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Old 08-13-2010, 10:57 AM   #916
luvmarypoppins
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Micayla - I am so happy for you too. That is great news. I hope the endo lets you go off the diet. I am surprised they told you the results too. Here after the scan I just went to the rad. onc. (in the same hosp) and she told me the results. Did you have a blood test too today? I suppose my stuff was different with the thyrogen,

dischick - I guess the columnar cell and tall cell are similar with the agressiveness. I was told that there was a possibility that I would wake up with a trach tube depending on what he found. I didnt want to say before but I almost died during my surgery. Well surgeon #1 operated for 6 hours. Talked to my dh and the 3 ds and then was paged and operated on me another 2 hrs for post op bleeding. He never found the source he said later on. Then at 4 am my neck turned into a watermelon dh said. He was pushing my bed into the elevator and surgeon #2 operated on me for 3 hours. They just hired him from Westchester and he couldnt even find the operating rooms. He said my jugular vein burst and I needed 7 pints of blood and was put in an induced coma for 2 days. They told me that the voice you have at 18 months will basically be it. My r vocal cord was bruised during the surgery. I have had alot of scopes and did the strobe test in january. They cant find anything wrong but my voice gets weak and gives out sometimes but I did with it. Its usually after 8 pm if I am talking alot during the day. Sugeon #2 is a voice specialist so that is good for me. They can scope you again and compare the vocal cord stuff from before to see if there is improvement, no change etc. Wishing you all the best with the voice too.
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Old 08-13-2010, 12:46 PM   #917
ElizK
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I can't thank you enough for the information ya'll have been able to give me. I'd like to pick your brains again, if you don't mind.

Last time I posted I mentioned the random sore throats. Still doing that, but since last week it feels like I have a big lump in my throat. My thyroid is definitely enlarged. Sometimes it is more uncomfortable than other times. I'm having my follow-up blood work done today, so I'll find out if my dose adjustment was enough..

I don't even know what I'm asking... maybe I just need a pat on the head? I can't find anything about any of this that would send me running for the doctor's office. I can't feel any new nodules, overall I feel about the same. Any words of wisdom for me?
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Old 08-13-2010, 01:44 PM   #918
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Eliza- I would definitely call your dr.

My end's assistant called back and said I could stop the diet because the scan was normal but wait on the mess as not all my bloodwork was back? Not sure how that could be since there were only 4 things on the bloodwork order and they had those all before the scan. Weird.
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Old 08-13-2010, 03:51 PM   #919
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Quote:
Originally Posted by ElizK View Post
I can't thank you enough for the information ya'll have been able to give me. I'd like to pick your brains again, if you don't mind.

Last time I posted I mentioned the random sore throats. Still doing that, but since last week it feels like I have a big lump in my throat. My thyroid is definitely enlarged. Sometimes it is more uncomfortable than other times. I'm having my follow-up blood work done today, so I'll find out if my dose adjustment was enough..

I don't even know what I'm asking... maybe I just need a pat on the head? I can't find anything about any of this that would send me running for the doctor's office. I can't feel any new nodules, overall I feel about the same. Any words of wisdom for me?
ElizK--

Have you had a thyroid scan yet to measure your thyroid and to see if you have nodules? Or an ultrasound?
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Old 08-13-2010, 03:52 PM   #920
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Micayla,

Congrats on the clean scan.

Hmmmm...if you've had your thyroglobulin test back already, I can't imagine what they are waiting for.

My old endo always gave the nuclear doctor 'permission' to give me the results. That was nice. I could always go back on meds, eat what I wanted once I heard from them.

I just wonder what the hold up is for you.
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Old 08-13-2010, 04:31 PM   #921
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Micayla,

Congrats on the clean scan.

Hmmmm...if you've had your thyroglobulin test back already, I can't imagine what they are waiting for.

My old endo always gave the nuclear doctor 'permission' to give me the results. That was nice. I could always go back on meds, eat what I wanted once I heard from them.

I just wonder what the hold up is for you.
Yeah I find that so bizarre. I wonder if she didn't have the results right on the top of the chart and forgot she had them already? So weird.
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Old 08-13-2010, 10:05 PM   #922
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Quote:
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ElizK--

Have you had a thyroid scan yet to measure your thyroid and to see if you have nodules? Or an ultrasound?
I have an ultrasound each year to watch a tiny nodule. This last scan (I think it was in Dec) showed that it was actually smaller than the year before. Doctor told me when it was first discovered that it was too small to biopsy, and we'd watch it.

I had follow-up lab work done today, so the dr's office will be calling me probably on Tues. I'll talk to the nurse about the problems I'm having then.

I have a high-deductible insurance for the first time this year... sure makes me think twice about making a dr's appt when the cost is coming out of my pocket.
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Old 08-14-2010, 05:57 AM   #923
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Quote:
Originally Posted by ElizK View Post
I have an ultrasound each year to watch a tiny nodule. This last scan (I think it was in Dec) showed that it was actually smaller than the year before. Doctor told me when it was first discovered that it was too small to biopsy, and we'd watch it.

I had follow-up lab work done today, so the dr's office will be calling me probably on Tues. I'll talk to the nurse about the problems I'm having then.

I have a high-deductible insurance for the first time this year... sure makes me think twice about making a dr's appt when the cost is coming out of my pocket.
Oh, good, then someone is watching it. If you are having those sensations of fullness you should probably let them know and they can zip you in for an ultrasound. Either the nodule has decided to grow or, I suppose, it could be something like thyroiditis which could mean the thyroid is inflamed. That might happen in a case of hashimotos or something. Otherwise, it could be totally unrelated. When my GERD was undiagnosed and untreated, I felt like I had a horrible lump in my throat. It really scared me because I had recently been treated for thyroid cancer and I was convinced I was having a recurrence. I went to an ENT who scoped me from my nose down into my vocal chords and didn't see a thing. It was a terrible feeling. Then they kept telling me it was sinus drainage (which was part of it) and/or anxiety. Now if I miss my Prilosec for any length of time, that sensation comes back. Oh, and I got it REALLY bad 2 months ago when I went off my thyroid meds for 6 days. Not sure what happened there, but I actually felt like my throat was closing up. That probably *was* anxiety because I was certainly feeling anxious.
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Old 08-14-2010, 11:39 AM   #924
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Quote:
Originally Posted by Christine View Post
Micayla,

Congrats on the clean scan.

Hmmmm...if you've had your thyroglobulin test back already, I can't imagine what they are waiting for.

My old endo always gave the nuclear doctor 'permission' to give me the results. That was nice. I could always go back on meds, eat what I wanted once I heard from them.

I just wonder what the hold up is for you.
I think I have a clue now. My GP dr. sends me a copy of my labs and I just received them in the mail- no thyroglobulin number on them anywhere. So that must be what they are waiting for. The only thing that doesn't make sense is that when I went in for the tracer dose, the paperwork they showed me clearly had a <1 for thyroglobulin. I wonder if that was just a mistake or a filler since they didn't really need that info for the scan.

Something I found online last night is that many labs aren't equipped to do thyrogobulin in house because it's not a standard test so it has to be 'sent out,' so that must be the holdup.
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Old 08-14-2010, 01:30 PM   #925
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Quote:
Originally Posted by mrsklamc View Post
I think I have a clue now. My GP dr. sends me a copy of my labs and I just received them in the mail- no thyroglobulin number on them anywhere. So that must be what they are waiting for. The only thing that doesn't make sense is that when I went in for the tracer dose, the paperwork they showed me clearly had a <1 for thyroglobulin. I wonder if that was just a mistake or a filler since they didn't really need that info for the scan.

Something I found online last night is that many labs aren't equipped to do thyrogobulin in house because it's not a standard test so it has to be 'sent out,' so that must be the holdup.
Yes, there are only a few labs that do thyroglobulin so when your bloodwork goes out, the thyroglobulin tubes go somewhere else. I had all my bloodwork done in Virginia but the thyroglobulin was always sent out to the Mayo clinic. On my last set of labs back in July, I was very confused because my thyroglobulin came back in 2 days. So, I'm thinking that my lab is now doing it in house.

So, who ordered your Tg test? Your GP or the hospital. When my hospital did it (when I was having scans) the TSH and Tg were reported electronically so when the tech pulled up my record at the scan, the results were there even though the paperwork had not reached my doctor. And doctors don't have the computer access to the hospital's in house blood records. So I'm wondering if you had your tests done at the hospital? Maybe that is why they had your TG results?
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Old 08-14-2010, 03:36 PM   #926
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ElizK - hope the labs might shed some light on your problem. Wishing you all the best.

Micayla - so happy that you are off the diet, now go eats lots of dairy!! hmm, cheese please? Ice cream

Looks like the cipro might be working for me. I guess the real test will be after its done and I have to wait for the surgeon to get back from vacation, if things start to head south again, then I know I will almost certainly be having the surgery.
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Old 08-15-2010, 10:35 AM   #927
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Yes, there are only a few labs that do thyroglobulin so when your bloodwork goes out, the thyroglobulin tubes go somewhere else. I had all my bloodwork done in Virginia but the thyroglobulin was always sent out to the Mayo clinic. On my last set of labs back in July, I was very confused because my thyroglobulin came back in 2 days. So, I'm thinking that my lab is now doing it in house.

So, who ordered your Tg test? Your GP or the hospital. When my hospital did it (when I was having scans) the TSH and Tg were reported electronically so when the tech pulled up my record at the scan, the results were there even though the paperwork had not reached my doctor. And doctors don't have the computer access to the hospital's in house blood records. So I'm wondering if you had your tests done at the hospital? Maybe that is why they had your TG results?
Well...my endo's office is attached to a hospital system and that's where I would prefer to have my labs done...except if I DO that, the silly insurance bills me for being ADMITTED to the hospital. ($150 instead of free.) So I do it at my GP's lab, which makes it difficult because then the GP's nurse has to remember to send them to the endo... and the nuclear med place is yet another facility, so maybe the GP's office sent them directly to the nuclear med place...I dunno. I am going to call my GP's nurse in the morning, hopefully the thyroglobulin came in separately and she just didn't get it called in right away.
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Old 08-15-2010, 12:41 PM   #928
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Micayla - hope you get the results soon. I know the ins. sometimes gets crazy. I have learned how the "system" of mine works depending on the situation etc.

Just wondering if you lost any weight on the lid this time? I am sure by now I have gained all the 10 lbs. back that I lost.
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Old 08-15-2010, 01:19 PM   #929
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No, I didn't lose any, at all. I think it's because my LID diet is fairly carb-heavy, and I also have PCOS, which is related to insulin resistance, which means I (hopefully) will do better on a protein heavy diet. I was hoping to start South Beach tomorrow but I think starting a diet when I'm not taking any meds is setting myself up to fail, so hopefully I can get this straightened out first thing tomorrow.
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Old 08-16-2010, 07:03 PM   #930
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So I called my regular doctor's office first thing this morning, only to wait until 2:30 for the lab to finally call and fess up that they accidentally ordered for thyrogobulin antibodies rather than thyrogobulin. I went right away to have blood drawn again and then called my endo's office to see if I could go back on my synthroid. They are going to call back and let me know.

I just have no idea what happens if the thyrogobulin doesn't come back the way they want it to; if it's high that means I have cancer still but they don't know where right? So what then?
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