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Old 08-23-2010, 03:05 PM   #976
Christine
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Originally Posted by Just_Trish View Post
Wow....thanks for the info! I just checked both mine and my mothers bottles (filled at 2 different pharmacies) and neither one is marked with that. Just says to take with a full glass of water.

After this fright I am definitely going to learn more about all this thyroid stuff so I can be better informed!

Those instructions will not be on the bottle. They will come on the little printout that the pharmacy should be giving you each time you pick up your perscription. You an also read it on line. It is often called a drug monologue.
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Old 08-24-2010, 05:21 PM   #977
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Per usual - Christine is correct. Start LID immediately, stop meds immediately, get TSH tested on Monday. Getting the Tg tested again too just in case the cytomel did anything to it, although the doc seems to think she's just humoring me. As soon as TSH is over 30, another treatment dose of RAI.
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Old 08-24-2010, 06:22 PM   #978
Christine
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Originally Posted by mrsklamc View Post
Per usual - Christine is correct. Start LID immediately, stop meds immediately, get TSH tested on Monday. Getting the Tg tested again too just in case the cytomel did anything to it, although the doc seems to think she's just humoring me. As soon as TSH is over 30, another treatment dose of RAI.
So glad to hear from you. I've been thinking about you all day and I keep checking this thread for you!!

So, I am taking from this that the ultrasound didn't show anything?

Glad to hear you have a plan. I'm betting your TSH rises pretty fast at this point because you have no long-acting meds in your system.

Hang in there. Did you doctor say that they will do a post-ablative scan. I would like to know if they can see this remnant once you have taken the ablative dose of RAI.
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Old 08-24-2010, 07:02 PM   #979
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I have been thinking about you and praying for you too Micayla.

I am glad that the ball is rolling so to speak. Wish that you wouldnt have to go through all of this again. My heart aches for you, but I know you are a fighter and you know you have been there and done that before.

Did your endo tell you what the rai dosage will be this time? Hang in there and fight tough. There is light at the end of the tunnel.
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Old 08-24-2010, 07:29 PM   #980
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Thank you...no, she didn't say what the dosage is or whether there would be a post ablative scan but I would assume so...Surely they'd want to do that. She did say there is nothing on the scan but there's SOMETHING causing the Tg and she wants to get rid of whatever it is.

The ultrasound lady mentioned yesterday that they are starting to trend towards doing an ultrasound automatically with the nuclear scan...I kinda wondered why they hadn't.

Dr. said she'd order the RAI as soon as the TSH hit 30. Part of me has to wonder if we'd be doing this if they hadn't done the initial 'tracer' dose since Christine mentioned the school of thought that says it stuns the thyroid. Maybe this dose will be more effective then?

I told my DH I know we *can* do this but my inner two year old says "I don't WANNA!'
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Old 08-24-2010, 08:42 PM   #981
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mrsklamc - I am so sorry that you are going through this. Sending you all my best thoughts, prayers, and . Please be strong and do what needs to get done.

As for my visit to the surgeon - it went well. The only thing he is not happy about is my voice. He did say it could take up to 6 months but he thought it would have improved by now. I know there is a procedure for it, but I'm just not sure I'm mentally up for another procedure at this point. It doesn't seem that important to me. I can be heard, I just cannot raise my voice / speak loudly.

I'm concerned about the comments regarding the thyroid medication. I am taking levothyroxine 150. The bottle says to take on an empty stomach and not to eat for 30 minutes. Which I have been doing. Someone wrote that Calcium can interfere? My surgeon has me taking 2,000 calcium every day because I have had numbness in my hands since the surgery. He said that the numbness comes from the parathyroid that they reimplanted and in order to improve it I have to take calcium. Is this a problem with the levothyroxine? I would think my surgeon or endo should have told me this and now I wonder if I should be concerned.
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Old 08-24-2010, 08:58 PM   #982
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dis chick - I dont know about the calcium question. My endo also has me taking 50,000 vit d once a week.

Also I only do the name brand synthroid because of what I read here on the boards about the filler. My ins. doesnt pay for it, but I figure its worth it to me to get it so there wont be any problems etc.

Did you see my post about that surgical procedure. There are many things they can do before they would resort to that. I had the many scopes and in January I had the strobe test. Ask your surgeon about this. They hook up something like a dog collar on your neck and make you say eee and aaa alot and the wires are connected to a computer that prints out a reading which is being looked at by a speech therapist while the surgeon/doctor has the scope down you. Strange but a very definitive test as to whats going on. My test showed no damage and good vocal cord function but still the voice problems persist. It helps to be hydrated and I found that sucking on hard candys, not necessarily the lemon drops, helps. Even a jolly rancher etc.
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Old 08-24-2010, 09:43 PM   #983
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Originally Posted by dischick4778 View Post
mrsklamc - I am so sorry that you are going through this. Sending you all my best thoughts, prayers, and . Please be strong and do what needs to get done.

As for my visit to the surgeon - it went well. The only thing he is not happy about is my voice. He did say it could take up to 6 months but he thought it would have improved by now. I know there is a procedure for it, but I'm just not sure I'm mentally up for another procedure at this point. It doesn't seem that important to me. I can be heard, I just cannot raise my voice / speak loudly.

I'm concerned about the comments regarding the thyroid medication. I am taking levothyroxine 150. The bottle says to take on an empty stomach and not to eat for 30 minutes. Which I have been doing. Someone wrote that Calcium can interfere? My surgeon has me taking 2,000 calcium every day because I have had numbness in my hands since the surgery. He said that the numbness comes from the parathyroid that they reimplanted and in order to improve it I have to take calcium. Is this a problem with the levothyroxine? I would think my surgeon or endo should have told me this and now I wonder if I should be concerned.
I would just call you doctor's office and ask about the calcium. It maybe that you should take it at a different time than the synthroid. I just make sure to take the thyroid med with only water first thing in the morning and I take my vitamins and any other meds in the evening.

HTH
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Old 08-25-2010, 05:36 AM   #984
Christine
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Just take the calcium two hours apart from the thyroid medication.

Also, since you must take this calcium, they will just continue to up your thyroid medication dosage so that you get enough even with the calcium *maybe* interfering. It might just be that you need a higher dose of thyroid medication while you take the calcium. Lots of thyroid patients have to do this so I am sure they are familiar with how to work around this issue.
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Old 08-25-2010, 09:44 AM   #985
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Wow! we have a Thyroid thread (sorry, im new to this and a bit dim)?!
That's brilliant, i can't often talk about it because not many people i know have Thyroid problems and they dont understand but it's nice i can talk and say that i have an Under-Active Thyroid without people asking "Whats that?" and me repeating myself like a book

anyway,

i have an under-active thyroid from when i had cancer when i was 9 due to all the chemo (i think thats what caused it, im not too sure, my mum knows everything, i just know i have an under-active thyroid and have to take tablets). Ive had an Under-Active Thyroid now for a couple of years, and have to take Levothyroxine(sp?) once daily for the rest of my life or until i need to stop taking them. I also noticed when i was first diagnose with an under-active thyroid, my hair fined, i had really thick hair and now its fine and horrible which the doctor said would happen which is a bit of a pain

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Old 08-25-2010, 11:18 AM   #986
Christine
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Quote:
Originally Posted by Dιsneч Tιnk ♥ View Post
Wow! we have a Thyroid thread (sorry, im new to this and a bit dim)?!
That's brilliant, i can't often talk about it because not many people i know have Thyroid problems and they dont understand but it's nice i can talk and say that i have an Under-Active Thyroid without people asking "Whats that?" and me repeating myself like a book

anyway,

i have an under-active thyroid from when i had cancer when i was 9 due to all the chemo (i think thats what caused it, im not too sure, my mum knows everything, i just know i have an under-active thyroid and have to take tablets). Ive had an Under-Active Thyroid now for a couple of years, and have to take Levothyroxine(sp?) once daily for the rest of my life or until i need to stop taking them. I also noticed when i was first diagnose with an under-active thyroid, my hair fined, i had really thick hair and now its fine and horrible which the doctor said would happen which is a bit of a pain
Welcome.

I never had my hair thin out at all when my thyroid was shut down (surgery). I did go through a spell of losing a lot of it when it got REALLY underactive (hypo). But it all came back when my levels of thyroid hormone got where they needed to be. I know that if your meds aren't adjusted right (too much or too little) it can affect your hair but it shouldn't be permanent.

Now, chemotherapy for cancer, on the other hand is FAMOUS for changing people's hair. Many people lose their hair when they have chemo treatments and say that when the hair grows back it is very different.
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Old 08-25-2010, 11:59 AM   #987
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Quote:
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Welcome.

I never had my hair thin out at all when my thyroid was shut down (surgery). I did go through a spell of losing a lot of it when it got REALLY underactive (hypo). But it all came back when my levels of thyroid hormone got where they needed to be. I know that if your meds aren't adjusted right (too much or too little) it can affect your hair but it shouldn't be permanent.

Now, chemotherapy for cancer, on the other hand is FAMOUS for changing people's hair. Many people lose their hair when they have chemo treatments and say that when the hair grows back it is very different.
Thankyou for the welcome

my medication hasnt been adjusted or anything since i've been on the tablets, my mums trying to push our local hospital (they dont specialise in the chemo and that, they're just the basic for accidents and ill children and that so we had to travel) because my levels are just under, but they seem to think its okay and doesnt need changing.

My hair changed ALOT when it grew back from chemotherapy, i was originally a strawberry blonde and it was really thick before i lost it, then it grew back black and thick, then when i lost it again it came back mousey brown and a little less thicker.
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Old 08-25-2010, 08:17 PM   #988
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Spoke with my surgeon and as many of you said he suggested taking the calcium later in the day.

luvmarypoppins - thank you for the info on the voice procedure. My surgeon hasn't really gone into detail about it, he just keeps saying they can fix it. So I didn't know what they would do. What you are describing doesn't sound so bad. But it is still early. Hopefully it will heal on its own. Thank you for the info though, I feel a lot better.
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Old 08-26-2010, 09:11 AM   #989
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Question

Has anyone ever been told that they are at an increased risk for developing breast cancer since they have a thyroid disorder?

My Gyn had me do a pre-screen mammogram (I'm 35 with Hashimoto's) a month ago. Thankfully everything came back okay, but my insurance company won't pay for it because they deem it unnecessary since I am not 40 or older. I've read studies that show that women with autoimmune thyroid diseases such as Grave's or Hashimoto's is at an increased risk of developing breast cancer, and the fact that I've had a few of the Radioactive Iodine Uptake Tests also increases that risk.

If I can prove this to be true, and prove that it is medically necessary then my insurance company will pay for the mammogram.

I see my endocrinologist on Monday, so I will ask her and I also have a phone call into my Gyn to speak with him. He will call me back during his office hours after he is finished with his scheduled patients.
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Old 08-28-2010, 07:28 PM   #990
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Grafxgirl- my endo said I'm at a slightly higher risk of developing other kinds of cancer but they don't know if it's due to the same factors that caused the thyroid cancer, or the RAI treatment. Probably not very helpful to you, I'm sorry.

Does anyone know if my second dose of RAI will be larger since the tissue is presumably resistant?
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