The THYROID Thread

[luvmarypoppins]

Haimia - I am so clueless as far as numbers are concerned, but yours all look within range. Just make sure you have a good experienced surgeon

Sandy - I am so happy to hear your scan was clean. Heres a for you. As Chrstine said, my oncologist too told me the first scan was important, but then the 1 year follow up scan was more important because that is when you see if the rai really did its job. They told us it could take up to a year to work. I figure any good news is welcome and a step in the right direction too.

I will probably do a little dining report from our trip. The worst place was Tutto, so disappointing in the food area. The guys singing Happy Birthday to me was awesome. Our favorite - Citricos!!

[luvmarypoppins]

Well if anyone wants to see a pic of me, go to the breast cancer thread on the community board, page 43. You can see that my neck looks weird.

Oh and I am the oldest one here I think, enough said

[Christine]

Originally Posted by luvmarypoppins

Well if anyone wants to see a pic of me, go to the breast cancer thread on the community board, page 43. You can see that my neck looks weird.

Oh and I am the oldest one here I think, enough said

Are you sure you're the oldest? I might be....

[sjlupin]

Again - thanks everyone.

I do realize that this is the not the complete 'all clear' but I am still beyond happy with the results thus far. No distant mets and nothing else lurking! When I was on the scan table all I could think of was my SILs large brain tumor that was found incidentally a few years back. She is great now, but went through hell for a while.

Hope everyone had a fantastic long weekend!

[luvmarypoppins]

I am done posting my dining reviews if anyone wants to read them.

Thanks Christine for stoping by I am glad I got them done now. I always forget something if its too late after the trip.

Now later I am doing a Disney Survey they sent me. Wonder what they do with all the comments you make? etc.

Also have to start making our adrs for the Nov. trip and trying to work out something for Food and Wine with my dh ff miles, but that is turning into a mess etc.

At least I get the month of June off then its blood test, sono and endo in July.

I still am up in the air about the eye surgery. Ds22 will not be allowed to drive for a long time, we just dont know for how long yet. That is still up in the air, so I would really have to ask the eye dr. how long I couldnt drive etc. since I will have to take him to school or the train.

[dischick4778]

Been a while since I've posted here but I hope everyone is doing well. Honestly, I have not been on the computer much, trying to live in the moment and enjoy all of my time with my husband and son. Things are going well with me, but no matter how much time passes since my surgery I still feel so fortunate to be here and to be well.

I still have trouble with my eyes. Dr. says there isn't much he can do for my fried tear ducts. I use drops a lot and he puts in the implants every so often. It doesn't help much.

I finally let my surgeon talk me into fixing my scar. He's a bit of a perfectionist and it bothered him that it wasn't smooth. He did an in office procedure to scrape it flat and since then I've visited twice and he has given me neck injections to reduce the redness. I was hesitant to do this because I kept thinking the cancer would come back and I'd need surgery again. But I finally felt safe enough to do it. And it does look better so I'm happy with it.

My endo says I do not need a scan this year. She did a neck sono back in February and it was clear. My numbers are good and she is happy. I'm currently down to 175 synthroid.

Anyway, hope all is well and I hope to log on more often and catch up with everyone. Stay healthy!

[luvmarypoppins]

Jenn - so good to see you. Glad to hear you are doing well despite the eye problems and I am so with you on those as you know from my posts.

Sounds like you were brave to go through that scar thing. I am wanting to be asleep for anything and evrything if it hurts etc. I am turning into a scaredy cat who has had it with pain I think.

I know your trip is soon to AKL and I hope you and your family have a great time.

Its good to hear you are not having a scan this year. Just wondering what your endo/onc. plan of action is, especially since you have the rare variant too.

My onc. said she might only consider a scan at the 5 year mark. Up until the first clean scan and then its only thyrogen and blood testing after that. I think I had that done at year 2 and now at year 3 post rai date, not surgery date. I get nothing this year, year 3, just the normal sono and blood work, Next year at year 4 I am getting thyrogen and blood work from the onc. in addition to the 6 month endo stuff.

Take care. Blessings to you always.

[dischick4778]

Good to hear from you luvmarypoppins!

I had a scan last July, which was one year after my surgery. This year my endo did the sono in Feb and said all was clear. I have seen her every two months for blood work since my surgery. So I guess that is how she monitors my situation. Through blood work levels and the sono. She said we would do a scan again at 5 years out unless there was cause to do it sooner (like something appearing in the sono or blood work). This is the first time she told me to take six months before coming back. That feels like a good thing.

We are excited for our upcoming trip to AKV. We are leaving on July 9th. I am so looking forward to it. I cannot wait to relax, have fun, and eat good food. I love vacation meals.

I am going to read your dining reviews now. And I am so jealous of your Nov. trip. I used to go to F&W all the time until the year I got pregnant. I haven't been back since then and I miss it. I was hoping to get back to it this year but we are looking to buy a house so I probably won't want to spend the extra money. Stay well!

[dischick4778]

LMP - read your dining reviews and loved them! You mentioned something about FL water not mixing well with the cancer meds. Can you tell me more about that? I didn't notice anything specific during my trip last year but am curious what the effects are for you.

[luvmarypoppins]

Well I scheduled my sono. Its going to be July 9th,

hmm Jenn, same day you are going to WDW. Where are you eating?? Of course I am disney obsessed with the food. I really think a lot of it has gone down in quality and up in price. I guess the only good thing would be if your take your little one to a character meal. Its air conditioned and then you dont have to wait out in the heat to meet those characters etc. We use to always go in August. I am sure the July heat is bad too. One word: Pool!!!

Does anyone else feel like this?? You try to put the cancer in the back of your mind and then when you are making appts, it just puts it right back up there. Like right now I feel like a knot in my stomach. I am gonna have to have some serious prayer time later I think. This is also right after I am teaching vbs, I think I will be exhausted and glad to lay on that table for 30 min.

Still trying to work out something for the F and W. That is not going well. Cant get a decent room or flights etc. I will wait a while longer. Hoping for an ap discount or that we can use some of dh ff miles for a hotel room.

Hope everyone is doing well.

[mrsklamc]

Originally Posted by luvmarypoppins

I really think a lot of it has gone down in quality and up in price.

I agree. Food was never my 'thing' at Disney but I did have an Italian meal at Epcot years ago that was amazing. Honestly this latest ticket increase is getting kinda crazy too- kid's AP is the same as an adult's? Really? Makes me nervous that they are thinking of doing the same with regular tickets. Eventually they are going to price themselves out of the market, I think.

[Christine]

Originally Posted by luvmarypoppins

Does anyone else feel like this?? You try to put the cancer in the back of your mind and then when you are making appts, it just puts it right back up there. Like right now I feel like a knot in my stomach. I am gonna have to have some serious prayer time later I think. This is also right after I am teaching vbs, I think I will be exhausted and glad to lay on that table for 30 min.

YES!! This is a huge deal for me. I put the cancer away and then the doctor's appointments roll around and it all becomes real again. I'm lucky that I am so far out from my diagnosis that I don't see a doctor much anymore but, at least once a year, I'm in a big turmoil. I *hate* it. My whole sense of well-being is gone.

As for the Disney food, that sucks. I've been getting a sense of that just reading the dining reviews. I'm hoping that since I stick to mainly signature dining that I won't notice it as much. I hope Citricos and Artist Point are as good as ever. I sensed most of the disappointment with the moderate-type restaurants.

I have found two places off-site, yet close to Disney that were pretty good. Both were in Celebration and it was so nice because they seemed "off the beaten path" and quiet. Once was a diner that had something for everyone, and the other was a small Italian restaurant with a wood-fired oven that had some excellent food. It was really nice to get away and have dinner there.

[SingingMom]

Originally Posted by Christine

YES!! This is a huge deal for me. I put the cancer away and then the doctor's appointments roll around and it all becomes real again. I'm lucky that I am so far out from my diagnosis that I don't see a doctor much anymore but, at least once a year, I'm in a big turmoil. I *hate* it. My whole sense of well-being is gone.

As for the Disney food, that sucks. I've been getting a sense of that just reading the dining reviews. I'm hoping that since I stick to mainly signature dining that I won't notice it as much. I hope Citricos and Artist Point are as good as ever. I sensed most of the disappointment with the moderate-type restaurants.

I have found two places off-site, yet close to Disney that were pretty good. Both were in Celebration and it was so nice because they seemed "off the beaten path" and quiet. Once was a diner that had something for everyone, and the other was a small Italian restaurant with a wood-fired oven that had some excellent food. It was really nice to get away and have dinner there.

It's been Almost 20 years since my cancer diagnosis, and I still feel like that every year before my endocrine appointment. I think it is natural. I pray and try to stay calm, and then let out that huge sigh of relief! Hang in there!

[Christine]

Originally Posted by SingingMom

It's been Almost 20 years since my cancer diagnosis, and I still feel like that every year before my endocrine appointment. I think it is natural. I pray and try to stay calm, and then let out that huge sigh of relief! Hang in there!

Oh wow, another "oldie"!! I am at 17 years out.

[SingingMom]

Originally Posted by Christine

Oh wow, another "oldie"!! I am at 17 years out.

Define "oldie"

I was 30 when I was diagnosed. (after graves disease and hepatitis caused by an allergic reaction to PTU. Such fun!)

Had my surgery that Feburary, got pregnant with our only child that November and had our daughter a week before my 31 st birthday. She'll be 19 in August and will be 50 !