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Old 01-11-2012, 12:32 PM   #1816
luvmarypoppins
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Went for the blood test today. My endo appt. is on the 23rd. Now I have the wonderful pelvic sono on Thurs. Then maybe will have to schedule the kidney sono.

kimmie - I can relate too. Its frustrating when you dont feel well and they are trying to adjust the meds. I had 3 adjustments. I think I went from 150 to 200, and 200 was really making me crazy. Now I am at 175. I feel alot less crazy. My endo will not lower it anymore she said until I think I am at the 5 year mark since mine is aggressive etc. So I just have to put up with it. Hang in there. They will find the best level for you. Just keep telling the endo your symptoms etc.

Christine - good your bone scan came out well. I dont know if I have to do them anymore since I am getting the yearly reclast infusion. Hope your drs. visit and testing goes well.

Well with everything going on I dont even know if we will be able to take our May trip. If we do we might have to cancel the bounceback rate and maybe just pay for a rack rate room with frequent flier miles. I have to check out all the financial stuff.
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Old 01-12-2012, 11:24 AM   #1817
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Well I just saw that the 2012 Thyca conference is going to be in Chicago.

Micayla is that really far away from you and maybe Kimmie that might be close to you to go to?

I have never been to Chicago but sometimes dh has gone there on business trips.

We need an Orlando thyca conference!!
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Old 01-12-2012, 01:03 PM   #1818
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Chicago is not far - I will have to go look and see when it is.
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Old 01-12-2012, 03:13 PM   #1819
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Quote:
Originally Posted by luvmarypoppins View Post
Well I just saw that the 2012 Thyca conference is going to be in Chicago.

Micayla is that really far away from you and maybe Kimmie that might be close to you to go to?

I have never been to Chicago but sometimes dh has gone there on business trips.

We need an Orlando thyca conference!!
Thanks for the reminder! I am about an hour out of Chicago! I will go and check the dates and stuff
I am very interested in going...anyone want to join me?

Hey if they have one in Orlnado, sign me up for that one! It would be nice to get out of the cold for awhile. The snow is coming down like crazy today!
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Old 01-16-2012, 09:26 AM   #1820
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Anyone see the little article about thyroid stuff that was in the newspaper magazine. Forgot the name, but it was about thyroid stuff, not necessarily cancer.

They did say that not all thyroid goiters are cancerous, yeah right, mine was though.

Oh well, any press is good press to me. I actually saw they expect the newly diagnosed to increase steadily this year (read that somewhere else). Hope they can say one day..more patients and so we need more research etc.

I have not been eating or sleeping well due to the personal family problem. Also between the hot flashes and the other night my heart seemed to be racing too long, usually that does not happen often. I am sure even the endo will think I am a mess next week, we shall see.
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Old 01-16-2012, 11:06 PM   #1821
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Sorry for another rant but I want to be who I was 4 months ago, and I know that is not possible.
I feel like I say this very same thing all the time! I used to be such a calm, level-headed, reasonable, sweet person. Now I feel like I'm in someone else's personality and I cannot get out!

The new lower dose, 188, is starting to take effect but it is a slow process. I have noticed a bit more patience with things that I would have screamed about a month ago. But I am still not "me". Hmm, how long until I get used to the new me?mm

Stay well all!
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Old 01-17-2012, 07:22 AM   #1822
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Wait a minute.... so the thyroid affects personality? I've noticed over the years that I've turned psycho, seriously. I fly off the handle over the least little thing, and my husband told me over the weekend that I'm not the most pleasant person to be around! That, and the racing heart..... In fact, my dr started checking my thyroid when I was complaining of a racing heart, and the stress test came back normal.... that's when the nodule was found. So it's possible that my moods could level out after this nodule is removed?????
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Old 01-17-2012, 09:03 AM   #1823
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dischick - I was a happy person until all of this too! I am better now, but I now take Lexapro
I am better now because things are starting to level off. Weight is still an issue with me.

karajeboo - I hope things are better for you once they remove the nodule. The thyroid is an amazing thing and DOES control hormones.
I am still very new to all of this but the others here can give you more insight.
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Old 01-17-2012, 09:11 AM   #1824
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I tried to post earlier but it got lost in space somehow.

If your nodule is affecting your thyroid hormones, then certainly your mood will be affected. If not, it is probably something else.
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Old 01-17-2012, 10:29 PM   #1825
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Originally Posted by karajeboo View Post
Wait a minute.... so the thyroid affects personality? I've noticed over the years that I've turned psycho, seriously. I fly off the handle over the least little thing, and my husband told me over the weekend that I'm not the most pleasant person to be around! That, and the racing heart..... In fact, my dr started checking my thyroid when I was complaining of a racing heart, and the stress test came back normal.... that's when the nodule was found. So it's possible that my moods could level out after this nodule is removed?????
Thyroid definitely impacts your personality. And depending on your synthroid dose after surgery that is a huge thing too. I was on such a high dose bc of the extent of my cancer situation that I was nervous and anxious and angry all the time - which is very unlike me. Now I am at a lower dose and finally feeling a bit normal, but man it has been a rough couple of years.

And I do feel badly for my husband bc I am not the person he married. And I know for better or worse, but no one expects the worse to come so soon. He is a saint for dealing with me through all of this. And I just want to be me again.
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Old 01-17-2012, 10:41 PM   #1826
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Thyroid definitely impacts your personality. And depending on your synthroid dose after surgery that is a huge thing too. I was on such a high dose bc of the extent of my cancer situation that I was nervous and anxious and angry all the time - which is very unlike me. Now I am at a lower dose and finally feeling a bit normal, but man it has been a rough couple of years.

And I do feel badly for my husband bc I am not the person he married. And I know for better or worse, but no one expects the worse to come so soon. He is a saint for dealing with me through all of this. And I just want to be me again.
Thanks everyone for the great info! I have my preop visit on Thursday so I hope to get a lot more info then, but I'm curious, will I be on meds with them only removing part of my thyroid? I was under the impression that the thyroid can "catch up" if part of it remains?

I am so sorry to hear of everyone's situations, but this is such a positive thread and I thank you all for posting your stories! It really makes me (and I'm sure many others!) feel better and have a much more positive outlook!
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Old 01-18-2012, 06:16 AM   #1827
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Quote:
Originally Posted by karajeboo View Post
Thanks everyone for the great info! I have my preop visit on Thursday so I hope to get a lot more info then, but I'm curious, will I be on meds with them only removing part of my thyroid? I was under the impression that the thyroid can "catch up" if part of it remains?

I am so sorry to hear of everyone's situations, but this is such a positive thread and I thank you all for posting your stories! It really makes me (and I'm sure many others!) feel better and have a much more positive outlook!
Yes, half or part of your thyroid can do the work of a whole thyroid gland. They will probably want to monitor you very carefully after having part of it out to make sure that it's picking up the slack.
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Old 01-19-2012, 08:01 AM   #1828
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Hi everyone! I haven't been around in a long time. My life is so screwy I should have my own reality show.

I have a question for thyroid people in the know please. Can thyroid medicine just stop working or maybe having the opposite effect. I'm now up to 50mcg and I feel crazy again. My heart races, bad hot flashes, face flushes, my hair is falling out enough to make a curly haired wig, my sex drive is back down, and now my blood pressure is on the rise.

I googled synthroid and high blood pressure and got some interesting responses but wanted information from someone in the know.

I have made an apt with my PCM because the reproductive endo and I have parted ways. I'm moving in less than 8 weeks and know that can cause stress but I just feel like something is wrong.

Any help would be most appreciated. Thanks for letting me jump back in for guidance.
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Old 01-19-2012, 08:15 AM   #1829
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Tina- Yes, it definitely sounds like your levels need to be adjusted.

Just curious- has anyone noticed a seasonal affect on your levels? Mine has been lowered the last two Januarys- I blamed the thyrogen but I'm feeling kinda hyper-ish and I haven't had it this year.

There was an article in the local paper Sunday that mentioned how thyca is the 'good' kind of cancer to get. Boy did that Dr get ripped in the comments with people letting him know just how 'good' it is....
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Old 01-19-2012, 10:09 AM   #1830
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Quote:
I have a question for thyroid people in the know please. Can thyroid medicine just stop working or maybe having the opposite effect. I'm now up to 50mcg and I feel crazy again. My heart races, bad hot flashes, face flushes, my hair is falling out enough to make a curly haired wig, my sex drive is back down, and now my blood pressure is on the rise.
Too much and too little thyroid hormone can often have overlapping/shared effects. Based on your heart racing, bad hot flashes, face flusing, and increased BP, I'm going to go with the thought that you have too much thyroid hormone.

Too little OR too much can cause hair loss, changes in sex drive. It's possible that being hypo could cause increased BP, but most often it goes the other way. With too little hormone you get bradycardia (slow heartbeat) which can often help BP levels. But having too little thyroid hormone also stresses the body so it could increase it.

If I were a betting woman, I'd go with too much hormone.

Tina--you're in the rotten position of still having your own (malfunctioning) thyroid gland that, on most days probably isn't working well enough for you but then periodically it might start working. When you are dealing with both a thyroid gland and supplementation, you get these problems. Many of us here have totally dead thyroid glands or none at all, so the supplementation process isn't quite the rollercoaster ride that people with funky thyroids get.

You probably need to get a quick thyroid panel done just to see where you are. Many, many years ago when I was first dealing with this, my biggest clue of too much thyroid hormone was my flushed face (and ears). It was awful. If the room even got the slightest bit warm, I had a face like a fire engine. Bumping down a dose helped immensely.


Quote:
I have made an apt with my PCM because the reproductive endo and I have parted ways. I'm moving in less than 8 weeks and know that can cause stress but I just feel like something is wrong.
Sorry to hear you no longer have the reproductive endo--that sounded so promising.

Get thee to a doc and have that TSH done. You'll feel much better when you get this under control.
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