living in Hoosierland. Posts: 8,452	I don't think they went up as high as under my ear.