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Old 05-09-2013, 11:34 AM   #331
TLSnell1981

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Oh please, let's not get this thread shut down.

The update tonight was very 'real' and more descriptive then any update before.

When reading it, you can almost feel Chase' fight. He's in there. He's putting up a fight. Little sweet boy. He got a hair cut.
Put them on ignore and do not respond.
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Old 05-22-2013, 05:17 PM   #332
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Looks like, Chase will going home soon.
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Old 05-22-2013, 05:22 PM   #333
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Looks like, Chase will going home soon.
Where did you hear that good news...I could not find it anywhere on FB or CB.
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Old 05-22-2013, 05:58 PM   #334
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Where did you hear that good news...I could not find it anywhere on FB or CB.
In the latest post she wrote about ordering a bed, stander, and wheelchair! All that is necessary to care for him at home.
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Old 05-22-2013, 06:03 PM   #335
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I've been reading the parents blog, and as much as I truly want to believe in miracles, do you think they kind of have false hope for a full recovery? They have such an upbeat positive attitude, which is so admirable, but I don't know if it's realistic? I guess it's the only thing getting them thru this hell? I can't even imagine.
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Old 05-22-2013, 06:12 PM   #336
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I've been reading the parents blog, and as much as I truly want to believe in miracles, do you think they kind of have false hope for a full recovery? They have such an upbeat positive attitude, which is so admirable, but I don't know if it's realistic? I guess it's the only thing getting them thru this hell? I can't even imagine.
I follow them daily too. I don't get the feeling that they are "expecting" a full recovery, though we all hope for that miracle. I feel that they are praying for a two way emotional connection, that they can see Chase communicating with them in one way or another. That he can show them what he wants and what he is thinking. He is making great improvements for what was expected in the first place. I have been very amazed. God Bless that little boy and his family.
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Old 05-22-2013, 06:52 PM   #337
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I follow them daily too. I don't get the feeling that they are "expecting" a full recovery, though we all hope for that miracle. I feel that they are praying for a two way emotional connection, that they can see Chase communicating with them in one way or another. That he can show them what he wants and what he is thinking. He is making great improvements for what was expected in the first place. I have been very amazed. God Bless that little boy and his family.
Okay, that explains it a little better for me, thanks. I just was hoping they are not waiting for this huge miracle, and were in for a big disappointment. But that's a good way of looking at their situation.
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Old 05-22-2013, 07:09 PM   #338
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I have also been following the daily updates on Caring Bridge. As a nurse, I know what a long road they are in for...a lifetime really. I really feel for him and his family. It's type of thing really makes you appreciate all of the little stuff...
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Old 05-22-2013, 07:14 PM   #339
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Come on little Guy. keeping fighting!

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Old 05-22-2013, 07:33 PM   #340
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Come on little Guy. keeping fighting!

AKK
Sounds like he had a good day today. They are beginning to get things ready for him to bring him home.

He's a fighter! From their FB page: (I added the paragraph breaks)

"This morning before school and my drive up to the hospital I took Tanner and Ava for a special breakfast at Edelweiss Bakery for their favorite donut and chocolate chip cookie. We decided to get Chase his raised donut with chocolate frosting. He loved to just eat all the frosting off of the donut and of course just throw the rest away. It was so messy, chocolate would cover his face. I used to get so upset and ask him to take a bite and eat the whole thing but he would just say, "no mom I don't like donuts". What I would give to hear that phrase again, but I did get to see the look of the chocolate all over his face because his therapist decided to let him taste it in his therapy session. Chase loved it just like I knew he would. We got a couple of strong swallows out of him. I was hoping for more but a couple is still good.

In PT/OT Chase got to listen to his playlist mommy and daddy created for him on my Iphone. The only way he could listen is by pushing the famous big red button. Again he did a good job pushing the it. According to his OT therapist Chase is doing what is called "processing". He will close his eyes, move his arm toward the button slowly, open his eyes and then his arm begins to twitch, which shows he his following commands. And to top it off our little fighter is working against gravity which is even harder for him.

After therapy we had a meeting to order the things that are necessary for Chase to go home. Bed, wheelchair, stander, and bathtub accessories. Chris offered his opinion on the color of the wheelchair but the Sioux green did not make the cut. He settled for the Logo to be stitched on the back of the chair instead. Hopefully that will give Chase a little extra fighting spirit to ditch the wheels and be able to walk on his own.......

He is know resting soundly in his bed as we wait for some friends to visit. Here is to a great night and making it 5 nights in a row of sleeping soundly. Also, looking forward to our bi-weekly meeting with the doctors tomorrow. Wish us luck!!!! God is Good"
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Old 05-22-2013, 08:41 PM   #341
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I have also been following the daily updates on Caring Bridge. As a nurse, I know what a long road they are in for...a lifetime really. I really feel for him and his family. It's type of thing really makes you appreciate all of the little stuff...
I am also an RN (haven't practiced in many years), I guess that is why I understand the harsh reality of their situation. And I get frustrated a little reading their updates, when I feel like they're not expressing their true emotions. I guess that's not for us to see and why we need to pray for them even harder, because they need to hold it all together, or else they'd never get thru this nightmare. I just want to ball my eyes out for their loss!! What a sad, sad tragedy.
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Old 05-22-2013, 09:26 PM   #342
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I am also an RN (haven't practiced in many years), I guess that is why I understand the harsh reality of their situation. And I get frustrated a little reading their updates, when I feel like they're not expressing their true emotions. I guess that's not for us to see and why we need to pray for them even harder, because they need to hold it all together, or else they'd never get thru this nightmare. I just want to ball my eyes out for their loss!! What a sad, sad tragedy.
I know what you mean. I am a speech therapist and worked in a clinical/rehab educational setting and had many students like Chase. He is receiving state-of-the-art therapy and I pray that he receives the same type of therapy in his educational setting. I know his parents agreed to only focus on the positive - they have to or it would be overwhelmingly sad. Chase and his family remain in my thoughts and prayers each and every day.
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Old 05-25-2013, 07:26 PM   #343
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The family just posted a very short video of Chase. He looks MUCH better than I thought he would.
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Old 05-25-2013, 07:39 PM   #344
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The family just posted a very short video of Chase. He looks MUCH better than I thought he would.
Soooo cute!! Pedaling away and a smile too ! Go Chase!!
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Old 05-25-2013, 07:48 PM   #345
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The family just posted a very short video of Chase. He looks MUCH better than I thought he would.
I'm not seeing the video on the Caring Bridge, could you provide a link please?
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