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Old 01-29-2007, 10:26 AM   #91
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I love this thread! Lots of food for thought. Each of us being able to make informed decisions based on whats right for us as an individual.

Quote:
rie'smom Is everyone here on Synthroid? I take Armour 3grains. Synthroid didn't work for me at all. It make my blood levels read ok but I felt like-well you know. Just letting anyone w/Synthroid problems know there's an alternative. Many doctors don't like it because they feel the doses aren't constant but they have to go through stringent testing too. In fact, this was the drug used to treat Hypothyroidism for about 100 years until Synthroid was formulated. It's been a miracle in my life and in my husbands.
I am on Synthroid at the moment but its just been over a month now. For the past 3 years I have been on Anti-Thyroid medications. How long have you been taking Armour? Does your dose remain a constant or does it fluctuate? So your lab values were all in range when taking Synthroid but you just didn't feel well? Still felt hypo, or?

I am amazed that in general The AACE (American Association of Clinical Endocrinologists) and The ATA (American Thyroid Association) as well as MANY, even MOST Thyroid specialists in the US feel that Armour use shows no advantages over synthetic T4. They further feel that Armour is impure and contains hormones and proteins that never exist in the body outside of the thyroid gland. It seems to me that there is a major anti Armour stance in our country.

However I have to question why is it that I have read about and spoken with so many people (mostly women) that take Armour and have NEVER felt better? Please dont construe this as my advocating or pushing Armour since I have no basis personally just like I said what I have learned. Question authority? You betcha! Things in the medical field change constantly whats good for us one day isn't the next, drugs are approved by the FDA one day and pulled the next. Bottom line for me is why do all these people taking Armour feel better if the "industry" says they shouldn't? I am positive it wont work for everyone but neither does any other drug.

It's time for research and time for Doctors to realize patients aren't going to sit back and be dictated to on health care issues that optimally we should have a say in. So anyone interested in exploring all your options can have a look here to see what Doctors in the US will dose Armour.
http://www.armourthyroid.com/locate.html

It is my belief that Armour is absolutely a more difficult drug to dose and learn about, it makes a doctors job more entailed. Too bad! I'm not saying we should all jump ship and insist on being given Armour. For me though if the day comes that after considerable effort to regulate and feel "good" (normal!) while taking synthetic T4 fails, I want options! So long as there are options I will continue to explore each and every one.
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Old 01-29-2007, 10:51 AM   #92
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Quote:
Originally Posted by lyeag View Post
I didn't get to speak to anyone, but I did pick up the synthroid. The bottle says .1, the pills have a 100 on them and are yellow. I have been taking them for 3 days now. I don't feel much different, maybe not quite so tired, but still cold. I have been really good about making sure I take it at the same time and without food.

Thanks for your input.
The half-life on Synthroid is 7 days. An endo put it to me this way: the Synthroid pill you take today (say, Monday) won't be felt until next Monday--roughly anyway. It takes awhile to build in the system.

Be careful with it though--.1 is a hefty dose for someone who has a functioning gland. You might find yourself on the hyper end in the next week or two.
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Old 01-29-2007, 11:40 AM   #93
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Quote:
Originally Posted by lyeag View Post
I didn't get to speak to anyone, but I did pick up the synthroid. The bottle says .1, the pills have a 100 on them and are yellow. I have been taking them for 3 days now. I don't feel much different, maybe not quite so tired, but still cold. I have been really good about making sure I take it at the same time and without food.

Thanks for your input.
I am surprised your Doctor prescribed this dose. It is high for a patient that still has their thyroid in conjunction with a TSH level that has been on a decline. Thyroid replacement hormone in synthetic T4 form is not fast acting. In other words what you take today will not have an effect on your symptoms or blood levels immediately. Start with a low dose and titrate up slowly. I would question this dose based on your history.
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Old 01-30-2007, 10:04 PM   #94
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Hi... I'm the whiner from a few days ago.
I do take Armour, but have in the past taken synthroid. I have even taken them both at the same time. I tried Cytomel, but it causes unbearable migraines each and every time I try it (even though doc says that simply is not possible. Whatever.) So, my labs are all normal, always are. Sometimes I can get them to the extreme upper end of normal, and a tad above and sometimes I can get real low in the normal range. I swear, no matter what the level or the medication... I cant shake these symptoms. I've been working at this for something like 4 - 5 years... I cant even remember anymore. Seems so odd. I totally think that I had something weird happen when my brother died, besides the obvious. I think something chemically changed, and the doc's cant or dont look for whatever it may be. I have researched myself silly... always hitting a brick wall in the end.
I have to say... I dont like Armour any more than I like Synthroid. I just want one of them to work. I am not really crasy about taking pills made from a pig... but when the Synthroid made me cry too much, I switched. Ive done this repeated times over the 21 years Ive been post RAI. I never had thriod storm, thank God, but I was so hyper I could have literally commited a serious crime against another without a thought. NOT A NICE personality trait... and when you add some offspring to that picture, oh it's ugly.
One note: I REFUSE to trust an endo ever again.
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Old 02-03-2007, 12:41 AM   #95
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Old 02-03-2007, 02:44 PM   #96
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Quote:
Originally Posted by teacups View Post
Try gaining 50 pounds in one-two months, loosing all energy to the point of your kids practically existing without you, falling into an ugly deep depression that really hangs in there thru thick and thin, as if THIN is even a word you'd ever mumble again! your skin flaky in ugly places, forgetting everything and knowing your not insane but fearing you are starting to become very stupid, rememebering the person you used to be and actually missing yourself! OH and the best part is the fact that your labs come back "within normal range". I'm not doggin on HYPER people, I was one of them once until the doctor told me to swallow poison and I did it... I would go back to hyper/graves in A FLASH! Hypo robs you of the personal resourses you need to help yourself. It's degrading and humiliating and ugly. And the doctors have never ever, ever been any help to me with this. When I was hyper I could freak myself out with the racing heart badly... but I would rather have that today, believe me. Well wait... I'd rather have NEITHER! THEY BOTH SUCK!!!
teacups, I understand your thoughts here, but i've been in both places myself, and I was much, much, much sicker with hyper than I ever was with hypo. I couldn't move 30 feet without being so exhausted I had to lie down. I was also having a resting heart rate of 100 while I was on propranol that rose to 150 within a minute of moving around. I laid on the sofa many nights with my heartrate spiking to 150 for no reason at all and my blood pressure going from 120/80 to 220/180 for no reason.

And I also had extremely dry, flaky skin, my eyebrows fell out as well as chunks of my hair, my legs swelled, my eyes swelled to the point where one now sticks out more than the other, I couldn't concentrate in meetings, forgot conversations 5 minutes after they happened, had horrible diarrhea, coudn't walk up stairs because my muscles were so weak.

Also, I couldn't sleep more than 4 hours a night, usually 30 minutes at a time, my heart pounding so loud the entire time that it kept we awake.

On top of all that, I was irritable and moody.

Talk about degrading, and losing everything you have for personal resources, I couldn't: go to the grocery store, drive myself to the lab for bloodwork, go to work, clean the house, cook, go to my mailbox 200 yards down the street - just to name a few things.

I'm not trying to start a debate here on which is worse, but we can't ever compare the two or think that everyone's hyper and hypo are the same. We all have different bodies and different reactions to them.
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Old 02-03-2007, 02:56 PM   #97
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Quote:
Originally Posted by lyeag View Post
I didn't get to speak to anyone, but I did pick up the synthroid. The bottle says .1, the pills have a 100 on them and are yellow. I have been taking them for 3 days now. I don't feel much different, maybe not quite so tired, but still cold. I have been really good about making sure I take it at the same time and without food.

Thanks for your input.
I hope you are doing well, glad you are being followed so closely.

A couple of comments:

It takes 6-8 weeks for T4 to work it's wonders in your body and start stabilizing the thyroid/pituitary relationship.

Symptoms lag behind the numbers. Whatever you are feeling today, is likely indicative of where your number was a couple of weeks ago. For example, when I was hyper, I took the meds for two weeks, but got steadily worse, and then turned the corner and started getting better.
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Old 02-03-2007, 03:03 PM   #98
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Part of the debate on Armour, according to my endo, is the T3. Just because you have a higher TSH and lower T4, doesn't mean your T3 is out of whack also. The mechanism that converts T4 to T3 may not be an issue, so giving you something that is both T4 and T3 makes it harder for them to control the T3. And, the levels of T4 and T3 are inconsistent in the Armour product.

And it is true that Synthroid had dosage issues about 5 years ago, but that is resolved.

And some people have adverse reactions to the fillers in Synthroid, Levoxyl and Levothyroxine. My doc moved me from Synthroid to Levoxyl years ago, the first time I was hypo, because I just didn't do well on Sunthroid. levoxyl was fine. I'm now on the levothyroxine and am doing great (after having been hyper inbetween).

And one more thing - my personal opinion that many of the issues many folks have with hypo and regulation with T4 after taking the RAI treatment for hyperT are because of the RAI itself. I chose the antithyroid drug route, and plan to live with a naturally failing thyroid for the rest of my life. I will likely move from hypo to hyper more times before it burns itself out.
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Old 02-16-2007, 06:54 PM   #99
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I had my gallbladder removed in December and since then have been so tired. I'm a nearly 7 year post thyroidectomy and have been on the same dose of Levoxyl for about 5 years now, 112mcg.

I had an appointment with my regular doctor a couple of days ago and had the usual thyroid bloods done. Come to find out my fatigue isn't because of the gallbladder surgery, it's my thyroid having its first major hiccup in years. The doctor increased my dosage to 125 and I'm really hoping I start feeling better soon. Between the fatigue and just total lack of ambition, I hate this. Oh, and lets not forget about feeling cold all the time.
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Old 02-16-2007, 06:59 PM   #100
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Originally Posted by Virgo10 View Post
I had my gallbladder removed in December and since then have been so tired. I'm a nearly 7 year post thyroidectomy and have been on the same dose of Levoxyl for about 5 years now, 112mcg.

I had an appointment with my regular doctor a couple of days ago and had the usual thyroid bloods done. Come to find out my fatigue isn't because of the gallbladder surgery, it's my thyroid having its first major hiccup in years. The doctor increased my dosage to 125 and I'm really hoping I start feeling better soon. Between the fatigue and just total lack of ambition, I hate this. Oh, and lets not forget about feeling cold all the time.
Oh I hear you on the feeling cold. It seems to bother me more at night than at any other time. I even get the shakes at times! I hope they get you on the right track again soon!
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Old 02-17-2007, 07:50 AM   #101
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Quote:
Originally Posted by lyeag View Post
Oh I hear you on the feeling cold. It seems to bother me more at night than at any other time. I even get the shakes at times! I hope they get you on the right track again soon!

My thyroid levels are fine and I *still* get so cold in my house. I, too, can get the shakes. I find what really helps with that is a scalding, hot bath! FWIW, my friend (who has no thyroid issues) gets REALLY cold also and just can't get warm. Sometimes I think it just might be a "woman" thing too.
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Old 02-17-2007, 06:14 PM   #102
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Originally Posted by Christine View Post
My thyroid levels are fine and I *still* get so cold in my house. I, too, can get the shakes. I find what really helps with that is a scalding, hot bath! FWIW, my friend (who has no thyroid issues) gets REALLY cold also and just can't get warm. Sometimes I think it just might be a "woman" thing too.
Me too! Lately I feel like no matter what I do I cant get warm. Before my TT I never even wore a coat! Now...
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Old 02-19-2007, 10:50 PM   #103
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Hello fellow thyroid survivors! I am a thyroid cancer survivor of 10 1/2 years. I was diagnosed at 24 years old and had a complete thyroidectomy including removal of 2 parathyroid nodes and transplantation of the other 2. I also had tissue scraped out of my chest and lymph nodes removed. I am on levoxyl .112 right now. I have been having a lot of problems lately.

Starting in July, I have intermittently had these episodes of a feeling something bad was about to happen, then major heart palpitations and then almost passing out. This lasts from 30 seconds to 5 minutes. I finally went to the hospital in December a week before Christmas. They ran all the tests on my thyroid, other blood tests, and an EKG. Everything came back normal. They said my thyroid levels were on the high end of normal.

I called my endo and he took me off my meds completely for 4 days. Then lowered me from .125 to .100. After 4 weeks, I was retested and my levels were too low. So, 3.5 weeks ago he raised my meds to .112. I am going for blood work this week again.

I also went to see my cardiologist last month when I started getting the episodes again. He seemed puzzled by it all. He took an echo and EKG. Then, he set me up with a 24hr heart rate monitor for 30 days. It hasn't happened again since them (figures!). Just to be safe, I also have an appt with my neurologist after sorting things out with the cardio. Am I crazy? Is all this because of my meds? I figure it never hurts to be safe. Anyone have similar problems like this?

It's really freaking me out because I have a 2 year old that I stay at home with and no family close by. So, basically if something happens to me during the day no one will know until my dh gets home at 6:00 from work. I have been practicing dialing 911 with my dd, but I'm not sure she totally understands. We will keep at it until she does. I'm worried more about her if something happens to me. (sorry this is soooooo long!)
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Old 02-20-2007, 09:02 AM   #104
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Wow, sorry to hear that you are having such a rough time with this.

Do you know what your TSH levels were when you were having the problems. Many people, including myself, are very sensitive to the suppressive levels of thyroid hormone that thyroid cancer patients must endure. I have had my share of heart issues but predominantly I have a rapid pulse most of the time. I've done the cardiologist stuff too and everything is normal.

I think it is very telling that all of this stuff has stopped since you have adjusted your meds. So hopefully, this will be it. If not, you KNOW your heart is okay anyway (even if it flip-flops and races). You may, eventually, need to go on a beta-blocker medication (like Inderal) to keep your heart rate at a slower, steady rate. Many thyroid cancer patients on suppressive therapy end up using this stuff.
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Old 02-20-2007, 10:41 AM   #105
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Quote:
Originally Posted by VanessasMom View Post
Hello fellow thyroid survivors! I am a thyroid cancer survivor of 10 1/2 years. I was diagnosed at 24 years old and had a complete thyroidectomy including removal of 2 parathyroid nodes and transplantation of the other 2. I also had tissue scraped out of my chest and lymph nodes removed. I am on levoxyl .112 right now. I have been having a lot of problems lately.

Starting in July, I have intermittently had these episodes of a feeling something bad was about to happen, then major heart palpitations and then almost passing out. This lasts from 30 seconds to 5 minutes. I finally went to the hospital in December a week before Christmas. They ran all the tests on my thyroid, other blood tests, and an EKG. Everything came back normal. They said my thyroid levels were on the high end of normal.

I called my endo and he took me off my meds completely for 4 days. Then lowered me from .125 to .100. After 4 weeks, I was retested and my levels were too low. So, 3.5 weeks ago he raised my meds to .112. I am going for blood work this week again.

I also went to see my cardiologist last month when I started getting the episodes again. He seemed puzzled by it all. He took an echo and EKG. Then, he set me up with a 24hr heart rate monitor for 30 days. It hasn't happened again since them (figures!). Just to be safe, I also have an appt with my neurologist after sorting things out with the cardio. Am I crazy? Is all this because of my meds? I figure it never hurts to be safe. Anyone have similar problems like this?

It's really freaking me out because I have a 2 year old that I stay at home with and no family close by. So, basically if something happens to me during the day no one will know until my dh gets home at 6:00 from work. I have been practicing dialing 911 with my dd, but I'm not sure she totally understands. We will keep at it until she does. I'm worried more about her if something happens to me. (sorry this is soooooo long!)
Hello and welcome! Thyroid issues sure have their ups and downs! I hope you can get to the bottom of yours.

"I have intermittently had these episodes of a feeling something bad was about to happen, then major heart palpitations and then almost passing out."
This sounds like a classic panic/anxiety attack. When an imbalance occurs with our thyroid hormone levels every metabolic process in our body is affected. The upside of this for you is that your heart has been cleared as being the culprit.

Weight gain, pregnancy, estrogen therapy and starting a new medicine, (affecting absorption) as well as an illness can all be a reason for adjustment to your thyroid hormone replacement dose. Sometimes, there can be changes in dose requirements for no apparent reason.

I feel that the more anxious you are over this the more intensified things become. I would definitely discuss the possibility that you experienced an anxiety attack and question methods that can help you relax.

More than likely once you again attain your correct balance these symptoms will subside. Let us know how you make out and I'll be thinking about you!
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