Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 05-24-2010, 10:12 AM   #721
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 24,030

Quote:
Originally Posted by luvmarypoppins View Post
We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.
Fantastic!!

Yes, I'm pretty much back to normal. It was a rough week though. It took days before the anxiety feelings went away.

WDWBarb--I'm glad your daughter has a diagnosis. I know a few people who have had Hashimoto's since they were young and it seems quite manageable. She will just need lifelong monitoring and her thyroid status can change with hormonal issues (birth control pills, pregnancy, menopause). It is an autoimmune disorder so you know now that she may have a tendancy for those types of things.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 05-24-2010, 10:17 AM   #722
jennz
DIS Veteran
 
jennz's Avatar
 
Join Date: Mar 2002
Location: Noblesville, IN
Posts: 3,187

Quote:
Originally Posted by luvmarypoppins View Post
Well when we were in disney I called the rad. onc. nurse. The night before of course I was an emotional wreck, did alot of crying and praying for sure. Also the day I called was my b day and anniversary too. We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.
That's great news!! I think the test is very stressful emotionally. I go to the endo tomorrow and am hoping she doesn't want me to have one!

Glad you had that gift card and looking forward to reading your dining reviews! You were in a great place to celebrate..."what are you celebrating today?" "cancer free!!!!"
__________________
Jennifer
jennz is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 05-24-2010, 10:45 AM   #723
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,524

Christine- Sorry I didn't see your response about my tests before. I wanted to say thank you...We all appreciate your expertise so much.

WDW Barb- Welcome. I'm sorry you're going through this, but fortunately, of the medical conditions you can have, thyroid stuff is comparatively manageable.

luvmarypoppins, I am glad you had a wonderful trip!

Jennz- I go see her on the 9th. Hoping they will schedule my scan for August.
mrsklamc is offline   Reply With Quote
Old 05-27-2010, 11:47 AM   #724
es45
DIS Veteran
 
es45's Avatar
 
Join Date: Jul 2008
Location: Morrisville, NC
Posts: 1,405

Quote:
Originally Posted by mrsklamc View Post
Christine- Sorry I didn't see your response about my tests before. I wanted to say thank you...We all appreciate your expertise so much.
I agree; your knowledge is invaluable.
__________________
Elizabeth
es45 is offline   Reply With Quote
Old 05-27-2010, 11:50 AM   #725
es45
DIS Veteran
 
es45's Avatar
 
Join Date: Jul 2008
Location: Morrisville, NC
Posts: 1,405

Quote:
Originally Posted by luvmarypoppins View Post
es45 - did you get the final scan and blood test results?

Well when we were in disney I called the rad. onc. nurse. The night before of course I was an emotional wreck, did alot of crying and praying for sure. Also the day I called was my b day and anniversary too. We got the news that my blood test was...NEGATIVE!!! Praise God!!! So my next regular blood test is in a couple of weeks. Oh and let me just say that dh and I pigged, yup, absolutely pigged out at disney world. Burned up our whole $750 gift card on food. Hmm, amazing what an LID can do to you I will be writing a little dining review on the boards soon.
Congrats on the good news! Glad that you were in "the happiest place on Earth" for the happiest news on Earth! I too, received a clean report.
__________________
Elizabeth

Last edited by es45; 05-27-2010 at 02:25 PM.
es45 is offline   Reply With Quote
Old 05-27-2010, 01:03 PM   #726
casndan
Mouseketeer
 
casndan's Avatar
 
Join Date: Jan 2005
Location: Trenton, SC
Posts: 357

Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!
__________________
Cassie DH DS (2)
casndan is offline   Reply With Quote
Old 05-27-2010, 01:38 PM   #727
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 10,152

Quote:
Originally Posted by es45 View Post
I agree; your knowledge is invaluable.


Yes thanks christine. You are a treasure!! I am sure I drive you crazy with all my questions!!
luvmarypoppins is offline   Reply With Quote
Old 05-27-2010, 01:39 PM   #728
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 10,152

Quote:
Originally Posted by es45 View Post
Congrats on the good news! Glad that you were in "the happiest place on Earth" for the happiest news on Earth! I too, got a clean report.
I am so glad you got a good report too!!
luvmarypoppins is offline   Reply With Quote
Old 05-27-2010, 01:45 PM   #729
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 10,152

Quote:
Originally Posted by casndan View Post
Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!
Hi Cassie! Glad you made it over here. Your little guy is precious. My cancer is papilary too but with a rare variant. I take 200 mg of synthroid too. I do tend to be a little hyper and emotional but my dh and 3 ds have had to live with it for the last year so they know what to expect now. If you have any questions, ask away, Christine is the best and I guess we can all chime in too!! We have some old friends in Wilmington. I think they live on Shakespeare Drive or Nautilus? I cant remember. Wishing you all the best. Hang in there.
luvmarypoppins is offline   Reply With Quote
Old 05-27-2010, 02:23 PM   #730
es45
DIS Veteran
 
es45's Avatar
 
Join Date: Jul 2008
Location: Morrisville, NC
Posts: 1,405

Quote:
Originally Posted by casndan View Post
Hi! I was hoping to join in here so I thought I'd introduce myself quickly. My name is Cassie and I'm 28, my DH is in the Army currently serving in Iraq and we have a (almost) 10 month old son. I had a total thyroidectomy on Friday and I was diagnosed with papillary cancer on Tuesday, I'm currently on 200mcg of Synthroid and 1000mg of calcium per day, I follow up with the endo in 6 weeks to talk about RAI. I had been on synthroid for years due to being hypo and when they did the TT the path report showed that the tissue was very damaged due to hashimoto's so I suppose either way my thyroid needed to come out! I have tons of questions but I'll come back for those for now I just wanted to say hi! While I'm not really happy to be here I'm glad that this group exists!
Hi, Cassie,

Welcome! I had a near-total thyroidectomy, due to Papillary cancer, about 20 years ago and RAI about 10 years ago. I'm sorry to read that you are going through this with DH in Iraq and such a young child at home. I hope that we can provide some support as you navigate through all of this.

BTW, I live just outside of Raleigh. We'll be driving through your area on the way to Holden Beach this weekend.
__________________
Elizabeth
es45 is offline   Reply With Quote
Old 05-28-2010, 12:46 PM   #731
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,524

Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!
mrsklamc is offline   Reply With Quote
Old 05-28-2010, 01:13 PM   #732
es45
DIS Veteran
 
es45's Avatar
 
Join Date: Jul 2008
Location: Morrisville, NC
Posts: 1,405

Quote:
Originally Posted by mrsklamc View Post
Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!
Oh my, have you called the doctor yet? I believe you have an infected salivary gland and you need a round of antibiotics for this. I'm sure someone else can chime in who has more knowledge about this RAI side effect.
__________________
Elizabeth
es45 is offline   Reply With Quote
Old 05-28-2010, 01:33 PM   #733
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,524

Quote:
Originally Posted by es45 View Post
Oh my, have you called the doctor yet? I believe you have an infected salivary gland and you need a round of antibiotics for this. I'm sure someone else can chime in who has more knowledge about this RAI side effect.
Actually there just happened to be a dr. here when it happened! He didn't think it was an infection though, just a blockage, and said to suck on lemon drops. I thought I would be past any surprise radiation side effects by now!
mrsklamc is offline   Reply With Quote
Old 05-28-2010, 02:15 PM   #734
es45
DIS Veteran
 
es45's Avatar
 
Join Date: Jul 2008
Location: Morrisville, NC
Posts: 1,405

Quote:
Originally Posted by mrsklamc View Post
Actually there just happened to be a dr. here when it happened! He didn't think it was an infection though, just a blockage, and said to suck on lemon drops. I thought I would be past any surprise radiation side effects by now!
Yeah, it does seem rather late for side effects. Massaging the area and using hot or cold compresses should alleviate any discomfort as well as using the lemon drops. I hope it doesn't last long.
__________________
Elizabeth
es45 is offline   Reply With Quote
Old 05-28-2010, 02:43 PM   #735
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 10,152

Quote:
Originally Posted by mrsklamc View Post
Holy Cow! 5 months post RAI and my left cheek just swelled up like a chipmunk!
Ouch Micala, this has happened several times to me already. The np at the surgeon told me it means the salivary gland is not draining properly. It can happen at any time etc. I think she said to drink alot of water, take tylenol if you need it, apply compresses to it (I think warm?), mine told me if it doesnt go away in 3 days to call them and they will give me an antibiotic, of course if its really bad call your surgeon etc. Hope you feel better soon.
luvmarypoppins is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 01:52 PM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: