Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 03-19-2009, 10:36 AM   #361
Tinker'n'Fun
"apple", peaches, "pumpkin pie", who's not ready holler "I"...
i'm just trying to be optimistic!
I am SO CLUELESS and I hate it!!
 
Tinker'n'Fun's Avatar
 
Join Date: Mar 2005
Location: Ask, I may tell!
Posts: 8,222

Quote:
Originally Posted by Christine View Post
I know it's not proven yet but they are finding that chronic low Vitamin D is the cause for chronic pain and even suspect that it might be *the* factor in fibromyalgia in some patients.

Have you seriously looked into getting those levels up?

I also wanted to add, have you visited the Thyroid Issues board on www.healthboards.com? They have some very knowledgeable folks over there who have pretty much seen it all. You might want to go over there and read and post your story/lab values, etc. if you haven't already. I don't hang out there much at all because there are very few thyroid cancer postings, but they definitely have some interesting things going on.

Thanks for the site, I will check it out. The Dr' put me on a 4 week high dose Vitamin D. I only take one pill per week. Then at the end of the month they will recheck my levels. I will be put back on the high dose and or a daily dose. IF it does not work, they will start testing, from top to bottom.
Tinker'n'Fun is offline   Reply With Quote
Old 04-26-2009, 10:21 PM   #362
teacups
DIS Veteran
 
teacups's Avatar
 
Join Date: Dec 2006
Location: I love Portland, Oregon!
Posts: 4,083

swine flu and Armour Thyroid meds

Does anyone know if Armour Thyroid is still safe to take considering this swine flu situation? I cant find any info online. Has anyone heard anything about this? Thanks for any information.
__________________
teacups is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 05-21-2009, 12:35 AM   #363
SeansMom
DIS Veteran
 
SeansMom's Avatar
 
Join Date: Feb 2005
Posts: 594

Quote:
Originally Posted by teacups View Post
Does anyone know if Armour Thyroid is still safe to take considering this swine flu situation? I cant find any info online. Has anyone heard anything about this? Thanks for any information.

Yes, it's safe. As is pork and, thank god, bacon.

My question:

My N.D. just moved me from Synthroid to Armour like Westhroid. I'm having a NOT good time with it. I think it made me hyper (fast pulse, breathlessness, and sleep issues) but when I decreased it I feel tired again and other low thyroid symptoms. Anybody else have a hard time adjusting to Armour? And is it really worth it???
SeansMom is offline   Reply With Quote
Old 05-21-2009, 08:33 AM   #364
angelat
Mouseketeer
 
angelat's Avatar
 
Join Date: Aug 2008
Location: East Stroudsburg, PA
Posts: 486

Update

So, just an update. I got a second opinion from a reputable ophthalmologist and found out I DON:T have dry eyes. My eyes were simply inflamed. I say simply, but it wasnít at all simple. Six weeks I went before I could wear my contacts again! This past weekend I had a flare up of swelling again. I was still able to wear my contacts, but above and below my eyes were quite swollen. It looked like I was in a fight. I had a follow up with my Endo on Tuesday. She did the tests for Chvostek's and Trousseau's Signs which were both positive. She feels that I have Calcium deficiency as well as Vitamin D deficiency. She is assuming that the eye problem is simply a result of my thyroid. My TSH crept back up to 3.93 so she upped my dosage. Itís not ďhighĒ but I feel like crap. Iíve been taking 50,000 IUs of Vitamin D every two weeks for 6 weeks now. She asked me to start Calcium in addition to my multivitamin and Iíll have blood work to check everything in July.
I spoke with my pharmacist and she said that Vitamin D deficiency isnít something they see/hear much of when dispensing medications. Usually Vitamin D is prescribed when bone loss is found in post-menopausal women. So, I wonder what the instance of Vit D deficiency is in younger women??? I just want to know why Iím having all of these issues. I know it comes with getting older, but Iím only 33. Is this really normal???
angelat is offline   Reply With Quote
Old 05-21-2009, 08:36 AM   #365
jennz
DIS Veteran
 
jennz's Avatar
 
Join Date: Mar 2002
Location: Noblesville, IN
Posts: 3,182

angelat - omg about your eyes! I am having the same problem...it's horrible! I'm working right now but had to post quickly, I'm going to go back and read your posts and answer later today...
__________________
Jennifer
jennz is offline   Reply With Quote
Old 05-21-2009, 09:27 AM   #366
jennz
DIS Veteran
 
jennz's Avatar
 
Join Date: Mar 2002
Location: Noblesville, IN
Posts: 3,182

Quote:
Originally Posted by angelat View Post
She did the tests for Chvostek's and Trousseau's Signs which were both positive. She feels that I have Calcium deficiency as well as Vitamin D deficiency.
I am also hypocalcemic, due to my parathyroids being damaged and not recovering during my thyroid surgeries. My body doesn't make calcium any more so I have to take a lot of supplements. I also have to take a prescription of a synthetic vitamin D to absorb the calcium. If you do have a D deficiency maybe you're not absorbing the calcium you need...just a thought...
__________________
Jennifer
jennz is offline   Reply With Quote
Old 06-04-2009, 10:33 AM   #367
jennz
DIS Veteran
 
jennz's Avatar
 
Join Date: Mar 2002
Location: Noblesville, IN
Posts: 3,182

update: my levels came back today and my vitamin D is very low...they called in a prescription, the 1 pill/week for 8 weeks. Also my "sed" levels are high...off to google that one!
__________________
Jennifer
jennz is offline   Reply With Quote
Old 06-04-2009, 05:30 PM   #368
frdeb1999
DIS Veteran
 
frdeb1999's Avatar
 
Join Date: May 2007
Location: Maryland
Posts: 3,193

My DH had his thyroid removed 18 months ago. He started having jaw tremor problems shortly after....and they are slowly happening more. It does'nt hurt him...just embarassing for him as he never knows when it will happen. Had a MRI and it showed absolutely nothing. His surgeon said he has never had any nerve issue's like this in patients....although I don't know if I believe this. He is doing very well otherwise. Just wondering if anyone else has had issue's like this?
frdeb1999 is offline   Reply With Quote
Old 06-04-2009, 06:36 PM   #369
lizbaby007
Mouseketeer
 
lizbaby007's Avatar
 
Join Date: Feb 2009
Location: Georgia
Posts: 318

My story-

For years after a severe upper respriratory infection when I was 23 (that nearly killed me!) I suffered from an increased pulse rate - 130 at rest - heart palpitations and shortness of breath. Of course the first thing checked was my thyroid. Blood work came back borderline hypo to normal. Upscan was normal. Was told I needed to work out....m'kay.

4 years later, still suffering the palpitations (although heart rate now only 112 at rest, yeah!) I developed a new symptom. A huge goiter. I didnt have insurance at first but after a couple of months with the thing getting larger and larger I went to the local charity(?) hospital. $2500 later and 18hrs of sitting in a hard plastic chair. I was told my bloodwork showed I was borderline hypo (duh I told you that dr, remember?) and that I just had a severe case of tonsilitis. Given antibiotics and told to come back in a week if it didn't clear up. Well it didn't and I went back and was told it was now a muscle tear. Ummmm, okay. Strange that my neck muscles would spontaneously tear but whatever your the doc.

6months later I had learnt to deal with this new symptom and had just gone on with life. I then got insurance and decided to see a new Dr. He immediately told me that it was my Thyroid. That I was most certainly HYPER-thyroid and that they would kill it with radiation and the likes and I would be good as new and feeling better than ever. He started me on a low dose of levothyroxine to alleviate the goiter. 1 week later I got a call from his office saying I WAS NOT hyper but hypo...I must have flip flopped. I told them that I had always been borderline hypo (since the very beginning) and doubted I was ever hyper. In any case my thyroid pill was upped and I was told in 6months to a year I would be good as new.

It has been a year and a half and I feel worse now then I ever did. About a month and a half ago my endo upped me to 88mcg as he was concerned that my goiter was coming back even though my thyroid levels tested normal. I told him that every time he upped it, I felt like I was comatose. He told me to take the pill at night instead of morning. Since that time I have slept 10-12 hrs a night and apon waking find myself falling asleep throughout the day. I have no energy. I get numbness and tingling feeling in my arms and legs. I have a throbbing pain in my neck where my thyroid is located. The worst part is over the past year, I have developed a sever abdominal pain. It starts about 2hrs after taking my medicine and gets worse throughout the day to the point I have diffuculty breathing. And forget eating. How can you with a brick like feeling just under your ribs with stabbing pain?? Prilosec and then aciphex use to work for the pain, but no longer. This last time it was so intense I honestly thought I was going to die.

So I went to a new Dr who ran a host of tests...all normal. Says thyroid is normal. I explained it always has showed normal. Even before starting medicine. In any case, I stopped taking my Thyroid pill altogether. Yes thats right I went from 88mcg to nothing. On the second day it was like an awakening. I felt better than I felt in 6 years!! I was mentally alert, went to bed normally and awoke refreshed 7hrs later. Worked in the yard, ate normally with no stomach pain. By the third day though, I was having heart palpitations and swelling in my neck again. So I took a 1/2 of my 88mcg pill. Stomach started hurting a little but nowhere near the pain it has been. I called the Dr and told him and he said for now he would like me to take a 25mcg dosage. See how the stomach pain goes and see if my thyroid levels stay normal (although I am really not trusting that at all!)

So I am on another 3month wait/journey to see if this will finally be the answer for me. At times I have wondered if it was ever really my thyroid and not something else that was causing the fast heartrate and shortness of breath (since that was signs of hyper not hypo like I always tested for). In any case I certainly feel everyones pain and can only hope that answers come to us all
lizbaby007 is offline   Reply With Quote
Old 06-21-2009, 11:32 PM   #370
Eeyores Butterfly

BL6 Blue Team Co-captain
I hope we never lose sight of one thing, it was all started by a mouse
I went "wow, that hurt"
 
Eeyores Butterfly's Avatar
 
Join Date: May 2008
Location: Blue Springs, MO
Posts: 5,486

Hi! I've not posted here before, but I was hoping you all could answer some questions for me:

My mom has had thyroid issues for a very long time. She had surgery to remove a goiter in 1986. Since then she has been on thyroid meds, but if it's enough of a dose to stop it from growing she is absolutely miserable. If they put it where she feels better, it doesn't stop it from growing. Her doc has discovered more goiters and tests for atypical cells are inconclusive so she has to have it removed on July 8.

Has anybody ever had a test come up inconclusive? What was the result?

The other question I have is about family risk? It seems like every time I sneeze I get tested for thyroid function "because of family history". So far they have always been normal. Does anybody know what the risk is if you have an immediate family member with thyroid problems?
__________________
Jessi 3x CP Rides & Entertainment Aaron (DH) Eragon & Matthias Eowyn & Jasper Disneymoon through a CM's eyes: A TR
Eeyores Butterfly is offline   Reply With Quote
Old 06-22-2009, 07:51 AM   #371
KAMLEM
DIS Veteran
Likes her little penguin.
Tried to pay for lunch with WHAT?
Always remember - sticky side DOWN!
 
KAMLEM's Avatar
 
Join Date: Apr 2001
Location: Massachusetts
Posts: 2,602

I had a nodule on my thryroid so they did 2 needle biopsies that were both inconclusive. I had surgery to remove the nodule, so at that point they took out half of my thyroid and while I was under anesthesia they had it tested and it came out benign. A week later they told me that after doing some further tests it was cancerous so I had to go back in to have the other half taken out.

My great grandmother and my mother both had thyroid disease so it definitely runs in my family. My endocrinologist said it's very hereditary, especially with women, so you should stay on top it it if you believe you may have any issues.

Good luck with your Mom. My surgeries were both very easy. The surgery was at 7:30 a.m. and I was back home by noon both times. I had almost no pain at all.
KAMLEM is offline   Reply With Quote
Old 06-22-2009, 03:07 PM   #372
DisMomme
Waiting to go to my WDW home again...
 
DisMomme's Avatar
 
Join Date: May 2009
Location: New England
Posts: 900

Hi All,
back in December I had 1/2 my thyroid removed due to a benign nodule (the fine needle biopsy had come back inconclusive). I had blood work done 6 weeks later and it came back normal. Last month I went in to the ENT for a follow-up. Everything looked good. Come back in 1 year for another ultrasound. (I have another nodule on the left side - too small to biopsy)

I happened to mention how tired I have been lately and that I have gained 10 pounds in about a month. He ordered another blood lab. I called the office back Friday and they had called in a prescription for a small amount of synthriod (.5 mcg). The nurse said the doctor wanted me to start taking it before the weekend and I will go for another lab in 6 more weeks.

She said my TSH levels were low but that everything else looked fine. I have no idea what that means. I have requested lab results to be sent to me as well as the Dr but never got them. I don't know what the levels are so I cannot even google it to see what is protocol.
__________________
DH Me DS18 DS17 Piper
DisMomme is offline   Reply With Quote
Old 07-02-2009, 11:57 AM   #373
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,461

Quote:
Originally Posted by DisMomme View Post
Hi All,
back in December I had 1/2 my thyroid removed due to a benign nodule (the fine needle biopsy had come back inconclusive). I had blood work done 6 weeks later and it came back normal. Last month I went in to the ENT for a follow-up. Everything looked good. Come back in 1 year for another ultrasound. (I have another nodule on the left side - too small to biopsy)

I happened to mention how tired I have been lately and that I have gained 10 pounds in about a month. He ordered another blood lab. I called the office back Friday and they had called in a prescription for a small amount of synthriod (.5 mcg). The nurse said the doctor wanted me to start taking it before the weekend and I will go for another lab in 6 more weeks.

She said my TSH levels were low but that everything else looked fine. I have no idea what that means. I have requested lab results to be sent to me as well as the Dr but never got them. I don't know what the levels are so I cannot even google it to see what is protocol.
When TSH levels are "low" it actually means that you are taking too much thyroid hormone (I know that sounds backwards). TSH is not a thyroid hormone itself--it is Thyroid Stimulating Hormone. If you don't have enough thyroid hormone in your body, your TSH will rise (go higher) in an attempt to drive your thyroid gland to produce more. If you take thyroid hormone, the TSH (which comes from the pituitary gland) relaxes and it drops down and goes "low." So, low TSH equals that you have more than enough thyroid hormone.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 07-02-2009, 12:39 PM   #374
luckymom4
Mouseketeer
 
luckymom4's Avatar
 
Join Date: Jun 2009
Location: Georgia
Posts: 133

I'm hypo. Had a growth last lear which turned out to me liquid, not fibroid. I had it aspirated last June 9th. Now I have another one in almost the same spot. These things have grown really fast, from nothing there at all to very large growths within a few weeks. The last one was so big I didn't even have that "hollow" spot at the bottom of my neck. When I get these I find that I get tired even more easily than usual. I have to clear my throat a lot and if I talk for more than a few minutes at a time I get a sore throat. The good thing is that after the last one was aspirated my hypo is pretty easy to control with just healthy lifestyle changes. So I'm hoping this one goes as well. The only bad thing is I have no health insurance, but luckily it's not too expensive.
__________________
Me: Oompa Loompa: DD (18): DS (14): DD (11): DS (8):
luckymom4 is offline   Reply With Quote
Old 07-02-2009, 07:08 PM   #375
DisMomme
Waiting to go to my WDW home again...
 
DisMomme's Avatar
 
Join Date: May 2009
Location: New England
Posts: 900

Quote:
Originally Posted by Christine View Post
When TSH levels are "low" it actually means that you are taking too much thyroid hormone (I know that sounds backwards). TSH is not a thyroid hormone itself--it is Thyroid Stimulating Hormone. If you don't have enough thyroid hormone in your body, your TSH will rise (go higher) in an attempt to drive your thyroid gland to produce more. If you take thyroid hormone, the TSH (which comes from the pituitary gland) relaxes and it drops down and goes "low." So, low TSH equals that you have more than enough thyroid hormone.
Thank you for the clarification. I actually went to my GP for an checkup and mentioned this to her as well. She was able to look up the lab results. My TSH was high, although only slightly. I think she said it was in the 6s?

I mentioned to her about the weight gain and tiredness. She doesn't think it is thyroid related. Any insight on that would be helpful. Thanks.
__________________
DH Me DS18 DS17 Piper
DisMomme is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 08:20 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: