Disney Information Station Logo

Go Back   The DIS Discussion Forums - DISboards.com > Just for Fun > Coping and Compassion
Find Hotel Specials & DIScounts
 
facebooktwitterpinterestgoogle plusyoutubeDIS UpdatesDIS email updates
Register Chat FAQ Tickers Search Today's Posts Mark Forums Read





Reply
 
Thread Tools Rate Thread
Old 11-08-2011, 01:49 PM   #1726
kimmie
Sometimes I have senior moments ya know
The TF's are busy people and we are restricting posters to a one tag maximum :)
 
kimmie's Avatar
 
Join Date: May 2000
Location: Illinois
Posts: 920

Thanks Christine. Atleast now I have a bit of an idea. I see oncology tomorrow. I am going to mention a few things to him.
__________________
Kimmie
kimmie is offline   Reply With Quote
Old 11-13-2011, 04:03 PM   #1727
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,945

kimmie - how did your visit go?

Well I have had a really rough week. I survived the reclast infusion. I dont know if I could go through that again. High fever,dillusional, dehydration,chest pain,bones hurt so bad my dh almost had to lift me out of the chair. It was a nightmare.

And in the midst of this my endo decided to change my bp med. On Friday I woke up and my big toes were so swollen I could hardly walk and in the shower my hands were so swollen I could hardly hold the bar of soap. Of course my dh was leaving for China.

Sat. I decided to stop the new bp med. I was seriously debating whether to go to the er or not. I even took one f the ds percocet from his wisdom tooth surgery.

Now today I am much better and tomm. I am going to the gyn for the strange symptoms I have been having. I hope she does not mention the C word .

I am leaving a voice mail for my endo today so maybe she can pick it up tomm. asking her is she still wants me to come in for a bp check on thurs. which was scheduled due to the new med.

My head is spinning. Tues. going for a mammo.

Christine - saw a lady comment on thy ca that Dr. Ain stressed the relation between breast and thyroid cancer.

Anyones endo or onc. mention this? None of mine have.
luvmarypoppins is offline   Reply With Quote
|
The DIS
Register to remove

Join Date: 1997
Location: Orlando, FL
Posts: 1,000,000
Old 11-13-2011, 05:13 PM   #1728
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,517

I truly cannot remember if it was my endo or Dr.Ain or elsewhere but somewhere I read/heard that once you are diagnosed with one type of cancer you have a higher likelihood of other types of cancer. Wherever I heard/read this they said it wasn't certain if that was because of the radiation or because people who have had cancer tend to be heavily tested, and may just be more on top of their health.

ETA- I'm truly sorry you've had such a terrible experience with the reclast. You are so strong to have been through all you have!
mrsklamc is offline   Reply With Quote
Old 11-14-2011, 09:51 AM   #1729
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,738

Quote:
Originally Posted by luvmarypoppins View Post
mo.

Christine - saw a lady comment on thy ca that Dr. Ain stressed the relation between breast and thyroid cancer.

Anyones endo or onc. mention this? None of mine have.
This is all I could find about it (not from Dr. Ain though):



Quote:
Pre-menopausal women with thyroid cancer are at increased risk for breast cancer 5-20 years later according to MD Anderson Cancer Center. Breast cancer is not associated with an increased risk of thyroid cancer, which suggests that thyroid cancer treatment with post-surgical radio-active iodine (RAI) was the reason for the greater risk.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 11-15-2011, 09:10 AM   #1730
kimmie
Sometimes I have senior moments ya know
The TF's are busy people and we are restricting posters to a one tag maximum :)
 
kimmie's Avatar
 
Join Date: May 2000
Location: Illinois
Posts: 920

luvmarypoppins,
I am so sorry to hear that you had such a rough week. I am hoping that this week things will get better for you!

I am doing ok. I am back to the real world now! That's pretty exciting. I am having some issues with the levothryroxine. I have fits of anger and some other issues. Called endo and she upped my meds to 125. I know its still not high enough, but every bit helps. I just am not myself mentally and can't stand some of the things I say and do. I also seem to have some facial ticks now....she says its cause I don't have enough thryoid hormone. NO kidding!
Well, I will keep after her if this level doesn't work. I have an appt in December.
__________________
Kimmie
kimmie is offline   Reply With Quote
Old 11-15-2011, 12:50 PM   #1731
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,945

Well my medical week is continuing.

The gyn was really nice. My endo said I would like her and I did. She feels it is not cancer, but she, of course, said will do a biopsy as she said she has told people this before and after the biopsy it did turn out to be cancer. So that is scheduled for January, the earliest they can do it. Good, I can wait. More invasive procedures, oh joy.

Then they referred me to another female doctor for some other issues I am having. That will be right before christmas.

Then thurs. is the bp re check again. My dh called me from China and agreed that we will not have the endo do any more medicine changing until after our trip to Disney.

I am getting weary of all of this stuff for sure. Oh and of course in January is more blood work, sono and endo visit, the regular 6 month stuff.
luvmarypoppins is offline   Reply With Quote
Old 11-16-2011, 08:25 AM   #1732
1Grumpy9
DIS Veteran
 
1Grumpy9's Avatar
 
Join Date: May 2011
Location: Enola, PA
Posts: 801

I just got back from my endo appointment and once again my thyroid levels are high so she is lowering my dosage. I haven't seen 175mg in sooooo long that it is just weird. In a little over a year, my dosage has been dropped by almost half. I am still struggling with calcium levels, but as she put it as long as I feel ok, go with it. If I start feeling bad, just take some extra calcium.
__________________
"Don't tell people how good you are, tell them how good they make you."
'79, '80, '81, '82, '83, '84, '85, '91, '92, '93, '97, '99, '06, '08
'92 MMD (marched in SpectroMagic), '94 MMD(marched around WS) '11 - first stay on property, FW-'13


We Can't Be Stuck on the Stairs Again TR

1Grumpy9 is offline   Reply With Quote
Old 11-16-2011, 09:17 PM   #1733
kimmie
Sometimes I have senior moments ya know
The TF's are busy people and we are restricting posters to a one tag maximum :)
 
kimmie's Avatar
 
Join Date: May 2000
Location: Illinois
Posts: 920

I am having trouble adjusting to the medication...
I did call my endo and she upped me to 125.

I am going crazy!

I am so mad all of the time.
My stomach is so distended and I am constipated.
I have gained 10 lbs in just over a month.
I am just sick about all of it!

How do you all cope?

I am ready to call her again for some blood work, especially the Free T3 and Free T4. Someone mentioned that the levothyroxine only gives you T4 and if you can't convert it to T3 you can have problems?

If this is how I will feel...forget it! Somethings gotta change quickly!

She said I am feeling this way because I don't have a thyroid...I have read that sometimes the levothyroxine doesn't do it for some people.

Anyone have to switch to another med?

I sure hope someone can give me some guidance.
__________________
Kimmie
kimmie is offline   Reply With Quote
Old 11-17-2011, 09:15 AM   #1734
1Grumpy9
DIS Veteran
 
1Grumpy9's Avatar
 
Join Date: May 2011
Location: Enola, PA
Posts: 801

Kimmi...which med are you on? I was switched about a year ago to Tirosint and it is working so much better than Synthroid ever did. I actually have more energy with it.

It is a struggle to keep a balance esp if you don't have a thyroid. I used to get 90 day supply of meds, but my dosage usually changes every 8 to 12 weeks.

I know what you are going through because I was there and up until these past couple of months, I felt like crap, gained 30 lbs and didn't want to do anything. Check with your doctor about another med because sometimes the med you are taking isn't right for you. They work differently for every person.
__________________
"Don't tell people how good you are, tell them how good they make you."
'79, '80, '81, '82, '83, '84, '85, '91, '92, '93, '97, '99, '06, '08
'92 MMD (marched in SpectroMagic), '94 MMD(marched around WS) '11 - first stay on property, FW-'13


We Can't Be Stuck on the Stairs Again TR

1Grumpy9 is offline   Reply With Quote
Old 11-17-2011, 09:36 AM   #1735
kimmie
Sometimes I have senior moments ya know
The TF's are busy people and we are restricting posters to a one tag maximum :)
 
kimmie's Avatar
 
Join Date: May 2000
Location: Illinois
Posts: 920

Thanks grumpy (I need to borrow your name!)

I am taking Levothyroxine 125 mcg. I am really going mad!

I hate feeling this way.

I am going to call the endo and ask for some blood work. I can't stand myself!
__________________
Kimmie
kimmie is offline   Reply With Quote
Old 11-17-2011, 10:26 AM   #1736
mrsklamc
I apologize in advance, but what is a click clack?
 
Join Date: Oct 2006
Location: Husker living in Hoosierland.
Posts: 9,517

Are you on the generic? I would suggest switching to brand name. I'll be totally honest here too- I would do my best to switch endos. Personally- I'm no kind of medical professional- but it just makes me really nervous that first they didn't put you on the diet and now this....
mrsklamc is offline   Reply With Quote
Old 11-17-2011, 10:27 AM   #1737
1Grumpy9
DIS Veteran
 
1Grumpy9's Avatar
 
Join Date: May 2011
Location: Enola, PA
Posts: 801

Quote:
Originally Posted by kimmie View Post
Thanks grumpy (I need to borrow your name!)

I am taking Levothyroxine 125 mcg. I am really going mad!

I hate feeling this way.

I am going to call the endo and ask for some blood work. I can't stand myself!
I was on synthroid from the time I was 7 until just the beginning of this year. After my surgery is when it really wasn't working for me. Also, give your body about 8 to 10 weeks to get the meds in to you system. I know when I get my new meds, I usually go back for a blood work check in 8 to 12 weeks. That gives my body enough time to get the new dosage in my system.

Another trick that my doctore gave me was letting the pill dissolve under your tongue. It will absorb into your body better. I used to do that until now because my meds are a gel cap.
__________________
"Don't tell people how good you are, tell them how good they make you."
'79, '80, '81, '82, '83, '84, '85, '91, '92, '93, '97, '99, '06, '08
'92 MMD (marched in SpectroMagic), '94 MMD(marched around WS) '11 - first stay on property, FW-'13


We Can't Be Stuck on the Stairs Again TR

1Grumpy9 is offline   Reply With Quote
Old 11-17-2011, 02:04 PM   #1738
Christine
Would love to be able to sit on the couch for a few days, get a good book, and do NOTHING!
Considers the DIS as Bladder Training 101
 
Join Date: Aug 1999
Location: Northern Virginia
Posts: 23,738

Quote:
Originally Posted by kimmie View Post
Thanks grumpy (I need to borrow your name!)

I am taking Levothyroxine 125 mcg. I am really going mad!

I hate feeling this way.

I am going to call the endo and ask for some blood work. I can't stand myself!
kimmie,

These meds take a LONG time to stabilize in your system. Synthetic T4 has a very long half life which is great when you forget a pill (you won't notice) but bad for when you are trying to get stabilized. You've just had surgery and RAI--you've got a LOT going on and it takes awhile. I am a little surprised they didn't start your right away at .125. That's usually the starting dose for someone with a total thyroidectomy but it's not a huge deal if they start you at .100. Your body is going through some incredible, hormonal changes right now.
__________________
Christine

Vacation Home - Indian Creek - July 2012
Vacation Home - Terre Verde Resort - July 2009
Vacation Home - Terre Verde Resort - Easter 2007
Shades of Green - June 2005
Vistana Resort - May 01
Shades of Green - May 99
Shades of Green - Apr 97
CBR & Shades of Green - May 95
Christine is offline   Reply With Quote
Old 11-17-2011, 03:47 PM   #1739
kimmie
Sometimes I have senior moments ya know
The TF's are busy people and we are restricting posters to a one tag maximum :)
 
kimmie's Avatar
 
Join Date: May 2000
Location: Illinois
Posts: 920

Thanks everyone

I am trying to have patience, but it never has been easy for me.
I have an appt. with my endo in December (enough time for things to straighten out), but it seems like such an awful thing to do to someone. Why can't it be a wonderful medication that just works from the beginning?
Then it needs to build up in your system, and if its not right...oopps! grrrrrhhh!

mrsklmac - I know what you are saying. I am giving her a chance, but if I do not get a good vibe when I go in December you better believe I will switch. The problem is I am not in a big city, so my choices are a bit limited.(but no matter - I will be proactive!)
This afternoon I seemed in better spirits..so we will see what tomorrow brings
I still may call and ask for some blood work.
__________________
Kimmie
kimmie is offline   Reply With Quote
Old 11-18-2011, 08:33 PM   #1740
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
Join Date: Aug 2003
Posts: 9,945

kimmie - hope you are feeling a little better. The adjustment does take time.

I also do not take the generic and only take the name brand. I dont want to worry about anything in the formulation etc.

Well I didnt get a mammo call back, so I am assuming that is ok, ptl!

The endo on thurs. still does not like my bp numbers. She said she talked to her colleague about me. Um, I know if they do that at the univ. hosp then you are one of their difficult cases, which I always seem to be to all the drs. and surgeons there. She wants to add another med in addition to my reg. bp med. Of course I told her no way until I get back from FL. Didnt say Disney in particular. She would probably look at me like I was a nut case for sure.

I asked her what the side effects of this med would be and she said possibly mild diarrhea. Oh what fun. We shall see. I think she needs a better Plan B for me.

And to pass the the time while my dh is away on his business trip I am finalizing my trip plans. I ordered a wheelchair. I just dont have the strength to walk all over the place and my dh hates the magical express so we get a towncar and I may try to change 2 adrs. One I heard the water at coral reef is dirty? with filtration problems and then I didnt know the MK was open till 1 am on Dec 3rd Ithink, or very late and I made a late epcot adr for Illuminations etc.

Going to Disney and leaving all this medical stuff behind. Priceless!!
luvmarypoppins is offline   Reply With Quote
Reply



Thread Tools
Rate This Thread
Rate This Thread:

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

facebooktwitterpinterestgoogle plusyoutubeDIS Updates
GET OUR DIS UPDATES DELIVERED BY EMAIL



All times are GMT -5. The time now is 02:16 AM.

Powered by vBulletin® Version 3.8.4
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.

Copyright © 1997-2014, Werner Technologies, LLC. All Rights Reserved.

You Rated this Thread: