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Old 08-01-2013, 12:49 AM   #2476
luvmarypoppins
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angwill - I am so glad you are home from the hosp and that you seem to be doing really well. So good you didnt have much bleeding.

The voice will come back in time. Just dont push it.

My voice is still not good at times but I had so much surgical trauma and damage. Glad you didnt read this whole thread or you would have seen that I almost died during my surgery and was in a coma. And my dr. does over 100 of these a year! But my ca was pretty huge and spread.

Well onto the next step for you. The wonderful diet. I dont know if you are going the withdrawl route (cant help you there as I had thyrogen or the thyrogen route).

I think we will all tell you to do the diet.

Its a good time to do it as there are many fresh fruits and vegetables you can pick from.

Micayla has a lot of yummy ideas.

Christine has one of her recipes in the LID cookbook.

My LID was really restrictive. It was a combination of the thyca lid, the nih diet and my radiation oncologists own diet.

They say most people lose 10 lbs. on the diet.

So now you wait to see what type you have and how much rai you are getting, but in the meantime rest up!

So glad you are home. Take it easy, One day at a time.
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Old 08-01-2013, 08:35 AM   #2477
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What diet? I think I missed something.

The "voice" - ah..... Brings back a flood of memories......

Before "the Internet" hubby & I sat pouring over medical books in the local college's library, educating ourselves on thyroid cancer.
I had an excellent surgeon. Cocky and arrogant in the way a person can be when they do know they ARE the best - not rude, just very confident.

The only time I saw him flinch was when I asked about complications of vocal chord damage. I said "I am a singer" and he looked at me & said "umm professionally ?" I said "I do get paid occasionally ";-)

He answered"well, we will do our best I promise"

When the chief resident came to check on me after surgery, I mentioned my speaking voice sounded the same. He said "oh, the surgeon said he had to be EXTRA careful, because he had a SINGER here!"

20 years later, I am still singing, and still sometimes getting paid. Lol. :-)
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Old 08-01-2013, 07:40 PM   #2478
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Singing mom- they are talking about the Low Iodine Diet for cancer patients.

Tests came back 99% for Down's. I'm pretty heartbroken. My DH is unfazed though. Not much rattles him.
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Old 08-01-2013, 07:54 PM   #2479
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Originally Posted by mrsklamc View Post
Singing mom- they are talking about the Low Iodine Diet for cancer patients.

Tests came back 99% for Down's. I'm pretty heartbroken. My DH is unfazed though. Not much rattles him.
((Hugs)).... My heart goes out to you. Downs children are especially loving and angelic. I pray you and your husband are blessed with support and love all around you...

"SingingMom" ....Sent from my iPad using DISBoards
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Old 08-01-2013, 10:54 PM   #2480
luvmarypoppins
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Originally Posted by mrsklamc View Post
Singing mom- they are talking about the Low Iodine Diet for cancer patients.

Tests came back 99% for Down's. I'm pretty heartbroken. My DH is unfazed though. Not much rattles him.
My thoughts and prayers are with you. Yes surround yourself with loving and supportive people and seek wise counsel.
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Old 08-02-2013, 10:02 AM   #2481
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Originally Posted by mrsklamc View Post
Tests came back 99% for Down's. I'm pretty heartbroken. My DH is unfazed though. Not much rattles him.

mrsklamc, I'm sorry that this didn't come out the way you hoped. I was really pulling for some sort of fluke. I guess you will have further tests to get something definitive?
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Old 08-02-2013, 03:32 PM   #2482
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mrsklamc, I'm sorry that this didn't come out the way you hoped. I was really pulling for some sort of fluke. I guess you will have further tests to get something definitive?
Probably. I do have some hope though:

http://online.wsj.com/article/SB1000...568615644.html

Even though it is statistically unlikely, I'm still holding out hope we're in that margin of error. Never prayed so much for anything in my life.

We'll decide on further testing after we speak with the Maternal Fetal Med specialist again.
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Old 08-02-2013, 09:11 PM   #2483
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After having hypo thyroid ...

for 3 years and being on meds for a year or so, I asked the endocronologist what causes this, she says "stress", when I asked my PCP (which I've since dumped) why I was losing so much hair, she says "stress".

I live a pretty easy life, don't have to work, easy going husband, not in debit etc,,,,don't consider myself to be stressed out.

Well, my latest blood work now shows that I have Hashimotos Disease. I'm guessing if I ask why I have this, the answer will be "stress". I really dislike that answer for everything!! Seems like a copout to me

Just wanted to vent a bit, thanks for listening.
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Old 08-03-2013, 06:02 AM   #2484
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for 3 years and being on meds for a year or so, I asked the endocronologist what causes this, she says "stress", when I asked my PCP (which I've since dumped) why I was losing so much hair, she says "stress".

I live a pretty easy life, don't have to work, easy going husband, not in debit etc,,,,don't consider myself to be stressed out.

Well, my latest blood work now shows that I have Hashimotos Disease. I'm guessing if I ask why I have this, the answer will be "stress". I really dislike that answer for everything!! Seems like a copout to me

Just wanted to vent a bit, thanks for listening.
You know, sometimes I really dislike doctors. That is such a ridiculous answer. While stress can exacerbate conditions and extreme stress can certainly cause your body harm, sometimes organs just fail. Hashimotos is an autoimmune disorder and you are genetically predisposed to that. There are millions of people with thyroid disorders of all sorts and I really don't believe that everyone is "stressed." I do believe that genetics and environmental factors (general diet, overall health, etc) play a bigger factor then just being a little whigged out here and there.
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Old 08-03-2013, 08:31 PM   #2485
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Thank you Christine...

I appreciate your response, I agree, sometimes I just don't like them either...

Of course when I see her again, I'll just look confrontantional if I say, so....I guess my hypo thyroid and hair loss may not have been caused by "stress" after all,

Well, maybe they will take me a little more seriously now, I don't know....
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Old 08-03-2013, 09:59 PM   #2486
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Quote:
Originally Posted by mrsklamc View Post
Probably. I do have some hope though:

http://online.wsj.com/article/SB1000...568615644.html

Even though it is statistically unlikely, I'm still holding out hope we're in that margin of error. Never prayed so much for anything in my life.

We'll decide on further testing after we speak with the Maternal Fetal Med specialist again.
You and your baby are in my prayers too.

Ang
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Old 08-03-2013, 10:10 PM   #2487
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Originally Posted by luvmarypoppins View Post
angwill - I am so glad you are home from the hosp and that you seem to be doing really well. So good you didnt have much bleeding.

The voice will come back in time. Just dont push it.

My voice is still not good at times but I had so much surgical trauma and damage. Glad you didnt read this whole thread or you would have seen that I almost died during my surgery and was in a coma. And my dr. does over 100 of these a year! But my ca was pretty huge and spread.

Well onto the next step for you. The wonderful diet. I dont know if you are going the withdrawl route (cant help you there as I had thyrogen or the thyrogen route).

I think we will all tell you to do the diet.

Its a good time to do it as there are many fresh fruits and vegetables you can pick from.

Micayla has a lot of yummy ideas.

Christine has one of her recipes in the LID cookbook.

My LID was really restrictive. It was a combination of the thyca lid, the nih diet and my radiation oncologists own diet.

They say most people lose 10 lbs. on the diet.

So now you wait to see what type you have and how much rai you are getting, but in the meantime rest up!

So glad you are home. Take it easy, One day at a time.
Well I realize I can not raise my voice at all. I guess it is good there is no need to shout anyway. I told the doctor to be careful with the voice since I have to sing DH to sleep at night. lol It doesn't seem too bad now but a bit lower.

I am glad I did not read of going into a coma because I was majorly stressed out and begging for the chicken exit at the operating room door. At least I made them laugh. lol

My doctors do the withdawl route not thyrogen. I did ask about it though. I will wait till my levels go down to start the diet and I will make a money bet I gain and not lose since my motabolism is screwed up big time. How many weeks of diet is normal? I never was one to use salt while cooking or anything but it is in everything anyway.

I am glad after all your trauma things turned out well for you.

Ang
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Old 08-03-2013, 11:33 PM   #2488
luvmarypoppins
I am debating whether to put a new one back on his
O.K. who is the sista here right now?
((Hug))
 
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Quote:
Originally Posted by desamnik View Post
for 3 years and being on meds for a year or so, I asked the endocronologist what causes this, she says "stress", when I asked my PCP (which I've since dumped) why I was losing so much hair, she says "stress".

I live a pretty easy life, don't have to work, easy going husband, not in debit etc,,,,don't consider myself to be stressed out.

Well, my latest blood work now shows that I have Hashimotos Disease. I'm guessing if I ask why I have this, the answer will be "stress". I really dislike that answer for everything!! Seems like a copout to me

Just wanted to vent a bit, thanks for listening.
So sorry you had to deal with all of that. My pcp was a totally poor diagnostician too. He just couldnt put all the puzzle pieces together about me either. He said its was good I was losing weight without dieting, that my itchy skin was an allergy (It was actually a bad b12 deficiency etc.), Even in the hospital he never had a specialist look at the one lump in my neck. Guess if he did he would have actually figured out I had cancer etc.

Well glad you got on the right track with the blood tests. I am seeing we have to advocate more for ourselves these days with healthcare.
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Old 08-03-2013, 11:51 PM   #2489
luvmarypoppins
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angwill - christine and micayla can tell you about withdrawl and anyone else who went that route.

The diet should be 2 weeks. The others were allowed to have things that I was not like regular water. I could only have distilled.

My advice is to eat what you really love before the diet, especially anything that is carbs or dairy because they are really restricted on the diet. I missed yogurt so much etc.

My normal lid diet was - banana for breakfast. A few times I gave in to the oatmeal. I dont really like it so I drowned it with pure maple syrup, walnuts, pecans, blueberries etc. I cooked it in the crockpot with cinnamon and apples too.

I liked to mix things up on the plate for color. If I was lazy I used the steamfresh no sauced vegetables.

My treat were the little bags of craisins, popcorn in the microwave in a brown paper bag, and matzoh (Thank God for living in NY - readily available) with natural peanut butter and nuts.

I also used no yolk noodles alot because I was really not allowed to have regular pasta.

Its not as bad as it sounds. If you like cooking or have a wonderful Prince Charming like Micaylas dh who actually cooked for her. My dh would burn water

For chinese food I just grilled chicken breast with orange marmalade and had the basmati rice (only one allowed for me) and some steamfresh veg.

So also if you like shrimp, fish etc, eat it now.

My ds loved me not having my voice. I had to clap for everyone if I needed something etc.

I am just thankful I am still alive. They said most people dont live after what happened to me. Also because of the cancer my surgeon had to cut my accessory nerve so I cant feel up to my L ear and I really cant use my L arm well from the elbow up but its all good. You just adjust. Also one of my vocal chords got bruised and then I had even more surgical trauma to my throat after I had to have an emergency bowel resection like a few days before I was suppose to start the diet, so there went the voice again. It still is not good at times. I have had many scopes and tests. It looks good on the inside they say but it gets tired alot.

So rest up and dont push the voice.
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Old 08-04-2013, 05:42 AM   #2490
Christine
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Quote:
Originally Posted by angwill View Post
My doctors do the withdawl route not thyrogen. I did ask about it though. I will wait till my levels go down to start the diet and I will make a money bet I gain and not lose since my motabolism is screwed up big time. How many weeks of diet is normal? I never was one to use salt while cooking or anything but it is in everything anyway.

Ang
Since I had thyroid cancer in the "dark ages" of the 1990s, there was no Thyrogen and I did withdrawal scans about 4 times. The first one is generally not too bad because you actually do have some working thyroid remnant in your body.

I didn't do the diet until later years because it wasn't invented when I was first treated. All they told me was to stay away from fast food for a week or so.

The diet usually goes for 2 weeks--the first week is practice and the second week is for "real" at least that's what one of the thyca.org doctors said. It takes about a week for the excess iodine to leave your body so 2 weeks is a bit overkill. I was told that if you are REALLY good about the diet, that one week is sufficient.

I haven't had to do it for awhile so luvmarrypoppins will have better guidance for you. There is also a LID cookbookd on the Thyca website so you can get some ideas.

If you can, make up a bunch of food now and freeze it. You will not feel like cooking during the time that you need to be on the diet since you will be truly hypo.

Every time I went hypo, I gained about 10 pounds but then lost it quickly once my meds were stabilized. I never felt like it was true "fat" or weight that I gained but more like fluid. The only exception was on the LID and then I did not gain weight at all. When I did the LID while using Thyrogen, then I lost about 6 lbs.
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