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Old 05-01-2011, 05:45 PM   #1336
luvmarypoppins
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I am going to the oncologist on thurs. I am hoping that she sticks to her original plan of just the thyrogen and blood testing.

I am sure she will read the ent's note about the lymph node,biopsy and path. I am hoping she will agree that if the path was negative then she wont have to do the lid and scan this year.

And if she wants to do a scan then I will tell her she will have to wait until I am back from Disney etc.

Also, you will all hear about the latest thyrogen supply update.
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Old 05-02-2011, 10:51 AM   #1337
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Originally Posted by luvmarypoppins View Post
I am going to the oncologist on thurs. I am hoping that she sticks to her original plan of just the thyrogen and blood testing.

I am sure she will read the ent's note about the lymph node,biopsy and path. I am hoping she will agree that if the path was negative then she wont have to do the lid and scan this year.

And if she wants to do a scan then I will tell her she will have to wait until I am back from Disney etc.

Also, you will all hear about the latest thyrogen supply update.
When are you going to Disney? I am so jealous that you get to go to your 'happy place' so often.
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Old 05-02-2011, 12:25 PM   #1338
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When are you going to Disney? I am so jealous that you get to go to your 'happy place' so often.
Me too!!!!
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Old 05-02-2011, 01:33 PM   #1339
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When are you going to Disney? I am so jealous that you get to go to your 'happy place' so often.
We usualy go twice a year. Dh has a reallly good job.
We are going May 20-28th. 3 days at the Grand Floridian and then 3 days at the Beach Club for FREE!! Cashing in dh frequent flier miles. Guess going to China once a month is very good, even though I miss him so much, then 2 more days at the Yacht Club with an AP discount. Also meeting up with 2 gals and maybe more from the breast cancer thread on the cb.

I guess after I almost died and dh saw me in the coma, we both see how every day of life is so precious. He treats me like the cancer Dh also gets 5 weeks of vacation a year which he never uses. Also with all the 3 ds at home, we neeed a vacation away from them for sure. I am hinting for the food and wine which we have nevver been too. No wine though for us. Figure that could be free too at the Swan.
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Old 05-05-2011, 01:46 PM   #1340
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My biopsy came back benign . The nurse said the Dr. just wants me to come back in a year for another ultrasound.

I'll still be following you guys but thanks for answering all my questions, I appreciate it.
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Old 05-05-2011, 01:58 PM   #1341
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My biopsy came back benign . The nurse said the Dr. just wants me to come back in a year for another ultrasound.

I'll still be following you guys but thanks for answering all my questions, I appreciate it.
That is great news!
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Old 05-05-2011, 02:12 PM   #1342
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My biopsy came back benign . The nurse said the Dr. just wants me to come back in a year for another ultrasound.

I'll still be following you guys but thanks for answering all my questions, I appreciate it.
Such good news!
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Old 05-05-2011, 02:21 PM   #1343
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Originally Posted by luvmarypoppins View Post
We usualy go twice a year. Dh has a reallly good job.
We are going May 20-28th. 3 days at the Grand Floridian and then 3 days at the Beach Club for FREE!! Cashing in dh frequent flier miles. Guess going to China once a month is very good, even though I miss him so much, then 2 more days at the Yacht Club with an AP discount. Also meeting up with 2 gals and maybe more from the breast cancer thread on the cb.

I guess after I almost died and dh saw me in the coma, we both see how every day of life is so precious. He treats me like the cancer Dh also gets 5 weeks of vacation a year which he never uses. Also with all the 3 ds at home, we neeed a vacation away from them for sure. I am hinting for the food and wine which we have nevver been too. No wine though for us. Figure that could be free too at the Swan.
DH and I both work at non-profits...they are great to us in many ways but unfortunately the $ is just not stellar. It's ok though cause DH doesn't really care for Disney. Poor guy,being married to me!
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Old 05-05-2011, 02:28 PM   #1344
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Originally Posted by hcmommy View Post
My biopsy came back benign . The nurse said the Dr. just wants me to come back in a year for another ultrasound.

I'll still be following you guys but thanks for answering all my questions, I appreciate it.
Great news. So glad it worked out well for you.
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Old 05-05-2011, 02:38 PM   #1345
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So I am back from the oncologist. She pulled up my path report because the ent didnt send her the note. I saw him dictate it into his machine, so it must have got lost along the way. Oh well, that is why I like to do everything at the hosp. since they can just pull it all up etc.

I am going to have the pregnancy blood test lst on June 17th. They said their age limit is 60, then the lst thyrogen test and then the 18th the next thyrogen and she said just go to the regular lab to get the lblood test the next week. I have to look at what day.

She said I dont have to see her for another year since the endo orders the bi yearly blood work and sonograms, yeah!!

And in the cancer sucks dept, (taken from the breast cancer girls), in the room next to me is a boy about 14 who has lost most of his R arm. I am asssuming due to bone cancer. His whole family was there and being very supportive. Of course. I almost cried. My heart went out to them.

So here is the Thyrogen information:

The original thyrogen plant is located in Boston. The new one is in the midwest, I think she said Omaha??. Well the Europeans decided they didnt want their thyrogen from Boston, but wanted it from the new midwest plant, so there is/was a 3 month back log. My oncologist is the 5TH LARGEST provider of thyrogen in the whole US!! She says the stafff is very proactive about havng a good supply and then she herself has an "in" with the supplier, so there s never a need to worry where I go. And there you have the insider and latest thyrogen news.
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Old 05-12-2011, 07:23 PM   #1346
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Went to the endo Tuesday. She said everything looked good, & that we would schedule a scan for August. She did say there was a thyrogen shortage and that they were supposed to be back in stock in July, so I am praying for that. I don't know what I would do if August came and it weren't available. I don't want to wait.
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Old 05-12-2011, 07:41 PM   #1347
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Originally Posted by mrsklamc View Post
Went to the endo Tuesday. She said everything looked good, & that we would schedule a scan for August. She did say there was a thyrogen shortage and that they were supposed to be back in stock in July, so I am praying for that. I don't know what I would do if August came and it weren't available. I don't want to wait.
glad to hear that things are going well and look on schedule for you. I agree iwth the not waiting part. I dont know where you get the thyrogen from endo, hosp etc. I would definetely ask about their supply and their supplier etc. I would think that if the supply is limited they would give it to patients getting rai lst. So you arent doing the diet? or are you? I saw some good recipes for banana bread and some kind of muffins. The banana bread was also using egg whites and home made applesauce.

Oh and Christine, are you the one with the wacky cake recipe. You are FAMOUS! As I said before, no cocoa, chocolate etc sutff is allowed from my onc. on her diet sheet. She is so strict.
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Old 05-13-2011, 07:01 AM   #1348
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Oh and Christine, are you the one with the wacky cake recipe. You are FAMOUS! As I said before, no cocoa, chocolate etc sutff is allowed from my onc. on her diet sheet. She is so strict.
I used to make the Wacky Cake about 15 years ago because my son had an egg allergy. I guess it works for the Low Iodine Diet...

Glad to hear all is well with everyone.

I have to have an upper endoscopy next week. This is not my first time but that doesn't stop me from being a wreck about it. I have some SERIOUS White Coat Syndrome these days. I normally have great blood pressure but during my visit with the gastro it was at 130/80 and all we did was have a conversation. I'm such a freak!!!!

Anyway, back in March I started getting episodes of severe acid/burning in my stomach. I am already on Prilosec because of stomach troubles many, many years ago so I was "burning" through that. It's not hearburn because it's in my stomach. I was hoping she'd just give me more meds but, no, she wants to take a look. Back in 2007 I had an upper endoscopy just to have a check and they found gastritis and bleeding (and I wasn't having symptoms).

I am kind of scared about it. I hope there's nothing serious but I am letting my anxiety run away with me.
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Old 05-14-2011, 10:30 AM   #1349
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I just happened upon this thread. (DH lost his job 4 months ago and I guess I was drawn by the title of the thread - Coping and Compassion) But I had thyroid cancer almost five years ago but never saw this thread. I found my lump by accident - DH and I were at the movies - a Pirates of the Carribean one to be exact. It was super cold with the a/c so I was all curled up and had my hands by neck to keep warm and I found my lump. Ultrasound revealed one node - 1.5cm. Blood work was completely normal. But the fine needle biospy revealled Pap.Thyca. I had my entire tyhroid removed (they found a 4mm and a 5mm node on the other lobe, thank goodness it was entriely removed) A few months later I had my RAI and have been going for annual checkups since.
I have read through much of this thread but I am glad to have found it.
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Old 05-16-2011, 04:18 PM   #1350
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welcome CanadianPaco - sorry to hear about your dh job. I pray God will open up something new for him soon. Wishing him all the best. Its good to hear you are doing well with your check ups. Can I ask what your initial RAI dose was?

Well I am back from the ENT. Wow, I cant believe all the instruments and stuff they have at that place. This was the chairman of the whole place who I saw this time. A litle grumpy. Only met him once before. Saw my other 2 surgeons on the way in. Had the hearing test. That was funny and went well they said. The new dr. thinks my dizziness is getting better. Could be caused by a virus, hmm, infected lymph node? Saw the other ent surgeons note that I was positive for the vertigo on the r side. He showed one exercise I can do to try to move the crystals in my ear. He said the others I cant do because of my neck dissection. So now its ust watch and see. I dont have to come back. He kept moving my headneck around and I had to put on these blurry goggles. He told me good luck with my thyrogen testing next month. He wanted to know why I saw a thoracic surgeon. I told him originally they thought the mass was in my chest and not my neck. Wow, he must have looked all the way in the back of my chart..the very beginning. So its off to disney on friday for dh and I. I need a break from all this medical stuff for sure.

Hope everyone is doing well
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