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Old 07-11-2013, 03:52 PM   #1
Earning My Ears
Join Date: Jul 2013
Posts: 28

Chronic Kidney/Ureterostomy Needs

This is our first trip to Walt Disney and I was wondering if anyone can provide some advice for us. We have a five year old who has chronic kidney disease and has an ureterostomy, which means her urine comes straight from her kidneys into a pull-up. We are hoping to attend from 9/21-9/28 (starting the parks on Sunday the 22nd). The only place we have taken her where she has to do a lot of walking is the NC ZOO which is nothing compared to this and she did fine but it was well shaded. (SHE DOSEN”T LIKE THE STROLLER IDEA)! She says she is a big girl now… Any tips you can provide to help me keep her hydrated, what WDW has to offer to help her enjoy this week and what are the best restrooms because we change her about every couple of hours. We are planning to visit every park once, but MK which will be for 3 days. We are planning brakes; naps and not a high pace “race” if you will running from here and there for FP. Our approach is do the most popular first obtain a FB right after the right for a second right and go with the flow. I was wondering also would it be better to bring her stroller or rent one. Also she has a Shellfish allergy which I have had noted in our ADR’s, other than reminding them when we arrive for our meal is there anything else we need to do to make sure she is safe.
We also have a healthy seven year old, who is going to want to GO GO GO– because she loves rides.
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