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Old 05-22-2007, 01:57 PM   #151
Christine
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Thank you Christine....

For this thread. My short form of the long story. Diagnosed with hypo about five years ago. Was on Levoxyl for it for a while, went for a thyroid biopsy when dr prescribed it in 2003. In 04, at my appointment, discovered that the hospital didn't send my results to him.

They were POSITIVE for Papillary Carcinoma.

After that, scheduled thyroidectomy, called attorney and had the bugger out in March of 04. was dropped by doc the next month, went to new endo who kept me on levoxyl. Started passing out, having horrendous anemic episodes, and.....heart issues. Turns out that a national branch was filling my thyroid meds generically, I was allergic to something in the generic. I didn't find that out until dropping old endo for new endo.

My new endo rocks. My levels are high, but regulated. I'm just having issues with the parathyroids...my calicum goes up and down.

If you guys have questions, or need help, holler.

I have been there and offically done that.
Interesting about the meds. Did you find out what you were allergic to?

I am having a similar problem with ibuprofen tablets and now Feosol (iron) tablets. First thought I had an ibuprofen allergy but recently had the same response to Feosol. Both have a coating and I'm trying to narrow down the offending ingredient but not having much luck.
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Old 05-22-2007, 08:19 PM   #152
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I'm sorry, I don't know. There's limited evidence to the contrary that this medication is causing this stuff to happen. Most endos refuse to believe it, my former endo said it was me and not the med. Exit old endo. New endo was open minded and well I became!

Who else has the anemia problems?
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Old 05-23-2007, 08:11 AM   #153
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Who else has the anemia problems?
Just me, as far as I know. Did you find a cause for your anemia? I've had all the tests: celiac, endoscopy, colonoscopy, etc. Have a few ideas but no real firm cause.
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Old 05-23-2007, 06:16 PM   #154
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Just me, as far as I know. Did you find a cause for your anemia? I've had all the tests: celiac, endoscopy, colonoscopy, etc. Have a few ideas but no real firm cause.
My endo stated...it's the drugs, they leech the iron from your blood.

Ah, the joys of Synthroid....
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Old 05-23-2007, 10:04 PM   #155
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As I stated in a previous post, I have Hashimoto's and I am anemic according to my last checkup a few weeks ago.

Vitamin B12 deficiency can cause anemia in Hashimotos' patients, so I'm gonna have that test done next month.

In the meantime, I'm chowing down iron. Joy.

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Old 05-23-2007, 10:21 PM   #156
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Always take iron with food. That's my one most important tip of the day.
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Old 05-24-2007, 08:51 AM   #157
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My endo stated...it's the drugs, they leech the iron from your blood.

Ah, the joys of Synthroid....

That's funny because when I asked this question on the thyroid cancer survivor's list, hardly anyone was having problems with iron deficiency--in fact, out of several hundred people, no one really had an issue at all with this. I wonder if this is really true? I know that iron can interfere with absorption of Synthroid, but I've never heard that Synthroid can affect iron stores.
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Old 05-24-2007, 08:52 AM   #158
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Originally Posted by hercamore View Post
As I stated in a previous post, I have Hashimoto's and I am anemic according to my last checkup a few weeks ago.

Vitamin B12 deficiency can cause anemia in Hashimotos' patients, so I'm gonna have that test done next month.

In the meantime, I'm chowing down iron. Joy.

herc
So do you have iron deficiency are B12 deficiency? You know it's dangerous to take iron if you don't need it.
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Old 05-24-2007, 03:55 PM   #159
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I'm sorry to interupt ffrom out of left field. I have read about too much iron being bad as well - so be careful out there!

We have had 3 incidents in 3 days with DD totally flipping out. This is a week after a med change. She hit the ceiling, refusing to follow simple directions, screaming, hitting, throwing things at me. We sent her to her room and she just wailed for an hour, and we heard some throwing stuff around, but not to the point of hurting herself. I'm not sure I can take this, or she can. I mean, she's growing and so increaing doses at check ups will be the norm, I assume. Maybe I'll take matters in my own hands next time and go up half what they say for a week or two and then on up. Not really, I'd ask. Here's to my sanity! Should this settle soon? I know Christine says she hasn't had changes in a while, but did anyone one else have problems with changes? At least so far she hasn't gotten in MUCH trouble at school. sigh
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Old 05-25-2007, 05:22 AM   #160
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Before they yanked it, I was diagnosed with Hashimoto's, so...it might be from that that I am anemic.

Hmmm...time for a little more research.

Chris
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Old 05-25-2007, 10:26 AM   #161
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HI,

Yes, I know too much iron is bad. I do have an iron deficiency.... .8 I believe the level was a couple weeks ago. I really detest taking those iron supplements.

I will be rechecked next month.

herc.
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Old 05-25-2007, 10:32 AM   #162
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Quote:
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HI,

Yes, I know too much iron is bad. I do have an iron deficiency.... .8 I believe the level was a couple weeks ago. I really detest taking those iron supplements.

I will be rechecked next month.

herc.

My level was a 5 last check. I sure hope it goes up. I'm afraid my doc is going to send me to a hematologist for infusions. I don't want that.
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Old 05-25-2007, 02:56 PM   #163
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Christine, i'm sorry your iron level is so low. I was down to that level two years ago when I had a huge fibroid issue before my hysterectomy. I was much more tired then than I am now.

It's so frustrating to keep dealing with this low iron issue..


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Old 05-25-2007, 08:42 PM   #164
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Interesting article - Iron, Anemia and Hypothyroidism
http://www.thyroid-info.com/articles/iron.htm

A large body of thyroid patients have been surprised to discover that being hypothyroid also results in having low Ferritin, or storage iron. Ferritin is an iron-storage protein. So when Ferritin is measured via a blood test, it is basically measuring your storage iron, or the iron you have tucked away for future use. You can have “normal” iron serum levels, yet a low Ferritin.

Iron-deficiency anemia due to silent celiac sprue - Connection autoimmune thyroid disorders
http://thyroid.about.com/cs/latestresearch/a/celiac.htm
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Old 05-27-2007, 09:07 AM   #165
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Question Goiters on Thyroid

Can anyone give me more insight on what it means to have a goiter on your thyroid. I found out last year that I have one. My doctor has told me that there is nothing to do but watch it. If it gets bigger and more bothersome (hard time swallowing, lots of coughing fits) they will remove it, which in turn means removing part of the thyroid an being on thyroid medicine for the rest of my life.

Is it worth having it removed do you think. I am hypo right now (I know I was hyper when I look back on it when I had my 2 baby girl). I have trouble with fatigue, I just can't seem to get motivated. I am gaining weight and having sugar cravings. I do not feel like myself at all and it is effecting me emotionally also. I have 3 daughters and after my 3 baby girl I started with the hypo. Its frustrating because you want to get up in the morning work out eat right and lose that weight but your body will not let you.

Anywho, I would be so grateful to anyone who could give me some advice on dealing with this, because at the moment I am not doing anything but living with it. Should I get the goiter taken out, get a second opinion ( I worry about it being cancerous) my doctor did not do a biobsy on the goiter.

I am so grateful to have found this thread.

Thank you,

Christina
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